Bad dreams

[Guest guest]

I just read in my copy of Earl Mindell's

" Vitamin Bible " that one of the effects

of taking large amount of B-vitamins are

extremely vivid dreams and increased

dream recall. I wonder if the

supplements we are taking could be

causing the dream recall, and then the

stress is causing the dreams to be

nightmarish?

I've also had those dreams about school,

and I graduated 14 years ago! Mine

usually involves having to take an exam

for a class I never took, like Physics.

When I was doing a lot of theatre I used

to have what's called " The Actor's

Dream, " when I arrive at the theatre

only to be thrust out on stage with

" Hurry up! You're late! That's your

cue! " and suddenly realize that a) I'm

the star, b)I either don't know what

play it is, or it's something incredibly

complex, like Shakespeare, and c)I'm

naked.

I am seeing my wonderful LLMD today and

I'll ask her if she's had this complaint

of intrusive nightmares from other

patients.

Jean

[Guest guest]

Ok, I'm new to this, but I've been trying to get to know everyone. I've

enjoyed reading all the emails because it makes me feel like I'm not crazy.

I was diagnosed with Lyme last year, but it was misdiagnosed for

approximately 5 years. So I've been on antibiotics for a year now and every

time I go off of them I relapse. But my doctor is great, but before him I

went through a lot of humiliation and tried to convince myself I wasn't

sick. Okay enough of the history, about the dreams. That was one of the

first things I noticed even before the major symptoms. Very vivid dreams,

waking up sweating and heart pounding. I read somewhere that anything that

disrupts your well being can cause bad dreams, like the flu, fatigue,

stress, etc., also any new medication. I think Dilantin makes me have the

worse ones, but I'd like to share one of the funnier (after the fact)

dreams I had (I think this one was caused by Klonpin)......

I was looking up at the canopy of my bed and saw what appeared to be a tick

or spider larger than the size of a human head (about double that), hanging

down rubbing its legs together (whatever they have), I jumped out of bed,

ran over to turn on the light, grabbed a heavy flashlight and tiptoed over

to the bed and very cautiously looked - and Bang! At that very moment I woke

up, heart racing and me perspiring like crazy. It took me several hours to

get back to sleep and realize it was only a dream " . But it was so real!!

After the fact I laughed, relaxing it was a tick, but I was also amazed and

proud that I even came back to look for it after I got out of bed. I think

its because my husband was home, and I didn't want to wake him. That's just

one of many dreams, I've have even more ridiculous and scarier ones too. And

they leave with the feeling like an anxiety attack, it takes forever to get

back to sleep if I can at all. Thanks for listening, I'll be talking to you

all soon. I enjoy reading your notes.

Vicki in land

Re: [Lyme-aid]Bad dreams

>From: Scully <jscully@...>

>

>I just read in my copy of Earl Mindell's

> " Vitamin Bible " that one of the effects

>of taking large amount of B-vitamins are

>extremely vivid dreams and increased

>dream recall. I wonder if the

>supplements we are taking could be

>causing the dream recall, and then the

>stress is causing the dreams to be

>nightmarish?

>I've also had those dreams about school,

>and I graduated 14 years ago! Mine

>usually involves having to take an exam

>for a class I never took, like Physics.

>

>When I was doing a lot of theatre I used

>to have what's called " The Actor's

>Dream, " when I arrive at the theatre

>only to be thrust out on stage with

> " Hurry up! You're late! That's your

>cue! " and suddenly realize that a) I'm

>the star, b)I either don't know what

>play it is, or it's something incredibly

>complex, like Shakespeare, and c)I'm

>naked.

>

>I am seeing my wonderful LLMD today and

>I'll ask her if she's had this complaint

>of intrusive nightmares from other

>patients.

>

>Jean

>

>

>---------------------------

[Guest guest]

Hi Vicki, and welcome,

Your tick dream was so scary, that I'm afraid to go to sleep tonight!

LOL Sweet dreams, Joan

[Guest guest]

Thanks

I would love to hear what some of the other LLMD's say about this. I

can rule out Vitamin B's, I don't take them. Got a chuckle out of your

actor's and student's dreams. Good luck at the doctor visit.

