Re: Question on autism labels - can there be a straight diagnosis?

[Guest guest]

I agree it plain sucks.

We are in a similar dilema with my 6 year old DD. She has severe

language problems as well as social problems, but some of

the " experts " want to say the social problems are more like

Asperger's - but you can't have Asperger's with that severe of

language delays. We hear the interpretation of yet another round of

testing by another " expert " next week. We've been trying to get a

diagnosis since she was 3. One expert gave her ADOS testing and she

scored 19, well into the spectrum. However, another expert doesn't

think she should have scored that high - although he has done nothing

but observe her a few times for office visits. I'm so frustrated

right now I dream about moving to some country where there are

no " experts " - just people who are actually willing to help us get

treatment that works. It's killing me to have watched her

deteriorate over the past 3 years. They can go home at night, we're

left 24/7 with watching our little girls deal with reality.

Sorry for the long vent, I do feel for everything you're going

through!

> >

> > Pdd NOS usually means she does not fit either of the catagories

> enough

> > to give a positive label too, but she does have enough

pervasivness

> to

> > be under the spectrum so they give it the label of PDDNOS and

some

> call

> > that Pervaisve Development disorder not overly sure? but it means

> not

> > otherwise specified ( meaning they do not have enough information

> to

> > clarify where on the spectrum she may be?

> >

> > To me I to feel most with the PDDNOS is often a form of the

> aspergers

> > sorts of kids and often are not as pronounced. meaning if they

are

> of

> > to be more on the mild end of things, but enough off the norms to

> be of

> > considered to be of spectrum dx.

> >

> > Some though give of this label because they fear to say the

autism

> word

> > as a final correct dx and so some kids to me get misdx with the

> PDDNOS

> > when it is of very clear that they meet of the criteria of autism

> or

> > aspergers. I to personally do not like the dx label of PDDNOS

> because

> > it does not promote of services as well and leaves many guessing

> how

> > and where to begin with such a child.

> >

> > Sondra

> >

>

[Guest guest]

With a PDD diagnosis, are the services different? In NY it all falls under

autism and we get the same services mandated.

Re: Question on autism labels - can there be a

straight diagnosis?

I agree it plain sucks.

We are in a similar dilema with my 6 year old DD. She has severe

language problems as well as social problems, but some of

the " experts " want to say the social problems are more like

Asperger's - but you can't have Asperger's with that severe of

language delays. We hear the interpretation of yet another round of

testing by another " expert " next week. We've been trying to get a

diagnosis since she was 3. One expert gave her ADOS testing and she

scored 19, well into the spectrum. However, another expert doesn't

think she should have scored that high - although he has done nothing

but observe her a few times for office visits. I'm so frustrated

right now I dream about moving to some country where there are

no " experts " - just people who are actually willing to help us get

treatment that works. It's killing me to have watched her

deteriorate over the past 3 years. They can go home at night, we're

left 24/7 with watching our little girls deal with reality.

Sorry for the long vent, I do feel for everything you're going

through!

> >

> > Pdd NOS usually means she does not fit either of the catagories

> enough

> > to give a positive label too, but she does have enough

pervasivness

> to

> > be under the spectrum so they give it the label of PDDNOS and

some

> call

> > that Pervaisve Development disorder not overly sure? but it means

> not

> > otherwise specified ( meaning they do not have enough information

> to

> > clarify where on the spectrum she may be?

> >

> > To me I to feel most with the PDDNOS is often a form of the

> aspergers

> > sorts of kids and often are not as pronounced. meaning if they

are

> of

> > to be more on the mild end of things, but enough off the norms to

> be of

> > considered to be of spectrum dx.

> >

> > Some though give of this label because they fear to say the

autism

> word

> > as a final correct dx and so some kids to me get misdx with the

> PDDNOS

> > when it is of very clear that they meet of the criteria of autism

> or

> > aspergers. I to personally do not like the dx label of PDDNOS

> because

> > it does not promote of services as well and leaves many guessing

> how

> > and where to begin with such a child.

> >

> > Sondra

> >

>

[Guest guest]

In my state (or at least my area of my state) we don't have any autism specific

services available period, so I don't think it would matter which diagnosis

under PDD they choose. It may in other states or may in order for insurance to

cover.

