Re: Shelly: (was Brownies) yeast/sugar free, etc. :)

[Guest guest]

In a message dated 1/11/2008 12:28:40 P.M. Central Standard Time,

sajustmyself@... writes:

So what was this book? Also, I am looking for a good book for other

children to read that are her age. Another mom with a " NT " (I put

that in quotes cuz what is neuro typical anyway? I know I'm not!

lol) daughter had asked me what she could read to her own daughter.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Ah! The book was mentioned in my original email, way down at the end. I

used " My Friend with Autism. " Here's a site that carries it. You'll find it

way down near the bottom of the list. _Autism Society of NC Bookstore:

Children's Books_

(http://store.appcomm.net/Merchant2/merchant.mv?Screen=CTGY & Store_Code=ASNC & Cate\

gory_Code=Childrens_Books) This just happens to be the first

site I ran into when I scanned for it today, but I bet many carry it.

There are several good books listed at the link above, but each has it's

target audience and shows a child of specific ability to interact. " Andy & His

Yellow Frisby " is written for elementary ages and shows a boy who's fairly

withdrawn. I remember thinking that " Captain Tommy " was a really good story in

its way. It is targeted for elementary audiences too. It has a nice

positive attitude, but it's hero is the NT boy who learns to befriend the child

with ASD. Might be what you're looking for?

I liked " My Friend With Autism " because it promotes understanding and

friendship positively w/o being condescending to the child with ASD. It is

written

from the NT viewpoint, yet the central character is the child with ASD - and

it can be used as a coloring book. I chose this because I wanted a book

that would help my dd see herself in a positive light. At the time, there was

no book showing a girl with ASD. I think I'll go back through this list

myself and see if they have some after 4 years.

Oh, and a warning about this list at the link above to ASNC:

IMO, Little Rainman does not belong on this page of children's literature.

It's a lovely little book, and it would make any mom tear up, but it should

be listed as a book for adults. It is written for an adult attention span and

adult vocabulary, with entire pages of long text passages.

Well, I really went on didn't I? I hope there was something helpful?

Sandi from Houston

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I take melatonin. Time release stuff, which means Im

groggy because I time release SLOWWWW but the hangover

is better than not sleeping (seroquel was a one night

stand because it made me HYPER).

Why are you going sugar free? I'm yeastless because

frankly I dislike diarreah, but I thought cutting out

sugar was a later step in that particular protocol?

Are you cutting out all sugar or just refined white?

High fructose corn syrup is more problematic for a lot

of people than raw sugar, but it's also in bleeping

EVERYTHING...Kinnickinick (I totally mutilated that)

has a pretty good gluten free yeast free bread. I

prefer tortillas, but I eat weird food.

Kassiane

--- sajustmyself wrote:

> Hi everyone,

>

> So what was this book? Also, I am looking for a

> good book for other

> children to read that are her age. Another mom with

> a " NT " (I put

> that in quotes cuz what is neuro typical anyway? I

> know I'm not!

> lol) daughter had asked me what she could read to

> her own daughter.

>

> Also, we have to first go yeast and sugar free.

> This is looking like

> a nightmare and very expensive. Anyone with any

> thoughts?

>

> Another thing, I've heard bad things about miralax.

> My DAN! doc

> recommended this for Hannah's constipation, but I

> haven't done enough

> research on it to know. Sounds like a bad thing

> from what I've heard

> so far....

>

> Anyone using Melatonin to help with sleep? Hannah

> takes 10mg

> focalin, 50mg Seroquel (at night for sleep; I want

> to get her off of

> this but one thing at a time), Singulair and now

> she's on sublingual

> candida drops and diflucan. Sleep is still a major

> issue for her and

> we have those same battles in the morning or right

> after school.

> Hitting, screaming, kicking...all the fun stuff.

>

> Thanks to you all. Haven't written in a while.

> Still in that

> grieving stage and doing lots of crying. Taking in

> so much info too.

>

> Hugs to you all (and your kids!),

>

>

>

>

>

> >

> >

> > , I'm sorry this took so long. I've been

> really sick with a

> bug since

> > last Saturday, and I'm just getting back to you.

> >

> > Anyway, you asked when I had " the talk " with

> Allie. She must have

> been 8

> > when she learned she has Autism. I just felt that

> she was ready to

> hear it.

> > Allie was recognizing that some girls didn't like

> her, no matter

> how hard she

> > tried and wanted them to. I don't know if I'm

> describing this very

> well ...

> > She was beginning to express more than basic hurt

> and frustration

> at not

> > getting invited to parties and sleep overs. She

> was asking " why, "

> and

> > discussing people and what makes them tick.

> >

> > I could have done it several months sooner if I

> could have found

> the right

> > book. I wanted something at her reading level,

> with a positive

> attitude, and

> > most especially that depicted a child at her level

> of functioning.

> I wanted

> > her to recognize herself in the book. When I see

> all of the books

> out there

> > now, I just can't believe how hard it was to find

> anything remotely

> > appropriate just 4 years ago.

> >

> > Sandi from Houston

> >

> >

> > In a message dated 1/4/2008 10:06:12 A.M. Central

> Standard Time,

> > sajustmyself@... writes:

> >

> > Sandi,

> >

> > How old was your daughter when you did this?

