Re: support for the early stages

[Guest guest]

Follow your instinct and get your dd the help, you think she needs. My husband

thought my ds's ocd was just a phase. It was bad contamination issues, the

whole family was a mess. I insisted on finding help, and again had to follow my

instinct to switch doctors, to an ocd expert. But after erp therapy, I had my

son back. I remember how lonely, isolated, and sad I felt trying to get the

right help for ds. I'm sure things will start to get better after the dtr appt.

Just try to hang in there til then.

>

> I took DD to her pediatrician today to talk about PANDAS/PITAND. She didn't

seem like she thought this was it but did a strep test and ordered blood work. I

think we'd have to see a PANDAS specialist to get more a thorough work-up. I

also finally got an intake appointment with a psychologist that specializes in

anxiety disorders in children, but it's still a few weeks away. Did anyone else

feel really alone in the early stages of diagnosis and treatment? My husband and

parents don't want to believe it's OCD and are bristling at the idea of starting

her in therapy. Honestly, I don't care what any of them think because I know

this is the right thing to do to help my suffering kid, but, man, it's lonely

sometimes. Thanks for letting me share our next steps here.

> -Beth

>

[Guest guest]

Did u do the erp therapy at home through the therapist or did your daughter have

to go in for it?

Sent from my iPhone

> Follow your instinct and get your dd the help, you think she needs. My husband

thought my ds's ocd was just a phase. It was bad contamination issues, the whole

family was a mess. I insisted on finding help, and again had to follow my

instinct to switch doctors, to an ocd expert. But after erp therapy, I had my

son back. I remember how lonely, isolated, and sad I felt trying to get the

right help for ds. I'm sure things will start to get better after the dtr appt.

Just try to hang in there til then.

>

>

> >

> > I took DD to her pediatrician today to talk about PANDAS/PITAND. She didn't

seem like she thought this was it but did a strep test and ordered blood work. I

think we'd have to see a PANDAS specialist to get more a thorough work-up. I

also finally got an intake appointment with a psychologist that specializes in

anxiety disorders in children, but it's still a few weeks away. Did anyone else

feel really alone in the early stages of diagnosis and treatment? My husband and

parents don't want to believe it's OCD and are bristling at the idea of starting

her in therapy. Honestly, I don't care what any of them think because I know

this is the right thing to do to help my suffering kid, but, man, it's lonely

sometimes. Thanks for letting me share our next steps here.

> > -Beth

> >

>

>

[Guest guest]

Thank you for the encouragement. It's always good to hear how it can get better

later. Glad that the therapy worked so well for your son. :-) -Beth

>

> Follow your instinct and get your dd the help, you think she needs. My

husband thought my ds's ocd was just a phase. It was bad contamination issues,

the whole family was a mess. I insisted on finding help, and again had to

follow my instinct to switch doctors, to an ocd expert. But after erp therapy,

I had my son back. I remember how lonely, isolated, and sad I felt trying to

get the right help for ds. I'm sure things will start to get better after the

dtr appt. Just try to hang in there til then.

>

[Guest guest]

Hi Beth, yes to feeling alone. I'm a single mom. And also I worked at our

local mental health center at the time and they had no training with OCD, knew

the basics of treatment I guess. Anyway, I just read what I could, got

suggestions from this group, and we worked on things on our own.

We used inositol powder those first years, later got a psych to prescribe Celexa

and that's all we used him for, no therapy. This group was my best support

through all of it. Even though had some " weird " OCD (i.e., no one else

in the group had kid with similar behaviors), it was a support place for me.

Glad your pediatrician is open to PANDAS testing even if she doesn't feel that's

it. Let us know those test results!

>

Did anyone else feel really alone in the early stages of diagnosis and

treatment? My husband and parents don't want to believe it's OCD and are

bristling at the idea of starting her in therapy. Honestly, I don't care what

any of them think because I know this is the right thing to do to help my

suffering kid, but, man, it's lonely sometimes. Thanks for letting me share our

next steps here.

> -Beth

>