Re: Question on autism labels - can there be a

straight diagnosis?

I agree it plain sucks.

We are in a similar dilema with my 6 year old DD. She has severe

language problems as well as social problems, but some of

the " experts " want to say the social problems are more like

Asperger's - but you can't have Asperger's with that severe of

language delays. We hear the interpretation of yet another round of

testing by another " expert " next week. We've been trying to get a

diagnosis since she was 3. One expert gave her ADOS testing and she

scored 19, well into the spectrum. However, another expert doesn't

think she should have scored that high - although he has done nothing

but observe her a few times for office visits. I'm so frustrated

right now I dream about moving to some country where there are

no " experts " - just people who are actually willing to help us get

treatment that works. It's killing me to have watched her

deteriorate over the past 3 years. They can go home at night, we're

left 24/7 with watching our little girls deal with reality.

Sorry for the long vent, I do feel for everything you're going

through!

> >

> > Pdd NOS usually means she does not fit either of the catagories

> enough

> > to give a positive label too, but she does have enough

pervasivness

> to

> > be under the spectrum so they give it the label of PDDNOS and

some

> call

> > that Pervaisve Development disorder not overly sure? but it means

> not

> > otherwise specified ( meaning they do not have enough information

> to

> > clarify where on the spectrum she may be?

> >

> > To me I to feel most with the PDDNOS is often a form of the

> aspergers

> > sorts of kids and often are not as pronounced. meaning if they

are

> of

> > to be more on the mild end of things, but enough off the norms to

> be of

> > considered to be of spectrum dx.

> >

> > Some though give of this label because they fear to say the

autism

> word

> > as a final correct dx and so some kids to me get misdx with the

> PDDNOS

> > when it is of very clear that they meet of the criteria of autism

> or

> > aspergers. I to personally do not like the dx label of PDDNOS

> because

> > it does not promote of services as well and leaves many guessing

> how

> > and where to begin with such a child.

> >

> > Sondra

> >

>

[Guest guest]

In my state (or at least my area of my state) we don't have any autism specific

services available period, so I don't think it would matter which diagnosis

under PDD they choose. It may in other states or may in order for insurance to

cover.

Re: Question on autism labels - can there be a

straight diagnosis?

I agree it plain sucks.

We are in a similar dilema with my 6 year old DD. She has severe

language problems as well as social problems, but some of

the " experts " want to say the social problems are more like

Asperger's - but you can't have Asperger's with that severe of

language delays. We hear the interpretation of yet another round of

testing by another " expert " next week. We've been trying to get a

diagnosis since she was 3. One expert gave her ADOS testing and she

scored 19, well into the spectrum. However, another expert doesn't

think she should have scored that high - although he has done nothing

but observe her a few times for office visits. I'm so frustrated

right now I dream about moving to some country where there are

no " experts " - just people who are actually willing to help us get

treatment that works. It's killing me to have watched her

deteriorate over the past 3 years. They can go home at night, we're

left 24/7 with watching our little girls deal with reality.

Sorry for the long vent, I do feel for everything you're going

through!

> >

> > Pdd NOS usually means she does not fit either of the catagories

> enough

> > to give a positive label too, but she does have enough

pervasivness

> to

> > be under the spectrum so they give it the label of PDDNOS and

some

> call

> > that Pervaisve Development disorder not overly sure? but it means

> not

> > otherwise specified ( meaning they do not have enough information

> to

> > clarify where on the spectrum she may be?

> >

> > To me I to feel most with the PDDNOS is often a form of the

> aspergers

> > sorts of kids and often are not as pronounced. meaning if they

are

> of

> > to be more on the mild end of things, but enough off the norms to

> be of

> > considered to be of spectrum dx.

> >

> > Some though give of this label because they fear to say the

autism

> word

> > as a final correct dx and so some kids to me get misdx with the

> PDDNOS

> > when it is of very clear that they meet of the criteria of autism

> or

> > aspergers. I to personally do not like the dx label of PDDNOS

> because

> > it does not promote of services as well and leaves many guessing

> how

> > and where to begin with such a child.

> >

> > Sondra

> >

>

[Guest guest]

mary pat what state do you to live in as this is of so sad to hear of

this because with the way autism is in the front of learning now it is

of sad to see some areas still have nothing at all.

