Re: Possible First Seizure

[Guest guest]

,

I am not an expert at seizures in any way, but it sounds like that

is what Evan had. My daughter began having the staring

seizures for the first time this year. She didn't choke or gag

during or after them, but she did go into a trance from which you

could not get her attention (for about a minute). Afterward, she

was very " floppy " and tired. My sister has told me that the best way

to tell with the staring seizures is that you really can't get their

attention - again, this is layman's view.

You will feel better once you see your neurologist and possibly get

Evan on an anti-seizure medicine. We have had not more issues with

since she has been on the medicine.

Hope this helps,

Sara

>

> Hi all,

>

> My son Evan is 3yrs old and has bilateral perisylvan

polymicrogyria

> resulting left sided hemiplegia cerebral palsy. He had an EEG in

> August of 2005 that was abnormal, then in March 2006 we had a 72hr

> sleep study EEG and the neurologist told us that he has spikes

that

> have the possibility to become seizures but that was mainly during

> his sleep. Let me explain what happened yesterday and why I think

> perhaps this was a seizure of some sort.

>

> We had an appt at Shriner's and he fell asleep on the drive home,

my

> husband took him inside and I left with our older son to go to a

> dentist appt. My husband called about 45 minutes later and said he

> thinks Evan had a staring seizure. Apparently Evan was laying on

my

> husband's chest sleeping and then he starting gagging so my

husband

> put him sitting up on the floor with a towel in front of him while

> he went to the bathroom and made a phone call. My 16yr old

> stepdaughter was watching him for a few minutes and said he was

just

> staring at the couch with his hand up like he wanted to touch it

but

> did not, my husband came in and saw this and picked Evan up and

said

> Evan are you Ok?, no response from Evan and he would not even look

> at my husband, my husband repeatedly called his name for about 30

> second to 1minute w/o any response. Finally Evan came out of it

and

> then he spent the next hour or so crying, laying on the couch,

then

> wanting to be in our arms, he would close his eyes like he was

> asleep and then open them again and cry, refused his milk which is

> not at all like him, refused to eat pizza which he loves, then

> finally he took my hand and walked down the hall not very straight

> and walked into my bedroom and I said Evan do you want to lay in

> Mama's bed and he put his arms up, I laid him in bed and laid down

> with him and was asleep within 10 minutes and he slept for the

next

> 4hrs. Also during this whole time he had been gagging and also

> vomitted 3 times, once while he was sleeping, he woke up to vomit

> and then was back asleep instantly. He then woke up and was

entirely

> back to himself, ready to eat and drink, he stayed up for a couple

> hours and then came back to sleep until the morning around 730am

and

> he is acting fine now.

>

> I was looking up info regarding seizures on line and I think there

> is a seizure that involves staring and then gagging or crying. If

> this was a seizure then I think it lasted about 90 minutes off and

> on and concluded with the vomitting during sleep. I am more

> convinced that it was a seizure because of how he woke up after

4hrs

> of sleep acting like himself as if nothing happened. That time

when

> he was crying, gagging and acting lethargic was not normal at all.

> So my plan of action is to call the neurologist and see what he

> says.

>

> Thanks for reading

> mom to Evan LH, BPP 3yrs

>

[Guest guest]

The fact that he did not respond to his name made me suspicious and then the way

he was acting and how he slept and then woke up as his normal self has confirmed

my suspicions and of course I am no expert but I am his mom and that counts for

something. I called the dr. and had to leave a message.

Thanks

sarachizzo wrote:

,

I am not an expert at seizures in any way, but it sounds like that

is what Evan had. My daughter began having the staring

seizures for the first time this year. She didn't choke or gag

during or after them, but she did go into a trance from which you

could not get her attention (for about a minute). Afterward, she

was very " floppy " and tired. My sister has told me that the best way

to tell with the staring seizures is that you really can't get their

attention - again, this is layman's view.

You will feel better once you see your neurologist and possibly get

Evan on an anti-seizure medicine. We have had not more issues with

since she has been on the medicine.

Hope this helps,

Sara

>

> Hi all,

>

> My son Evan is 3yrs old and has bilateral perisylvan

polymicrogyria

> resulting left sided hemiplegia cerebral palsy. He had an EEG in

> August of 2005 that was abnormal, then in March 2006 we had a 72hr

> sleep study EEG and the neurologist told us that he has spikes

that

> have the possibility to become seizures but that was mainly during

> his sleep. Let me explain what happened yesterday and why I think

> perhaps this was a seizure of some sort.

