Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 My daughter too is 18 months old. She was diagnosed with PMG bilateral when she was 6 weeks old. She has been one of the luckier ones too. She struggled with gross motor skills until she was about 12 months old. At that time she was only sitting up by herself. In the last six months she has learned how to walk, stand up, crawl, and is now starting to run. She too has the occassional seizure but they are not frequent enough that we have decided to medicate yet. The only thing she is really behind in right now is speech, but everyday she amazes us in what she has learned how to do.Hope this gives hope to some of you. Cassey Mom to Emma markandtammyjj wrote: Hi, My Son is 18 months old today he was diagnosed with PMG on the 8th August. He has it on the left side of the brain. He has has about 6 seizures in the last 9 months. When he is having a seizure he starts to dribble alot making strange noises, he then loses all the use in the right side of the body, He is taking Depakine to control the seizures. He has to go for blood test every month, and is going for another MRI scan in February. I don't know if he will start to get worse or what the future will be like for him. At the moment PMG is not affecting his life. If anyone out there has PMG as mild as please let me know how things are. After reading how bad some of you and your children are suffering, I really feel like is one of the luckier ones. --------------------------------- How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 We havent had percentages, PMG is only in the perisylvian area. There is no side movements on his tongue. Ville is very lively boy and has sometimes dificulties with concentration. There is also minor dificulties with eye - hand co-operation. Hes having act - and speaktherapy ones a week. He learned to walk at 1,3 years. Development has been similar than other kids at his age. Only speaking is indistinct and he drools A LOT. Perisylvian syndrome rise up at the age of three, becouse Villes speaking was indistinct, there was no other symptoms. What kind of symptoms does your son have? Spranger wrote: Have they given you a percentage of the brain the the PMG covers....the only reason I ask is because my son also have bilateral PMG and is a year old. Does your son have any other issues (mental retardation, walking issues) _____ From: polymicrogyria [mailto:polymicrogyria ] On Behalf Of Kati Rinne Sent: Monday, September 04, 2006 3:49 PM To: polymicrogyria Subject: Re: PMG Hi, Our son Ville has also milder version of PMG (Bilateral). He has it on the both sides of his brain. Only thing where PMG can be recognized is that Ville drools a lot and his speaking is indistinct. He hasn't had any kind of seizures( yet ) and he's not taking any kind of meds. You can ask more (anything you like) .. markandtammyjj <markandtammyjj@ <mailto:markandtammyjj%40yahoo.com> yahoo.com> wrote: Hi, My Son is 18 months old today he was diagnosed with PMG on the 8th August. He has it on the left side of the brain. He has has about 6 seizures in the last 9 months. When he is having a seizure he starts to dribble alot making strange noises, he then loses all the use in the right side of the body, He is taking Depakine to control the seizures. He has to go for blood test every month, and is going for another MRI scan in February. I don't know if he will start to get worse or what the future will be like for him. At the moment PMG is not affecting his life. If anyone out there has PMG as mild as please let me know how things are. After reading how bad some of you and your children are suffering, I really feel like is one of the luckier ones. --------------------------------- Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Hi im new on here and dont really no wer to start as its been along journey from wen my baby laci-mae was born and she only 3 months old. She was diagnosed with PMG a few weeks after she was born due to havin fits and not feeding. She was admitted to the Neonatal Unit at Leeds General Infirmary in the UK, wer she was for the 1st 6 weeks of her life. She was tube fed placed on fluids and was attatche to different monitors bleeping she had phototherpy for her jaundice. She had various different scans xrays and test which led to the discovery of PMG.It has affected part of one side of her brain n most of the other side. She is on phenobarbitone twice a day n is now home and feeding really well altho she is on special milk she doing fine and recently started her on baby food once a day which she loves and taken to quite well, she not had n e fits since she been home so really please about that. Physically there is nothin wrong with her at the moment and she is doing everything a baby without PMG is doing. Im hoping like every other mum she is gonna prove those doctors wrong and she is gonna walk n talk etc Just worried wat the future is going to bring to me and my family and how she is gonna b. I have 3 other children who are all healthy. Just seems unfair that my 4th child has had this awful disorder i balme myself altho the docs said it just summit wat happened and not to blame my self, but i wunt b a mum if i dint would i Like yo hear from mums who have children with PMG and how they coping etc Hope to hear from you all soon Caz n Gaz Quote Link to comment Share on other sites More sharing options...
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