2 year old son w/PMG since 11/2407

February 11, 2008

Hello everyone! I'm new to all this and am very scared still and full

of questions! My 2 year old son, out of nowhere, had his first

seizure Thanksgiving weekend, 11/24/07. We did the whole ER thing and

was sent home after the usual CT Scan, x-ray and blood work, with no

clue on why he had a seizure. Then he had another one on the

following day and then 2 more in one day, basically back to back on

that Monday. So, we spent all Monday in the hospital ER and finally

got admitted that night at 6pm and when we fianally got up to the

room he had another seizure! Then he had another one Tuesday

morining! Tuesday they did the MRI w/out contrast to only have to do

it again the next morning, Wednesday, with contrast! Anyways, later

that day the Neurologist came in with the news that my son has

polymicrogyria on the right side of his brain. He's been a normal

child. He didn't pull up for a while as an infant and then did a

monkey crawl but we never thought anything of it? He walked at 14

months and now at 2 1/2 years old doesn't talk as much as other

children his age, unless he's talking back, then he talks perfect and

clear as day ;o) but still seems pretty average!

Well, we were discharged on Trileptal and he's been seizure free

since November 30th, when he had 4 break-thru seizures and they

needed to up his dose sooner then planned. He is now taking 6cc. But,

since then, we pray to God, the medicine has been working! I'm just

really looking for people with similar stories, advice, what I can

possibly expect, anything! Also, we have actually been trying to have

another child since September of 2007, and the neurologist said

there'd be a 5% chance of us having another child with this I'd like

to hear from other parents who have mulitple children or what they've

been told about having more children after one with PMG? I appreciate

anything and everything anyone can tell me.

Thank you,

~Blessed mommy of ~

February 11, 2008

Welcome -- glad the Trileptal is working so well. My youngest takes

it, also with good results. He's the only one of my five with PMG.

Blessings,

February 12, 2008

Hi,

We have 3 children and Finlay (6, Bilateral frontoparietal pmg) is the

middle one. We were told of about a 5% chance of having another one with

pmg, but as far as I have found from research and this group, the families

with more than one child with pmg are VERY rare. Our daughter is nearly 2

now and she has definitely enriched his life.

Annelies, Mum to Gregor (9), Finlay (6, BFPP) and Rowan (nearly 2)