Lots of questions

[Guest guest]

Q: How is Mercury Poisoning related to Autism?

Q: How dangerous is mercury?

Q: How could my child have become mercury poisoned?

Q: What are some other sources of exposure to mercury?

(answered at www.home.earthlink.net/~berniew1/indexk.html)

Q: But my dentist told me that dental amalgam is perfectly safe

see 1000 medicals study references to the contrary at

www.home.earthlink.net/~berniew1/amalg6.html

Q: If mercury poisoning is caused by vaccines, then why aren't all

kids mercury toxic?

there are differences is immune reactivity and susceptability and

how well their detox systems deal with toxic metals; plus exposues are

somewhat different also in

timing and amount.

Q: Has anyone actually cured their autistic child by chelating them?

to a large degree; lots of cases have been described.

DETERMINING MERCURY TOXICITY & FIRST STEPS

Q: My doctor says that my child is not mercury toxic because his/her

blood and urine mercury levels are within normal limits. What do you

think?

(it is extremely well documented in the literature that the half life of

mercury vapor and thimerosal in the blood are very short, both blood

and urine measure recent exposure,

not body burden or past exposures sufficent to send mercury to the brain

and CNS where the half life is often many years in normal conditions)

Q: How can I find out if my child has mercury poisoning?

exposure history, symptoms, hair element test, DMSA challange

test, etc.

Q: My alternative doctor wants to do a DMPS challenge test. Is this

safe?

Q: I've made an appointment for a hair test and I'm trying to find a

doctor to help me chelate. Is there anything I can do right now?

(? you've made an appt. to talk about a hair test?-all you need to do is

send off hair??)

You can start a supplementation program including multivit/min, zinc,

magnesium, vit C, etc. adjusted when you get the hair test results.

you might also consider a test for

cysteine or the GS liver detox test.

Q: OK, I'm convinced my child is mercury toxic. What do I do now?

correct essential mineral and efa imbalances, chelate with DMSA every

4 hours,

consider a urine toxic elements while chelating to see what you are

dealing with.

Q: My child has only one amalgam filling, and I can't seem to find a

dentist

who will agree to replace it. Can't I go ahead and chelate?

I think you should be able to find someone to replace it. Have you

tried

www.amalgam.org; www.bioprobe.com, IAOMT list, etc.? or just asking

around?

where are you?

Q: I've gotten back the hair test results for my child, and it shows

he has high

levels of other metals besides mercury. What should I do?

depends on what metals show up. DMSA good for lead, malic acid for

aluminum, etc.

CHELATION N-acetylcysteine is another option in some cases but

I'll let others give the full names of DMPS and DMSA

Q: What is ALA or LA? Lipoic Acid

Q: What is the proper dosage and administration schedule for DMSA and

LA?

I would start with DMSA only at 25 or 50 mg every 4 hours

depending on your child's weight.

Q: I've started chelating and my child is having bad side effects.

What can I do?

no medical advise here I'd try to figure out why though and

reconsider.

Q: I've heard that glutathione, chlorella, cilantro, cysteine, MSM,

NAC, garlic,

and saunas will chelate naturally, and that the natural way is better.

Is this true?

some of these work for some but not for others. I don't have any good

statistics from controlled study of their results; some likely

better than others and some contraindicated if cysteine level high for

example.

Q: My child is GFCF. Can I continue the diet? Yes

Q: How long does it take to complete chelation? Depends on

individual situation.

RESOURCES

Q: Who is Andy Cutler? A Chemist whos done research and published

book on mercury effects and detox, etc.

Q: Who is Dr. Amy? A Dan doctor who treats a lot of kids with

autism

Q: How can I find a mercury-free dentist?

www.amalgam.org or www.bioprobe.com or search IAOMT or

www.talkinternational.com or www.hugnet.com or look at ads in

phone book or call around or etc.

Bernie W

[Guest guest]

Hi Everyone,

I had a few more questions and I was wandering if anyone could answer

them for me.

Where is Dr. Huang located?

Does anyone know what he charges?

For the women who did not need a lift- what size implants were they,

and how long did they have them in? Just curious about what I may be

looking at.

Also, what are the different lifts available and how are they

different from the other?

Has anyone had a swollen hand that results in the finger bones

deteriorating? Implant related????????

