Re: OK when she's not at home

November 25, 2011

Someone else will respond with more info from experience, but I believe

this is common. OCD kids let it all out at home, and often can pretend

everything is fine while out. But it builds up and they release it at home

where they feel safe. It's very difficult on them.

Anyway, you'll get a lot more info from others soon. Hang in there...

> **

>

> Hello all.

> I have a question, and I'm hoping someone in the group can answer.

>

> We are at a hotel/water park this weekend. At home my 10 year old daughter

> cannot sleep in her bed unless she's on top of a mountain of blankets &

> pillows. Yet here at the hotel (and when she is at a friend's house) she

> sleeps in the bed, under the covers, just fine. The therapist asked her

> this week why is she able to sleep at a friends house in the bed. She

> answered that it was because she knows it's only for one night, not for

> every night for the rest of her life, so it's OK. After my daughter left

> the room, the therapist said she thinks my daughter is just trying to

> control me, because OCD can't just come & go. (Yeah, I'm the problem). She

> further thinks it's a control issue because she is a model student at

> school - " no one can keep up this facade day after day " .

>

> I'm really ticked off right now. I handed the therapist a five page diary

> of issues we've had in ONE WEEK, yet I'm the problem? So (deep breath)

> because I don't now much at all about OCD, what do you all think? Has

> anyone had experience where their child can control OCD in situations such

> as all day at school or while on vacation? Or is this actually not OCD? I'm

> lost. Thanks.

> D

>

--

November 25, 2011

OCD can come and go. My son's therapist told me that when he is working on

extinguishing a ritual, it will burst before it goes away. The OCD itself def.

comes and goes because it is an anxiety disorder. My son's OCD/anxiety went up

and down and was expressed differently every time when he peaked. My son

couldn't hold it together away from home but just b/c your daughter does,

doesn't mean she isn't working incredibly hard. The whole covers thing sounds

like SI issues. She may do well with a weighted blanket.

>

> Hello all.

> I have a question, and I'm hoping someone in the group can answer.

>

> We are at a hotel/water park this weekend. At home my 10 year old daughter

cannot sleep in her bed unless she's on top of a mountain of blankets & pillows.

Yet here at the hotel (and when she is at a friend's house) she sleeps in the

bed, under the covers, just fine. The therapist asked her this week why is she

able to sleep at a friends house in the bed. She answered that it was because

she knows it's only for one night, not for every night for the rest of her life,

so it's OK. After my daughter left the room, the therapist said she thinks my

daughter is just trying to control me, because OCD can't just come & go. (Yeah,

I'm the problem). She further thinks it's a control issue because she is a model

student at school - " no one can keep up this facade day after day " .

>

> I'm really ticked off right now. I handed the therapist a five page diary of

issues we've had in ONE WEEK, yet I'm the problem? So (deep breath) because I

don't now much at all about OCD, what do you all think? Has anyone had

experience where their child can control OCD in situations such as all day at

school or while on vacation? Or is this actually not OCD? I'm lost. Thanks.

> D

>

November 25, 2011

Yes, holding it in in public is very common in OCD and extremely exhausting. It

is very rough on family because everyone tells you how well the child behaves

elsewhere and cannot believe what you experience daily. If this therapist

believes you are the problem, then she does not know much about OCD. It is also

rough on the child who is working so hard to look and act normal in public. If

the child becomes unable to cover it up in public, it is an indication that the

OCD is getting worse. Find a different therapist if you can.

(mom with OCD, 11.5 yr old dd with OCD, 9 yr old dd with tic disorder and

possible OCD)

Sent from my iPod

> Someone else will respond with more info from experience, but I believe

> this is common. OCD kids let it all out at home, and often can pretend

> everything is fine while out. But it builds up and they release it at home

> where they feel safe. It's very difficult on them.

>

> Anyway, you'll get a lot more info from others soon. Hang in there...

>

>> **

>>

>> Hello all.

>> I have a question, and I'm hoping someone in the group can answer.

>>

>> We are at a hotel/water park this weekend. At home my 10 year old daughter

>> cannot sleep in her bed unless she's on top of a mountain of blankets &

>> pillows. Yet here at the hotel (and when she is at a friend's house) she

>> sleeps in the bed, under the covers, just fine. The therapist asked her

>> this week why is she able to sleep at a friends house in the bed. She

>> answered that it was because she knows it's only for one night, not for

>> every night for the rest of her life, so it's OK. After my daughter left

>> the room, the therapist said she thinks my daughter is just trying to

>> control me, because OCD can't just come & go. (Yeah, I'm the problem). She

>> further thinks it's a control issue because she is a model student at

>> school - " no one can keep up this facade day after day " .

>>

>> I'm really ticked off right now. I handed the therapist a five page diary

>> of issues we've had in ONE WEEK, yet I'm the problem? So (deep breath)

>> because I don't now much at all about OCD, what do you all think? Has

>> anyone had experience where their child can control OCD in situations such

>> as all day at school or while on vacation? Or is this actually not OCD? I'm

>> lost. Thanks.

>> D

>>

>

> --

>

November 26, 2011

Hi,

My daughter has a contamination/hand-washing issue. It is related to her

school and has contaminated our home. She is fine when we are away on

holiday.

OCD seems to have its own logic. When you understand the obsession, it is

easier to understand the compulsions.

Sorry for the brevity of this reply.

Hang in there,

November 26, 2011

Wow, I haven't read your other replies yet but feel they will go along the same

line as mine.

You need a new therapist for her. She obviously doesn't get OCD entirely.

did have issues at school and we got a 504 Plan for him. But so many

things he couldn't do at home, he managed to do at school all year. The few

times I was there to pick him up, etc., I'd watch and I could see the effort it

took him (yeah, and we think of only they'd do that at home!). His twin (not

identical) had some classes with him, would see him around, etc., and he saw the

OCD at school too. Things others would not think of as OCD, but it was 's

OCD. If you don't know what you're looking at....

Makes perfect sense to me that your daughter can sleep fine in beds outside her

home.

After my daughter left the room, the therapist said she thinks my daughter is

just trying to control me, because OCD can't just come & go. (Yeah, I'm the

problem). She further thinks it's a control issue because she is a model student

at school - " no one can keep up this facade day after day " .

>

> I'm really ticked off right now. I handed the therapist a five page diary of

issues we've had in ONE WEEK, yet I'm the problem? So (deep breath) because I

don't now much at all about OCD, what do you all think? Has anyone had

experience where their child can control OCD in situations such as all day at

school or while on vacation? Or is this actually not OCD? I'm lost. Thanks.

> D

>

November 26, 2011

OCD seems to have its own logic. When you understand the obsession, it is easier

to understand the compulsions.

>

So true !

November 26, 2011

Your daughter is demonstrating a degree of coping....Take this as a positive (

someday she'll cope with the everyday). This is a positive sign...use it to

your advantage and show your daughter that she can do it and push her, or

realize that you'll be the last one to benefit from effective coping skills

Bonnie