RE: Re:Guilty for my ENVY!! Anyone else experience this??

[Guest guest]

Thanks ..I did throw the magazine...it kept freaking me out to see the

picture of the little boy who once went to school with , and his Mom used

to be the friendliest and most down to earth person to talk to. Once they

got big money they disappeared, left the school system, and I hear he has

private " everything " .. but money can buy alot.

I keep praying and praying...and remembering through faith that without a test

we have no testimony...that God has provided for ...maybe not in luxurious

and perfect ways, but we are doing ok. Struggling... in debt... I can't work

even though I need to....and s medical condition changes daily.... but

somehow we get through each challenge with a deepened knowledge, and improved

strength and tenacity.

Money can't buy that.

But I can say one thing... and I mean it... if I were ever able to put a

heated in ground pool in my back yard, with a ramp designed for ease....with

fountains and a jacuzzi... I swear on my bible that I would invite all of our

other disabled friends over as much as they want. Because most of the kids I

know...like .. enjoy swimming if the water is warm.

And yes....our struggle continues. screamed all day, and isnt

tolerating feeds well... my husband threw his back out and is wiped out in bed

on pain meds...my 7 year old has a fever of 102...

Thanks for the message of strength. .... Mom to ... age 10,

bilateral PMG,

Luxmoore wrote:

Hi

Hmmm I hope I have some wisdom to impart. I have daughter, Ayla, who was

diagnosed with bilateral perisylvan pmg. She communicates with her eyes and

requires assistance from us (mum and dad) to move her around the house. We

also are 'strugglers' and in the last 3 months have just come out of quite a

deep hole (depression) over similar issues. Yes, it is normal to feel the

way that you do. We all feel that way at times however, 3 months ago I came

to realise how destructive this was to my own soul. Those people that seem

to be doing it easy are not even aware of the struggle you have within

yourself. Sometimes we (the strugglers) need to be the bigger people and

just 'make the decision' to not allow these feelings to take us over and

destroy our souls. Throw that magazine away, stop reading it and make a

decision! Every time those feelings rise within you..acknowledge that they

are normal feelings, that they are ok occasionally and then tell yourself

that that's enough - NO MORE is what I say to myself.

Sending you much love and crossing my fingers that you find the strength to

make a very difficult decision.

[Guest guest]

Hi ,

I only just picked up the e-mails which have obviously been coming in for a

few days.

We do all get this at some stage and I am sure it is a quite normal (and

healthy?) response. I have friends in the UK who got huge settlements from

the hospital. ly, I believe that if the child's suffering could have

been avoided, the settlements are well deserved. It does not stop me from

feeling furious for not having anyone to sue to get all we need for Finlay.

I very much concur what said, you have been an inspiration to many of

us over the last few years. Do not let a perfectly human reaction get you

down.

Love from Annelies & Finlay

Re: Re:Guilty for my ENVY!! Anyone else experience

this??