>

> We had an appt at Shriner's and he fell asleep on the drive home,

my

> husband took him inside and I left with our older son to go to a

> dentist appt. My husband called about 45 minutes later and said he

> thinks Evan had a staring seizure. Apparently Evan was laying on

my

> husband's chest sleeping and then he starting gagging so my

husband

> put him sitting up on the floor with a towel in front of him while

> he went to the bathroom and made a phone call. My 16yr old

> stepdaughter was watching him for a few minutes and said he was

just

> staring at the couch with his hand up like he wanted to touch it

but

> did not, my husband came in and saw this and picked Evan up and

said

> Evan are you Ok?, no response from Evan and he would not even look

> at my husband, my husband repeatedly called his name for about 30

> second to 1minute w/o any response. Finally Evan came out of it

and

> then he spent the next hour or so crying, laying on the couch,

then

> wanting to be in our arms, he would close his eyes like he was

> asleep and then open them again and cry, refused his milk which is

> not at all like him, refused to eat pizza which he loves, then

> finally he took my hand and walked down the hall not very straight

> and walked into my bedroom and I said Evan do you want to lay in

> Mama's bed and he put his arms up, I laid him in bed and laid down

> with him and was asleep within 10 minutes and he slept for the

next

> 4hrs. Also during this whole time he had been gagging and also

> vomitted 3 times, once while he was sleeping, he woke up to vomit

> and then was back asleep instantly. He then woke up and was

entirely

> back to himself, ready to eat and drink, he stayed up for a couple

> hours and then came back to sleep until the morning around 730am

and

> he is acting fine now.

>

> I was looking up info regarding seizures on line and I think there

> is a seizure that involves staring and then gagging or crying. If

> this was a seizure then I think it lasted about 90 minutes off and

> on and concluded with the vomitting during sleep. I am more

> convinced that it was a seizure because of how he woke up after

4hrs

> of sleep acting like himself as if nothing happened. That time

when

> he was crying, gagging and acting lethargic was not normal at all.

> So my plan of action is to call the neurologist and see what he

> says.

>

> Thanks for reading

> mom to Evan LH, BPP 3yrs

>

Mom 2 Evan Left Spastic Hemiplegia 3yrs old, 6.5yrs nda and SM to

15.5yrs

www.justinichfamily.blogspot.com

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

... It definately sounds like a seizure... 's seizures came on

strong, similarly, around the same age. Especially since the EEG was

abnormal... its not surprising... he should probably be a candidate for seizure

control medication...because they can become more severe... but it sounds like

you are on top things. Try not to panick, seizures are not the end of the

world...in most cases, can be controlled... God bless.

, Mom to , age 9, Bilateral Diffuse PMG

sarachizzo wrote:

,

I am not an expert at seizures in any way, but it sounds like that

is what Evan had. My daughter began having the staring

seizures for the first time this year. She didn't choke or gag

during or after them, but she did go into a trance from which you

could not get her attention (for about a minute). Afterward, she

was very " floppy " and tired. My sister has told me that the best way

to tell with the staring seizures is that you really can't get their

attention - again, this is layman's view.

You will feel better once you see your neurologist and possibly get

Evan on an anti-seizure medicine. We have had not more issues with

since she has been on the medicine.

Hope this helps,

Sara

>

> Hi all,

>

> My son Evan is 3yrs old and has bilateral perisylvan

polymicrogyria

> resulting left sided hemiplegia cerebral palsy. He had an EEG in

> August of 2005 that was abnormal, then in March 2006 we had a 72hr

> sleep study EEG and the neurologist told us that he has spikes

that

> have the possibility to become seizures but that was mainly during

> his sleep. Let me explain what happened yesterday and why I think

> perhaps this was a seizure of some sort.

>

> We had an appt at Shriner's and he fell asleep on the drive home,

my

> husband took him inside and I left with our older son to go to a

> dentist appt. My husband called about 45 minutes later and said he

> thinks Evan had a staring seizure. Apparently Evan was laying on

my

> husband's chest sleeping and then he starting gagging so my

husband

> put him sitting up on the floor with a towel in front of him while

> he went to the bathroom and made a phone call. My 16yr old

> stepdaughter was watching him for a few minutes and said he was

just

> staring at the couch with his hand up like he wanted to touch it

but

> did not, my husband came in and saw this and picked Evan up and

said

> Evan are you Ok?, no response from Evan and he would not even look

> at my husband, my husband repeatedly called his name for about 30

> second to 1minute w/o any response. Finally Evan came out of it

and

> then he spent the next hour or so crying, laying on the couch,

then

> wanting to be in our arms, he would close his eyes like he was

> asleep and then open them again and cry, refused his milk which is

> not at all like him, refused to eat pizza which he loves, then

> finally he took my hand and walked down the hall not very straight

> and walked into my bedroom and I said Evan do you want to lay in

> Mama's bed and he put his arms up, I laid him in bed and laid down

> with him and was asleep within 10 minutes and he slept for the

next

> 4hrs. Also during this whole time he had been gagging and also

> vomitted 3 times, once while he was sleeping, he woke up to vomit

> and then was back asleep instantly. He then woke up and was

entirely

> back to himself, ready to eat and drink, he stayed up for a couple

> hours and then came back to sleep until the morning around 730am

and

> he is acting fine now.