Hugs,

Marta NJ

--

>

>I just read in my copy of Earl Mindell's

> " Vitamin Bible " that one of the effects

>of taking large amount of B-vitamins are

>extremely vivid dreams and increased

>dream recall. I wonder if the

>supplements we are taking could be

>causing the dream recall, and then the

>stress is causing the dreams to be

>nightmarish?

>I've also had those dreams about school,

>and I graduated 14 years ago! Mine

>usually involves having to take an exam

>for a class I never took, like Physics.

>

>When I was doing a lot of theatre I used

>to have what's called " The Actor's

>Dream, " when I arrive at the theatre

>only to be thrust out on stage with

> " Hurry up! You're late! That's your

>cue! " and suddenly realize that a) I'm

>the star, b)I either don't know what

>play it is, or it's something incredibly

>complex, like Shakespeare, and c)I'm

>naked.

>

>I am seeing my wonderful LLMD today and

>I'll ask her if she's had this complaint

>of intrusive nightmares from other

>patients.

>

>Jean

[Guest guest]

Hi Vicki,

Welcome to the list and thanks for sharing your story. I cannot imagine

going 5 years undiagnosed, you must have thought you were going crazy,

especially since symptoms seem to wax and wane. Do you recall a tick bite

at all? I hope you are seeing a good Lyme literate doctor now and are

seeing an improvement in your overall health now. That sure was a scary

dream, I haven't had any insect dreams, but I do dream of snake-like

creatures, like worms and such. Good that you can laugh now over that

horrifying dream, did you dream about the tick when you were finally dx'd

with Lyme? Full of questions, I know, but that's what we do here....glad

you enjoy the list.

Hugs,

Marta NJ

>From: " Vicki & Ferraro (home) " <ferraroa@...>

>

>Ok, I'm new to this, but I've been trying to get to know everyone. I've

>enjoyed reading all the emails because it makes me feel like I'm not crazy.

>I was diagnosed with Lyme last year, but it was misdiagnosed for

>approximately 5 years. So I've been on antibiotics for a year now and every

>time I go off of them I relapse. But my doctor is great, but before him I

>went through a lot of humiliation and tried to convince myself I wasn't

>sick. Okay enough of the history, about the dreams. That was one of the

>first things I noticed even before the major symptoms. Very vivid dreams,

>waking up sweating and heart pounding. I read somewhere that anything that

>disrupts your well being can cause bad dreams, like the flu, fatigue,

>stress, etc., also any new medication. I think Dilantin makes me have the

>worse ones, but I'd like to share one of the funnier (after the fact)

>dreams I had (I think this one was caused by Klonpin)......

>

>I was looking up at the canopy of my bed and saw what appeared to be a tick

>or spider larger than the size of a human head (about double that), hanging

>down rubbing its legs together (whatever they have), I jumped out of bed,

>ran over to turn on the light, grabbed a heavy flashlight and tiptoed over

>to the bed and very cautiously looked - and Bang! At that very moment I

woke

>up, heart racing and me perspiring like crazy. It took me several hours to

>get back to sleep and realize it was only a dream " . But it was so real!!

>After the fact I laughed, relaxing it was a tick, but I was also amazed and

>proud that I even came back to look for it after I got out of bed. I think

>its because my husband was home, and I didn't want to wake him. That's just

>one of many dreams, I've have even more ridiculous and scarier ones too.

And

>they leave with the feeling like an anxiety attack, it takes forever to get

>back to sleep if I can at all. Thanks for listening, I'll be talking to

you

>all soon. I enjoy reading your notes.

>

>Vicki in land

[Guest guest]

Thanks, and sorry to scare you, it was extremely scary and hard to shake.

But I found Ambien helps me to sleep without nightmares, but unfortunately

it only lets you sleep for about 4 hrs. Sweet dreams to you too.

Vicki

Re: [Lyme-aid]Bad dreams

From: Namkrats3@... (Joan S.)

Hi Vicki, and welcome,

Your tick dream was so scary, that I'm afraid to go to sleep tonight!

LOL Sweet dreams, Joan

---------------------------

[Guest guest]

I don't recall lately about having any dreams but about oh two years ago

when I really started getting sicker I had a dream that worms and bugs were

burrowing themselves into my body...Now I was grossed out for one but it

really frightened me and I didn't know why at the time...Does anybody think

the same as me that perhaps sometimes our subconscious or other is trying to

tell us somethi ng....Just wondering?