Still hoping for a decent pc in Iowa. Any one know of any?

Thanks for the help!

[Guest guest]

Exactly what is a mastopexy? It sounds like it is to build a breast.

----- Original Message -----

From: perlesetlacet@...

Sent: Thursday, April 18, 2002 12:13 PM

Subject: Re: Lots of questions

Hi :According to the PS I've consulted with, if you're going to get explanted, you will need a mastopexy esp. if you have had implants for a long time--even if you have relatively small breasts. Otherwise, you'll look saggy (the degree varies on how long you were implanted and how large the breast).Take care,-Marie

[Guest guest]

A mastopexy is simply a method of uplifting the breast tissue to make your breasts not look like two eggs -- fried! Ha! A mastopexy really lifts the breast tissue & skin to make your breasts look more youthful, and to get rid of all the excess sagging & skin that comes with having children and age, etc. --- somewhat like a facelift!

Blessings,

MM

Martha Murdock, DirectorNational Silicone Implant FoundationMAM-NSIF@...www.topica.com/lists/BreastImplantNews

"Knowledge Is Power"

[Guest guest]

Martha:

Like two fried eggs--lol? With me it's akin to two large flapjacks--hehe.

LM

[Guest guest]

Hello

Yes, you've posted a bunch of questions, and they are all good ones to be

asking. Of all of those listed, the one I will answer right now is about the

upcoming conference on the West Coast. YES.......some of the best doctor's in

the world will be there and it would be an ideal

setting to talk with them regarding your personal situation. They could tell

you the who, what, when and where as regards a lot of your questions. If you can

make the conference, it would provide you with a lot of invaluable information.

Mark

[Guest guest]

> Here are my questions for you others with CMT:

> 1. Do I need a nerve biopsy?

In my opinion no. Genetic tests are good enough these days.

>

> 2. Do I need to know what type of CMT I have. I am almost 40. My

> neuro thinks I have CMT1A.

It is nice to know, but not really necessary.

> 3. I have 2 children, son (age 9)and a daughter(age 6). Do I need to

> have them tested? <

Yes;. Definitely. Then he will know, and arrangements can be made with

schools and other institutions.

> 4. Should I start doing yoga?

Very defintely.... Yoga has taken me so far so fast I am blown away. I

wish I had discovered it years ago.

5. Should I bother seeking out another neuro, who specializes in CMT?

No. Neurologists are not useful after digosis.

> How can a CMT " specialist " help me. What can he/she offer to me that > my

local neuro hasn't?

Neurologists are not in the business of " helping. " After diagnosis

their job is over, and they know it. You need multi-disciplinary care

from various specialists depending on your specific problems.

6. Has anyone heard of Dr. Greg (University of Washington in

> Seattle), or Dr. England (New Orleans)?< Both are neuros who

Neuros are not helpful after diagnosis.

> 7. Will the dr.s at the California conference be CMT specialists,

and would one of them be good to see?<

That is what the conference is for...networking.

> 8. Given my current symptoms, is there anyway to predict what, or

> when the next physical weakness will occur? I know CMT effects

> everyone in a different way.

Noot really...but it is important to settle your questions and then

not dwell on it. Mood problems and depression can result if you

ruminate on it too much.

> 9. I have Blue Cross/Blue Shield through the school system. Will

> they cover the cost of the CMT blood test?

Call them and ask.

> yesterday and they need a code number for the test. What has been

> everyone's experience with coverage?

Medicare covered mine in 1997, I believe.

> 10. Are the leg braces that " Mitch " makes covered by insurance. My

> wife also asked our insurance that question yesterdayand they

> couldn't give her an answer either. I know I don't need them yet,

> but I'm trying to plan for this disease financially.

The Helios braces are not covered by insurance, at least that is what

I have read.

> 11.What kind of expenses am I going to incur with this disease?

Modifications to your home, to your clothes if needed, shoes will be

problematic. Stuff that insurance won't pay for.

How > should I plan for this financially?

Yes, IMHO.

We are presently looking into

> buying a larger home. We have already cut our house allowance way

> back because of the uncertainty of my health.

Excellent idea.

Itching.... hmmmm. I have a lot of this, but I had assigned this to

medication.

