Re: Our initial assessment meetings...

[Guest guest]

Oh, I have to admit I'm so envious. I wish we had Kaiser here in Texas! My

Mom lives in CA and has Kaiser. All she does is rave about how much she

loves having Kaiser health care.

Sandi

In a message dated 2/16/2008 8:33:35 A.M. Central Standard Time,

don@... writes:

We also had an initial appointment with Kaiser's Autism unit yesterday, and

were very encouraged by the woman we spoke with. She's signed us up for the

spectrum parent's support group (I forget what she called it) and we'll be

having Maddie tested in a couple weeks through Kaiser.

If anyone has any thoughts or suggestions which might help us right now, we

would love to hear them. Thank you all for being here!

Don

**************The year's hottest artists on the red carpet at the Grammy

Awards. Go to AOL Music.

(http://music.aol.com/grammys?NCID=aolcmp00300000002565)

[Guest guest]

Oh, I have to admit I'm so envious. I wish we had Kaiser here in Texas! My

Mom lives in CA and has Kaiser. All she does is rave about how much she

loves having Kaiser health care.

Sandi

In a message dated 2/16/2008 8:33:35 A.M. Central Standard Time,

don@... writes:

We also had an initial appointment with Kaiser's Autism unit yesterday, and

were very encouraged by the woman we spoke with. She's signed us up for the

spectrum parent's support group (I forget what she called it) and we'll be

having Maddie tested in a couple weeks through Kaiser.

If anyone has any thoughts or suggestions which might help us right now, we

would love to hear them. Thank you all for being here!

Don

**************The year's hottest artists on the red carpet at the Grammy

Awards. Go to AOL Music.

(http://music.aol.com/grammys?NCID=aolcmp00300000002565)

[Guest guest]

You must not live too far from me. The company I work for recently

started working with NBRC. I hope that the rest of her assessment goes

more smoothly. I've heard a lot of good things about Kaiser's autism unit.

Amnesty

>

> Maddie (9yo) was assessed before kindergarten as SLD (specific learning

> disability), and the IEP decided it was just that she was slow in math,

> reading and potty training. Since then, the assessments/reports have

been

> about those issues, despite my asking them if she might be mildly

autisitic.

> I was assured that she was not. A few weeks ago, when Maddie

displayed some

> new behavior, I went onto the internet and looked up 'autism

symptoms' and

> lo and behold, Maddie displays many of them.

>

> So we had our initial meeting with North Bay Regional on Wednesday, who

> asked Maddie a lot of questions and asked us questions, too. We told

her all

> we know about Maddie's symptoms, but she said " Autism/on the

spectrum is the

> disorder de jour, it seems everyone is seeking to get their children

> diagnosed with it " . I knew we weren't going to get any help from

this woman

> after she said that, despite the obviousness of Maddie's symptoms. We'll

> see. I'm sorry, but what an idiotic thing to say at an initial

meeting, when

> she hadn't even met Maddie yet!

>

> We also had an initial appointment with Kaiser's Autism unit

yesterday, and

> were very encouraged by the woman we spoke with. She's signed us up

for the

> spectrum parent's support group (I forget what she called it) and

we'll be

> having Maddie tested in a couple weeks through Kaiser.

>

> If anyone has any thoughts or suggestions which might help us right

now, we

> would love to hear them. Thank you all for being here!

>

>

> Don

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.20.6/1280 - Release Date:

2/15/2008

> 9:00 AM

>

>

>

>

[Guest guest]

Our Melody was diagnosed Autistic through Kaiser. I have to admit, I went

into the pediatrician appointment with my fighting gloves on, waiting for

the dr. to tell me it was all my imagination, but he really listened to us,

and sent us to Kaiser Santa Theresa (San ) where she had her assessment

and was diagnosed. They were great.

Don, what support group did they hook you up with? Is it in the North Bay? I

live in Novato, and am still looking for something closer to us. The closest

one I could find is in Petaluma.

Thanks

Lynn Shoop

www.mycmsite.com/lynnshoop

Re: Our initial assessment meetings...

You must not live too far from me. The company I work for recently

started working with NBRC. I hope that the rest of her assessment goes

more smoothly. I've heard a lot of good things about Kaiser's autism unit.

Amnesty

>

> Maddie (9yo) was assessed before kindergarten as SLD (specific learning

> disability), and the IEP decided it was just that she was slow in math,

> reading and potty training. Since then, the assessments/reports have

been

> about those issues, despite my asking them if she might be mildly

autisitic.

