Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 Hi all, my 13yr old son with OCD has just been diagnosed with aspergers as well, I just feel so overwhelmed now, and although the last few years-esp since hitting puberty have been so difficult with the OCDs, it feels like these behaviours will never end, as he deals with the OCDs and extreme anxiety, other behaviours are appearing.......does anyone else have these 2 together that could offer advice? ive taken a few weeks to process this, and family finding it hard to accept/understand, esp why taken so long to find out, and that makes me feel guily as a mum, he has been to 3 different schools in the last 3 years,all being very difficult and unsupportive of his needs, or aware of his difficulties as he can present as quite confident when he is not at all, but now we have hours and hours or verbal questions,needing reassurance as soon as he comes in from school,which can last all night, and it is bacoming a huge strain, at dinner he becomes hyper active, does repetive body movements, and high pitched noises or singing, and usually by that time I am just so tired, and I react,get annoyed and then feel so bad, as I know he cant help it, he has been in CBT counselling, but it stops and starts, and hasnt been for 6 weeks with holidays etc,also think counsellor not trained as OCD specialist, but he does like her and wants to go,but not sure she really understands how to help,I feel that there's too many things to deal with now, and dont know where to start with it all, been given mountains of literature on aspergers, again overwhelming to get through, and really just dont know where to start with it all, does anyone else receive help themselves to talk through all this? i feel like i need to get things clear myself, and in time sure it will feel better, but for now just dont know what way to turn, thanks maree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 Hi! I am so sad for you! Just yesterday I was wanting to talk to someone because I, myself, have been in need of support. My son has ocd and extreme anxiety. His ocd is the type without rituals, but with harmful intrusive thoughts. He always needs reassurance. Just last week we went to a new doctor and he thought he maybe also has ADD. We had a REALLY bad day on Tuesday. Kept texting me from school saying he was overwelmed. It's so hard to stay strong isn't it? I feel like I'm a strong person because I've had anxiety and ocd issues since I was a litle girl. But when he has a melt down, I seem to panic also on how to help him. It's very hard for me to see him with so much anxiety. I just want to take him and run away and hug. You said your son was 13. Mine is 14 and is also going thru puberty. From what others say on this board -- that must also make a difference. I don't know much about aspergers -- I wish I could help you there. I do think this is all a grieving and acceptance process. I'm trying to Let Go and Let God. Trying -- but seem to always want to take it back and handle myself.  I guess I too am just sad!!! Please don't feel guilty -- none of this is our fault. It's the way life goes and together with this support group and others that provide support to us -- we'll get thru this! E-mail me anytime!!  Christie from Nebraska  To: Sent: Thursday, February 2, 2012 4:17 AM Subject: OCD and aspergers  Hi all, my 13yr old son with OCD has just been diagnosed with aspergers as well, I just feel so overwhelmed now, and although the last few years-esp since hitting puberty have been so difficult with the OCDs, it feels like these behaviours will never end, as he deals with the OCDs and extreme anxiety, other behaviours are appearing.......does anyone else have these 2 together that could offer advice? ive taken a few weeks to process this, and family finding it hard to accept/understand, esp why taken so long to find out, and that makes me feel guily as a mum, he has been to 3 different schools in the last 3 years,all being very difficult and unsupportive of his needs, or aware of his difficulties as he can present as quite confident when he is not at all, but now we have hours and hours or verbal questions,needing reassurance as soon as he comes in from school,which can last all night, and it is bacoming a huge strain, at dinner he becomes hyper active, does repetive body movements, and high pitched noises or singing, and usually by that time I am just so tired, and I react,get annoyed and then feel so bad, as I know he cant help it, he has been in CBT counselling, but it stops and starts, and hasnt been for 6 weeks with holidays etc,also think counsellor not trained as OCD specialist, but he does like her and wants to go,but not sure she really understands how to help,I feel that there's too many things to deal with now, and dont know where to start with it all, been given mountains of literature on aspergers, again overwhelming to get through, and really just dont know where to start with it all, does anyone else receive help themselves to talk through all this? i feel like i need to get things clear myself, and in time sure it will feel better, but for now just dont know what way to turn, thanks maree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 My daughter