Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Hello there - My name is Kathy - My sister had twins on March 21st at 29 weeks. They seemed to be doing ok at first. was 2.8 lbs and Sophie was 2..3lbs. Sophie came home Monday of last week. is still in NICU - doing better, over 5 lbs. but experiencing trouble feeding sometimes and keeping body temp up outside of incubator. He is also experiencing seizures - showed up on eeg - first eeg and brain scan were nomal, did another and neurologist said he had a stage 2 scan and possible pachygyria/lissencephaly " smooth brain " , did another eeg yesterday and it was better, shows improvement. Now they want to readmit Sophie because they did an eeg at my sisters request and it shows she is having seizures. has been given phenobarbitol and now they want Sophie on it too. I have been reading nothing but horror stories about preemies with this type of abnormal brain. Need some input as to what we can expect, should we get 2nd opinion??? Please help - we are falling apart Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.