> I was assured that she was not. A few weeks ago, when Maddie

displayed some

> new behavior, I went onto the internet and looked up 'autism

symptoms' and

> lo and behold, Maddie displays many of them.

>

> So we had our initial meeting with North Bay Regional on Wednesday, who

> asked Maddie a lot of questions and asked us questions, too. We told

her all

> we know about Maddie's symptoms, but she said " Autism/on the

spectrum is the

> disorder de jour, it seems everyone is seeking to get their children

> diagnosed with it " . I knew we weren't going to get any help from

this woman

> after she said that, despite the obviousness of Maddie's symptoms. We'll

> see. I'm sorry, but what an idiotic thing to say at an initial

meeting, when

> she hadn't even met Maddie yet!

>

> We also had an initial appointment with Kaiser's Autism unit

yesterday, and

> were very encouraged by the woman we spoke with. She's signed us up

for the

> spectrum parent's support group (I forget what she called it) and

we'll be

> having Maddie tested in a couple weeks through Kaiser.

>

> If anyone has any thoughts or suggestions which might help us right

now, we

> would love to hear them. Thank you all for being here!

>

>

> Don

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.20.6/1280 - Release Date:

2/15/2008

> 9:00 AM

>

>

>

>

[Guest guest]

Don

What are some of the symptoms that concerns you or you think places her on the

spectrum

i think its uncalled for comment from that woman,

my Ped told me that i was not spending quality time with my daughter when she

was 18 mo. and i was complaining about behaviors, i told her more than once that

i suspected something was wrong and she kept blowing me off until i finally saw

someone else in the practice but by then she was already 2 years old and it took

few more months to get a diagnosis... and you can go back and tell her that the

so called " Diagnosis dujure " ain't a picnic or an advantage in any way.

Our initial assessment meetings...

Maddie (9yo) was assessed before kindergarten as SLD (specific learning

disability), and the IEP decided it was just that she was slow in math,

reading and potty training. Since then, the assessments/ reports have been

about those issues, despite my asking them if she might be mildly autisitic.

I was assured that she was not. A few weeks ago, when Maddie displayed some

new behavior, I went onto the internet and looked up 'autism symptoms' and

lo and behold, Maddie displays many of them.

So we had our initial meeting with North Bay Regional on Wednesday, who

asked Maddie a lot of questions and asked us questions, too. We told her all

we know about Maddie's symptoms, but she said " Autism/on the spectrum is the

disorder de jour, it seems everyone is seeking to get their children

diagnosed with it " . I knew we weren't going to get any help from this woman

after she said that, despite the obviousness of Maddie's symptoms. We'll

see. I'm sorry, but what an idiotic thing to say at an initial meeting, when

she hadn't even met Maddie yet!

We also had an initial appointment with Kaiser's Autism unit yesterday, and

were very encouraged by the woman we spoke with. She's signed us up for the

spectrum parent's support group (I forget what she called it) and we'll be

having Maddie tested in a couple weeks through Kaiser.

If anyone has any thoughts or suggestions which might help us right now, we

would love to hear them. Thank you all for being here!

Don

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Checked by AVG Free Edition.

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9:00 AM

[Guest guest]

Nuha, I am tempted to call NBR and talk to her supervisor, I was so bothered

by her remark. I'm not going to do anything until we finish this assessment.

My goal is to find out how we can best serve Madison, and I won't screw that

up because that woman was an idiot.

The symptoms Maddie displays are:

Was late to talk; late to walk. (Has been a couple years behind her peers in

school from K into 3rd grade, until this year when she got a new teacher who

has two children on the spectrum. Maddie is suddenly reading at lower 3rd

grade now and is at grade level in math!)

Hypersensitive to touch, sound and light. Has always preferred not to cuddle

(although over time we have taught her to, and she seems to like it now but

never initiates it).

Difficulty in expressing needs.

Inappropriate attachment to objects (pacifier; blanky - still has/uses them

at 9 years old).

Has trouble understanding other people's feelings and talking about her own

- in fact, NEVER talks about her own feelings.

Does not understand implied references, figures of speech or slang at all.

Does not initiate social play ever (will stand by herself next to the tether

ball pole all through lunch times, unless someone asks her to play), and

does not continue conversation after it's begun.

Doesn't ever ask questions; Has never inquired about anything ever.

Still not toilet trained at 9 years old, despite our seeking help from two

professionals.

Doesn't use or understand body language or respond to gestures.

Lack of social and emotional reciprocity.

Is perfectly happy playing alone, has the patience of a saint. Has never

complained about anything ever. We have to ask her if she feels sick, she

never volunteers the information.