> >

> >

> >

> > --- In _Autism_in_Girls@Autism_in_GiAut_

> > (mailto:Autism_in_Girls ) ,

> D22@, Sa

> > > ~~~~~~~~~~~~ ~~~~ ~~~

> > > Anyway, this strand reminds me of when I had

> " the talk " with

> > Allie. I didn't make a deal of it and sit her down

> and get all

> serious.

> > I bought " My Friend With Autism " , and after it

> arrived I slipped it

> > into the stack of storybooks we were reading

> together one day. We

> hadn't

> > gotten half way through when Allie leaped off the

> couch and swung

> around to

> > face me and exclaimed, " That's me! " " I'm just like

> that! " " Do I

> have

> > Autism? " and when I smiled and said " Yes " she just

> beamed. She felt

> SO

> > validated,

> > so happy to have an explanation about why she felt

> so different

> than others

> > about everyday things. Then there was this

> outpouring of questions,

> > <grin> like a flood! I think she stimmed for a

> good 10 minutes in

> > excitement! Then we

> > finished reading the book together and talked and

> talked that day.

> It's

> > one of my favorite memories. :-)

> >

> > Sandi

> >

> > **************Start the year off right. Easy ways

> to stay in shape.

> > http://body.aol.com/fitness/winter-exercise?

> NCID=aolcmp00300000002489

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them

> fast with Yahoo!

> Search.

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

> Anyone using Melatonin to help with sleep? Hannah takes 10mg

> focalin, 50mg Seroquel (at night for sleep; I want to get her off of

> this but one thing at a time),

One thing I have noticed is that my daughter's behavior is WAY

better if we allow her to wake herself up as opposed to waking her

up. No matter how we try to change her sleep pattern, A will not go

to sleep until around midnight(then she passes out cold). We tried

that whole getting her up early, wearing her out, trying to change her

sleeping hours, and it never worked.

So, now we don't try anymore. We have rules. She has to stay in

her room after 9pm, because that's bedtime, but she's never actually

SLEEPING. She wakes herself up sometime between 9am and 11am, and

then we have breakfast and start school once she's dressed. On

occasion, due to dr appts or other obligations, we have to wake her up

as opposed to letting her wake up, and those days are waking

nightmares for us. She throws tantrums, won't follow any

instructions, is WAY more sensitive to sound, and actually complains

of much more pain(leg pain, headaches).

I know homeschooling isn't an option for everybody, but some

children do go to school later in the day. An added benefit is the

shorter school day, which may be more tolerable for some children as

well.

Just a suggestion from what we've noticed in our daughter.

Others try to tell us that A is not functioning properly and we need

to have her on a " normal " schedule, but if " normal " is days like I

mentioned above, I'll take abnormal any day.

[Guest guest]

How old is your daughter? Hannah's 8 and also will do ANYTHING to

fight the sleep. She's even fallen asleep (just about until she

wakes herself up) at the dining table while having her bedtime

snack! She'll keep eating just to keep herself awake! She's 51

inches tall and just broke 50lbs last month, so I don't want to not

let her eat; she's tiny!

>

>

>

> > Anyone using Melatonin to help with sleep? Hannah takes 10mg

> > focalin, 50mg Seroquel (at night for sleep; I want to get her off

of

> > this but one thing at a time),

>

> One thing I have noticed is that my daughter's behavior is WAY

> better if we allow her to wake herself up as opposed to waking her

> up. No matter how we try to change her sleep pattern, A will not

go

> to sleep until around midnight(then she passes out cold). We tried

> that whole getting her up early, wearing her out, trying to change

her

> sleeping hours, and it never worked.

>

> So, now we don't try anymore. We have rules. She has to stay

in

> her room after 9pm, because that's bedtime, but she's never

actually

> SLEEPING. She wakes herself up sometime between 9am and 11am, and

> then we have breakfast and start school once she's dressed. On

> occasion, due to dr appts or other obligations, we have to wake her

up

> as opposed to letting her wake up, and those days are waking

> nightmares for us. She throws tantrums, won't follow any

> instructions, is WAY more sensitive to sound, and actually

complains

> of much more pain(leg pain, headaches).

>

> I know homeschooling isn't an option for everybody, but some

> children do go to school later in the day. An added benefit is the

> shorter school day, which may be more tolerable for some children

as

> well.

>

> Just a suggestion from what we've noticed in our daughter.

> Others try to tell us that A is not functioning properly and we

need

> to have her on a " normal " schedule, but if " normal " is days like I

> mentioned above, I'll take abnormal any day.

>

[Guest guest]

My daughter is 8, will be 9 in March. She's also pretty small,

but now is 57 lbs or so. She was under 40 until a couple months

before her eighth b-day. This year has actually been great for

weight. I was scared to go GF b/c of her history of not gaining for

long times, but it hasn't had any weight loss effect.

>

> How old is your daughter? Hannah's 8 and also will do ANYTHING to

> fight the sleep. She's even fallen asleep (just about until she

> wakes herself up) at the dining table while having her bedtime

> snack! She'll keep eating just to keep herself awake! She's 51

> inches tall and just broke 50lbs last month, so I don't want to not

> let her eat; she's tiny!

>

>

>