Sondra

[Guest guest]

It depends on the school districts, usually. Here in CA, PDD also

falls under autism as far as EI and for getting ABA, but with services

through the schools, that's where it can get sticky.

Although, again, they are SUPPOSED to be providing services based on

need, regardless of diagnosis. It just doesn't always happen that way.

Some areas and some specific schools are better than others.

Amnesty

>

> With a PDD diagnosis, are the services different? In NY it all

falls under autism and we get the same services mandated.

>

>

[Guest guest]

,

You know, it's " funny " (not really) but Hannah didn't get properly

assessed until just recently. Lots of struggles with Children's

Hospital here in Wisconsin. Anyway, because the psychologist didn't

actually observe many of the behaviors in his office observation

(because of her age) her scores were skewed. She was only a point

off in like two areas otherwise it would have been " straight up "

autism (if that exists; too new to quite grasp). It's so

frustrating. Many feel that because Hannah is PDD-NOS that she is

also Asperger's. All you have to do is listen to her communication,

see how she responds to language, hear her speech patterns and

observe her lack of social skills and VIOLA you can see it's not

Aspergers. I also hear so much of " she doesn't look autistic " or she

must be high functioning because of such and such. How do these

people know? They don't live with it 24/7.

I too, am sorry for the long vent. Just so frustrated, overwhelmed

and scared. Broke too so can't get services that I want for her.

Thanks to all of you, you are all extraordinary people.

> > >

> > > Pdd NOS usually means she does not fit either of the catagories

> > enough

> > > to give a positive label too, but she does have enough

> pervasivness

> > to

> > > be under the spectrum so they give it the label of PDDNOS and

> some

> > call

> > > that Pervaisve Development disorder not overly sure? but it

means

> > not

> > > otherwise specified ( meaning they do not have enough

information

> > to

> > > clarify where on the spectrum she may be?

> > >

> > > To me I to feel most with the PDDNOS is often a form of the

> > aspergers

> > > sorts of kids and often are not as pronounced. meaning if they

> are

> > of

> > > to be more on the mild end of things, but enough off the norms

to

> > be of

> > > considered to be of spectrum dx.

> > >

> > > Some though give of this label because they fear to say the

> autism

> > word

> > > as a final correct dx and so some kids to me get misdx with the

> > PDDNOS

> > > when it is of very clear that they meet of the criteria of

autism

> > or

> > > aspergers. I to personally do not like the dx label of PDDNOS

> > because

> > > it does not promote of services as well and leaves many

guessing

> > how

> > > and where to begin with such a child.

> > >

> > > Sondra

> > >

> >

>

[Guest guest]

Ohio

>

> mary pat what state do you to live in as this is of so sad to hear of

> this because with the way autism is in the front of learning now it

is

> of sad to see some areas still have nothing at all.

> Sondra

>

[Guest guest]

Thank for sharing . It's good to talk to others who have been

there. The " she doesn't look autistic " always gets me as well. One

acquaintance I had kept pushing me as to why my DD was going to a

special school, so I finally said she had autism. She walked over to

my daughter and literally screamed her name at her. My daughter

turned with a shocked look on her face and her hands over her ears.

The lady turned to me with a smile and said " see, she doesn't have

autism because if she did she wouldn't have even looked at me. "

Although, I think the medical experts who declare after 10 minutes

with your child they know what she has or doesn't have are probably

worse than the know it alls who aren't " experts " . Then there are the

parents like us, who live it 24/7. That's why I'm so thankful you

took the time to share. No one knows better.

Thanks,

> > > >

> > > > Pdd NOS usually means she does not fit either of the

catagories

> > > enough

> > > > to give a positive label too, but she does have enough

> > pervasivness

> > > to

> > > > be under the spectrum so they give it the label of PDDNOS and

> > some

> > > call

> > > > that Pervaisve Development disorder not overly sure? but it

> means

> > > not

> > > > otherwise specified ( meaning they do not have enough

> information

> > > to

> > > > clarify where on the spectrum she may be?