is 8.5 and has high functioning autism and OCD/anxiety. It IS overwhelming. My daughter does very well at school as she is a hypercompliant kid who is super fearful of making a mistake/falling short. She does not have meltdowns at school. She struggles socially at home and in the community but has become pretty comfortable in her high support aspergers program at school where her interactions look pretty " normal " . The school, I think, thinks I am crazy half the time because she does not voice discomfort about situations but will be very stressed upon coming home. My daughter has rituals, not expressing fears. I dont think she is self-aware enough to express fears or would admit them, b/c doing so would violate her perfect ideal she has in her mind. The severity of the rituals seems to come and go. I agree with you that it sometimes feels like there is nothing we can do. We have been on the autism fast track since she was two and have done many interventions, but when all is said and done, there have been improvements, but my daughter is my daughter and I do not feel that that will really change. I love her anyway that she is. That's to say, I may not feel I do the best job possible and keep it together all the time, but I am not perfect either. Just do the best you can and it sounds like you have your faith to get you through. Just love your son and pray about any interventions to let God lead you to what is best for him. And go easy on yourself- this is not easy street by any means! To: From: bcwallin@... Date: Thu, 2 Feb 2012 07:01:24 -0800 Subject: Re: OCD and aspergers Hi! I am so sad for you! Just yesterday I was wanting to talk to someone because I, myself, have been in need of support. My son has ocd and extreme anxiety. His ocd is the type without rituals, but with harmful intrusive thoughts. He always needs reassurance. Just last week we went to a new doctor and he thought he maybe also has ADD. We had a REALLY bad day on Tuesday. Kept texting me from school saying he was overwelmed. It's so hard to stay strong isn't it? I feel like I'm a strong person because I've had anxiety and ocd issues since I was a litle girl. But when he has a melt down, I seem to panic also on how to help him. It's very hard for me to see him with so much anxiety. I just want to take him and run away and hug. You said your son was 13. Mine is 14 and is also going thru puberty. From what others say on this board -- that must also make a difference. I don't know much about aspergers -- I wish I could help you there. I do think this is all a grieving and acceptance process. I'm trying to Let Go and Let God. Trying -- but seem to always want to take it back and handle myself. I guess I too am just sad!!! Please don't feel guilty -- none of this is our fault. It's the way life goes and together with this support group and others that provide support to us -- we'll get thru this! E-mail me anytime!! Christie from Nebraska To: Sent: Thursday, February 2, 2012 4:17 AM Subject: OCD and aspergers Hi all, my 13yr old son with OCD has just been diagnosed with aspergers as well, I just feel so overwhelmed now, and although the last few years-esp since hitting puberty have been so difficult with the OCDs, it feels like these behaviours will never end, as he deals with the OCDs and extreme anxiety, other behaviours are appearing.......does anyone else have these 2 together that could offer advice? ive taken a few weeks to process this, and family finding it hard to accept/understand, esp why taken so long to find out, and that makes me feel guily as a mum, he has been to 3 different schools in the last 3 years,all being very difficult and unsupportive of his needs, or aware of his difficulties as he can present as quite confident when he is not at all, but now we have hours and hours or verbal questions,needing reassurance as soon as he comes in from school,which can last all night, and it is bacoming a huge strain, at dinner he becomes hyper active, does repetive body movements, and high pitched noises or singing, and usually by that time I am just so tired, and I react,get annoyed and then feel so bad, as I know he cant help it, he has been in CBT counselling, but it stops and starts, and hasnt been for 6 weeks with holidays etc,also think counsellor not trained as OCD specialist, but he does like her and wants to go,but not sure she really understands how to help,I feel that there's too many things to deal with now, and dont know where to start with it all, been given mountains of literature on aspergers, again overwhelming to get through, and really just dont know where to start with it all, does anyone else receive help themselves to talk through all this? i feel like i need to get things clear myself, and in time sure it will feel better, but for now just dont know what way to turn, thanks maree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 I am currently reading this book http://www.amazon.com/Asperger-Plus-Child-Co-Existing-Conditions/dp/1931282331/r\ ef=sr_1_1?ie=UTF8 & qid=1328207701 & sr=8-1 , and it may be helpful. I know the overwhelming feeling, and you probably have masses of literature to read already. This is somewhat helping me understand where the diagnoses differ, and there are