unilateral non-genetic polymicrogyria

[Guest guest]

Hi,

My son is 5 months old with non-genetic,right side unilateral

polymicrogyria.He has a trach because of idiopathic vocal cord

paralysis and a g-button. I have been reading all the mail that

everyone writes in and I am scared! Since we've had him home from the

hospital he seems to be doing so much better with tracking, smiling,

rolling over, etc.. I was wondering if anyone out there can give us

more insight as to what to possibly expect over the next couple of

years. Currently, we are very proactive in getting therapy for him.

We go to a swallowing specialist 1x per week, occupational therapy 1x

per week and we have been to 2 physical therapy sessions. Recently,

he seems to have a renewed interest in the bottle. Tonight, he drank

his entire meal in one sitting without having to supplement with the

g-button. Our neurologist doesn't have a lot of answers " until he

reaches or doesn't reach certain milestones. " When we read

information on the internet it is anything from nothing to your worst

nightmare. It would be greatly appreciated if anyone with a similar

situation can e-mail me!

Thanks in advance,