Originally a complete lack of response to others, improved by our ongoing

encouragement to respond.

Her diet is so limited because she won't try new foods and has even stopped

eating some foods because of their texture. She's very texture sensitive.

Also, she is amazing on the piano in that she comes home from church after

hearing a song one time and picks it out on the piano!

We can see now that simply out of love, we've taught her to overcome some of

these things (she'll usually respond with a yes or no if someone asks her a

question - any deeper of a question still gets a blank stare and no

response).

We've always known she was a special needs girl. When I looked up " symptoms

of autism " on the net I was floored to see that she displays so many of

them. She's so sweet and we've been so grateful that no kids have made fun

of her yet (that we know of), but I know it's just a matter of time. We'll

pull her out of public school as soon as that happens and home school her.

We think it's important that she learn to socialize with other kids, but I

will not let her be subjected to the incredible rudeness that a lot of 5th,

6th graders and middle schoolers engage in these days. We've got friends who

have kids a few years older than Maddie, and we will not let her be treated

the way so many kids treat each other these days. I don't know how we'll

manage financially (my wife works part-time), but we'll figure it out.

Don Cobb, Director of Men's Ministries

Redwood Gospel Mission

Bringing “Real Change” to the least, the last, and the lost

cell

HYPERLINK " http://www.srmission.org/ " www.srmission.org

_____

From: Autism_in_Girls

[mailto:Autism_in_Girls ] On Behalf Of Nuha Shiblie

Sent: Saturday, February 16, 2008 7:05 PM

To: Autism_in_Girls

Subject: Re: Our initial assessment meetings...

Don

What are some of the symptoms that concerns you or you think places her on

the spectrum

i think its uncalled for comment from that woman,

my Ped told me that i was not spending quality time with my daughter when

she was 18 mo. and i was complaining about behaviors, i told her more than

once that i suspected something was wrong and she kept blowing me off until

i finally saw someone else in the practice but by then she was already 2

years old and it took few more months to get a diagnosis... and you can go

back and tell her that the so called " Diagnosis dujure " ain't a picnic or

an advantage in any way.

Our initial assessment meetings...

Maddie (9yo) was assessed before kindergarten as SLD (specific learning

disability), and the IEP decided it was just that she was slow in math,

reading and potty training. Since then, the assessments/ reports have been

about those issues, despite my asking them if she might be mildly autisitic.

I was assured that she was not. A few weeks ago, when Maddie displayed some

new behavior, I went onto the internet and looked up 'autism symptoms' and

lo and behold, Maddie displays many of them.

So we had our initial meeting with North Bay Regional on Wednesday, who

asked Maddie a lot of questions and asked us questions, too. We told her all

we know about Maddie's symptoms, but she said " Autism/on the spectrum is the

disorder de jour, it seems everyone is seeking to get their children

diagnosed with it " . I knew we weren't going to get any help from this woman

after she said that, despite the obviousness of Maddie's symptoms. We'll

see. I'm sorry, but what an idiotic thing to say at an initial meeting, when

she hadn't even met Maddie yet!

We also had an initial appointment with Kaiser's Autism unit yesterday, and

were very encouraged by the woman we spoke with. She's signed us up for the

spectrum parent's support group (I forget what she called it) and we'll be

having Maddie tested in a couple weeks through Kaiser.

If anyone has any thoughts or suggestions which might help us right now, we

would love to hear them. Thank you all for being here!

Don

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.20.6/1280 - Release Date: 2/15/2008

9:00 AM

[Guest guest]

Good for you for considering homeschooling. We

homeschool our daughter. It is a lot of work but

worth the rewards. I am a big mama bear.

That is incredible about her piano skills. It is so

interesting how they usually have a skill they are

remarkable in. My daughter's is her memory.

Rebekah

--- Don Cobb wrote:

> Nuha, I am tempted to call NBR and talk to her

> supervisor, I was so bothered

> by her remark. I'm not going to do anything until we

> finish this assessment.

> My goal is to find out how we can best serve

> Madison, and I won't screw that

> up because that woman was an idiot.

>

> The symptoms Maddie displays are:

>

> Was late to talk; late to walk. (Has been a couple

> years behind her peers in

> school from K into 3rd grade, until this year when

> she got a new teacher who

> has two children on the spectrum. Maddie is suddenly

> reading at lower 3rd

> grade now and is at grade level in math!)

> Hypersensitive to touch, sound and light. Has always

> preferred not to cuddle

> (although over time we have taught her to, and she

> seems to like it now but

> never initiates it).

