Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Hello and welcome to the new folks on the list. I realized that I never welcome newbies or introduce myself. I am sorry. I don't post too often but I try to keep up with everything. I am Melinda, Massachusetts mom to Em, 15, mid-spectrum, OCD, possible mitochondrial disorder, also very verbal, beautiful, inquisitive in her own way, loves to write and sing and record her voice. I will try to post a picture someday. Em is my only child. A gift of grace actually as I had five miscarriages. I am divorced from her father for nine years, ( still not a good situation) remarried to a wonderful man for three years now. I well remember what it was like to be a single Mom for years, struggling with night after night of sleep deprivation ( sweet E didn't reliably sleep through til age 10) and so many challenges. Through the grace of God and many lessons learned my girl and I got through some very tough years. I teach Yoga and write a bit myself. E is in a substantially separate classroom, always has been and this is best for her. She has some great gifts, has big social challenges and does not do well in crowded noisy environments. Skills scattered but ranging from about 3rd grade to about sixth ( she is in ninth), but reads at or above grade level. Comprehension lower. She and I have tried many many approaches through the years including trialing GF/CF more than once. She is not a responder but does well with fish oil, various vitamin supplements and Evening Primrose Oil. She has an odd and limited diet. Biggest challenges remain self-care, advocating for herself, focus. I am most concerned with looking ahead to her adulthood and helping her find her place in this very challenging world. Like all of you, I desperately want her safety and happiness. I want her life to be peaceful and for her to have a meaningful way to occupy herself when she is out of school. By that I mean meaningful for her. I worry most ( try not to but do) about what will happen for her and to her when I am no longer around. I am 46. This child is by far the most incredible gift I have ever been blessed to receive. I know lots of parents of kids with needs, many wonderful people, am connected to an Autism center nearby, but I do struggle with feeling isolated and lonely still. I often wish for better connections. This list is wonderful and the only one I truly keep up with. I am deeply grateful to everyone who posts but especially to Sondra, Kassi, other spectrum women who share of themselves and offer great insight and advice. I only wish we could all live closer together and form some sort of community. I will try to post more often. Happy New Year to all! Melinda **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Beautifully written and u r what I would like to be in my alternate life! a yoga teacher and writer I actually want to teach yoga to children in special education.someday. for now I work corporate. Cheers, Dana Priscillasmum > > Hello and welcome to the new folks on the list. I realized that I never > welcome newbies or introduce myself. I am sorry. I don't post too often but I try > to keep up with everything. I am Melinda, Massachusetts mom to Em, 15, > mid-spectrum, OCD, possible mitochondrial disorder, also very verbal, beautiful, > inquisitive in her own way, loves to write and sing and record her voice. I > will try to post a picture someday. Em is my only child. A gift of grace > actually as I had five miscarriages. I am divorced from her father for nine years, > ( still not a good situation) remarried to a wonderful man for three years > now. I well remember what it was like to be a single Mom for years, struggling > with night after night of sleep deprivation ( sweet E didn't reliably sleep > through til age 10) and so many challenges. Through the grace of God and many > lessons learned my girl and I got through some very tough years. I teach > Yoga and write a bit myself. E is in a substantially separate classroom, always > has been and this is best for her. She has some great gifts, has big social > challenges and does not do well in crowded noisy environments. Skills > scattered but ranging from about 3rd grade to about sixth ( she is in ninth), but > reads at or above grade level. Comprehension lower. She and I have tried many > many approaches through the years including trialing GF/CF more than once. She > is not a responder but does well with fish oil, various vitamin supplements > and Evening Primrose Oil. She has an odd and limited diet. Biggest > challenges remain self-care, advocating for herself, focus. I am most concerned with > looking ahead to her adulthood and helping her find her place in this very > challenging world. Like all of you, I desperately want her safety and happiness. > I want her life to be peaceful and for her to have a meaningful way to > occupy herself when she is out of school. By that I mean meaningful for her. I > worry most ( try not to but do) about what will happen for her and to her when I > am no longer around. I am 46. This child is by far the most incredible gift > I have ever been blessed to receive. I know lots of parents of kids with > needs, many wonderful people, am connected to an Autism center nearby, but I do > struggle with feeling isolated and lonely still. I often wish for better > connections. > This list is wonderful and the only one I truly keep up with. I am > deeply grateful to everyone who posts but especially to Sondra, Kassi, other > spectrum women who share of themselves and offer great insight and advice. I only > wish we could all live closer together and form some sort of community. > I will try to post more often. Happy New Year to all! > > Melinda > > > > **************Start the year off right. Easy ways to stay in shape. > http://body.aol.com/fitness/winter-exercise? NCID=aolcmp00300000002489 > > > Quote Link to comment Share on other sites More sharing options...
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