Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 What kinds of behaviors did your son show when he was on Zoloft, and at what dose? My 7-year-old has OCD and ADHD and had slight improvement at 1 ml of liquid Sertraline, but at 2 ml started to get belligerent and oppositional. To make matters more difficult, he is now afraid to swallow pills, which is too bad because 1 mg of Intuniv seemed to lessen his hyperactivity. I, too, feel like the family is unraveling. I hadn't heard that news about bipolarity associated with the reaction to SSRIs. That's a diagnosis that we haven't yet come across. He's now off all meds and we're trying a new behavioral therapist on Monday. I'm crossing my fingers that she'll be able to help us. paradoxical reaction to SSRI's I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that says that if a child is having this kind of reaction to SSRI's that there may be some underlying bi-polarity, but the doctor and I just do not see any flags that would suggest that. I really am hesitant to put him on a mood stabalizer when the only time his mood is labile is when he is on medication. We are losing hope and becoming despondent over here. It feels like my family is unraveling. We also are trying to get him a 504 plan at school, which looks like it will happen, but I don't think the school has ever had a kid on a 504 with OCD before so it just makes me feel like I am treading water and asking for accommodations that I hope will work (timed tests and work shut him down and trigger him). If there is anyone who has any suggestions or experience in this area, please...my husband and I feel so alone and isolated in this. I certainly know my share of children who are on the autism spectrum or have ADHD...but we seem hopelessly alone with pediatric OCD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 What kinds of behaviors did your son show when he was on Zoloft, and at what dose? My 7-year-old has OCD and ADHD and had slight improvement at 1 ml of liquid Sertraline, but at 2 ml started to get belligerent and oppositional. To make matters more difficult, he is now afraid to swallow pills, which is too bad because 1 mg of Intuniv seemed to lessen his hyperactivity. I, too, feel like the family is unraveling. I hadn't heard that news about bipolarity associated with the reaction to SSRIs. That's a diagnosis that we haven't yet come across. He's now off all meds and we're trying a new behavioral therapist on Monday. I'm crossing my fingers that she'll be able to help us. paradoxical reaction to SSRI's I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that says that if a child is having this kind of reaction to SSRI's that there may be some underlying bi-polarity, but the doctor and I just do not see any flags that would suggest that. I really am hesitant to put him on a mood stabalizer when the only time his mood is labile is when he is on medication. We are losing hope and becoming despondent over here. It feels like my family is unraveling. We also are trying to get him a 504 plan at school, which looks like it will happen, but I don't think the school has ever had a kid on a 504 with OCD before so it just makes me feel like I am treading water and asking for accommodations that I hope will work (timed tests and work shut him down and trigger him). If there is anyone who has any suggestions or experience in this area, please...my husband and I feel so alone and isolated in this. I certainly know my share of children who are on the autism spectrum or have ADHD...but we seem hopelessly alone with pediatric OCD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. Trilets! I thought they'd be fun. I had twins (the one above and his brother, not identical). 's OCD started in 6th grade, severe onset, but he had his little OCD type quirks prior to that (erasing, type of repetitive questions he'd ask...). But in 6th grade, all this new stuff just popped up 24/7, whew! We got him a 504 Plan for school too then. I hadn't heard of them until then. They also hadn't had an OCD student before, other than one that had contamination issues and " he went on medication and was fine... " Ugh! 's OCD wasn't the more common type overall, I couldn't have found any exact behaviors in any book for most of them. We had to get extra time on tests (actually, no time limit); extra time for homework (could be late with no grade penalty); teachers needed to ask him for any missing homework (he might not turn in); I had to write for him, his writing got so scratchy that he also ended up with a dysgraphia diagnosis for that problem; he got teacher notes for some things, when available, so he wouldn't have to take notes in class...what else? He could bring all unfinished work home (vs having to turn it in) so that we could do it at home. The " turn in late with no grade penalty " varied per teacher, this was middle school so more than one teacher to deal with. But basically we tried to have all *this week's* assignments turned in by following Monday. Some things we made sure to get done every night, like math that they would check in class the next day. Anything where they might exchange a paper with a classmate, etc. Really, I had to learn (over time) to try to think of it as educating the school about OCD so they'd be ready for the next child, that way I didn't take it too personally. After a time. At first I was a wreck, cried terribly at one meeting.... Feel free to ask any questions, hope this helps a bit. , 22, with OCD, dysgraphia, Aspergers graduated UNC-CH August 2011, B.S. Biology...no job yet! but he's not exactly looking real hard > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. Trilets! I thought they'd be fun. I had twins (the one above and his brother, not identical). 