Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Hi , I'm going by your remark that Dana is high functioning, so: How much preparation had you done to get Dana ready for having periods? Could her lack of reaction be a result of expecting it and knowing what it is? My dd's school had taught developmental health last year, and I followed up with Q & A and other preparations since then, so she may freak but she may just think " Oh yeah this is what they told me about. " I'll find out when the time comes! It may be you and Dana just need some time to see how she reacts once things settle down. After all you and she have years to work out what's best for her. You don't have to make the decision this instant in the first rush of concern, you have plenty of time to work out what's best. :-) Sandi In a message dated 5/12/2008 1:06:38 P.M. Central Daylight Time, agirls2003@... writes: Hi everyone it has been quite a while since I have posted in here I apologize for that. I am a wreck right now and very worried as well. My eldest daughter Dana is 12 and she just started. We went to a pediatric endocrynologist back in august to have her looked at to give us an idea of when she my start her period. He said a yr and a half. Um oops wrong. The first indicatior that this was coming was behavior awful behavior going right along with my time of the month it started here and slowly spilled over into school. She is high functioning autistic she understands things at about the level of a third or second grader but on the other hand at her grade level as well. The period was nothing two spottings and nothing else but she had the behaviors those were bad. She had no clue of what was going on with her. The school tried to explain and take care of things as well I and her behaviorlist did as well. She just did what she was told didnt really have a reaction. I dont know what it would have been like if she had been heavy and painful. My question is her endo told me today that if i put her on depoprovera shots that it would stop her from growing and if i put her on another form of b/c which would give her a period every three months it wouldn't do u guys know anything about this??? What forms do you use??? I need help really badly?? He did a bone age scan today to see where she is sigh I am just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS FAR LOL) JULIE **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Hi everyone it has been quite a while since I have posted in here I apologize for that. I am a wreck right now and very worried as well. My eldest daughter Dana is 12 and she just started. We went to a pediatric endocrynologist back in august to have her looked at to give us an idea of when she my start her period. He said a yr and a half. Um oops wrong. The first indicatior that this was coming was behavior awful behavior going right along with my time of the month it started here and slowly spilled over into school. She is high functioning autistic she understands things at about the level of a third or second grader but on the other hand at her grade level as well. The period was nothing two spottings and nothing else but she had the behaviors those were bad. She had no clue of what was going on with her. The school tried to explain and take care of things as well I and her behaviorlist did as well. She just did what she was told didnt really have a reaction. I dont know what it would have been like if she had been heavy and painful. My question is her endo told me today that if i put her on depoprovera shots that it would stop her from growing and if i put her on another form of b/c which would give her a period every three months it wouldn't do u guys know anything about this??? What forms do you use??? I need help really badly?? He did a bone age scan today to see where she is sigh I am just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS FAR LOL) JULIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Umm, I'm not sure why you feel my question/comments about estrogen was unkind. I was asking simply because you did not say why, I did not know if there was a medical reason that you & your doctor were considering it, I was trying to figure out which angle you were coming from so I would know what little suggestions I could make. I'm sorry if the fact that estrogen can fuse bones prematurely upsets you, I was simply stating the reason that hormones with estrogen would be an issue to bone growth. Anything beyond that is your inference, not my intent. Debi > > > > I guess my question is why you want her on the hormones? > > > > Estrogen can cause the bones to fuse prematurely, so if a given drug > > increases hormone, that could be the result of short stature. > > > > Debi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Umm, I'm not sure why you feel my question/comments about estrogen was unkind. I was asking simply because you did not say why, I did not know if there was a medical reason that you & your doctor were considering it, I was trying to figure out which angle you were coming from so I would know what little suggestions I could make. I'm sorry if the fact that estrogen can fuse bones prematurely upsets you, I was simply stating the reason that hormones with estrogen would be an issue to bone growth. Anything beyond that is your inference, not my intent. Debi > > > > I guess my question is why you want her on the hormones? > > > > Estrogen can cause the bones to fuse prematurely, so if a given drug > > increases hormone, that could be the result of short stature. > > > > Debi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Debi I apologize for my reaction I didnt think u were being unkind it has been a emotional day for me and I am so very confused right now. > > > > > > I guess my question is why you want her on the hormones? > > > > > > Estrogen can cause the bones to fuse prematurely, so if a given drug > > > increases hormone, that could be