Cyntha Landon Idaho

Re: [Lyme-aid]Bad dreams

>

>

> >From: Scully <jscully@...>

> >

> >I just read in my copy of Earl Mindell's

> > " Vitamin Bible " that one of the effects

> >of taking large amount of B-vitamins are

> >extremely vivid dreams and increased

> >dream recall. I wonder if the

> >supplements we are taking could be

> >causing the dream recall, and then the

> >stress is causing the dreams to be

> >nightmarish?

> >I've also had those dreams about school,

> >and I graduated 14 years ago! Mine

> >usually involves having to take an exam

> >for a class I never took, like Physics.

> >

> >When I was doing a lot of theatre I used

> >to have what's called " The Actor's

> >Dream, " when I arrive at the theatre

> >only to be thrust out on stage with

> > " Hurry up! You're late! That's your

> >cue! " and suddenly realize that a) I'm

> >the star, b)I either don't know what

> >play it is, or it's something incredibly

> >complex, like Shakespeare, and c)I'm

> >naked.

> >

> >I am seeing my wonderful LLMD today and

> >I'll ask her if she's had this complaint

> >of intrusive nightmares from other

> >patients.

> >

> >Jean

> >

> >

> >---------------------------

[Guest guest]

Hi Marta,

I never remember the tick, but I garden a lot (used to) and I also read that

about 60% or more of all Lymies don't even get a rash or remember the tick.

I actually felt better before I started antibiotics, then I had a severe

bout of Herks (Sp?), don't you guys say " Hertz " ? So that made me happy

because I knew it must be working. But I don't think I've ever had a PCR

test,only the Western Blot and Urine Antigen test, both were borderline. But

my doctor said because I actually got better after a few months on

Antibiotics then relapsed when I went off them, that he was pretty sure I

had Lyme. But now he thinks its just Fibromyalgia that is affecting me. The

symptoms are so similar its hard to distinguish. Of course the underlying

culprit is still the Lyme.

I had the dream after the diagnosis, I started fearing all insects after

that. One night I couldn't sleep because I could hear the wings of what

sounded like a fly , fluttering right by my bed - all night! After that I

really started feeling like I must be losing my mind. By the way, I would be

interested to know how many of you continue to work. I continued to work up

through about the third month of treatment, until I couldn't stand it

anymore. Thankfully I had been paying my disability insurance. I went back

to work part time in June and went off antibiotics, and July thought I would

die. I've tried to hang in there, just to feel like I'm still alive and at

least trying to be a contributing member of society, but to no avail, I gave

up this week and I'm now back on full time disability. When I feel good, I'm

bored out of my mind, but that doesn't happen too much. I've loved reading

your messages, and will continue to. I feel like I belong somewhere now.

Thanks to all. Try to remember - This to shall pass!! (If those in the med

society would wake up, it sure would help).

Talk to you soon

Vicki

Re: [Lyme-aid]Bad dreams

>From: " J & M McCoy " <mlmccoy@...>

>

>Hi Vicki,

> Welcome to the list and thanks for sharing your story. I cannot imagine

>going 5 years undiagnosed, you must have thought you were going crazy,

>especially since symptoms seem to wax and wane. Do you recall a tick bite

>at all? I hope you are seeing a good Lyme literate doctor now and are

>seeing an improvement in your overall health now. That sure was a scary

>dream, I haven't had any insect dreams, but I do dream of snake-like

>creatures, like worms and such. Good that you can laugh now over that

>horrifying dream, did you dream about the tick when you were finally dx'd

>with Lyme? Full of questions, I know, but that's what we do here....glad

>you enjoy the list.

>Hugs,

>Marta NJ

>

>

>>From: " Vicki & Ferraro (home) " <ferraroa@...>

>>

>>Ok, I'm new to this, but I've been trying to get to know everyone. I've

>>enjoyed reading all the emails because it makes me feel like I'm not

crazy.