's OCD started in 6th grade, severe onset, but he had his little OCD type quirks prior to that (erasing, type of repetitive questions he'd ask...). But in 6th grade, all this new stuff just popped up 24/7, whew! We got him a 504 Plan for school too then. I hadn't heard of them until then. They also hadn't had an OCD student before, other than one that had contamination issues and " he went on medication and was fine... " Ugh! 's OCD wasn't the more common type overall, I couldn't have found any exact behaviors in any book for most of them. We had to get extra time on tests (actually, no time limit); extra time for homework (could be late with no grade penalty); teachers needed to ask him for any missing homework (he might not turn in); I had to write for him, his writing got so scratchy that he also ended up with a dysgraphia diagnosis for that problem; he got teacher notes for some things, when available, so he wouldn't have to take notes in class...what else? He could bring all unfinished work home (vs having to turn it in) so that we could do it at home. The " turn in late with no grade penalty " varied per teacher, this was middle school so more than one teacher to deal with. But basically we tried to have all *this week's* assignments turned in by following Monday. Some things we made sure to get done every night, like math that they would check in class the next day. Anything where they might exchange a paper with a classmate, etc. Really, I had to learn (over time) to try to think of it as educating the school about OCD so they'd be ready for the next child, that way I didn't take it too personally. After a time. At first I was a wreck, cried terribly at one meeting.... Feel free to ask any questions, hope this helps a bit. , 22, with OCD, dysgraphia, Aspergers graduated UNC-CH August 2011, B.S. Biology...no job yet! but he's not exactly looking real hard > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Thanks for the replies. It is so isolating and difficult. The Zoloft he started at 25 mg and became almost hypomanic- very irritable, oppositional, angry, provokative...really not himself. It was very scary. The prozac is liquid and we went really small- 2mg every other day. He is not as bad as he was on the zoloft but he is having mood swings at home and says he " feels wild and miserable. " He does not have ADHD but he does have depressed mood although partially because he feels like the OCD is so unbearable. > > What kinds of behaviors did your son show when he was on Zoloft, and at what dose? My 7-year-old has OCD and ADHD and had slight improvement at 1 ml of liquid Sertraline, but at 2 ml started to get belligerent and oppositional. To make matters more difficult, he is now afraid to swallow pills, which is too bad because 1 mg of Intuniv seemed to lessen his hyperactivity. I, too, feel like the family is unraveling. I hadn't heard that news about bipolarity associated with the reaction to SSRIs. That's a diagnosis that we haven't yet come across. > > > He's now off all meds and we're trying a new behavioral therapist on Monday. I'm crossing my fingers that she'll be able to help us. paradoxical reaction to SSRI's > > > > > > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that says that if a child is having this kind of reaction to SSRI's that there may be some underlying bi-polarity, but the doctor and I just do not see any flags that would suggest that. I really am hesitant to put him on a mood stabalizer when the only time his mood is labile is when he is on medication. We are losing hope and becoming despondent over here. It feels like my family is unraveling. We also are trying to get him a 504 plan at school, which looks like it will happen, but I don't think the school has ever had a kid on a 504 with OCD before so it just makes me feel like I am treading water and asking for accommodations that I hope will work (timed tests and work shut him down and trigger him). If there is anyone who has any suggestions or experience in this area, please...my husband and I feel so alone and isolated in this. I certainly know my share of children who are on the autism spectrum or have ADHD...but we seem hopelessly alone with pediatric OCD. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Thanks for the replies. It is so isolating and difficult. The Zoloft he started at 25 mg and became almost hypomanic- very irritable, oppositional, angry, provokative...really not himself. It was very scary. The prozac is liquid and we went really small- 2mg every other day. He is not as bad as he was on the zoloft but he is having mood swings at home and says he " feels wild and miserable. " He does not have ADHD but he does have depressed mood although partially because he feels like the OCD is so unbearable. > > What kinds of behaviors did your son show when he was on Zoloft, and at what dose? My 7-year-old has OCD and ADHD and had slight improvement at 1 ml of liquid Sertraline, but at 2 ml started to get belligerent and oppositional. To make matters more difficult, he is now afraid to swallow pills, which is too bad because 1 mg of Intuniv seemed to lessen his hyperactivity. I, too, feel like the family is unraveling. I hadn't heard that news about bipolarity associated with the reaction to SSRIs. That's a diagnosis that we haven't yet come across. > > > He's now off all meds and we're trying a new behavioral therapist on Monday. I'm crossing my fingers that she'll be able to help us. paradoxical reaction to SSRI's > > > > > > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that says that if a child is having this kind of reaction to SSRI's that there may be some underlying bi-polarity, but the doctor and I just do not see any flags that would suggest that. I really am hesitant to put him on a mood stabalizer when the only time his mood is labile is when he is on medication. We are losing hope and becoming despondent over here. It feels like my family is unraveling. We also are trying to get him a 504 plan at school, which looks like it will happen, but I don't think the school has ever had a kid on a 504 with OCD before so it just makes me feel like I am treading water and asking for accommodations that I hope will work (timed tests and work shut him down and trigger him). If there is anyone who has any suggestions or experience in this area, please...my husband and I feel so alone and isolated in this. I certainly know my share of children who are on the autism spectrum or have ADHD...but we seem hopelessly alone with pediatric OCD. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 So, Chris- it has been your experience that people have had to go through several SSRI's? This offers a glimmer of hope. > > > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 So, Chris- it has been your experience that people have had to go through several SSRI's? This offers a glimmer of hope. > > > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Yes you do have to go thru several different SSRI's. Each one acts different on a person. It is a lot of weeding out. ________________________________ To: Sent: Thursday, December 8, 2011 7:46 PM Subject: Re: paradoxical reaction to SSRI's  So, Chris- it has been your experience that people have had to go through several SSRI's? This offers a glimmer of hope. > > > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Yes you do have to go thru several different SSRI's. Each one acts different on a person. It is a lot of weeding out. ________________________________ To: Sent: Thursday, December 8, 2011 7:46 PM Subject: Re: paradoxical reaction to SSRI's  So, Chris- it has been your experience that people have had to go through several SSRI's? This offers a glimmer of hope. > > > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Loretta, well in the years I've been in this group, some have been lucky like us and the first one helped. And others have had to try more than one. And some may find it's the 3rd or 4th one that helps. I don't know that the majority do try more than one, but I suspect so. Prozac seems to be activating from what I read from others. Works great for many, but others will use that word " activating. " With any of the meds, if there are initial side effects, best to hang in there (so long as there's no dangerous type reaction with behaviors, etc.) and see if it passes in a couple weeks or so. Also, OCD can increase sometimes when starting a med, but that can be a good sign that it will work, so hang in there if that happens, to see. If there is a history of bipolar in the family, yeah, do watch for that if starting an SSRI. One woman I know of had to start on the liquid prozac and take tiny amounts and slowly build up, she couldn't handle the regular pill/capsule (whatever it comes in). She's used prozac for years now and works great for her OCD. She's off the liquid. Keep us updated on how things are going with your family! > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Loretta, well in the years I've been in this group, some have been lucky like us and the first one helped. And others have had to try more than one. And some may find it's the 3rd or 4th one that helps. I don't know that the majority do try more than one, but I suspect so. Prozac seems to be activating from what I read from others. Works great for many, but others will use that word " activating. " With any of the meds, if there are initial side effects, best to hang in there (so long as there's no dangerous type reaction with behaviors, etc.) and see if it passes in a couple weeks or so. Also, OCD can increase sometimes when starting a med, but that can be a good