the result of short stature. > > > > > > Debi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Debi I apologize for my reaction I didnt think u were being unkind it has been a emotional day for me and I am so very confused right now. > > > > > > I guess my question is why you want her on the hormones? > > > > > > Estrogen can cause the bones to fuse prematurely, so if a given drug > > > increases hormone, that could be the result of short stature. > > > > > > Debi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Debi I apologize for my reaction I didnt think u were being unkind it has been a emotional day for me and I am so very confused right now. > > > > > > I guess my question is why you want her on the hormones? > > > > > > Estrogen can cause the bones to fuse prematurely, so if a given drug > > > increases hormone, that could be the result of short stature. > > > > > > Debi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Sandi, Dana didn't have any prep we were getting things in place the Dr. told us we had a yr and a half so with health ed coming and help from me at home as well from her behavioral trainer we were starting to get her situated. Showering by her self she is becoming aware of her self and wanting to be more independant but at the same time is still liking pre school programs on tv etc I hope you get the jist of this she understands things at different levels and has alot of different sensory issues that set her off. Toileting and bathroom issues are one of her biggest problems I have had her in the hospital for a severe kidney infection due to her not going to the bathroom properly she has to be reminded and made to go to the bathroom or she would quite honestly only go when totally desparate. I have a younger daughter who is ten and autistic as well high functionining and very behavioral. Her understanding of any of this is only to do what she is told they tried to explain what was going on and she faded off and wanted to go play. She has to be supervised in the bathroom to make sure she washes her hands and cleans her self all the time now. It is alot I am not sure what i am doing right now but I do inted to make sure that I am doing the best and safest thing for my daughter. > > Hi , > > I'm going by your remark that Dana is high functioning, so: > > How much preparation had you done to get Dana ready for having periods? > Could her lack of reaction be a result of expecting it and knowing what it > is? > My dd's school had taught developmental health last year, and I followed up > with Q & A and other preparations since then, so she may freak but she may > just think " Oh yeah this is what they told me about. " > I'll find out when the time comes! > > It may be you and Dana just need some time to see how she reacts once > things settle down. After all you and she have years to work out what's > best for her. You don't have to make the decision this instant in the first > rush of concern, you have plenty of time to work out what's best. :-) > > Sandi > > > > > In a message dated 5/12/2008 1:06:38 P.M. Central Daylight Time, > agirls2003@... writes: > > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > > > > > > **************Wondering what's for Dinner Tonight? Get new twists on family > favorites at AOL Food. > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Hi- I am on depo and have been for almost 13 years. I love it, but I am an adult and not planning on doing any growing. I do have to have regular bone scans. I don't know what the effects are on children. I have seriously thought about getting it for Kayla (12). She hadn't started her period yet, but we have talked about it with her forever and she stated wearing panty liners to get the feel. I wish I had the info you need to make a good decision. I totally understand the reasons why you would want to use it, just don't know what the problems could be. Good luck TJ > > Sandi, > > Dana didn't have any prep we were getting things in place > the Dr. told us we had a yr and a half so with health ed coming and > help from me at home as well from her behavioral trainer we were > starting to get her situated. Showering by her self she is becoming > aware of her self and wanting to be more independant but at the same > time is still liking pre school programs on tv etc I hope you get the > jist of this she understands things at different levels and has alot > of different sensory issues that set her off. Toileting and bathroom > issues are one of her biggest problems I have had her in the hospital > for a severe kidney infection due to her not going to the bathroom > properly she has to be reminded and made to go to the bathroom or she > would quite honestly only go when totally desparate. I have a younger > daughter who is ten and autistic as well high functionining and very > behavioral. Her understanding of any of this is only to do what she > is told they tried to explain what was going on and she faded off and > wanted to go play. She has to be supervised in the bathroom to make > sure she washes her hands and cleans her self all the time now. It > is alot I am not sure what i am doing right now but I do inted to > make sure that I am doing the best and safest thing for my daughter. > > > > > > > > Hi , > > > > I'm going by your remark that Dana is high functioning, so: > > > > How much preparation had you done to get Dana ready for having > periods? > > Could her lack of reaction be a result of expecting it and knowing > what it > > is? > > My dd's school had taught developmental health last year, and I > followed up > > with Q & A and other preparations since then, so she may freak but > she may > > just think " Oh yeah this is what they told me about. " > > I'll find out when the time comes! > > > > It may be you and Dana just need some time to see how she reacts > once > > things settle down. After all you and she have years to work out > what's > > best for her. You