Re: Levsin and Botox for drooling

[Guest guest]

>

> ,

>

> I am glad to hear that the Robinul is (somewhat) working for

Ethan.

> I would think the decrease in diahhrea alone would be a good thing!

> The foam thing is interesting, I wonder why it has changed the

> consistency of the drool...hmmm.....that would be one to run by the

> dr. especially if he has a history of aspirating. Has Ethan had a

> saliva gram done? had one a few weeks ago and it didn't show

> any aspiration, which we were surprised with the amount of

> secretions he has that he didn't have any, but we are thankful none

> the less.

>

> I will keep you informed of how the Levsin works. I am also

> starting to research the surgery as I am not sure how I feel about

> the botox. For one, it is not a permanent solution....you have to

> continue to get the injections every few weeks, insurance does not

> cover them since botox is considered cosmetic (whatever!), and I

> can't imagine would enjoy getting the injections. We'll

> see....maybe the Levsin will work. Also, we are seeing a

> naturopathic doctor on Oct. 24th. If she gives any suggestions, I

> will let you know.

>

> Take care,

> Krista

>

Krista,

I am new to this group and I saw this old posting. My daughter is 5

years old with bilateral perisylvian syndrome and she continues to

drool, using 8-10 bandanas a day. We recently had botox injected

into her parotid glands (2 weeks ago). It was a quick procedure.

However we have not seen any positive outcomes. We now will be

trying the botox into her submandibular glands. Riley did not have

any side effects from the botox and tolerated the procedure well.

Our insurance company paid for the botox and our neurologist said

that most do now. From what our neurologist said the treatments are

every 3 months. We cannot do the submandibular glands unti the

original botox wears off in 3 months. Will keep you updated. Has

anyone else tried botox for drooling? We tried robinul but riley

developed urinary retention and had to be cathed.

christina