, don't be afrad to ask us anything, and also private emaied

questions are OK. erj@.... I am 42 with a severe case of CMT X.

[Guest guest]

,

That is erj66@...

[Guest guest]

Gretchen,

Thank you so much for answering all of my questions. I don't know how I

overlooked Dr. not being a neuro. Still good to know he is excellent at

what he does.

My wife talked to Athena today and they explained the testing process. It seems

very important that the neuro requesting the CMT kit knows just which one to

request, unless you do the whole panel of 15. If he thinks I am CMT1A and he

only requests that particular kit, and I'm not that type, then we're back to

square one. We need to know for the children's sake. Additionally, my sister

wants she and her 5 yr old son to be tested.

Here's the dilema now. My neuro has already told me that he doesn't have alot

of CMT patients.

So, I'm wondering how sure is he about what type I am?

Are there pretty, clear cut symptoms with CMT1A ? Afterall, he was pretty

baffled I even had it to begin with.

Should I go to a CMT specialist (neuro) who can come closer to pegging my type,

in order to request the correct blood kit?

Dr. did recommend a neuro, Dr. Shin Oh at UAB in Birmingham, and said he

would be able to coordinate my care. When I called my neuro to get the referral

to UAB, my current neuro's nurse indicated she didn't care for Dr. Shin. She

wouldn't divulge any information, which I think sucks.

Now what? Should I just go on down to UAB and try Dr. Shin anyway, and let him

decide what kit we should get, or should I drive to New Orleans and check out

Dr. England(who was also recommended by Dr. )? By the way, I have

not researched Dr. England yet, just Dr. Shin. Dr. Shin's Bio is impressive,

but doesn't say his main interests is CMT, but he does alot with periperal

neuropathies.

Thanks so much for all your help.

[Guest guest]

God Bless you for your willingness to share openly. And yes, attending the

conference on 11/8/08 will definitely provide you with opportunities to talk

with the cutting edge doctors, specialists, etc., who live and breathe CMT.

Good luck and God Bless.

Mark

[Guest guest]

,

CMT 1A is the most common type of CMT - about 70% of all CMT is type

1A. Did your neurologist do a family history and did you have EMG

testing? The results could indicate CMT 1A. So your neuro just may

be 'guessing' you have CMT 1A if he hasn't seen many patients with it.

CMT symptoms are diverse, we all share some, lack of balance, high

arched feet, hammertoes, fatigue, etc. Some people have tremors,

others don't. Some people are toe walkers, others have drop foot. So,

to answer your question, no, CMT 1A symptoms aren't so clear cut.

Yes, get a 2nd opinion from a CMT specialist.

I am certain Dr. 's 2 recommendations for doctors are

excellent. That nurse just may have a 'personality clash' with that

doc - but she wasn't a patient, was she?

The choice is yours, if it was me, I'd start with whichever doc was

closest to me. You'll know on the first visit if this doc will 'work'

with you or not.

Gretchen

[Guest guest]

Thanks again for your answers, Gretchen. I will go ahead and go see Dr. Shin in

B'ham.

[Guest guest]

,

My daughter has only recently been diagnosed, so I don't have many

answers, but I did want to share one thing. About a year ago she was

complaining about leg pain quite frequently. I started giving her

CoQ10 and it has really helped. I've seen a few references to it being

used for CMT, but for her it's helped a lot. You can get it OTC - she

takes 100mg twice daily, but she only weighs 40#. Maybe you could get

some dosage info on-line somewhere.

Good luck,

Sherry

[Guest guest]

Hi ,

I know you got a lot of answers, I'd like to address the one on

expenses and a home at least in terms of my story. I'm late 50's and

am still mobile, but can't walk or do much physical stuff. I need

foot/ankle surgery.

I haven't seen a whole lot of additional medical expenses except

copays and had to pay 50% for orthotics. I do buy better shoes more

often than most, and have them modified with wedges for about $30. You

have good insurance, so should do OK in this area.

Since my wife also has some physical problems, there have been extra

expenses for things that some people do themselves. For instance, the

last few years I've had to pay for small home repairs I would have

done myself ... like painting a room, painting trim, do my yard clean

up. If your wife can do that stuff, I guess you're OK.