don't have to make the decision this instant in > the first > > rush of concern, you have plenty of time to work out what's > best. :-) > > > > Sandi > > > > > > > > > > In a message dated 5/12/2008 1:06:38 P.M. Central Daylight Time, > > agirls2003@... writes: > > > > Hi everyone it has been quite a while since I have posted in here > I > > apologize for that. I am a wreck right now and very worried as > well. > > My eldest daughter Dana is 12 and she just started. We went to a > > pediatric endocrynologist back in august to have her looked at to > > give us an idea of when she my start her period. He said a yr and > a > > half. Um oops wrong. The first indicatior that this was coming was > > behavior awful behavior going right along with my time of the > month > > it started here and slowly spilled over into school. She is high > > functioning autistic she understands things at about the level of > a > > third or second grader but on the other hand at her grade level as > > well. The period was nothing two spottings and nothing else but > she > > had the behaviors those were bad. She had no clue of what was > going > > on with her. The school tried to explain and take care of things > as > > well I and her behaviorlist did as well. She just did what she was > > told didnt really have a reaction. I dont know what it would have > > been like if she had been heavy and painful. My question is her > endo > > told me today that if i put her on depoprovera shots that it would > > stop her from growing and if i put her on another form of b/c > which > > would give her a period every three months it wouldn't do u guys > know > > anything about this??? What forms do you use??? I need help really > > badly?? He did a bone age scan today to see where she is sigh I am > > just beside myself to know what to do. ty (ESPECIALLY IF U READ > THIS > > FAR LOL) > > JULIE > > > > > > > > > > > > **************Wondering what's for Dinner Tonight? Get new twists > on family > > favorites at AOL Food. > > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 > > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > hi all i am a rn and if you need any advice email me--kristi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 > > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > hi all i am a rn and if you need any advice email me--kristi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 > > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > hi all i am a rn and if you need any advice email me--kristi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Hey, I can understand...well, I can't understand, none of my girls have experienced their first cycle, but I can understand that you are freaked out, may God have mercy on anyone within typing/screaming distance when I go through what you are! I get so mad when doctors act like they can predict first cycles. I've heard enough that I don't believe there's any possible way. And as I type this I'm hoping our geneticist can predict Allie's after all the hormonal tests he just did, how crazy is that??? I would encourage you to consider giving it a couple of cycles with some social stories & rewards for good hygiene. Has she made any written/verbal communication as to what she wants to do? She may surprise you and really do well, or you may find after lots of trying she just can't handle it, but at least then you'll know you gave it all you could. Then if she does need hormonal assistance that may have some negatives, you can do it with a clear mind that you tried every way you could. All that said, only you know what's best. And I'm learning from all of you going through it now, so please share what happens, I'm making mental notes to help prepare my girls. HTH, Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Hey, I can understand...well, I can't understand, none of my girls have experienced their first cycle, but I can understand that you are freaked out, may God have mercy on anyone within typing/screaming distance when I go through what you are! I get so mad when doctors act like they can predict first cycles. I've heard enough that I don't believe there's any possible way. And as I type this I'm hoping our geneticist can predict Allie's after all the hormonal tests he just did, how crazy is that??? I would encourage you to consider giving it a couple of cycles with some social stories & rewards for good hygiene. Has she made any written/verbal communication as to what she wants to do? She may surprise you and really do well, or you may find after lots of trying she just can't handle it, but at least then you'll know you gave it all you could. Then if she does need hormonal assistance that may have some negatives, you can do it with a clear mind that you tried every way you could. All that said, only you know what's best. And I'm learning from all of you going through it now, so please share what happens, I'm making mental notes to help prepare my girls. HTH, Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Hey, I can understand...well, I can't understand, none of my girls have experienced their first cycle, but I can understand that you are freaked out, may God have mercy on anyone within typing/screaming distance when I go through what you are! I get so mad when doctors act like they can predict first cycles. I've heard enough that I don't believe there's any possible way. And as I type this I'm hoping our geneticist can predict Allie's after all the hormonal tests he just did, how crazy is that??? I would encourage you to consider giving it a couple of cycles with some social stories & rewards for good hygiene. Has she made any written/verbal communication as to what she wants to do? She may surprise you and really do well, or you may find after lots of trying she just can't handle it, but at least then you'll know you gave it all you could. Then if she does need hormonal assistance that may have some negatives, you