Fw: Getting well...What does it depend on? Please Post.

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----- Original Message -----

From: " tara-vajra (by way of ilena rose) " <jeweltara@...>

<Recipient List Suppressed:;>

Sent: Monday, March 25, 2002 10:17 PM

Subject: Getting well...What does it depend on? Please Post.

> Dear Ilena and All the Silicone (and Saline) Sisters:

>

> First of all, I'd like to Thank you All for your generosity of spirit And

> information. If you hadn't been there I'm sure I would have had those

> implants in there...until...like some of our sisters...just gotten sicker

> and sicker until I ultimately died! Secondly, this is not a good day for

> me - so if this email sounds cut up or not together in some way, know that

> it's because I'm writing it in spurts...I'm sure you all know what I mean:

> Up until I Have to lay down then...wait until I can do it again.

>

> I was explanted Feb. 15 with an enbloc procedure. They had been in for

over

> 20 years. Hospital pathology said both were ruptured and that silicone -

as

> well as other nasty micro-organisms had seeped through the capsule. I'm

not

> getting better yet. My question to the group is: What does getting well

> depend on? A few questions which come to mind follow:

>

> Does it depend on:

>

> -How long we've had them in?

> -How long they've been ruptured?

> -What was in them?

> -The polyurethane/silicone (or whatever) capsule - not the breast capsule,

> but the one that incases the implant? Duh....? [Can't seem to get that

> word! :-)]

> -What kind of procedure done at explantation?

> -What shape our body was in at the time of implantation/explantation?

> -Various after-care issues (ie: detoxification regimes)?

> -Any other kinds of issues?

> -How LONG does it take for us to get well with regard to these questions?

> -How many of us WILL get well?...I know we don't have stats because of the

> lack of research on such issues - but of all the women who Have gotten

well

> (or even better - whatever that means), on what do they base their

> health? - and how long has it taken?

>

> I'm angry that we have to research these questions ourselves...especially

> when we're not equipped with medical backgrounds, labs, money, etc. It's

so

> very hard when Dr's also are ill-equipped on issues which would help us

get

> better - because the manufacturers are hampering (or outright damaging)

> research efforts on our behalf. I mean, how many of us have to die before

> they are held Fully accountable?

>

> I'd like to get all the information I can to enable the best chance of

> getting well. ---and if the chances are that I won't get well...I want to

> know that too - to help me prepare myself emotionally for that

eventuality.

> I'm sick...We're sick...and other than on this list and a few other

> people/professionals, etc., I personally don't feel as if I'm/we are taken

> seriously - and that in itself is draining and infuriating! I know I have

> control issues - and I also think it's human to want to defend your body,

> mind and emotional being from assault - and that's what this feels like!

>

> To you Ilena, Thank you from the deepest part of my being for devoting

> yourself to us and this issue, despite the fact that you've never had

breast

> implants yourself. I wonder how many well women are out there who are

> involved - or not - in helping put forward this issue and advocating on

> behalf of us? If you are, Thank you very much too. If not, it would be

> greatly appreciated by All of us, I'm sure, if you would devote even a

pinch

> of time toward helping us? ---And a Huge Thank you to All women out there

> who are pushing themselves Beyond their illness to help by researching,

> writing letters, telling their stories...and everything in between!

>

> Much Love, Light and Many Blessings,

> Jewell

>

>