Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Hello, saline sisters. I have recently told you that I have nine year old saline implants, and have been recently diagnosed with hypothyroid disease, in extremly dangerous levels, (tsh levels should be no higher than 5, and I am 75!) I have had to plan my explant because of this finding with Dr. Feng to a later date (this fall) so I can first get my levels somewhat deceit to handle surgery first. I was told that my antibodies for Hashimoto's Auto immune disease clearly indicate I have it. Has anyone heard if if hypthyroidism & implants go hand in hand and also any other sisters out there with this HashiMoto's? I hear alot of complaints or ill defined connective tissue disorders and rheumatiod arthritis, but not of this. Please help. Also, my password and id to get into the site will not work no matter how hard I try. Even tried to change them. Can I be sent another invitation into the group, so I can become a member again? I can't get on the site to catch up. Thnks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 I wanted to mention that I am in the process of adding 's story to our site also, it may take me a day or two to get it up, as I am still recovering from a cold. I will let everyone know when it is up and thank you to for taking the time to share her story with us. Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Hi , Thanks so much for sharing 's story with us. YOu gotta love some of these ped stories, huh? Man! She's a cutie . , mom to Hannah, DOCgrad Cape Cod, Ma --- In Plagiocephaly , " kelly " <docbandbabies@y...> wrote: > > Hi Everyone, > Oh my where do I start. is our miracle baby who > was never supposed to be here according to the doctors. She is a > fertilty pill baby and until 11 weeks into the pregnancy was one of > two. I miscarried one twin at that time, but beyond the odds > was a fighter. My pregnancy was normal by all acounts until the last > two months when I started having blood pressure problems. My water > broke in the hospital parking lot and from there the problems > started. I labored all night mostly knocked out with demeral and the > epidural. My blood pressure was getting dangerously high so they were > watching me pretty close. The one idiot nurse I had let my epidural > run dry, so at 7 centimeters I was now feeling every pain. I started > having breathing problems which soon turn life threatening. My doctor > flat out said we needed to get the baby out because I was quickly > going into complete respiratory failure and was losing oxygen > as well. So they whisked me off to surgery but not before the idiot > nurse ripped my cathater out fully inflated...OUCH!!!!. > was born quikly at 10:31am on 9/7/03. We believe > now her tort was caused by the quick delivery since she was already > engaged in the birth canal and they had to pull her back out. We > noticed her tilt pretty quickly and were told repeatedly that as she > grew stronger her neck would straighten. > On March 23, 2003 we took to the Doctor to check > her ears as she was getting over an ear infection. Her doctor asked > us at the end of the appointment if we ever sat up " cause her > head was awful flat " !!!! Now this is the same doctor we had been > questioning since was 4 weeks old about her neck and since > she was at least 4 months old about her increasingly flat head. We > had always been told by him that her head would round out as she > began to sit up. Well as we all know the tort kept her off balance > which in turn delayed her sitting up, which in turn attributed to her > Plagio/Brachy. > The doctor finally sent us to Dr. Hobar in Dallas at > Folgelson Center. Within 5 minutes we were told had tort and > Plagio/Brachy. We were sent to Cranial Tech for the DOC Band. > got her band on 5/07/04 and graduated on 7/23/04. > CT was awesome to us and worked hard to help us get all the info we > needed. It was Dr. Hobar office that lead us to this awesome site. > Our experience with the band was great. We had very little problems > with it and only had one red area that quickly went away. I must say > if we had to do it all over again we would in a heart beat. I have > talked to some of the most dedicated parents on this site and am > proud to tell people about it. > We still work hard on educating others about tort and > plagio. has been in our local paper and in the ECI > newsletter. The organizers at the hospital where my mother works has > asked us if we would like to be a part of their health fair this > coming summer. > If you want you can read more of 's story and see > all her pics on her web site at > www.babiesonline.com/babies/k/kathryn9703 Make sure to sign her > guestbook. > I hope I haven't bored you all to tears. If anyone has any > questions feel free to ask. > > in Texas > Mom to 9/7/03 DOC Grad 7/04 > Plagio/Brachy/Tort Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Hi , Thanks for sharing your story with us. is such a cutie-pie! Are you planning a trip to Dallas anytime soon? I would love to get the kids together! Take care- Jill and (12 mos, DOCgrad) Dallas --- In Plagiocephaly , " kelly " <docbandbabies@y...> wrote: > > Hi Everyone, > Oh my where do I start. is our miracle baby who > was never supposed to be here according to the doctors. She is a > fertilty pill baby and until 11 weeks into the pregnancy was one of > two. I miscarried one twin at that time, but beyond the odds > was a fighter. My pregnancy was normal by all acounts until the last > two months when I started having blood pressure problems. My water > broke in the hospital parking lot and from there the problems > started. I labored all night mostly knocked out with demeral and the > epidural. My blood pressure was getting dangerously high so they were > watching me pretty close. The one idiot nurse I had let my epidural > run dry, so at 7 centimeters I was now feeling every pain. I started > having breathing problems which soon turn life threatening. My doctor > flat out said we needed to get the baby out because I was quickly > going into complete respiratory failure and was losing oxygen > as well. So they whisked me off to surgery but not before the idiot > nurse ripped my cathater out fully inflated...OUCH!!!!. > was born quikly at 10:31am on 9/7/03. We believe > now her tort was caused by the quick delivery since she was already > engaged in the birth canal and they had to pull her back out. We > noticed her tilt pretty quickly and were told repeatedly that as she > grew stronger her neck would straighten. > On March 23, 2003 we took to the Doctor to check > her ears as she was getting over an ear infection. Her doctor asked > us at the end of the appointment if we ever sat up " cause her > head was awful flat " !!!! Now this is the same doctor we had been > questioning since was 4 weeks old about her neck and since > she was at least 4 months old about her increasingly flat head. We > had always been told by him that her head would round out as she > began to sit up. Well as we all know the tort kept her off balance > which in turn delayed her sitting up, which in turn attributed to her > Plagio/Brachy. > The doctor finally sent us to Dr. Hobar in Dallas at > Folgelson Center. Within 5 minutes we were told had tort and > Plagio/Brachy. We were sent to Cranial Tech for the DOC Band. > got her band on 5/07/04 and graduated on 7/23/04. > CT was awesome to us and worked hard to help us get all the info we > needed. It was Dr. Hobar office that lead us to this awesome site. > Our experience with the band was great. We had very little problems > with it and only had one red area that quickly went away. I must say > if we had to do it all over again we would in a heart beat. I have > talked to some of the most dedicated parents on this site and am > proud to tell people about it. > We still work hard on educating others about tort and > plagio. has been in our local paper and in the ECI > newsletter. The organizers at the hospital where my mother works has > asked us if we would like to be a part of their health fair this > coming summer. > If you want you can read more of 's story and see > all her pics on her web site at > www.babiesonline.com/babies/k/kathryn9703 Make sure to sign her > guestbook. > I hope I haven't bored you all to tears. If anyone has any > questions feel free to ask. > > in Texas > Mom to 9/7/03 DOC Grad 7/04 > Plagio/Brachy/Tort Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 - I read 's story that was just published in the HNF.org newsletter. What a wonderful article! Very articulate and very emotionally touching. He's so mature for his age. You must be very proud!!! - Perhaps your son would like to read this article? http://www.hnf-cure.org/members/articles/article_00347.php (MODERATOR'S NOTE): This article is accessible only for HNF members) Quote Link to comment Share on other sites More sharing options...
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