>

> I was looking up info regarding seizures on line and I think there

> is a seizure that involves staring and then gagging or crying. If

> this was a seizure then I think it lasted about 90 minutes off and

> on and concluded with the vomitting during sleep. I am more

> convinced that it was a seizure because of how he woke up after

4hrs

> of sleep acting like himself as if nothing happened. That time

when

> he was crying, gagging and acting lethargic was not normal at all.

> So my plan of action is to call the neurologist and see what he

> says.

>

> Thanks for reading

> mom to Evan LH, BPP 3yrs

>

In the middle of a difficulty lies opportunity.

Einstein, Albert

[Guest guest]

Hi ,

's seizure activity started around the age of 3 as well. How we knew

for sure they were seizures was the uncontrollable crying afterwards and then

the 3 hours of sleep. We got an inconclusive EEG so at that time we did not

start seizure meds. Then about the age of 4 started having grand mal

seizures. He has been on Depakote ever since. has had many different

types of seizures..........staring spells, petit mal & grand mal(<----not for 3

years now for the grand mal) 's Dad sometimes says " oh, that is not a

seizure but 's Neurologist has always told me.........my mother instincts

are correct. I would always have Diastat(valium) on hand as well.

Blessings,

Sharon

gabeandevansmom wrote:

Hi all,

My son Evan is 3yrs old and has bilateral perisylvan polymicrogyria

resulting left sided hemiplegia cerebral palsy. He had an EEG in

August of 2005 that was abnormal, then in March 2006 we had a 72hr

sleep study EEG and the neurologist told us that he has spikes that

have the possibility to become seizures but that was mainly during

his sleep. Let me explain what happened yesterday and why I think

perhaps this was a seizure of some sort.

We had an appt at Shriner's and he fell asleep on the drive home, my

husband took him inside and I left with our older son to go to a

dentist appt. My husband called about 45 minutes later and said he

thinks Evan had a staring seizure. Apparently Evan was laying on my

husband's chest sleeping and then he starting gagging so my husband

put him sitting up on the floor with a towel in front of him while

he went to the bathroom and made a phone call. My 16yr old

stepdaughter was watching him for a few minutes and said he was just

staring at the couch with his hand up like he wanted to touch it but

did not, my husband came in and saw this and picked Evan up and said

Evan are you Ok?, no response from Evan and he would not even look

at my husband, my husband repeatedly called his name for about 30

second to 1minute w/o any response. Finally Evan came out of it and

then he spent the next hour or so crying, laying on the couch, then

wanting to be in our arms, he would close his eyes like he was

asleep and then open them again and cry, refused his milk which is

not at all like him, refused to eat pizza which he loves, then

finally he took my hand and walked down the hall not very straight

and walked into my bedroom and I said Evan do you want to lay in

Mama's bed and he put his arms up, I laid him in bed and laid down

with him and was asleep within 10 minutes and he slept for the next

4hrs. Also during this whole time he had been gagging and also

vomitted 3 times, once while he was sleeping, he woke up to vomit

and then was back asleep instantly. He then woke up and was entirely

back to himself, ready to eat and drink, he stayed up for a couple

hours and then came back to sleep until the morning around 730am and

he is acting fine now.

I was looking up info regarding seizures on line and I think there

is a seizure that involves staring and then gagging or crying. If

this was a seizure then I think it lasted about 90 minutes off and

on and concluded with the vomitting during sleep. I am more

convinced that it was a seizure because of how he woke up after 4hrs

of sleep acting like himself as if nothing happened. That time when

he was crying, gagging and acting lethargic was not normal at all.

So my plan of action is to call the neurologist and see what he

says.

Thanks for reading

mom to Evan LH, BPP 3yrs

[Guest guest]

Hi ,

My son also started with staring spells when his seizures first started we

could also get no response off him when we called his name, but they were defo

seizures!! after many years of seizures now he also sounds like he is gagging

during one of his more severe seizures but is never actually sick, he wont eat

or drink and is very unstable on his feet and then sleeps for sometimes 3 hrs at

a time.

seizures do have a massive impact on everyone's life but aren't the end of the

world, i hope Evan is one of the lucky ones that gain full control with meds.

sadly we've not been so lucky, but is still a shinning star and a joy to

have around (most of the time)lol

Good luck and keep us posted as to what the doctors say.