some practical strategies in it as well. > > Hi all, > my 13yr old son with OCD has just been diagnosed with aspergers as well, I just feel so overwhelmed now, and although the last few years-esp since hitting puberty have been so difficult with the OCDs, it feels like these behaviours will never end, as he deals with the OCDs and extreme anxiety, other behaviours are appearing.......does anyone else have these 2 together that could offer advice? ive taken a few weeks to process this, and family finding it hard to accept/understand, esp why taken so long to find out, and that makes me feel guily as a mum, he has been to 3 different schools in the last 3 years,all being very difficult and unsupportive of his needs, or aware of his difficulties as he can present as quite confident when he is not at all, but now we have hours and hours or verbal questions,needing reassurance as soon as he comes in from school,which can last all night, and it is bacoming a huge strain, at dinner he becomes hyper active, does repetive body movements, and high pitched noises or singing, and usually by that time I am just so tired, and I react,get annoyed and then feel so bad, as I know he cant help it, he has been in CBT counselling, but it stops and starts, and hasnt been for 6 weeks with holidays etc,also think counsellor not trained as OCD specialist, but he does like her and wants to go,but not sure she really understands how to help,I feel that there's too many things to deal with now, and dont know where to start with it all, been given mountains of literature on aspergers, again overwhelming to get through, and really just dont know where to start with it all, does anyone else receive help themselves to talk through all this? i feel like i need to get things clear myself, and in time sure it will feel better, but for now just dont know what way to turn, thanks maree > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 >> My son has both- in fact OCD is a common part of Aspergers.He attend a special school program for Aspergers after High School- Chapel Haven in New Haven, Ct- It has been wonderful for him. He is currently living in their " Neighborhood " so we can purchase services as we need them. Our school system funded the first 3 years- as he was under 21. Chech out the program, it is residential, small & amazing. Joy Ct >> Hi all, >> my 13yr old son with OCD has just been diagnosed with aspergers as well, I just feel so overwhelmed now, and although the last few years-esp since hitting puberty have been so difficult with the OCDs, it feels like these behaviours will never end, as he deals with the OCDs and extreme anxiety, other behaviours are appearing.......does anyone else have these 2 together that could offer advice? ive taken a few weeks to process this, and family finding it hard to accept/understand, esp why taken so long to find out, and that makes me feel guily as a mum, he has been to 3 different schools in the last 3 years,all being very difficult and unsupportive of his needs, or aware of his difficulties as he can present as quite confident when he is not at all, but now we have hours and hours or verbal questions,needing reassurance as soon as he comes in from school,which can last all night, and it is bacoming a huge strain, at dinner he becomes hyper active, does repetive body movements, and high pitched noises or singing, and usually by that time I am just so tired, and I react,get annoyed and then feel so bad, as I know he cant help it, he has been in CBT counselling, but it stops and starts, and hasnt been for 6 weeks with holidays etc,also think counsellor not trained as OCD specialist, but he does like her and wants to go,but not sure she really understands how to help,I feel that there's too many things to deal with now, and dont know where to start with it all, been given mountains of literature on aspergers, again overwhelming to get through, and really just dont know where to start with it all, does anyone else receive help themselves to talk through all this? i feel like i need to get things clear myself, and in time sure it will feel better, but for now just dont know what way to turn, thanks maree >> > > > > > ------------------------------------ > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling > down to the archives calendar . > Our links may be accessed at http://health.groups.yahoo.com/group//links . > Our files may be accessed at > http://health.groups.yahoo.com/group//files . > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 I have a 23 year old son with Both. His OCD started in 6th grade (had what we called " OCD quirks before that, nothing like the 24/7 that began in 6th). He also has an HFA/Aspergers diagnosis. Never had any behavior problems with him, as another said about her child, he was (is) a pretty compliant child. (My other 2 typical sons were the handfuls.) It can get confusing with the 2 diagnoses, trying to pick out which is Aspie, which is OCD; some are obvious. Are there any that he has always done, and some that started later with what you feel is OCD? High pitched noises - could that be a tic? Who finally diagnosed him? just curious if any school identified it. Now that you have the Aspergers diagnosis, is school seeing