Re: Spain: ME, CFS, FM Update

[Guest guest]

It's nice to know a bit of progress is being made somewhere like this. Perhaps

if it works in Spain it will catch on in other places. Hopefully!

Dorie

Spain: ME, CFS, FM Update

Dear friends and colleagues far and near,

[Guest guest]

Glad I can be of help. I think that I do have M.E. I have so many of the

symptoms but then again Fibro lists so many as well. I suffer from Vertigo,

Gastro problems, hear beats like it is going to jump out of my chest. I don't

know what to do. What Dr. should I talk to ? My Rheumatologist? Well, my back

is

really bad today and my daughter is coming in tomorrow late afternoon. I

feel bad that I just can't do all the running around that I know she would like

to do. She grew up knowing I was sick. Well, I guess she was about 13 or so.

But after my divorce she really was a big help. I feel guilty that she has a

Mom that is sick. Oh well. Glad the info can be of help.

Blair

[Guest guest]

Hi Blair, well I have been through huge guilt over bringing my kids up while

sick and disabled. But, you know what? I love 'em, which is more than a lot

of kids get, and they are grown up and doing well, so there! It was #@$% &

hard though.Your daughter is lucky to have you. In fact my daughter is

coming to see me next week, and I have advised her that it may be a taxi

from the ferry to me if I can't drive, and probably a whole lotta lying

around watching movies (what else is new?) Aylwin xo

[Guest guest]

Ahh yes well here it is 2 p.m. and I am dressed and a bit anxious about

driving. But I can't afford a taxi for her so I will be leaving earlier even

thou

it is usually only a half hour ride but then again Interstate 95 is the only

South /north route unless I take the Florida turnpike but that is way west

of me. So will just leave early in case of traffic, always doing some kind of

construction. Just say a prayer I get there safe and sound. Yes, my daughter

is a great kid but I still feel bad that I can't do the things I would like

to with her.

Blair

[Guest guest]

Me too on the guilt train........my youngest was only 7 when this started, but

you know what? I think she has learned to be more accepting of people with ANY

kind of disability, she is more loving, more caring, more patient and is a

defender of " those " kids in school, the ones that people bully becuz they are

different in some medical way. She stands up for them, feels protective of

them............and she may not have been like that if it weren't for me having

this......I dunno........

So in some small way, we have provided our kids with the ability to be

compassionate, more understanding and hopefully, less judgemental. That just

CAN'T be a bad thing.....

STL Jane

Aylwin wrote:

Hi Blair, well I have been through huge guilt over bringing my kids up

while

sick and disabled. But, you know what? I love 'em, which is more than a lot

of kids get, and they are grown up and doing well, so there! It was #@$% &

hard though.Your daughter is lucky to have you.

[Guest guest]

My mother was disabled with back stuff when I was a kid and depression.

I think as a kid I was very impatient and didn't believe she couldn't do

stuff that she said she couldn't do (like helping clean). Anyway, when

I was in my 20's she was diagnosed with MS. We hadn't had much of a

relationship since I was 15 due to horrible divorce between my parents.

Anyway, her MS progressed very quickly and she suffered extreme pain. I

didn't have the patience to deal with her complaining over and over on

the phone about how awful she felt. We weren't getting along and I

resented her intrusion into my very unhappy life and didn't truly

believe her. I went to see her at my therapist's suggestion as she did

report getting sicker. We actually had our first real conversation

since the separation. I felt like we could possibly start a

relationship and actually seeing in person the level of pain that she

was in made me know it was quite real. She died two weeks later,

possibly naturally, possibly with help. I really regret, now being

sick, how I treated her. But I think it took me being this ill to

understand what she was going through and how depressed she really was.

At the time MS was not acknowledged like it is now and so she too had to

deal with an illness that was not respected much. I wish I hadn't had

to get sick to learn this lesson and wish we could have made peace long

before that as now I really miss having a mother. I was 30 when she

died. At the time I was working as a speech therapist with adults with

brain injuries. Even that didn't make me understand what she was going

through.

I think it is wonderful that your daughter is accepting even though it

is unfortunate she had to have an ill mom to teach her that. You are

lucky to have a wonderful kid.

Sandrea

Re: Spain: ME, CFS, FM Update

Me too on the guilt train........my youngest was only 7 when this

started, but you know what? I think she has learned to be more accepting

of people with ANY kind of disability, she is more loving, more caring,

more patient and is a defender of " those " kids in school, the ones that

people bully becuz they are different in some medical way.

[Guest guest]

Here's hoping your journey to the airport and home was a safe and stress

free one and you and your daughter are starting a nice visit.

Sandrea

[Guest guest]

Hi Blair, I hope the drive went well for you. I hope that you can forget

what you can't do and just enjoy her company. My daughter's coming down next

week and I'm so looking forward to it! Take Care, Aylwin xo

[Guest guest]

Blair,

I am sure you are probably back by now. But, I hope you had an uneventful

and easy drive. I so understand how you feel about not being up to the

things you would like to do with your daughter. I feel the same way about

mine. I feel bad for her that she has to deal with me. Enjoy your visit!

English

Re: Spain: ME, CFS, FM Update

Ahh yes well here it is 2 p.m. and I am dressed and a bit anxious about

driving. But I can't afford a taxi for her so I will be leaving earlier

even thou

it is usually only a half hour ride but then again Interstate 95 is the

only

South /north route unless I take the Florida turnpike but that is way west

of me.

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

My daughter arrived safe and sound. We went to the supermarket and by the

time I was half way done well back is giving me major pain. Came home and took

a muscle relaxor. Would you believe right now she is doing all of my ironing.

I didn't even have to ask. She offered. What a great daughter I have.

Nervous thou as I haven't received my alimony check and I have to pay rent and

bills. In a panic, not what I need. Thanks.

Blair

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>

[Guest guest]

Hi Blair,

I pray you can relax and have an excellent visit!

My daughter came for a rare visit and dinner and doggonit, she got

another kidney staghorn, was unable to eat and had to go back to her

state to hospital. Reason for that is because she has a rare kidney

disease. Her stones are not the typical seen and the last staghorn

she had removed took up 7 8's of the size of her kidney! She can only

go thru that so many times before she needs a transplant.

I certainly do not mean to take away from your joy with your

daughter..but my point is " ENJOY and DON'T WASTE A SINGLE MOMENTL " as

none of us have guarantee of tomorrow.

God Bless You Blair and Best to your loved ones too!

> Hi Blair, I hope the drive went well for you. I hope that you can

forget

> what you can't do and just enjoy her company. My daughter's coming

down next

> week and I'm so looking forward to it! Take Care, Aylwin xo

>