>>I was diagnosed with Lyme last year, but it was misdiagnosed for

>>approximately 5 years. So I've been on antibiotics for a year now and

every

>>time I go off of them I relapse. But my doctor is great, but before him I

>>went through a lot of humiliation and tried to convince myself I wasn't

>>sick. Okay enough of the history, about the dreams. That was one of the

>>first things I noticed even before the major symptoms. Very vivid dreams,

>>waking up sweating and heart pounding. I read somewhere that anything that

>>disrupts your well being can cause bad dreams, like the flu, fatigue,

>>stress, etc., also any new medication. I think Dilantin makes me have the

>>worse ones, but I'd like to share one of the funnier (after the fact)

>>dreams I had (I think this one was caused by Klonpin)......

>>

>>I was looking up at the canopy of my bed and saw what appeared to be a

tick

>>or spider larger than the size of a human head (about double that),

hanging

>>down rubbing its legs together (whatever they have), I jumped out of bed,

>>ran over to turn on the light, grabbed a heavy flashlight and tiptoed over

>>to the bed and very cautiously looked - and Bang! At that very moment I

>woke

>>up, heart racing and me perspiring like crazy. It took me several hours to

>>get back to sleep and realize it was only a dream " . But it was so real!!

>>After the fact I laughed, relaxing it was a tick, but I was also amazed

and

>>proud that I even came back to look for it after I got out of bed. I think

>>its because my husband was home, and I didn't want to wake him. That's

just

>>one of many dreams, I've have even more ridiculous and scarier ones too.

>And

>>they leave with the feeling like an anxiety attack, it takes forever to

get

>>back to sleep if I can at all. Thanks for listening, I'll be talking to

>you

>>all soon. I enjoy reading your notes.

>>

>>Vicki in land

>

>

>

>---------------------------

[Guest guest]

vicki,

welcome to our group......u are right.....this is a place that makes us know

we are not crazy.....it's amazing....for a disease that some say does not

exist we all can relate to the same physical and mental symptoms.....this

group has been a god send to me.....i truly believe it has kept me from

suicide(one of my lyme problems) at times......just knowing help is only a

keyboard away.....that people that really understand and care...keeps me

going......

Reid....nnj

[Guest guest]

Hi Vicki,

Yes, most people don't recall their tick bite or have a rash, and it

makes sense to me that you would dream about them after your diagnosis too.

The fly buzzing or fluttering you mention has happened to me, when I was

awake, it felt like it was right in my ear, and is a manifestation of this

disease. I haven't had that one in a long while, so I guess the abx are

helping. The word you were searching for is herx, short for Jarisch

Herxheimer reaction.

Here is a short version of what that means:

The Short Definition:

Jarisch-Herxheimer reaction (“herxing”) is an exacerbation of symptoms in

people with Lyme disease (also syphillis) upon taking antibiotics. It is

thought to be due to the effects of toxins produced by the organism during

it’s

die-off and the resulting immune system response.

It sounds to me that your doctor may be in the group of physicians who feel

that Lyme is not a chronic infection, and is giving you the fibromyalgia dx

now. I hope he does not stop your abx in the meantime. There are two

schools of thought here, most of us with chronic Lyme feel it is due to

continuing infection, but because the tests to determine this are so

unreliable we have difficulty proving this, the Lyme bacteria, spirochete,

likes to hide in cells, and is rarely in the blood for testing. The fact

that you relapsed after stopping abx seems simple to me that you need them

to function.

So sorry that you are now among the unproductive, disability crowd, like

a lot of us. I am glad you kept those payments up, I just hope you don't

have difficulty getting a continuation of payments, if your doctor is among

the naysayers about this disease, you may have to find a good Lyme literate

doctor to prove your case. I would like to suggest that if you think you

will continue to be out of work, that you consider filing for SSDI. I

believe you must be out at least 6 consecutive months to apply, but keep it

in mind. It took me two years to finally get approved, and your Disability

company will most likely insist on it, if you continue to be out of work. I

had to refund my disability company for overpayment of benefits when I did

finally get SSDI. I was bitten in August 1996, stopped work in Oct 96, and

became eligible for SSDI March of 97.

Again, keep those questions coming, I am glad you found us, and hope we

can provide you with information and support.

Hugs,

Marta NJ

>Hi Marta,

>

>I never remember the tick, but I garden a lot (used to) and I also read

that

>about 60% or more of all Lymies don't even get a rash or remember the tick.

