Very worried, cont'd...

[Guest guest]

I'm afraid this unfortunately may be my subject line here for the next little

while. I know that 's is the only place for my son and I have faith that

things will eventually turn around, it's just so difficult right now to see even

a glimmer of light at the end of this very dark tunnel.

The bathroom issues are seeming to increase there, and he's still struggling a

lot with taking showers. His tics are still through the roof and very constant

and it's almost impossible for my husband or I to have a conversation with him

because he will mumble and spell half of his words. Now he doesn't do it that

much with staff or kids, but they have said he is sometimes difficult to

understand.

I realize it's only been 10 days since he got there, and it's going to take a

while, but I wish there was at least some little sign of hope and I have yet to

see one. I'm trying to be optimistic and think positive, and I wake up each day

thinking okay, today I'll hear something, even if it's the littlest sign of

improvement.

Tomorrow they'll be weighing him again and now I find myself being petrified of

what the scale will read each time he's weighed. He was last weighed on Thursday

morning, so I pray it's either the same or an increase and not a decrease. His

blood work came back from the blood draw he had the day he left for 's and

it looks like there is a possible metabolic issue going on, something to do with

his organic acids. I'll be speaking with his MD tomorrow evening to go over

everything, but I'm very concerned. Since he's never had these tests before

there is nothing to compare it to, but I suspect this may be due to the Lexapro

wreaking havoc with his body chemistry. I'm hoping that is the case and that

once he's off the Lexapro his metabolism can normalize and he can start gaining

weight back.

The psychiatrist wants to keep him on the Risperdal, and phase out Lexapro, but

he wants to introduce Clomipramine while he's going off the Lexapro. After

seeing this blood work and thinking more about it, depending on what his MD says

tomorrow, I'm going to ask him to speak with the psychiatrist so hopefully they

can work as a team on the meds moving forward. I'm not a doctor or psychiatrist,

but IMO I think he should go off all the meds to clean out his system and see

how he does. The fact is that he has shown no signs of improvement and has only

gotten a lot worse since taking the meds. I realize that could also be the

progression of his OCD, but my gut feeling is that the meds have something to do

with his drastic decline and weight loss.

Okay, here's hoping for some better news tomorrow with the weigh in!