> Difficulty in expressing needs.

> Inappropriate attachment to objects (pacifier;

> blanky - still has/uses them

> at 9 years old).

> Has trouble understanding other people's feelings

> and talking about her own

> - in fact, NEVER talks about her own feelings.

> Does not understand implied references, figures of

> speech or slang at all.

> Does not initiate social play ever (will stand by

> herself next to the tether

> ball pole all through lunch times, unless someone

> asks her to play), and

> does not continue conversation after it's begun.

> Doesn't ever ask questions; Has never inquired about

> anything ever.

> Still not toilet trained at 9 years old, despite our

> seeking help from two

> professionals.

> Doesn't use or understand body language or respond

> to gestures.

> Lack of social and emotional reciprocity.

> Is perfectly happy playing alone, has the patience

> of a saint. Has never

> complained about anything ever. We have to ask her

> if she feels sick, she

> never volunteers the information.

> Originally a complete lack of response to others,

> improved by our ongoing

> encouragement to respond.

> Her diet is so limited because she won't try new

> foods and has even stopped

> eating some foods because of their texture. She's

> very texture sensitive.

>

> Also, she is amazing on the piano in that she comes

> home from church after

> hearing a song one time and picks it out on the

> piano!

>

>

> We can see now that simply out of love, we've taught

> her to overcome some of

> these things (she'll usually respond with a yes or

> no if someone asks her a

> question - any deeper of a question still gets a

> blank stare and no

> response).

>

> We've always known she was a special needs girl.

> When I looked up " symptoms

> of autism " on the net I was floored to see that she

> displays so many of

> them. She's so sweet and we've been so grateful that

> no kids have made fun

> of her yet (that we know of), but I know it's just a

> matter of time. We'll

> pull her out of public school as soon as that

> happens and home school her.

> We think it's important that she learn to socialize

> with other kids, but I

> will not let her be subjected to the incredible

> rudeness that a lot of 5th,

> 6th graders and middle schoolers engage in these

> days. We've got friends who

> have kids a few years older than Maddie, and we will

> not let her be treated

> the way so many kids treat each other these days. I

> don't know how we'll

> manage financially (my wife works part-time), but

> we'll figure it out.

>

>

> Don Cobb, Director of Men's Ministries

>

> Redwood Gospel Mission

>

> Bringing “Real Change” to the least, the last, and

> the lost

>

>

>

> cell

>

> HYPERLINK

> " http://www.srmission.org/ " www.srmission.org

>

>

>

> _____

>

> From: Autism_in_Girls

> [mailto:Autism_in_Girls ] On Behalf

> Of Nuha Shiblie

> Sent: Saturday, February 16, 2008 7:05 PM

> To: Autism_in_Girls

> Subject: Re: Our initial

> assessment meetings...

>

>

>

> Don

> What are some of the symptoms that concerns you or

> you think places her on

> the spectrum

> i think its uncalled for comment from that woman,

> my Ped told me that i was not spending quality time

> with my daughter when

> she was 18 mo. and i was complaining about

> behaviors, i told her more than

> once that i suspected something was wrong and she

> kept blowing me off until

> i finally saw someone else in the practice but by

> then she was already 2

> years old and it took few more months to get a

> diagnosis... and you can go

> back and tell her that the so called " Diagnosis

> dujure " ain't a picnic or

> an advantage in any way.

>

>

> Our initial assessment

> meetings...

>

> Maddie (9yo) was assessed before kindergarten as SLD

> (specific learning

> disability), and the IEP decided it was just that

> she was slow in math,

> reading and potty training. Since then, the

> assessments/ reports have been

> about those issues, despite my asking them if she

> might be mildly autisitic.

> I was assured that she was not. A few weeks ago,

> when Maddie displayed some

> new behavior, I went onto the internet and looked up

> 'autism symptoms' and

> lo and behold, Maddie displays many of them.

>

> So we had our initial meeting with North Bay

> Regional on Wednesday, who

> asked Maddie a lot of questions and asked us

> questions, too. We told her all

> we know about Maddie's symptoms, but she said

> " Autism/on the spectrum is the

> disorder de jour, it seems everyone is seeking to

> get their children

> diagnosed with it " . I knew we weren't going to get

> any help from this woman

> after she said that, despite the obviousness of

> Maddie's symptoms. We'll

> see. I'm sorry, but what an idiotic thing to say at

> an initial meeting, when

> she hadn't even met Maddie yet!