> > > >

> > > > To me I to feel most with the PDDNOS is often a form of the

> > > aspergers

> > > > sorts of kids and often are not as pronounced. meaning if

they

> > are

> > > of

> > > > to be more on the mild end of things, but enough off the

norms

> to

> > > be of

> > > > considered to be of spectrum dx.

> > > >

> > > > Some though give of this label because they fear to say the

> > autism

> > > word

> > > > as a final correct dx and so some kids to me get misdx with

the

> > > PDDNOS

> > > > when it is of very clear that they meet of the criteria of

> autism

> > > or

> > > > aspergers. I to personally do not like the dx label of PDDNOS

> > > because

> > > > it does not promote of services as well and leaves many

> guessing

> > > how

> > > > and where to begin with such a child.

> > > >

> > > > Sondra

> > > >

> > >

> >

>

[Guest guest]

People can be so stupid!!! I keep a list of favorite quotes, one of

them I recalled from this story:

When I was young, I was put in a school for retarded kids for two

years before they realized I actually had a hearing loss. And they

called ME slow! – Kathy Buckley

[Guest guest]

Kathy Buckley. Buckley. Must be a club or something...

>

> People can be so stupid!!! I keep a list of favorite quotes, one of

> them I recalled from this story:

>

>

> When I was young, I was put in a school for retarded kids for two

> years before they realized I actually had a hearing loss. And they

> called ME slow! – Kathy Buckley

>

[Guest guest]

Sorry no luck - I am in another country - we have the same 'experts'

here too.

> > >

> > > Pdd NOS usually means she does not fit either of the catagories

> > enough

> > > to give a positive label too, but she does have enough

> pervasivness

> > to

> > > be under the spectrum so they give it the label of PDDNOS and

> some

> > call

> > > that Pervaisve Development disorder not overly sure? but it

means

> > not

> > > otherwise specified ( meaning they do not have enough

information

> > to

> > > clarify where on the spectrum she may be?

> > >

> > > To me I to feel most with the PDDNOS is often a form of the

> > aspergers

> > > sorts of kids and often are not as pronounced. meaning if they

> are

> > of

> > > to be more on the mild end of things, but enough off the norms

to

> > be of

> > > considered to be of spectrum dx.

> > >

> > > Some though give of this label because they fear to say the

> autism

> > word

> > > as a final correct dx and so some kids to me get misdx with the

> > PDDNOS

> > > when it is of very clear that they meet of the criteria of

autism

> > or

> > > aspergers. I to personally do not like the dx label of PDDNOS

> > because

> > > it does not promote of services as well and leaves many

guessing

> > how

> > > and where to begin with such a child.

> > >

> > > Sondra

> > >

> >

>

[Guest guest]

Since I feel that everything is a conspiracy...

I think the " experts " are doing that on purpose to change that whole

1 in 150 children are dx with autism. If you dx them as something

else or don't dx them at all then by next yr the numbers will get

better.

That's just MY opinion...

> > > >

> > > > Pdd NOS usually means she does not fit either of the

catagories

> > > enough

> > > > to give a positive label too, but she does have enough

> > pervasivness

> > > to

> > > > be under the spectrum so they give it the label of PDDNOS and

> > some

> > > call

> > > > that Pervaisve Development disorder not overly sure? but it

> means

> > > not

> > > > otherwise specified ( meaning they do not have enough

> information

> > > to

> > > > clarify where on the spectrum she may be?

> > > >

> > > > To me I to feel most with the PDDNOS is often a form of the

> > > aspergers

> > > > sorts of kids and often are not as pronounced. meaning if

they

> > are

> > > of

> > > > to be more on the mild end of things, but enough off the

norms

> to

> > > be of

> > > > considered to be of spectrum dx.

> > > >

> > > > Some though give of this label because they fear to say the

> > autism

> > > word

> > > > as a final correct dx and so some kids to me get misdx with

the

> > > PDDNOS

> > > > when it is of very clear that they meet of the criteria of

> autism

> > > or

> > > > aspergers. I to personally do not like the dx label of PDDNOS

> > > because

> > > > it does not promote of services as well and leaves many

> guessing

> > > how

> > > > and where to begin with such a child.

> > > >

> > > > Sondra

> > > >

> > >

> >

>

[Guest guest]

Since I feel that everything is a conspiracy...

