Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Welcome to the group. As you read, we are not all parents of kids with PMG but a mixed bunch of auntes, uncles, brothers, sisters, grandparents and parents of kids with PMG. I am suprised that the doctors didn't mention any seizures becuase I think the majority of these kids have some sort of seizures, ranging to once a month to once every hour or so. My niece also doesn't look like she has PMG but she does and is severely effected by it. The best advice I think any one can give is to take this one day at a time and enjoy every minute with your child. You will encounter many heartbreaking moments as well as wonderful moments of watching your 5 year old just learning to walk without support. (Congrats caleb, by the way. Thats just awesome!!!!) That is what this group is here for, we support each other and give as good advice as we can about situtaion we have already delt with or are dealing with. It helps to talk to people who understand what your going through and how you feel and understand why you feel that way. We welcome you with open arms. , Auntie to age:19 and 1/2 months Quote Link to comment Share on other sites More sharing options...
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