>I actually felt better before I started antibiotics, then I had a severe

>bout of Herks (Sp?), don't you guys say " Hertz " ? So that made me happy

>because I knew it must be working. But I don't think I've ever had a PCR

>test,only the Western Blot and Urine Antigen test, both were borderline.

But

>my doctor said because I actually got better after a few months on

>Antibiotics then relapsed when I went off them, that he was pretty sure I

>had Lyme. But now he thinks its just Fibromyalgia that is affecting me. The

>symptoms are so similar its hard to distinguish. Of course the underlying

>culprit is still the Lyme.

>

>I had the dream after the diagnosis, I started fearing all insects after

>that. One night I couldn't sleep because I could hear the wings of what

>sounded like a fly , fluttering right by my bed - all night! After that I

>really started feeling like I must be losing my mind. By the way, I would

be

>interested to know how many of you continue to work. I continued to work up

>through about the third month of treatment, until I couldn't stand it

>anymore. Thankfully I had been paying my disability insurance. I went back

>to work part time in June and went off antibiotics, and July thought I

would

>die. I've tried to hang in there, just to feel like I'm still alive and at

>least trying to be a contributing member of society, but to no avail, I

gave

>up this week and I'm now back on full time disability. When I feel good,

I'm

>bored out of my mind, but that doesn't happen too much. I've loved reading

>your messages, and will continue to. I feel like I belong somewhere now.

>Thanks to all. Try to remember - This to shall pass!! (If those in the med

>society would wake up, it sure would help).

>

>Talk to you soon

>Vicki

[Guest guest]

Marta,

Even though my doctor thinks I have FM, he still believes I have Lyme too.

He still lists that as my primary diagnosis. I'm was so glad that you had

the fly buzzing too, I thought I was being obsessed about bugs! Thanks for

sharing. I love this group - we all understand each other and most people

think we are nuts. I'm thankful my husband understands. But my doctor also

talks to him to help him understand. I did just recently read an article (I

think in a Fibromyalgia newsletter) it detailed how a doctor can help you

apply for SSND. I have thought about that, but have heard so many horror

stories. And I keep thinking that means I've given up. When I went back to

work part time, I couldn't even accomplish 15 hours a week and felt so

guilty, but mentally I felt better because at least I was trying. Sometimes

I just get so depressed and go back and forth, should I work, should I

not.....thats obsessing! Thanks again

Vicki

Re: [Lyme-aid]Bad dreams

>From: " J & M McCoy " <mlmccoy@...>

>

>Hi Vicki,

> Yes, most people don't recall their tick bite or have a rash, and it

>makes sense to me that you would dream about them after your diagnosis too.

>The fly buzzing or fluttering you mention has happened to me, when I was

>awake, it felt like it was right in my ear, and is a manifestation of this

>disease. I haven't had that one in a long while, so I guess the abx are

>helping. The word you were searching for is herx, short for Jarisch

>Herxheimer reaction.

>Here is a short version of what that means:

>

>The Short Definition:

>Jarisch-Herxheimer reaction (“herxing”) is an exacerbation of symptoms in

>people with Lyme disease (also syphillis) upon taking antibiotics. It is

>thought to be due to the effects of toxins produced by the organism during

>it’s

>die-off and the resulting immune system response.

>

>It sounds to me that your doctor may be in the group of physicians who feel

>that Lyme is not a chronic infection, and is giving you the fibromyalgia dx

>now. I hope he does not stop your abx in the meantime. There are two

>schools of thought here, most of us with chronic Lyme feel it is due to

>continuing infection, but because the tests to determine this are so

>unreliable we have difficulty proving this, the Lyme bacteria, spirochete,

>likes to hide in cells, and is rarely in the blood for testing. The fact

>that you relapsed after stopping abx seems simple to me that you need them

>to function.

>

> So sorry that you are now among the unproductive, disability crowd, like

>a lot of us. I am glad you kept those payments up, I just hope you don't

>have difficulty getting a continuation of payments, if your doctor is among

>the naysayers about this disease, you may have to find a good Lyme literate

>doctor to prove your case. I would like to suggest that if you think you

>will continue to be out of work, that you consider filing for SSDI. I

>believe you must be out at least 6 consecutive months to apply, but keep it

>in mind. It took me two years to finally get approved, and your Disability

>company will most likely insist on it, if you continue to be out of work.