can do it with a clear mind that you tried every way you could. All that said, only you know what's best. And I'm learning from all of you going through it now, so please share what happens, I'm making mental notes to help prepare my girls. HTH, Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Understood , It's so stressful having a major life change dropped in your lap before you had time to get ready for it. I hope to reassure you, really. I got some great advice from Allie's doctor once that has saved my sanity a bunch of times. I was really agonizing over whether to do something, and he said " Remember that you aren't married to every choice you make for her. Make the best decision can, but over the years you're going to have to throw some of them out and try again. " Sandi PS It sounds like we have a number of things in common with our daughters. My Allie will be 13 in a few weeks, but she is still very young emotionally. I'd place her at about age 9 with moments of being about 3-4. She also has trouble going to the bathroom when needed, and struggles with self help skills. Your remark about their understanding things at different levels really struck a cord. I am banging heads with Allie's counselor and math teacher right now because they can't get their minds around the concept of who Allie is and what she can and can't do. I keep trying to get them to just think of her as a brilliant 9-year-old who skipped 3 grades, and give her a break. LOL - Sandi In a message dated 5/12/2008 6:15:50 P.M. Central Daylight Time, agirls2003@... writes: Sandi, Dana didn't have any prep we were getting things in place the Dr. told us we had a yr and a half so with health ed coming and help from me at home as well from her behavioral trainer we were starting to get her situated. Showering by her self she is becoming aware of her self and wanting to be more independant but at the same time is still liking pre school programs on tv etc I hope you get the jist of this she understands things at different levels and has alot of different sensory issues that set her off. Toileting and bathroom issues are one of her biggest problems I have had her in the hospital for a severe kidney infection due to her not going to the bathroom properly she has to be reminded and made to go to the bathroom or she would quite honestly only go when totally desparate. I have a younger daughter who is ten and autistic as well high functionining and very behavioral. Her understanding of any of this is only to do what she is told they tried to explain what was going on and she faded off and wanted to go play. She has to be supervised in the bathroom to make sure she washes her hands and cleans her self all the time now. It is alot I am not sure what i am doing right now but I do inted to make sure that I am doing the best and safest thing for my daughter. --- .. **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 My aspie dd sounds a lot like your Dana. My dd has always been a bright child academically on grade level but emotionally much younger and her interests did not match her grade level peers. She watched preschool shows for a long time. Now at 15 still occasionall does if she's home sick. But for the most part now she really concentrates on figuring out what is age appropriate. (She's really trying to fit in to a peer group and for the first time doing well). My dd first period was a disaster, so I can relate to what you are going through. First off, she didn't tell me that she had started so she had no " supplies " and we were on vacation, lol, sounds wonderful. Her behavior was a little off but being that we were on vacation without our typical schedule, that in itself didn't give off any alarms. I did discover her dirty bloody clothes in the hotel room and immediatly gave her the supplies she needed and told her she should have told me. Well, the problems continued because she hated the feel of the pads in her underware so it was difficult to get her to wear them. It took us months of trying every brand of pad out in the world to finally find one that she could tolerate. And now she is wearing pads, cleaning herself up, finally disposing of them properly. The first period, I believe could be scary for any child ASD or NT without information prior to the event. I am sorry that your Dr. was off so much on his estimation on when she'd start. My dd's ped. was pretty much right on the money regarding when my dd would start. Good luck. I hope my experience will help you. agirls2003 wrote: Hi everyone it has been quite a while since I have posted in here I apologize for that. I am a wreck right now and very worried as well. My eldest daughter Dana is 12 and she just started. We went to a pediatric endocrynologist back in august to have her looked at to give us an idea of when she my start her period. He said a yr and a half. Um oops wrong. The first indicatior that this was coming was behavior awful behavior going right along with my time of the month it started here and slowly spilled over into school. She is high functioning autistic she understands things at about the level of a third or second grader but on the other hand at her grade level as well. The period was nothing two spottings and nothing else but she had the behaviors those were bad. She had no clue of what was going on with her. The school tried to explain and take care of things as well I and her behaviorlist did as well. She just did what she was told didnt really have a reaction. I dont know what it would have been like if she had been heavy and painful. My question is her endo told me today that if i put her on depoprovera shots that it would stop her from growing and if i put her on another form of b/c which would give her a period every three months it wouldn't do u guys know anything about this??? What forms do you use??? I need help really badly?? He did a bone age scan today to see where she is sigh I am