Partly because of these home maintenance issues, we decided it was

time to move to a single floor no maintenance home. We couldn't find

any existing that seemed good, so we are building a small ranch in a

condo community where they do all the outside maintenance: grass,

landscaping, snow etc. We made it handicap accessible (no step in,

wide doors, seat in shower). It cost us a lot more that I wanted to

spend, but it was all we could think to do especially with my surgery

badly needed.

Probably in 5 years we won't be able to handle this and will look for an

apartment condo with easy access. My biggest regret is that we weren't able to

move into a place like this 8-10 years ago.

If you can, plan to be somewhere accessible and maintenance free by

age 45-50. Moving expenses will be higher than most since we'll have

to pay someone to move everything (even boxes) and arrange stuff at

the new place.

On finances overall, I stayed in a job where I could retire early with

a decent pension. Thank God I did that. If your teachers pensions are

like they are around here you can do the same if/when the time comes,

though I guess it's possible to teach from a power chair or scooter.

Hopefully your medical insurance will be fully or mostly paid after

retirement.

[Guest guest]

Hi ,

I saw your email a few days ago, but didn't get a chance to respond until now. 

I saw that Gretchen did an excellent job of answering all of your questions, so

you may be set already.  But just in case in helps, I thought I'd share

something I read recently.  It relates to your question about how to more

accurately 'pin down' the CMT type to reduce the cost of genetic testing. 

Here's the link:

http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene & part=cmt

Dr. Bird explains some basic differences that typically occur between Type 1

and other types (though not always).  Dr. Bird also gives an evaluation

strategy with a recommended approach for more cost-efficient genetic testing. 

This may help your doctor to narrow the testing down a little.

When I had my genetic testing done, I had nerve conduction testing done first. 

The NCVs showed a demyelinating type CMT.  The doctor then ordered genetic

testing for CMT1A, because it's the most common.  If that came back negative,

then they would have ordered other tests for demyelinating types. 

Hope that helps!

[Guest guest]

Hi ,

With regard to your question about insurance, BCBS of Alabama should cover your

genetic testing since you are symptomatic, but as recommended, it's

definitely best to check with them first.

With regard to your children, the testing might not be covered if they aren't

exhibiting any symptoms yet.  For some insurance plans, the person needs to be

symptomatic before the test is considered  " medically necessary " and covered.  If

there are any signs of CMT in your children and you definitely intend to have

them tested, then you may want to make sure the symptoms are noted in the

medical record prior to having the testing done.  Some insurance plans may cover

the testing either way, but it's best to be sure before having the testing done,

since it is expensive.

With regard to procedure codes, typical codes are: 

CPT Code:   83898, 83904, 83891, 83900, 83901, 83914, 83909, 83912

The first two codes should be enough for discussion purposes with your insurance

company.  You can check out Athena's website for more information:

http://www.athenadiagnostics.com/content/test-catalog/

 

[Guest guest]

Hi all,

I'm new to the list and wanting to learn more about using MMS. I'm a

naturopath in Oz and I work with both humans and animals. If even 1/2 the

claims for MMS are for real, it will be extremely useful. I'm especially

interested in using the MMS in its unactivated form as that seems easy to

manage and maybe avoids some of the issues of nausea and digestive upsets?

I've resisted using MMS in the past due to what I'm told is a taste of

" bleach " - not conducive to client compliance! )

So before I plunge in and start using MMS, firstly on myself and my animals,

then eventually my human and animal clients, I have lots of questions, so I

hope that's okay:

1. I have been given a protocol for using the unactivated MMS, initially at

1/8 teaspoon per gallon of water (which in Australian measurements = 2.7

drops per 1 litre water); drinking 1 litre per day (for an adult human);

then halving the amount of MMS in the water after 3 weeks; then halving

again after a further 4 weeks. I understand that final dilution is safe to

drink indefinitely? Or maybe it should just be taken intermittently at that

final dose as a maintenance measure?

2. Presumably when giving it to animals at the above dose, you would give

it pro rata depending on the weight of the animal?

3. Is the unactivated MMS given at the above rate safe to give to infants,

pregnant and breastfeeding humans/animals?