I

>had to refund my disability company for overpayment of benefits when I did

>finally get SSDI. I was bitten in August 1996, stopped work in Oct 96, and

>became eligible for SSDI March of 97.

>

> Again, keep those questions coming, I am glad you found us, and hope we

>can provide you with information and support.

>Hugs,

>Marta NJ

>

>

>>Hi Marta,

>>

>>I never remember the tick, but I garden a lot (used to) and I also read

>that

>>about 60% or more of all Lymies don't even get a rash or remember the

tick.

>>I actually felt better before I started antibiotics, then I had a severe

>>bout of Herks (Sp?), don't you guys say " Hertz " ? So that made me happy

>>because I knew it must be working. But I don't think I've ever had a PCR

>>test,only the Western Blot and Urine Antigen test, both were borderline.

>But

>>my doctor said because I actually got better after a few months on

>>Antibiotics then relapsed when I went off them, that he was pretty sure I

>>had Lyme. But now he thinks its just Fibromyalgia that is affecting me.

The

>>symptoms are so similar its hard to distinguish. Of course the underlying

>>culprit is still the Lyme.

>>

>>I had the dream after the diagnosis, I started fearing all insects after

>>that. One night I couldn't sleep because I could hear the wings of what

>>sounded like a fly , fluttering right by my bed - all night! After that I

>>really started feeling like I must be losing my mind. By the way, I would

>be

>>interested to know how many of you continue to work. I continued to work

up

>>through about the third month of treatment, until I couldn't stand it

>>anymore. Thankfully I had been paying my disability insurance. I went back

>>to work part time in June and went off antibiotics, and July thought I

>would

>>die. I've tried to hang in there, just to feel like I'm still alive and at

>>least trying to be a contributing member of society, but to no avail, I

>gave

>>up this week and I'm now back on full time disability. When I feel good,

>I'm

>>bored out of my mind, but that doesn't happen too much. I've loved reading

>>your messages, and will continue to. I feel like I belong somewhere now.

>>Thanks to all. Try to remember - This to shall pass!! (If those in the med

>>society would wake up, it sure would help).

>>

>>Talk to you soon

>>Vicki

>

>

>

>---------------------------

[Guest guest]

Marta,

Shouldn't you be taking a high-potency multiple with lots of B's? The B vitamins

are crucial for the repair and

maintenance of the nervous system. I cured a wicked case of carpal tunnel

syndrome years ago with B-6. I think you

should consider it -- it might give you some relief from your neuropathies.

I've also found large doses of Vitamin C (I take about 6000 mg per day but I was

taking 9000 or so for a while)

helped with the joint pain. I had to work my way up to that to avoid diarrhea,

of course.

Jean

J & M McCoy wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> Thanks

> I would love to hear what some of the other LLMD's say about this. I

> can rule out Vitamin B's, I don't take them. Got a chuckle out of your

> actor's and student's dreams. Good luck at the doctor visit.

> Hugs,

> Marta NJ

>

> --

> >

> >I just read in my copy of Earl Mindell's

> > " Vitamin Bible " that one of the effects

> >of taking large amount of B-vitamins are

> >extremely vivid dreams and increased

> >dream recall. I wonder if the

> >supplements we are taking could be

> >causing the dream recall, and then the

> >stress is causing the dreams to be

> >nightmarish?

> >I've also had those dreams about school,

> >and I graduated 14 years ago! Mine

> >usually involves having to take an exam

> >for a class I never took, like Physics.

> >

> >When I was doing a lot of theatre I used

> >to have what's called " The Actor's

> >Dream, " when I arrive at the theatre

> >only to be thrust out on stage with

> > " Hurry up! You're late! That's your

> >cue! " and suddenly realize that a) I'm

> >the star, b)I either don't know what

> >play it is, or it's something incredibly

> >complex, like Shakespeare, and c)I'm

> >naked.

> >

> >I am seeing my wonderful LLMD today and

> >I'll ask her if she's had this complaint

> >of intrusive nightmares from other

> >patients.