I think the " experts " are doing that on purpose to change that whole

1 in 150 children are dx with autism. If you dx them as something

else or don't dx them at all then by next yr the numbers will get

better.

That's just MY opinion...

> > > >

> > > > Pdd NOS usually means she does not fit either of the

catagories

> > > enough

> > > > to give a positive label too, but she does have enough

> > pervasivness

> > > to

> > > > be under the spectrum so they give it the label of PDDNOS and

> > some

> > > call

> > > > that Pervaisve Development disorder not overly sure? but it

> means

> > > not

> > > > otherwise specified ( meaning they do not have enough

> information

> > > to

> > > > clarify where on the spectrum she may be?

> > > >

> > > > To me I to feel most with the PDDNOS is often a form of the

> > > aspergers

> > > > sorts of kids and often are not as pronounced. meaning if

they

> > are

> > > of

> > > > to be more on the mild end of things, but enough off the

norms

> to

> > > be of

> > > > considered to be of spectrum dx.

> > > >

> > > > Some though give of this label because they fear to say the

> > autism

> > > word

> > > > as a final correct dx and so some kids to me get misdx with

the

> > > PDDNOS

> > > > when it is of very clear that they meet of the criteria of

> autism

> > > or

> > > > aspergers. I to personally do not like the dx label of PDDNOS

> > > because

> > > > it does not promote of services as well and leaves many

> guessing

> > > how

> > > > and where to begin with such a child.

> > > >

> > > > Sondra

> > > >

> > >

> >

>

[Guest guest]

Since I feel that everything is a conspiracy...

I think the " experts " are doing that on purpose to change that whole

1 in 150 children are dx with autism. If you dx them as something

else or don't dx them at all then by next yr the numbers will get

better.

That's just MY opinion...

> > > >

> > > > Pdd NOS usually means she does not fit either of the

catagories

> > > enough

> > > > to give a positive label too, but she does have enough

> > pervasivness

> > > to

> > > > be under the spectrum so they give it the label of PDDNOS and

> > some

> > > call

> > > > that Pervaisve Development disorder not overly sure? but it

> means

> > > not

> > > > otherwise specified ( meaning they do not have enough

> information

> > > to

> > > > clarify where on the spectrum she may be?

> > > >

> > > > To me I to feel most with the PDDNOS is often a form of the

> > > aspergers

> > > > sorts of kids and often are not as pronounced. meaning if

they

> > are

> > > of

> > > > to be more on the mild end of things, but enough off the

norms

> to

> > > be of

> > > > considered to be of spectrum dx.

> > > >

> > > > Some though give of this label because they fear to say the

> > autism

> > > word

> > > > as a final correct dx and so some kids to me get misdx with

the

> > > PDDNOS

> > > > when it is of very clear that they meet of the criteria of

> autism

> > > or

> > > > aspergers. I to personally do not like the dx label of PDDNOS

> > > because

> > > > it does not promote of services as well and leaves many

> guessing

> > > how

> > > > and where to begin with such a child.

> > > >

> > > > Sondra

> > > >

> > >

> >

>

[Guest guest]

So doesn't the dx of PDDNOS fall under ASD's? Or does that just

depend on the state, insurance company, school district and that sort

of thing? I don't get it. Arrrrrrgh!

> > > > >

> > > > > Pdd NOS usually means she does not fit either of the

> catagories

> > > > enough

> > > > > to give a positive label too, but she does have enough

> > > pervasivness

> > > > to

> > > > > be under the spectrum so they give it the label of PDDNOS

and

> > > some

> > > > call

> > > > > that Pervaisve Development disorder not overly sure? but it

> > means

> > > > not

> > > > > otherwise specified ( meaning they do not have enough

> > information

> > > > to

> > > > > clarify where on the spectrum she may be?

> > > > >

> > > > > To me I to feel most with the PDDNOS is often a form of the

> > > > aspergers

> > > > > sorts of kids and often are not as pronounced. meaning if

> they

> > > are

> > > > of

> > > > > to be more on the mild end of things, but enough off the

> norms

> > to

> > > > be of

> > > > > considered to be of spectrum dx.

