Welcom to a new member,

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Hi we are another CMV damaged family. We call CMV the 'Evil One', you do not

know you have it and it damages our children. A few thing you need to know.

CMV is one of the commonest causes of deafness, after genetic problems. Like

Rubella use to be, this of course has been halted by girls getting

vaccinated. In UK they are working on a vaccine for CMV as well to defeat

the 'Evil One " . Our Torin was found to have one normal ear and one deaf ear

at birth. This has progressed so unfortunately he is now profoundly deaf and

has a cochlear implant and is doing well. He also has eye checks as they

often go together in CMV effected babies. He has a patch of possible problem

in his eye but at the moment all is ok. He also has a small head but it is

growing he is on the 5 percentile for head size but up on the 50+ for

everthing else. I do not think you can make many predictions for these kids

just roll along and work on there therapy, and time will tell. Please cry on

our shoulders we all have all had very low moments. My daughter attacks me

and I am wrong in every thing. I let her go then give her a hug and she get

back to normal and gets on with it. It is usually when she is exhausted that

this happens. I then take Torin for the night and she gets a sleep and on we

go. I can not tell you how much I love my little redhaired monkey he makes

me laugh, he is so cheeky. Look after yourself so you can look after your

little angel

Grandma Carol, Torin 21 mths PMG, hemiplagia Deaf, but my redhaired little

devil can now open cupboards, watch out Gran.

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