Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Hi Everyone, My name is Robin Hudson and I am new to this site. I have been on the Microcephaly site pretty frequently since my son also has Micro. I also am the State Representative for California for the foundation of Children with Microcephaly. We had our first annual conference in Arizona over the past weekend and I had the honor of meeting with Dr. Dobyns from Chicago who gave us the diagnosis of PMG. At first just had Microcephaly. Then after an MRI, he was diagnosed with Pachygyria, a form of Lissencephaly. Then after seeing Dr. Dobyns, he said we were misdiagnosed and that he had PMG. I don't know anything about PMG. My son is 2 1/2 and very active. He walks, runs, plays, etc (all things that we were told he would never do). He doesnt talk yet, but he understands everything we say. He has his own way of communicating with us and pulls us everywhere pointing at what he wants. He has learned some sign language already and we plan on continuing to teach him. I wanted to know what I can expect with PMG. Dr. Dobyn's said that he is very likely to have seizures. He has never had one that I know of and I have always been told that the longer they go without them, the better chance they won't start??? When did all of your children's seizures start (if they have them). What are the problems associated with PMG? Do your children have the ability to talk, learn, etc? I would love to hear from some of you to see what I can expect in the future. Thank you for any help you can offer. Robin (Mom to the most amazing little miracle!) Quote Link to comment Share on other sites More sharing options...
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