> >

> >Jean

>

> ---------------------------

[Guest guest]

Hi

Thanks for the suggestion, years ago when I had PMS from Hell, a doctor

rx'd lots of B6....huge amounts but I don't recall the specific amounts. My

legs became numb. I later learned that large doses could cure that. My

doctor has me on Iberet Folic daily, and I do OK with that. I have vowed

not to take any more vitamins or supplement without an herbalists

recommendation, but you know, you can't even trust that for sure.

Hugs,

Marta NJ

>From: Scully <jscully@...>

>

>Marta,

>Shouldn't you be taking a high-potency multiple with lots of B's? The B

vitamins are crucial for the repair and

>maintenance of the nervous system. I cured a wicked case of carpal tunnel

syndrome years ago with B-6. I think you

>should consider it -- it might give you some relief from your neuropathies.

>I've also found large doses of Vitamin C (I take about 6000 mg per day but

I was taking 9000 or so for a while)

>helped with the joint pain. I had to work my way up to that to avoid

diarrhea, of course.

>

>Jean

[Guest guest]

Oh I think they define that as preband anxiety- I had funky dreams too

prior to getting his band and I think it was my own anxiety over having

it and being nervous that it would hurt him etc. Trust me soon you will be

dreaming of his head being as round as a bowling ball or more snuggle time.

Mommy anxieties are the worst bathing in there he and you are going to do

great!!!!!!!

Beck

[Guest guest]

In a message dated 1/12/2002 10:31:39 PM Central Standard Time, Bbbhand writes:

worst bathing in there he and you are going

I meant to say BUT HANG IN THERE- but spell check changed it sorry !

Beck

Oh I think they define that as preband anxiety- I had funky dreams too

prior to getting his band and I think it was my own anxiety over having

it and being nervous that it would hurt him etc. Trust me soon you will be

dreaming of his head being as round as a bowling ball or more snuggle time.

Mommy anxieties are the worst bathing in there he and you are going to do

great!!!!!!!

Beck

[Guest guest]

:

I have to agree with Beck's " preband anxiety " reply.......kind of

like how you have goofy dreams when you are pregnant (like how I

dreamt my kid came out as an alien, or I gave birth then forgot to

bring her home from the hospital, I could go on!).

It's so stressful waiting to get the band. Beside the casting, the

worrying about how your baby will react while wearing it, the stares

in public, will it help, etc., all this is very overwhelming.

Try to relaxe, will adjust just fine as will mommy.

YOu'll be thrilled with the DOCband! Try to get a good night's sleep

in the meantime.

Debbie Abby's mom DOCGrad

MI

> My son will be in his DOC band on the 28th of this month.

> This last week I've been having these really strange dreams!!! It

> always has something to do with his head.

> The last dream was that his soft spot expanded to be the entire top

> of his head and it was caved in!!!

> Another dream was that I went to give him a kiss and his head was a

> big mush. Kind of like how your belly is after you give

> birth...mushy. I know they are just dreams. I'm probably just

> having some anxiety.

> Has any one else out there experienced this?

>

> (mom to )

> Florida

[Guest guest]

Debbie,

Thanks! I know what you mean. I had all the goofy dreams when I was

pregnant too.

[Guest guest]

Joe O'Connor,

Thanks Joe! I like you already b/c of your name. You must have heard of the name before? (just a little irish, eeh?)

Thanks for the reassurance. Wish us luck!

casskc@...

[Guest guest]

Don't let anxiety get to you. Not only will the band help, it'll be a

fun experience. You'll look forward to bath time every night. It's not a

chore, but a chance to see how much your child's head is correcting (and to

kiss it!) Also, kids LOVE the band. Wherever we go all the children want to

see our baby and, believe it or not, WANT a helmet too! Why not it's kool,

you can decorate it, and you get attention!

Just ignore those dreams, they're no more accurate than the horrible

ones you had the night before the first day of school each year

--

Joe O'Connor

streams2oceans@...

Charlotte, NC USA

[Guest guest]

--- pmaher7777@... wrote:

> bad dreams that leave him shaking at the legs

> and this compounds his CMT problems in that area.

>

> It's Jim, Does your Dad take any meds for his CMT?

Or has he changed the dose or started any new meds in

that same time frame? Some of the meds for neurogenic

pain can do this. I don't know about the tongue

problem, but I will say this. Given the proclivity of

type 2 cmt to involve cranial nerves I wouldn't rule

it out as being a cause or factor. A trusted doctor is

a much better source of info than I am!