anything differently (being more supportive)? single mom, 3 sons , 23, with OCD, dysgraphia and Aspergers graduated UNC-CH August 2011! BS, Biology > > Hi all, > my 13yr old son with OCD has just been diagnosed with aspergers as well, I just feel so overwhelmed now, and although the last few years-esp since hitting puberty have been so difficult with the OCDs, it feels like these behaviours will never end, as he deals with the OCDs and extreme anxiety, other behaviours are appearing.......does anyone else have these 2 together that could offer advice? ive taken a few weeks to process this, and family finding it hard to accept/understand, esp why taken so long to find out, and that makes me feel guily as a mum, he has been to 3 different schools in the Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2012 Report Share Posted February 3, 2012 Christie, You spoke to my heart. My daughter is 12 now but has ADHD and OCD and we have been dealing with the same type of OCD since she was in 3rd grade. I just didn't know it was OCD until this past summer. You are right though...it does seem to be worse now that they are going through puberty, although for us it was bad at 9years old. I just didn't know what I was dealing with. I have also felt at a loss as to how to comfort her and she seeks me for reassurance also. I have gotten good at helping her now just talking her through it and hugging her (when she will let me hug her). Of course, in therapy now, we are trying to break her need for reassurance which means I will have to not help her as much. You both have my sincerest wishes that things will get better as do we all. One thing I have noticed for sure is that it seems to come along in cycles and there will be rough times and there are other moments when life seems normal. I am just trying to take it day by day. > > Hi! I am so sad for you! Just yesterday I was wanting to talk to someone because I, myself, have been in need of support. My son has ocd and extreme anxiety. His ocd is the type without rituals, but with harmful intrusive thoughts. He always needs reassurance. Just last week we went to a new doctor and he thought he maybe also has ADD. We had a REALLY bad day on Tuesday. Kept texting me from school saying he was overwelmed. It's so hard to stay strong isn't it? I feel like I'm a strong person because I've had anxiety and ocd issues since I was a litle girl. But when he has a melt down, I seem to panic also on how to help him. It's very hard for me to see him with so much anxiety. I just want to take him and run away and hug. You said your son was 13. Mine is 14 and is also going thru puberty. From what others say on this board -- that must also make a difference. I don't know much about aspergers -- I wish I could help > you there. I do think this is all a grieving and acceptance process. I'm trying to Let Go and Let God. Trying -- but seem to always want to take it back and handle myself.  I guess I too am just sad!!! Please don't feel guilty -- none of this is our fault. It's the way life goes and together with this support group and others that provide support to us -- we'll get thru this! E-mail me anytime!! >  > Christie from Nebraska >  > > > To: > Sent: Thursday, February 2, 2012 4:17 AM > Subject: OCD and aspergers > > >  > Hi all, > my 13yr old son with OCD has just been diagnosed with aspergers as well, I just feel so overwhelmed now, and although the last few years-esp since hitting puberty have been so difficult with the OCDs, it feels like these behaviours will never end, as he deals with the OCDs and extreme anxiety, other behaviours are appearing.......does anyone else have these 2 together that could offer advice? ive taken a few weeks to process this, and family finding it hard to accept/understand, esp why taken so long to find out, and that makes me feel guily as a mum, he has been to 3 different schools in the last 3 years,all being very difficult and unsupportive of his needs, or aware of his difficulties as he can present as quite confident when he is not at all, but now we have hours and hours or verbal questions,needing reassurance as soon as he comes in from school,which can last all night, and it is bacoming a huge strain, at dinner he becomes hyper active, does > repetive body movements, and high pitched noises or singing, and usually by that time I am just so tired, and I react,get annoyed and then feel so bad, as I know he cant help it, he has been in CBT counselling, but it stops and starts, and hasnt been for 6 weeks with holidays etc,also think counsellor not trained as OCD specialist, but he does like her and wants to go,but not sure she really understands how to help,I feel that there's too many things to deal with now, and dont know where to start with it all, been given mountains of literature on aspergers, again overwhelming to get through, and really just dont know where to start with it all, does anyone else receive help themselves to talk through all this? i feel like i need to get things clear myself, and in time sure it will feel better, but for now just dont know what way to turn, thanks maree > > > > > Quote Link to comment Share on other sites More sharing options...
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