4. It has been suggested to me that MMS can be used as a skin wash to kill

off external mites, parasites, etc. If that's correct, what dilution would

I use? Would I need to use the activated form for it to be effective (given

that I assume the unactivated MMS solution becomes active in the body due to

the action of stomach acids)? When used as a wash externally, could the MMS

irritate the skin? Again, is it safe to give to infants, pregnant or

breastfeeding humans/animals?

Sorry for all the questions - I hope someone doesn't mind answering as I

couldn't find the answers in the files or in the info I've gathered )

Carole in Oz

Eideann & Fionn (Tristania GSDs)

carole@...

www.berigorafarm.com.au

__________ Information from ESET Smart Security, version of virus signature

database 4580 (20091106) __________

The message was checked by ESET Smart Security.

http://www.eset.com

[Guest guest]

Hello Carole,

Let's start with the basics...

MMS is made by mixing 28%, by weight, sodium chlorite powder with distilled

water. The powder is 80% pure, so you end up with a 22.4% sodium chlorite

solution. At this concentration sodium chlorite is dangerous to handle. I

recommend diluting down to a 5% solution, which is much safer to handle.

The actual measurement was given as 0.625 ml in 1 gallon of water. It just so

happens that 0.625 ml = 1/8 teaspoon.

It is much easier to work with concentrations, so the real question is what PPM

is required to kill off a pathogen inside the body?

Unfortunately, this has not been well studied, so no one knows. We do know what

concentrations are needed to sanitize counter tops and what is needed to

disinfect water. If the body was static like a counter top, or had all of the

organic material filtered from it like water does, we could simply use the

concentrations already established for those applications.

Perhaps you could consider the idea of exploring what concentrations are

effective with animals and that would add another data point for using these

chemicals.

Sodium chlorite is known as stabilized chlorine dioxide. When you drop the PH

of the sodium chlorite, it becomes chlorous acid and it releases some of the

available chlorine dioxide as free chlorine dioxide. When chlorine dioxide

enters a body, it changes to chlorite. Chlorite is a strong oxidizer and has a

half life, in rats, of almost 2 days.

The further you push the PH of sodium chlorite down, the more free chlorine

dioxide is released. Different acids are used to reduce the PH of sodium

chlorite. Water is a special case. When sodium chlorite is activated with

water only trace amounts of chlorine dioxide are released. This weak chlorous

acid can be further activated by stomach acid.

The concentration of chlorine dioxide in the gallon works out to about 22 PPM.

1 ml of 5% sodium chlorite in 1 liter of water would give you a concentration of

30 PPM.

The safety of chlorite in drinking water has been set by the WHO at 0.7 - 0.8

PPM. At this level it appears that it is safe for people and animals of all

ages and states of child bearing.

About 70% of the chlorine dioxide is transformed to chlorite and the other 30%

ends up in the form of chlorate and chloride.

This means that everyone agrees that water with 1 PPM chlorine dioxide is safe

for everyone, indefinitely. Higher concentrations will have higher levels of

chlorite and this gets into the gray area.

We have had good luck with animals using 0.625 ml of 5% sodium chlorite in 1

gallon of water. This results in about 5 PPM available chlorine dioxide and is

great at keeping the slime and algae from forming in the water dish. At about

double that concentration, many animals have shown improvement, but specifically

older animals.

If you are fighting a specific condition, the 30 PPM concentration may be a good

choice for a couple of weeks, then back down gradually.

When giving this to animals we just put the water in their water dish and let

them drink as much as they need.

External use is better developed and defined. Mix up 10 ml of 5% sodium

chlorite in a glass and add 10 ml of 10% citric acid. Swirl to stir and let

this activate for 10 minutes. Next put this into a spray bottle and add 500 ml

of water. This spray solution can be used externally for a variety of

applications. It also works great for ear infections with water dogs. An ear

infection can be cleared up in a couple of days, even the ones that don't

respond to antibiotics.

This solution can also be used to disinfect cages and bedding areas.

This solution has a PH of about 3, so there is some possibility for skin

irritation. However, after 3 years of using this solution, the occurrence of

irritation is rare.

This basic information should get you pointed in the right direction. I am not

a medical professional, but I do understand how these chemicals work. If you

happen to run across a bio-chemist you may be able to get a better understanding

of how these chemicals work within the body.