Hugs to all our special angels

mum to 7yrs Polymicrogyria/lissencephaly.XXXX

To: polymicrogyria@...: gabeandevansmom@...: Thu, 3

Jan 2008 17:37:49 +0000Subject: Possible First Seizure

Hi all, My son Evan is 3yrs old and has bilateral perisylvan polymicrogyria

resulting left sided hemiplegia cerebral palsy. He had an EEG in August of 2005

that was abnormal, then in March 2006 we had a 72hr sleep study EEG and the

neurologist told us that he has spikes that have the possibility to become

seizures but that was mainly during his sleep. Let me explain what happened

yesterday and why I think perhaps this was a seizure of some sort. We had an

appt at Shriner's and he fell asleep on the drive home, my husband took him

inside and I left with our older son to go to a dentist appt. My husband called

about 45 minutes later and said he thinks Evan had a staring seizure. Apparently

Evan was laying on my husband's chest sleeping and then he starting gagging so

my husband put him sitting up on the floor with a towel in front of him while he

went to the bathroom and made a phone call. My 16yr old stepdaughter was

watching him for a few minutes and said he was just staring at the couch with

his hand up like he wanted to touch it but did not, my husband came in and saw

this and picked Evan up and said Evan are you Ok?, no response from Evan and he

would not even look at my husband, my husband repeatedly called his name for

about 30 second to 1minute w/o any response. Finally Evan came out of it and

then he spent the next hour or so crying, laying on the couch, then wanting to

be in our arms, he would close his eyes like he was asleep and then open them

again and cry, refused his milk which is not at all like him, refused to eat

pizza which he loves, then finally he took my hand and walked down the hall not

very straight and walked into my bedroom and I said Evan do you want to lay in

Mama's bed and he put his arms up, I laid him in bed and laid down with him and

was asleep within 10 minutes and he slept for the next 4hrs. Also during this

whole time he had been gagging and also vomitted 3 times, once while he was

sleeping, he woke up to vomit and then was back asleep instantly. He then woke

up and was entirely back to himself, ready to eat and drink, he stayed up for a

couple hours and then came back to sleep until the morning around 730am and he

is acting fine now. I was looking up info regarding seizures on line and I think

there is a seizure that involves staring and then gagging or crying. If this was

a seizure then I think it lasted about 90 minutes off and on and concluded with

the vomitting during sleep. I am more convinced that it was a seizure because of

how he woke up after 4hrs of sleep acting like himself as if nothing happened.

That time when he was crying, gagging and acting lethargic was not normal at

all. So my plan of action is to call the neurologist and see what he says.

Thanks for reading mom to Evan LH, BPP 3yrs

_________________________________________________________________

Get Hotmail on your mobile, text MSN to 63463!

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[Guest guest]

We too have not been successful controlling our son's seizures.

He started having them at 6 months old. Many meds have been tried to no avail.

Currently we are catching approx 2 a week with many small ones we do not " see " .

VNS, KETO diet and surgery are the next suggestions for possible total control.

Problem is that after you've failed 3 or more meds, total control isn't so

likely.

So do we have it at the best it will be as some neuros suggest or become more

evasive and try other avenues with no guarantee it will work?

Decisions, decisions....................

Donna(mom to Trevor, 12 yrs old BPNH-PMG and more)

