Re: Sudden onset OCD article in OC Foundation newslettter

[Guest guest]

Thanks for sharing this Kara! I think I saw the PANS mentioned a while back

(first I'd heard the term) so glad you shared this. Have to read later, just

peeking in now from work. Will probably take me a bit of time to not

automatically type PANDAS!

>

> This is a great article that was published in the most recent IOCF newsletter.

It was written by Jenike, a highly regarded expert in the field of OCD.

It mentions a name change from PANDAS to PANS, to take into account that

infections other than strep are often at play. In addition to listing symptoms,

it gives recommendations for testing to pursue prior to starting treatment as

well as treatment options.

>

> I think this is a great thing to pass on to doctors, psychiatrists and

teachers...especially if their knowledge of PANS (formerly PANDAS or PITAND) is

limited.

>

> Here is the link:

http://www.ocfoundation.org/default.aspx?id=2279 & terms=pandas

>

> Kara

>

[Guest guest]

No problem!

While I'm here I'm also going to share a milestone. My dd9 went to the

hairdresser yesterday for the first time in over a year! This was a biggie for

us. The funny thing was, when I complimented on what a great job she did, she

had no idea why I thought so. It apparently caused her no discomfort/fear

whatsoever.

She also asked when she could stop taking her medication. I told her that Dr. J

said 2 months after her all her symptoms are gone. She replied, " so in 2

months? " Even though I think she still has some minor lingering symptoms, she

apparently feels good herself. I took that as a good sign.

Kara

> >

> > This is a great article that was published in the most recent IOCF

newsletter. It was written by Jenike, a highly regarded expert in the

field of OCD. It mentions a name change from PANDAS to PANS, to take into

account that infections other than strep are often at play. In addition to

listing symptoms, it gives recommendations for testing to pursue prior to

starting treatment as well as treatment options.

> >

> > I think this is a great thing to pass on to doctors, psychiatrists and

teachers...especially if their knowledge of PANS (formerly PANDAS or PITAND) is

limited.

> >

> > Here is the link:

http://www.ocfoundation.org/default.aspx?id=2279 & terms=pandas

> >

> > Kara

> >

>

[Guest guest]

That is good!

Sharon

________________________________

To:

Sent: Wednesday, September 21, 2011 5:11 AM

Subject: Re: Sudden onset OCD article in OC Foundation

newslettter

 

No problem!

While I'm here I'm also going to share a milestone. My dd9 went to the

hairdresser yesterday for the first time in over a year! This was a biggie for

us. The funny thing was, when I complimented on what a great job she did, she

had no idea why I thought so. It apparently caused her no discomfort/fear

whatsoever.

She also asked when she could stop taking her medication. I told her that Dr. J

said 2 months after her all her symptoms are gone. She replied, " so in 2

months? " Even though I think she still has some minor lingering symptoms, she

apparently feels good herself. I took that as a good sign.

Kara

> >

> > This is a great article that was published in the most recent IOCF

newsletter. It was written by Jenike, a highly regarded expert in the

field of OCD. It mentions a name change from PANDAS to PANS, to take into

account that infections other than strep are often at play. In addition to

listing symptoms, it gives recommendations for testing to pursue prior to

starting treatment as well as treatment options.

> >

> > I think this is a great thing to pass on to doctors, psychiatrists and

teachers...especially if their knowledge of PANS (formerly PANDAS or PITAND) is

limited.

> >

> > Here is the link:

http://www.ocfoundation.org/default.aspx?id=2279 & terms=pandas

> >

> > Kara

> >

>

[Guest guest]

Hooray for your dd, even tho she doesn't know she needs a " hooray! " That's

great she feels she has no symptoms. She's on an antibiotic type med, right?

(for PANS - see, I did that! or the lyme/bartonella...) Anyway, I do hope it

all continues when she's off them. Cross fingers! You'll have to give us an

update on that when the time comes.

> >

> > Thanks for sharing this Kara! I think I saw the PANS mentioned a while back

(first I'd heard the term) so glad you shared this. Have to read later, just

peeking in now from work. Will probably take me a bit of time to not

automatically type PANDAS!

>