What questions should we ask the neurologists??

[Guest guest]

We finally got our daughter's neurologist to sit down with us this Friday to

review her MRI and explain her Neuronal Migration Disorder to us.  What

questions should we be asking him?   You all seem to know so much more about

your children's conditions.  Did you get that information from your doctors or

your own reasearch? (for instance how did you know it was a bilateral PMG?) 

What are some of the other terms?  (for instance I've seen Lissencephaly and

heterotrophia in a couple of emails). Also, for those of you whose children have

seizures, when did they start?  How did you know that where having the seizure? 

Were they put on seizure meds immediately? 

Please help if you can.

Kristi Leff (mother to Hayden Leff - 8 months - Neuronal Migration Disorder,

Agenesis of the Corpus Collosum, Hypoplastic Cerebellum, G-tube dependent,

developmental delays)

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Subject: Website to track seizures

To: polymicrogyria

Date: Wednesday, August 6, 2008, 5:38 PM

Another good way to track seizures

seizuretracker. com