Rockville, land USA

Possible First Seizure

Hi all, My son Evan is 3yrs old and has bilateral perisylvan polymicrogyria

resulting left sided hemiplegia cerebral palsy. He had an EEG in August of 2005

that was abnormal, then in March 2006 we had a 72hr sleep study EEG and the

neurologist told us that he has spikes that have the possibility to become

seizures but that was mainly during his sleep. Let me explain what happened

yesterday and why I think perhaps this was a seizure of some sort. We had an

appt at Shriner's and he fell asleep on the drive home, my husband took him

inside and I left with our older son to go to a dentist appt. My husband called

about 45 minutes later and said he thinks Evan had a staring seizure. Apparently

Evan was laying on my husband's chest sleeping and then he starting gagging so

my husband put him sitting up on the floor with a towel in front of him while he

went to the bathroom and made a phone call. My 16yr old stepdaughter was

watching him for a few minutes and said he was just staring at the couch with

his hand up like he wanted to touch it but did not, my husband came in and saw

this and picked Evan up and said Evan are you Ok?, no response from Evan and he

would not even look at my husband, my husband repeatedly called his name for

about 30 second to 1minute w/o any response. Finally Evan came out of it and

then he spent the next hour or so crying, laying on the couch, then wanting to

be in our arms, he would close his eyes like he was asleep and then open them

again and cry, refused his milk which is not at all like him, refused to eat

pizza which he loves, then finally he took my hand and walked down the hall not

very straight and walked into my bedroom and I said Evan do you want to lay in

Mama's bed and he put his arms up, I laid him in bed and laid down with him and

was asleep within 10 minutes and he slept for the next 4hrs. Also during this

whole time he had been gagging and also vomitted 3 times, once while he was

sleeping, he woke up to vomit and then was back asleep instantly. He then woke

up and was entirely back to himself, ready to eat and drink, he stayed up for a

couple hours and then came back to sleep until the morning around 730am and he

is acting fine now. I was looking up info regarding seizures on line and I think

there is a seizure that involves staring and then gagging or crying. If this was

a seizure then I think it lasted about 90 minutes off and on and concluded with

the vomitting during sleep. I am more convinced that it was a seizure because of

how he woke up after 4hrs of sleep acting like himself as if nothing happened.

That time when he was crying, gagging and acting lethargic was not normal at

all. So my plan of action is to call the neurologist and see what he says.

Thanks for reading mom to Evan LH, BPP 3yrs

__________________________________________________________

Get Hotmail on your mobile, text MSN to 63463!

http://mobile.uk.msn.com/pc/mail.aspx

[Guest guest]

Chloe had absent seizures from birth or just after. At that time we did not

realise they were seizures. She went on to develop Tonic Clonic (grand mal)

seizures at about 3 years old and has had them since. She is largely controlled

by medication (she takes Topirimate and Lamotrogine, having tried Sodium

valporate and Keppra without success) she has buccal midazalam for those rare

seizures lasting over 5 mins.

Dom, father to Chloe, Cerebral palsy with four limb disorder secondary to

diffuse bilateral polymicrogyria, Severe development delay, epilepsy with

generalised and partial seizures, G

Tube, two ops on each hip. age 6

Possible First Seizure

Hi all,

My son Evan is 3yrs old and has bilateral perisylvan polymicrogyria

resulting left sided hemiplegia cerebral palsy. He had an EEG in

August of 2005 that was abnormal, then in March 2006 we had a 72hr

sleep study EEG and the neurologist told us that he has spikes that

have the possibility to become seizures but that was mainly during

his sleep. Let me explain what happened yesterday and why I think

perhaps this was a seizure of some sort.

We had an appt at Shriner's and he fell asleep on the drive home, my

husband took him inside and I left with our older son to go to a

dentist appt. My husband called about 45 minutes later and said he

thinks Evan had a staring seizure. Apparently Evan was laying on my

husband's chest sleeping and then he starting gagging so my husband

put him sitting up on the floor with a towel in front of him while

he went to the bathroom and made a phone call. My 16yr old

stepdaughter was watching him for a few minutes and said he was just

staring at the couch with his hand up like he wanted to touch it but

did not, my husband came in and saw this and picked Evan up and said

Evan are you Ok?, no response from Evan and he would not even look

at my husband, my husband repeatedly called his name for about 30

second to 1minute w/o any response. Finally Evan came out of it and

then he spent the next hour or so crying, laying on the couch, then

wanting to be in our arms, he would close his eyes like he was

asleep and then open them again and cry, refused his milk which is

not at all like him, refused to eat pizza which he loves, then

finally he took my hand and walked down the hall not very straight

and walked into my bedroom and I said Evan do you want to lay in

Mama's bed and he put his arms up, I laid him in bed and laid down

with him and was asleep within 10 minutes and he slept for the next

4hrs. Also during this whole time he had been gagging and also

vomitted 3 times, once while he was sleeping, he woke up to vomit

and then was back asleep instantly. He then woke up and was entirely

back to himself, ready to eat and drink, he stayed up for a couple

hours and then came back to sleep until the morning around 730am and

he is acting fine now.

I was looking up info regarding seizures on line and I think there

is a seizure that involves staring and then gagging or crying. If

this was a seizure then I think it lasted about 90 minutes off and

on and concluded with the vomitting during sleep. I am more

convinced that it was a seizure because of how he woke up after 4hrs

of sleep acting like himself as if nothing happened. That time when

he was crying, gagging and acting lethargic was not normal at all.

So my plan of action is to call the neurologist and see what he

says.

Thanks for reading

mom to Evan LH, BPP 3yrs

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