just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS FAR LOL) JULIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 My aspie dd sounds a lot like your Dana. My dd has always been a bright child academically on grade level but emotionally much younger and her interests did not match her grade level peers. She watched preschool shows for a long time. Now at 15 still occasionall does if she's home sick. But for the most part now she really concentrates on figuring out what is age appropriate. (She's really trying to fit in to a peer group and for the first time doing well). My dd first period was a disaster, so I can relate to what you are going through. First off, she didn't tell me that she had started so she had no " supplies " and we were on vacation, lol, sounds wonderful. Her behavior was a little off but being that we were on vacation without our typical schedule, that in itself didn't give off any alarms. I did discover her dirty bloody clothes in the hotel room and immediatly gave her the supplies she needed and told her she should have told me. Well, the problems continued because she hated the feel of the pads in her underware so it was difficult to get her to wear them. It took us months of trying every brand of pad out in the world to finally find one that she could tolerate. And now she is wearing pads, cleaning herself up, finally disposing of them properly. The first period, I believe could be scary for any child ASD or NT without information prior to the event. I am sorry that your Dr. was off so much on his estimation on when she'd start. My dd's ped. was pretty much right on the money regarding when my dd would start. Good luck. I hope my experience will help you. agirls2003 wrote: Hi everyone it has been quite a while since I have posted in here I apologize for that. I am a wreck right now and very worried as well. My eldest daughter Dana is 12 and she just started. We went to a pediatric endocrynologist back in august to have her looked at to give us an idea of when she my start her period. He said a yr and a half. Um oops wrong. The first indicatior that this was coming was behavior awful behavior going right along with my time of the month it started here and slowly spilled over into school. She is high functioning autistic she understands things at about the level of a third or second grader but on the other hand at her grade level as well. The period was nothing two spottings and nothing else but she had the behaviors those were bad. She had no clue of what was going on with her. The school tried to explain and take care of things as well I and her behaviorlist did as well. She just did what she was told didnt really have a reaction. I dont know what it would have been like if she had been heavy and painful. My question is her endo told me today that if i put her on depoprovera shots that it would stop her from growing and if i put her on another form of b/c which would give her a period every three months it wouldn't do u guys know anything about this??? What forms do you use??? I need help really badly?? He did a bone age scan today to see where she is sigh I am just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS FAR LOL) JULIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 I'd suggest you do training of wearing light pads & graduating to thick pads over a period of time. As I've posted before, I had my daughter start with the pantiliners. She'd put it on & immediately take it off & gradually increasing the time she wore them. When she could keep it on & forget about them, then we started to increase the thickness of the pads & again started slowly. By the time her period started, she was totally fine wearing the pads. Even though your daughter has started her period, start practicing daily with the pantiliners as described previously. Hopefully when she starts again, it will be a better experience. Good luck! > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > > > ------------------------------------ > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe@...! Groups Links > > > > -- Marie A. (mom to Kim, 16yo, Leap Year baby & Becky, a senior & gets the best sibling award) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 I'd suggest you do training of wearing light pads & graduating to thick pads over a period of time. As I've posted before, I had my daughter start with the pantiliners. She'd put it on & immediately take it off & gradually increasing the time she wore them. When she could keep it on & forget about them, then we started to increase the thickness of the pads & again started slowly. By the time her period started, she was totally fine wearing the pads. Even though your daughter has started her period, start practicing daily with the pantiliners as described previously. Hopefully when she starts again, it will be a better experience. Good luck! > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > > > ------------------------------------ > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe@...! Groups Links > > > > -- Marie A. (mom to Kim, 16yo, Leap Year baby & Becky, a senior & gets the best sibling award) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Reading this, it sounds to me like you are explaining my daughter. Although, she is 9 and has not started yet, but the bathroom stuff is my daughter to a " T " . She has to be constantly told to go and will hold it forever! Luckily I have not had to have her under doctors care for any UTI's or kidney infections. I just try to give her loads of water everyday and she drinks mona-vie to help with any diegstive issues. She does not shower herself and she is still watching all the pre-school programs. I don't have a plan for when she starts, I hardly have a plan for tomorrow. ~madeezmom > > > Sandi, > > Dana didn't have any prep we were getting things in place > the Dr. told us we had a yr and a half so with health ed coming and > help from me at home