> > > > >

> > > > > Some though give of this label because they fear to say the

> > > autism

> > > > word

> > > > > as a final correct dx and so some kids to me get misdx with

> the

> > > > PDDNOS

> > > > > when it is of very clear that they meet of the criteria of

> > autism

> > > > or

> > > > > aspergers. I to personally do not like the dx label of

PDDNOS

> > > > because

> > > > > it does not promote of services as well and leaves many

> > guessing

> > > > how

> > > > > and where to begin with such a child.

> > > > >

> > > > > Sondra

> > > > >

> > > >

> > >

> >

>

[Guest guest]

So doesn't the dx of PDDNOS fall under ASD's? Or does that just

depend on the state, insurance company, school district and that sort

of thing? I don't get it. Arrrrrrgh!

> > > > >

> > > > > Pdd NOS usually means she does not fit either of the

> catagories

> > > > enough

> > > > > to give a positive label too, but she does have enough

> > > pervasivness

> > > > to

> > > > > be under the spectrum so they give it the label of PDDNOS

and

> > > some

> > > > call

> > > > > that Pervaisve Development disorder not overly sure? but it

> > means

> > > > not

> > > > > otherwise specified ( meaning they do not have enough

> > information

> > > > to

> > > > > clarify where on the spectrum she may be?

> > > > >

> > > > > To me I to feel most with the PDDNOS is often a form of the

> > > > aspergers

> > > > > sorts of kids and often are not as pronounced. meaning if

> they

> > > are

> > > > of

> > > > > to be more on the mild end of things, but enough off the

> norms

> > to

> > > > be of

> > > > > considered to be of spectrum dx.

> > > > >

> > > > > Some though give of this label because they fear to say the

> > > autism

> > > > word

> > > > > as a final correct dx and so some kids to me get misdx with

> the

> > > > PDDNOS

> > > > > when it is of very clear that they meet of the criteria of

> > autism

> > > > or

> > > > > aspergers. I to personally do not like the dx label of

PDDNOS

> > > > because

> > > > > it does not promote of services as well and leaves many

> > guessing

> > > > how

> > > > > and where to begin with such a child.

> > > > >

> > > > > Sondra

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Ahhh, I never thought of that, and I'm the queen of paranoia!

Like the recent Singulair stuff about it causing suicide. I found it

interesting that it came out RIGHT when it was supposed to go generic.

And after my medical law professor, a pharmacist/attorney, said that

the gov just caught wind of deals the big pharma were making to pay

the generic companies NOT to produce generic equivalents. Maybe

Singluair does cause suicide, but interesting the timing of it all...

I could go on & on with my conspiracy theories, lol.

Debi

-

[Guest guest]

That is interesting...

I also could go on & on with my conspiracy theories, but I think ppl

will think i'm a little crazy! LOL

>

> Ahhh, I never thought of that, and I'm the queen of paranoia!

>

> Like the recent Singulair stuff about it causing suicide. I found it

> interesting that it came out RIGHT when it was supposed to go generic.

> And after my medical law professor, a pharmacist/attorney, said that

> the gov just caught wind of deals the big pharma were making to pay

> the generic companies NOT to produce generic equivalents. Maybe

> Singluair does cause suicide, but interesting the timing of it all...

>

> I could go on & on with my conspiracy theories, lol.

>

> Debi

>

> -

>

[Guest guest]

That is interesting...

I also could go on & on with my conspiracy theories, but I think ppl

will think i'm a little crazy! LOL

>

> Ahhh, I never thought of that, and I'm the queen of paranoia!

>

> Like the recent Singulair stuff about it causing suicide. I found it

> interesting that it came out RIGHT when it was supposed to go generic.

> And after my medical law professor, a pharmacist/attorney, said that

> the gov just caught wind of deals the big pharma were making to pay

> the generic companies NOT to produce generic equivalents. Maybe

> Singluair does cause suicide, but interesting the timing of it all...

>

> I could go on & on with my conspiracy theories, lol.

>

> Debi

>

> -

>

[Guest guest]

Ladies!

We are not the crazy ones! We have crazy days but we are more

together than the people who aren't touched with our type of lives!

As far as the Singulair thing goes...any thoughts? I just took

Hannah off primarily because they also said that it could create a

general mood disorder and she's got such mood issues to begin with, I

wanted to see if anything changes. So far, it seems to have helped

(only a little but that's better than not at all!).

