Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 I have read you mentioning in several emails your childs smile - that is our too It is infectious and her laugh is too (she started laughing again about 2 years ago) Her eyes are also very captivating and expressive for one who doesnt talk. And she too is a VERY happy little girl, which is such a blessing to us! You can check out some pics on our family blog if you like elkgrovejohnsons.blogspot.com ~carrie johnson mom to (5) and Tucker (2) > > Kathy-- > > I'm glad you found this group. Others will have far more info about > preemies and PMG/lissencephaly. My little guy was born more or less > at term. The horror stories are hard to read, but they don't > represent everyone or even most people's experiences. > > Quinn, at 28 mos., is happy, is on meds that work well for him, has > lots of therapies (feeding, speech, physical, occupational, neuro- > developmental, Special Ed, vision), makes progress on his own > trajectory, and is *happy*. His neurologist comments on this every > time we visit because Quinn's smile engages everyone and compels them > to reply in kind. > > I'm so sorry you and your family are feeling so lost. It's a > horrendous amount of information to take in and deal with, plus the > major adjustment of expectations on has for one's punkins..... The > enormity of it all is, well, enormous. > > You'll find lots of kind words, support, suggestions, and info from > experienced parents here. Hugs and blessings to you all -- > especially your sister (from one mama to another). > > You have my prayers. > > > mom to 5 > Quote Link to comment Share on other sites More sharing options...
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