>

> We also had an initial appointment with Kaiser's

> Autism unit yesterday, and

> were very encouraged by the woman we spoke with.

> She's signed us up for the

> spectrum parent's support group (I forget what she

> called it) and we'll be

> having Maddie tested in a couple weeks through

> Kaiser.

>

> If anyone has any thoughts or suggestions which

> might help us right now, we

> would love to hear them. Thank you all for being

> here!

>

> Don

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.20.6/1280 -

> Release

=== message truncated ===

________________________________________________________________________________\

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[Guest guest]

Don, a couple of things come to mind

You need to ask your school for an IEP (Individual education plan) asap, in this

iep request social goals, so they have to provide her with help in all social

settings and encourage social conversations.also help in potty training (my

guess its a sensory issue for her)

i also encourage you to run a couple of allergy tests, one of them is the SAGE

test (its a hidden allergies tests) we crave what we are most allergic to,,, you

are going to be amazed at the results and again when you remove the so called

allergen foods from her diet and see her improve. please google it and that and

others will show up

once her diet improves so will she...

what you are describing are mostly sensory issues that needs to be addressed as

well, most sensory issues in my humble opinion are related to the gut and what

you eat however many can be improved or totally overcome with the right therapy,

please find an OT services asap for a proper evaluation.

please consider a test for her heavy metals burden Great plains lab or Doctors

data lab

stop all vaccines and flu shots, dont give any Tylenol if she is ever sick

I have Kaiser and they will not pay for the allergy tests but may pay for the OT

evaluation but will not pay for treatment where i am in Virginia once the child

turned 3

my daughter is being treated by a Naturopath who when she muscle tested my

daughter's foods a year ago i thought it was all vodoo and went ahead and tested

her in 3 different labs, i did the sage, the celiac panel, IGG, IGE, and the

great plains labs Gluten and Casein tests, i spent almost $700 and at the end

the labs results were almost identical to the naturopath and i become a believer

in her autism protocol if you are interested write me off list at

nshiblie@... and i can give you he number and you Can call her yourself and

see if she can offer some help

to me, she was an answer to a prayer but we are not out of the woods so i can

only attest to what she so far have helped us with

Keep praying, God is the healer of all things

Nuha

Our initial assessment meetings...

Maddie (9yo) was assessed before kindergarten as SLD (specific learning

disability), and the IEP decided it was just that she was slow in

math,

reading and potty training. Since then, the assessments/ reports have

been

about those issues, despite my asking them if she might be mildly

autisitic.

I was assured that she was not. A few weeks ago, when Maddie

displayed some

new behavior, I went onto the internet and looked up 'autism

symptoms' and

lo and behold, Maddie displays many of them.

So we had our initial meeting with North Bay Regional on Wednesday,

who

asked Maddie a lot of questions and asked us questions, too. We told

her all

we know about Maddie's symptoms, but she said " Autism/on the spectrum

is the

disorder de jour, it seems everyone is seeking to get their children

diagnosed with it " . I knew we weren't going to get any help from

this woman

after she said that, despite the obviousness of Maddie's symptoms.

We'll

see. I'm sorry, but what an idiotic thing to say at an initial

meeting, when

she hadn't even met Maddie yet!

We also had an initial appointment with Kaiser's Autism unit

yesterday, and

were very encouraged by the woman we spoke with. She's signed us up

for the

spectrum parent's support group (I forget what she called it) and

we'll be

having Maddie tested in a couple weeks through Kaiser.

If anyone has any thoughts or suggestions which might help us right

now, we

would love to hear them. Thank you all for being here!

Don

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2:16 PM

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[Guest guest]

Oh I see. Thanks for explaining.

So, would Ibuprofen be the better over the counter med. to give when sick etc.?

>the theory is that Tylenol helps in blocking Pathways and slowing

>down the body's own gluthenione,

>

>gluthenione (not sure about spelling) is what the body naturally

>makes to bind to metals and rid of it through body waste after it

>circles in the body through open pathways (but i guess pathways are

>somewhat blocked after Tylenol)

>So your body is less able to rid itself of toxins

>

> Re: Our initial assessment meetings...

>

>Nuha,

>I've never heard of the 'no tylenol' suggestion before. Is this

>something that all kids with autism should not have, or just girls

>with autism, or just individuals who have certain allergies etc?

>Thanks for explaining,

>

>

>>please consider a test for her heavy metals burden Great plains lab

>>or Doctors data lab

>> stop all vaccines and flu shots, dont give any Tylenol if she is ever sick

>>

>>Keep praying, God is the healer of all things

> >Nuha

>>

>