We all have to stick together. Crazy or otherwise!! LOL

> >

> > Ahhh, I never thought of that, and I'm the queen of paranoia!

> >

> > Like the recent Singulair stuff about it causing suicide. I found

it

> > interesting that it came out RIGHT when it was supposed to go

generic.

> > And after my medical law professor, a pharmacist/attorney, said

that

> > the gov just caught wind of deals the big pharma were making to

pay

> > the generic companies NOT to produce generic equivalents. Maybe

> > Singluair does cause suicide, but interesting the timing of it

all...

> >

> > I could go on & on with my conspiracy theories, lol.

> >

> > Debi

> >

> > -

> >

>

[Guest guest]

The statistics of 1 in 150 kids being diagnosed ONLY refers to kids

diagnosed with autism, not AS or PDD. When you think of how high the

numbers REALLY are, with all those kids included....it's frightening,

really.

Amnesty

> > > > > >

> > > > > > Pdd NOS usually means she does not fit either of the

> > catagories

> > > > > enough

> > > > > > to give a positive label too, but she does have enough

> > > > pervasivness

> > > > > to

> > > > > > be under the spectrum so they give it the label of PDDNOS

> and

> > > > some

> > > > > call

> > > > > > that Pervaisve Development disorder not overly sure? but it

> > > means

> > > > > not

> > > > > > otherwise specified ( meaning they do not have enough

> > > information

> > > > > to

> > > > > > clarify where on the spectrum she may be?

> > > > > >

> > > > > > To me I to feel most with the PDDNOS is often a form of the

> > > > > aspergers

> > > > > > sorts of kids and often are not as pronounced. meaning if

> > they

> > > > are

> > > > > of

> > > > > > to be more on the mild end of things, but enough off the

> > norms

> > > to

> > > > > be of

> > > > > > considered to be of spectrum dx.

> > > > > >

> > > > > > Some though give of this label because they fear to say the

> > > > autism

> > > > > word

> > > > > > as a final correct dx and so some kids to me get misdx with

> > the

> > > > > PDDNOS

> > > > > > when it is of very clear that they meet of the criteria of

> > > autism

> > > > > or

> > > > > > aspergers. I to personally do not like the dx label of

> PDDNOS

> > > > > because

> > > > > > it does not promote of services as well and leaves many

> > > guessing

> > > > > how

> > > > > > and where to begin with such a child.

> > > > > >

> > > > > > Sondra

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Wow, I didn't realize those weren't included in the numbers!! I'd

really like to know what the real numbers are. The media should

really use those since they are still ASDs!! Do you have any idea on

the numbers?

> > > > > > >

> > > > > > > Pdd NOS usually means she does not fit either of the

> > > catagories

> > > > > > enough

> > > > > > > to give a positive label too, but she does have enough

> > > > > pervasivness

> > > > > > to

> > > > > > > be under the spectrum so they give it the label of

PDDNOS

> > and

> > > > > some

> > > > > > call

> > > > > > > that Pervaisve Development disorder not overly sure?

but it

> > > > means

> > > > > > not

> > > > > > > otherwise specified ( meaning they do not have enough

> > > > information

> > > > > > to

> > > > > > > clarify where on the spectrum she may be?

> > > > > > >

> > > > > > > To me I to feel most with the PDDNOS is often a form of

the

> > > > > > aspergers

> > > > > > > sorts of kids and often are not as pronounced. meaning

if

> > > they

> > > > > are

> > > > > > of

> > > > > > > to be more on the mild end of things, but enough off

the

> > > norms

> > > > to

> > > > > > be of

> > > > > > > considered to be of spectrum dx.

> > > > > > >

> > > > > > > Some though give of this label because they fear to say

the

> > > > > autism

> > > > > > word

> > > > > > > as a final correct dx and so some kids to me get misdx

with

> > > the

> > > > > > PDDNOS

> > > > > > > when it is of very clear that they meet of the criteria

of

> > > > autism

> > > > > > or

> > > > > > > aspergers. I to personally do not like the dx label of

> > PDDNOS

> > > > > > because

> > > > > > > it does not promote of services as well and leaves many

> > > > guessing

> > > > > > how

> > > > > > > and where to begin with such a child.