Jim Nash

[Guest guest]

-----------------------------------------------------------

> My father has CMT (Type II) and I also have it.

> He is 87 years old and over the past 4 months has been experiencing (every

> night) bad dreams that leave him shaking at the legs and this compounds his

> CMT problems in that area. Is this CMT related? Do other

> experience these problems and if so is there a solution? Hope you can help?

> Thanks

-----------------------------------------------------------

Hope I did this correct. I am not a computer person and I want to reply to

Bad Dreams.

I have very vivid dreams but they are not bad. They are very pleasant and I

see people and events that happened in the past. But I often have a feeling

while I am sleeping that something is attached to my feet. I wake up and

look. Of course, nothing is there.

Also, I was in Atlantic City this past week and saw people renting electric

scooters. A large truck with " Services to the Elderly " painted on it

delivered a lot of scooters to the Casino. I didn't rent one but when the

weather gets warmer I will. It will be nice to ride on the boardwalk and

travel around casino without getting soooo tired.

Joan

[Guest guest]

man last night I took an ambien to sleep cause with this illness(my resp infection) I have been sleeping so much during the day I don't want to toss and turn all night, I had no idea that I would react the way I did to those things I mean my husband said I was talking in my sleep and I can't believe what I said ha ha ha.

Anyhow, I think what had me upset, and I did it to myself was the show the Sopranos, which I love by the way. We always watch it on Sunday nights at 9:00 and last night was no different, but last night it was a story line that involved this strip club and had at least 10 strippers on it, and they all looked so ridiculous with these huge fake breasts that were way too big for any normal person.

anyhow that got me into a bad mood, I don't know why I let it upset me, it was just the whole thing, how they all were so disproportionate and huge, I thought to myself how disgusting it is that these shows promote this,then I started thinking about the fact that if men didn't find this attractive no one would be getting implants like this to begin with right? hmm well, don't mean to go off on this stupid subject, but it made me realize how society pretty much dictates to us what is sexy and what is appealing, anyhow, screw them all, I don't look like that nor do I want too, and my husband made a point that I liked, how many women look like that at the grocery store or the gym, well not many at least not around here where I live, and I thank god for that.

[Guest guest]

Hi Eve...my husband and i both experience the dreams....some are funny crazy and

other are scarey and both tend to go on forver leaving you feeling lik you had

run a maraton in the moring as if strying to sleep with lyme wasnt bad

enough//////we have tried roral jelly and melatonin both from over the counter

or a health food store......the melatonin seems to work best for me but i took

it religiouly for 2 weeks before i felt it was starting to work,.....i take it

about 20 minutes before bed and make sure im in a comfortable state of mindlike

watching tv in bed or reading and now i dont think i even get the first page

read before i go out...also i dont wake up drugged....from what i understand

myself, Melatonin is what our bodies produce to help us sleep and as we get

older not to meantion what all lyme robs from us, we tend to lose some of it

that we need so just by replacing it just like any other vitamine or suppliment

it should help......it sure has for me....sometimes n ot so

well for hubby because he has restless leg alot and getting to sleep at night

is hard...he tends to sleep more during the day.....try it and see how it works

then let the rest of us know......walmart, gnc or any pharmacy carried it over

counter.....good luck Laurie from ohio

eve <eveandal@...> wrote:

Hi I was wondering if there were any homeopathic treatments that are

known to help with bad dreams. I have them all the time since

getting lyme. I am at my witts end because they are becomeing very

horrible. I am hoping someone can help..thank you...eve

[Guest guest]

Eve,

I'm sure there is a homeopathic remedy that would help you! Have you spoken

to a homeopathic practitioner yet? You can use the following site to find

one close to you - http://www.homeopathicdirectory.com/search.asp . You may

need a remedy that helps with sleep or one that helps in another way to

remove the bad dreams. A practitioner who examines you may be able to find

something that works for you in a number of ways! Good luck!

=)

Robynn

[ ] bad dreams

Hi I was wondering if there were any homeopathic treatments that are

known to help with bad dreams. I have them all the time since

getting lyme. I am at my witts end because they are becomeing very

horrible. I am hoping someone can help..thank you...eve