Tom

--- In , " Carole " <carole@...>

wrote:

>

> Hi all,

>

> I'm new to the list and wanting to learn more about using MMS. I'm a

> naturopath in Oz and I work with both humans and animals. If even 1/2 the

> claims for MMS are for real, it will be extremely useful. I'm especially

> interested in using the MMS in its unactivated form as that seems easy to

> manage and maybe avoids some of the issues of nausea and digestive upsets?

> I've resisted using MMS in the past due to what I'm told is a taste of

> " bleach " - not conducive to client compliance! )

>

> So before I plunge in and start using MMS, firstly on myself and my animals,

> then eventually my human and animal clients, I have lots of questions, so I

> hope that's okay:

>

> 1. I have been given a protocol for using the unactivated MMS, initially at

> 1/8 teaspoon per gallon of water (which in Australian measurements = 2.7

> drops per 1 litre water); drinking 1 litre per day (for an adult human);

> then halving the amount of MMS in the water after 3 weeks; then halving

> again after a further 4 weeks. I understand that final dilution is safe to

> drink indefinitely? Or maybe it should just be taken intermittently at that

> final dose as a maintenance measure?

>

> 2. Presumably when giving it to animals at the above dose, you would give

> it pro rata depending on the weight of the animal?

>

> 3. Is the unactivated MMS given at the above rate safe to give to infants,

> pregnant and breastfeeding humans/animals?

>

> 4. It has been suggested to me that MMS can be used as a skin wash to kill

> off external mites, parasites, etc. If that's correct, what dilution would

> I use? Would I need to use the activated form for it to be effective (given

> that I assume the unactivated MMS solution becomes active in the body due to

> the action of stomach acids)? When used as a wash externally, could the MMS

> irritate the skin? Again, is it safe to give to infants, pregnant or

> breastfeeding humans/animals?

>

> Sorry for all the questions - I hope someone doesn't mind answering as I

> couldn't find the answers in the files or in the info I've gathered )

>

> Carole in Oz

> Eideann & Fionn (Tristania GSDs)

> carole@...

> www.berigorafarm.com.au

>

>

> __________ Information from ESET Smart Security, version of virus signature

database 4580 (20091106) __________

>

> The message was checked by ESET Smart Security.

>

> http://www.eset.com

>

[Guest guest]

Thanks for all the info Tom. One thing I forgot to ask is - when used as a

skin wash for animals, does MMS dry out, discolour or bleach the coat?

Carole in Oz

Eideann & Fionn (Tristania GSDs)

carole@...

www.berigorafarm.com.au

__________ Information from ESET Smart Security, version of virus signature

database 4580 (20091106) __________

The message was checked by ESET Smart Security.

http://www.eset.com

[Guest guest]

Hello Carole,

At the concentration of the solution I provided, there should be no bleaching.

I believe cotton has about the lowest concentration needed for bleaching and it

begins to be bleached at about 300 PPM of free chlorine dioxide. The solution I

use has about 60 PPM free chlorine dioxide, so there is a good margin of safety.

With that said, I think it would be prudent to try it out on a small area that

is not so noticeable at first. If you have a problem, be sure to let me know

and I will adjust the recommendation.

When you mix an acid with sodium chlorite you form chlorous acid. The chlorous

acid solution will have some free chlorine dioxide in it. When you apply this

to a surface, the free chlorine dioxide is used up, and the chlorous acid with

the rest of the available chlorine dioxide is held in solution as it dries on

the surface. The next time it becomes hydrated, more of the available chlorine

dioxide is released as free chlorine dioxide. This process continues until all

of the available chlorine dioxide is used up.

It acts like a timed release product.

This works great for odor control.

An important point to remember is that chlorine dioxide solutions are not

detergents. You clean first, then sanitize with the chlorine dioxide solution.

Tom

--- In , " Carole " <carole@...>

wrote:

>

> Thanks for all the info Tom. One thing I forgot to ask is - when used as a

> skin wash for animals, does MMS dry out, discolour or bleach the coat?

>

> Carole in Oz

> Eideann & Fionn (Tristania GSDs)

> carole@...

> www.berigorafarm.com.au

>

>

>

> __________ Information from ESET Smart Security, version of virus signature

database 4580 (20091106) __________

>

> The message was checked by ESET Smart Security.

>

> http://www.eset.com

>