> > > > > > >

> > > > > > > Sondra

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Or imagine those that don't get dx due to insurance purposes.

My friends son, has autism, but her neuro. told her that if she gives

him a dx of " ASD " then the insurance would not cover Speech, ABA, PT

and OT.

So beleive it or not she did not get a dx, and the insurance covers

up to 50 therapies a year. Figure that one out.

> > > > > > > >

> > > > > > > > Pdd NOS usually means she does not fit either of the

> > > > catagories

> > > > > > > enough

> > > > > > > > to give a positive label too, but she does have

enough

> > > > > > pervasivness

> > > > > > > to

> > > > > > > > be under the spectrum so they give it the label of

> PDDNOS

> > > and

> > > > > > some

> > > > > > > call

> > > > > > > > that Pervaisve Development disorder not overly sure?

> but it

> > > > > means

> > > > > > > not

> > > > > > > > otherwise specified ( meaning they do not have enough

> > > > > information

> > > > > > > to

> > > > > > > > clarify where on the spectrum she may be?

> > > > > > > >

> > > > > > > > To me I to feel most with the PDDNOS is often a form

of

> the

> > > > > > > aspergers

> > > > > > > > sorts of kids and often are not as pronounced.

meaning

> if

> > > > they

> > > > > > are

> > > > > > > of

> > > > > > > > to be more on the mild end of things, but enough off

> the

> > > > norms

> > > > > to

> > > > > > > be of

> > > > > > > > considered to be of spectrum dx.

> > > > > > > >

> > > > > > > > Some though give of this label because they fear to

say

> the

> > > > > > autism

> > > > > > > word

> > > > > > > > as a final correct dx and so some kids to me get

misdx

> with

> > > > the

> > > > > > > PDDNOS

> > > > > > > > when it is of very clear that they meet of the

criteria

> of

> > > > > autism

> > > > > > > or

> > > > > > > > aspergers. I to personally do not like the dx label

of

> > > PDDNOS

> > > > > > > because

> > > > > > > > it does not promote of services as well and leaves

many

> > > > > guessing

> > > > > > > how

> > > > > > > > and where to begin with such a child.

> > > > > > > >

> > > > > > > > Sondra

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I don't. I'm not sure how you'd find out. I'm sure the CDC probably

has statistics on the other labels as well though.

Amnesty

> > > > > > > >

> > > > > > > > Pdd NOS usually means she does not fit either of the

> > > > catagories

> > > > > > > enough

> > > > > > > > to give a positive label too, but she does have enough

> > > > > > pervasivness

> > > > > > > to

> > > > > > > > be under the spectrum so they give it the label of

> PDDNOS

> > > and

> > > > > > some

> > > > > > > call

> > > > > > > > that Pervaisve Development disorder not overly sure?

> but it

> > > > > means

> > > > > > > not

> > > > > > > > otherwise specified ( meaning they do not have enough

> > > > > information

> > > > > > > to

> > > > > > > > clarify where on the spectrum she may be?

> > > > > > > >

> > > > > > > > To me I to feel most with the PDDNOS is often a form of

> the

> > > > > > > aspergers

> > > > > > > > sorts of kids and often are not as pronounced. meaning

> if

> > > > they

> > > > > > are

> > > > > > > of

> > > > > > > > to be more on the mild end of things, but enough off

> the

> > > > norms

> > > > > to

> > > > > > > be of

> > > > > > > > considered to be of spectrum dx.

> > > > > > > >

> > > > > > > > Some though give of this label because they fear to say

> the

> > > > > > autism

> > > > > > > word

> > > > > > > > as a final correct dx and so some kids to me get misdx

> with

> > > > the

> > > > > > > PDDNOS

> > > > > > > > when it is of very clear that they meet of the criteria

> of

> > > > > autism

> > > > > > > or

> > > > > > > > aspergers. I to personally do not like the dx label of

> > > PDDNOS

> > > > > > > because

> > > > > > > > it does not promote of services as well and leaves many

> > > > > guessing

> > > > > > > how

> > > > > > > > and where to begin with such a child.

> > > > > > > >

> > > > > > > > Sondra

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>