sign that it will work, so hang in there if that happens, to see. If there is a history of bipolar in the family, yeah, do watch for that if starting an SSRI. One woman I know of had to start on the liquid prozac and take tiny amounts and slowly build up, she couldn't handle the regular pill/capsule (whatever it comes in). She's used prozac for years now and works great for her OCD. She's off the liquid. Keep us updated on how things are going with your family! > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Based on the paradoxical reaction he had to 2 SSRI's the doctor is talking about trying a mood stabilizer which I am really flipping out over. I really do like our doctor and I think if I beg him to try one more SSRI he will...but I have to admit that I also am perplexed over my son's reaction. Still, it is the OCD that is clearly an issue..his mood is only unstable in reaction to the SSRI's...and the mood stabilizers are riddled with hepatic side effects, metabolic side effects, etc...I feel like I am barely breathing:( > > > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 I competely agree with Chris- You just need to switch and keep trying. We had the same thing with our son. It is exhausting. Keep trying or try the atypical antispychotics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 They are talking about starting my daughter on meds...as I am reading these post the word " activating " keeps coming up...What does that mean in regards to side effects of meds? > > > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 Loretta, my dd is bipolar and was originally activated by an SSRI. She, however, did not stop when the SSRI was removed. Hers was not a matter of just being belligerent. For instance, one huge red flag is related to sleep. She went 5 straight weeks only able to sleep 2 hours per 24 hour period. Her body could literally not stop. Is your son having major sleep issues, ,which are different than sleep issues related to anxiety? That would be more indicative of bipolar. Don't give up. My dd had very severe issues causing her to miss 3 years of high school. When we were finally able to get her meds right she flourished and is a junior in college now. We had tried many different combinations until we finally hit on the one that gave her her life back. Stormy Sent from my iPad > > > > > > > > > > > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 No sleep issues here. The only flag there is is his reaction to the SSRI's. I, however, am having sleep issues due to all of the stress:( > > > > > > > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > > > > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 - " activating " means getting amped up...restless, agitated, hyped and so forth. While some of this may be an initial side effect that passes, some kids, like mine apparently, can swing into more of a hypomanic state and it needs to be stopped. From what I am learning, most kids do not have the reaction that my son is having so don't let this post scare you from trying something that works. I am on an SSRI for OCD and it has literally saved my life. My symptoms are 85% better on meds than without them. > > > > > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 - " activating " means getting amped up...restless, agitated, hyped and so forth. While some of this may be an initial side effect that passes, some kids, like mine apparently, can swing into more of a hypomanic state and it needs to be stopped. From what I am learning, most kids do not have the reaction that my son is having so don't let this post scare you from trying something that works. I am on an SSRI for OCD and it has literally saved my life. My symptoms are 85% better on meds than without them. > > > > > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 So, I talked to our psychiatrist and he is suggesting Trileptal. Anyone have any first hand experience with this? > > > > > > > > > > > > Hi Loretta! You may need to try yet a 3rd SSRI. Others have had to, and it might be that 3rd, or 4th, one that works well. It's a shame they don't have one med that works for everyone, it's " try this, try that.... " But it's great when you get *the* one. > > > > > > > > > > > > Was lucky with my own son (now 22), we tried Celexa first and it worked well. I worried prior to that about side effects and having to try them all or something, but besides some tiredness (he took naps!), it worked well for him. He wasn't an active kid anyway. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 " They are talking about starting my daughter on meds...as I am reading these post the word " activating " keeps coming up...What does that mean in regards to side effects of meds? " - For us activating was removing inhibitions- so, our son who always wanted to be good and do the right thing suddenly was stealing, lying, swearing, fighting. He went from pathetic and dysfunctioal wiht his OCD to a functional sociopath. He also got suicidal on Prozac. Zoloft was better- still activating at higher doses ( above 50 mg for us) but worked great for his OCD at 150 mg. We lived with the sociopathic behavior, tried to really get a handle on the OCD with CBT then weaned down to managable doses over time. I was too chicken to try another one , but it may have been the right thing to do. He is currently on 25 mg and doing pretty well ( tho we jsut got a cleaning lady for the first time in about 6 years and I can see how happy it makes his OCD to have the place clean- OCD wants to keep it that way- we may have to fire her- we will see) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 , lol, fire the cleaning lady to treat/boss back the OCD? Have to smile at that. He is currently on 25 mg and doing pretty well ( tho we jsut got a cleaning lady for the first time in about 6 years and I can see how happy it makes his OCD to have the place clean- OCD wants to keep it that way- we may have to fire her- we will see) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 , lol, fire the cleaning lady to treat/boss back the OCD? Have to smile at that. He is currently on 25 mg and doing pretty well ( tho we jsut got a cleaning lady for the first time in about 6 years and I can see how happy it makes his OCD to have the place clean- OCD wants to keep it that way- we may have to fire her- we will see) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2011 Report Share Posted December 15, 2011 The only thing that worked for my son - without side effects is Luvox... > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that says that if a child is having this kind of reaction to SSRI's that there may be some underlying bi-polarity, but the doctor and I just do not see any flags that would suggest that. I really am hesitant to put him on a mood stabalizer when the only time his mood is labile is when he is on medication. We are losing hope and becoming despondent over here. It feels like my family is unraveling. We also are trying to get him a 504 plan at school, which looks like it will happen, but I don't think the school has ever had a kid on a 504 with OCD before so it just makes me feel like I am treading water and asking for accommodations that I hope will work (timed tests and work shut him down and trigger him). If there is anyone who has any suggestions or experience in this area, please...my husband and I feel so alone and isolated in this. I certainly know my share of children who are on the autism spectrum or have ADHD...but we seem hopelessly alone with pediatric OCD. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2011 Report Share Posted December 16, 2011 You might want to take a look at thebalancedmind.org to read up on pediatric bipolar disorder: it doesn't follow the exact same patterns as the adult version of bp. Many doctors are reluctant to " label " a child with bp. But if an SSRI med makes things worse and a mood-stabilizing med helps, it doesn't really matter what you call it. My son has bp and we spent many anguishing years searching for the " right " mood-stabilizing med for him. Finally we found it. What emerged after his mood was stabilized was OCD. OCD was probably there all along, but masked by the other more dramatic symptoms. Anyhow, as you probably know, a person with BP who can't tolerate an SSRI alone can often tolerate an SSRI once a mood stabilizing med is in place. My son is able to take Zoloft in addition to mood stabilizers. In addition to Zoloft, he needed (and continues with) CBT with ERP. He's made good progress thanks to an excellent psychologist. (And thanks to his own determination.) Hope this helps. > The only thing that worked for my son - without side effects is Luvox... > > > > > > I am new to the listserve and really struggling. I, myself, have OCD which is managed with meds...but one of my 8 year old sons (I have triplets) has been recently diagnosed and has been really suffering. Unfortunately, he seems to be having a paradoxical reaction to SSRI's. First we tried zoloft and he became hypomanic. Now we have switched to a very tiny dose of liquid prozac (2mg) and he is still very " activated. " I know that there is research that says that if a child is having this kind of reaction to SSRI's that there may be some underlying bi-polarity, but the doctor and I just do not see any flags that would suggest that. I really am hesitant to put him on a mood stabalizer when the only time his mood is labile is when he is on medication. We are losing hope and becoming despondent over here. It feels like my family is unraveling. We also are trying to get him a 504 plan at school, which looks like it will happen, but I don't think the school has ever had a kid on a 504 with OCD before so it just makes me feel like I am treading water and asking for accommodations that I hope will work (timed tests and work shut him down and trigger him). If there is anyone who has any suggestions or experience in this area, please...my husband and I feel so alone and isolated in this. I certainly know my share of children who are on the autism spectrum or have ADHD...but we seem hopelessly alone with pediatric OCD. > > > > Quote Link to comment Share on other sites More sharing options...
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