as well from her behavioral trainer we were > starting to get her situated. Showering by her self she is becoming > aware of her self and wanting to be more independant but at the same > time is still liking pre school programs on tv etc I hope you get the > jist of this she understands things at different levels and has alot > of different sensory issues that set her off. Toileting and bathroom > issues are one of her biggest problems I have had her in the hospital > for a severe kidney infection due to her not going to the bathroom > properly she has to be reminded and made to go to the bathroom or she > would quite honestly only go when totally desparate. I have a younger > daughter who is ten and autistic as well high functionining and very > behavioral. Her understanding of any of this is only to do what she > is told they tried to explain what was going on and she faded off and > wanted to go play. She has to be supervised in the bathroom to make > sure she washes her hands and cleans her self all the time now. It > is alot I am not sure what i am doing right now but I do inted to > make sure that I am doing the best and safest thing for my daughter. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 HI , I really feel for you. My 11 year old hfa started this past December (When she was 10!!! and before her 12 year old sister!!) I started preparing her for it last fall by using pads and red food coloring. I put the pad on an old pair of panties and said " It's period time " . I put the food coloring on. Then I modelled taking the pad off of the panties--careful don't touch the blood! Roll it in tissue and throw it in the garbage. Hurray! Now we put a clean one on! I didn't have as much time as I thought, but when she did get it, she had a bit of an idea of what was happening. Now she's almost completely independent with it. Maybe over the next couple of weeks you could set up some " practices " . It helped my daughter when she realized that all ladies get periods. I also found a social story on the internet and it talks about the period, cramps, pads etc. I wish you the best of luck. Leanne > > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 HI , I really feel for you. My 11 year old hfa started this past December (When she was 10!!! and before her 12 year old sister!!) I started preparing her for it last fall by using pads and red food coloring. I put the pad on an old pair of panties and said " It's period time " . I put the food coloring on. Then I modelled taking the pad off of the panties--careful don't touch the blood! Roll it in tissue and throw it in the garbage. Hurray! Now we put a clean one on! I didn't have as much time as I thought, but when she did get it, she had a bit of an idea of what was happening. Now she's almost completely independent with it. Maybe over the next couple of weeks you could set up some " practices " . It helped my daughter when she realized that all ladies get periods. I also found a social story on the internet and it talks about the period, cramps, pads etc. I wish you the best of luck. Leanne > > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 HI , I really feel for you. My 11 year old hfa started this past December (When she was 10!!! and before her 12 year old sister!!) I started preparing her for it last fall by using pads and red food coloring. I put the pad on an old pair of panties and said " It's period time " . I put the food coloring on. Then I modelled taking the pad off of the panties--careful don't touch the blood! Roll it in tissue and throw it in the garbage. Hurray! Now we put a clean one on! I didn't have as much time as I thought, but when she did get it, she had a bit of an idea of what was happening. Now she's almost completely independent with it. Maybe over the next couple of weeks you could set up some " practices " . It helped my daughter when she realized that all ladies get periods. I also found a social story on the internet and it talks about the period, cramps, pads etc. I wish you the best of luck. Leanne > > Hi everyone it has been quite a while since I have posted in here I > apologize for that. I am a wreck right now and very worried as well. > My eldest daughter Dana is 12 and she just started. We went to a > pediatric endocrynologist back in august to have her looked at to > give us an idea of when she my start her period. He said a yr and a > half. Um oops wrong. The first indicatior that this was coming was > behavior awful behavior going right along with my time of the month > it started here and slowly spilled over into school. She is high > functioning autistic she understands things at about the level of a > third or second grader but on the other hand at her grade level as > well. The period was nothing two spottings and nothing else but she > had the behaviors those were bad. She had no clue of what was going > on with her. The school tried to explain and take care of things as > well I and her behaviorlist did as well. She just did what she was > told didnt really have a reaction. I dont know what it would have > been like if she had been heavy and painful. My question is her endo > told me today that if i put her on depoprovera shots that it would > stop her from growing and if i put her on another form of b/c which > would give her a period every three months it wouldn't do u guys know > anything about this??? What forms do you use??? I need help really > badly?? He did a bone age scan today to see where she is sigh I am > just beside myself to know what to do. ty (ESPECIALLY IF U READ THIS > FAR LOL) > JULIE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 I LOVE that sentence!!! You sound like me! Debi --- In Autism_in_Girls , " madeezmom78 " I don't have a plan for when she starts, I hardly have a plan for tomorrow. > > ~madeezmom > Quote Link to comment Share on other sites More sharing options...
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