Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 It sounds like your son's therapist doesn't specialize in OCD or at least doesn't practice the recognized best treatment: exposure and response prevention. After so many sessions, you should be seeing significant improvement and in order for this to happen, you need to know what your son is working on in treatment and help him do work on this during the rest of the week at home. Welcome! hi to all new here,try to learen and help my son danny 13, he is in help of phd dr. so far 30 time, not much better so far,(evry time is 200-300 hundred),they do not give him home work, (they said " we do not push him " what you feeling about no home work. sorry my writing is not the best of me. thank you for hearing me jacob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 THANK YOU VERY MUCH JORDANA, I LIVE IN SMALL TOWN (NAPLES)IN FLORIDA)SO TO FIND GOOD OCD PHD DR. WAS HARD, WE TRAVEL 2 HOUR TO SEE THE DR. THEY SPECIALIZE IN OCD,BUT NOT MUCH IF ANY HOME WORK.I WILL ASK THE DR. TO TELL ME WHAT TO DO AT HOME.(HOME WORK). YES I THINK BY NOW SHOULD BE SAME IMPROVEMENT (BUT NOT YET), THANK YOU SO MUCH TO KNOW WHAT TO ASK THE DR. JACOB > > It sounds like your son's therapist doesn't specialize in OCD or at least doesn't practice the recognized best treatment: exposure and response prevention. After so many sessions, you should be seeing significant improvement and in order for this to happen, you need to know what your son is working on in treatment and help him do work on this during the rest of the week at home. > > > Welcome! > > > > hi to all > > > > > > new here,try to learen and help my son danny 13, he is in help of phd dr. so far 30 time, not much better so far,(evry time is 200-300 hundred),they do not give him home work, (they said " we do not push him " what you feeling about no home work. sorry my writing is not the best of me. thank you for hearing me jacob > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 If you already travel 2 hours, I would go a little further to the University of Southern Florida Pediatric OCD center in St Pete. Dr Storch runs the program there and is excellent. Hopefully they could recommend someone closer but I think Naples to St Pete is about 3 hours Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 If you already travel 2 hours, I would go a little further to the University of Southern Florida Pediatric OCD center in St Pete. Dr Storch runs the program there and is excellent. Hopefully they could recommend someone closer but I think Naples to St Pete is about 3 hours Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 If you already travel 2 hours, I would go a little further to the University of Southern Florida Pediatric OCD center in St Pete. Dr Storch runs the program there and is excellent. Hopefully they could recommend someone closer but I think Naples to St Pete is about 3 hours Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 HI Â TRABULSY Â MARIO Â , THANK YOU SO MUCH,I AM Â GOING WITH MY SON TO U.S.F Â . Â WE ARE DOING THE Â INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY Â ,I CAN NOT WAIT. Â LAST 5 DAYS ARE NOT GOOD FOR HIM Â ,DO YOU NOW MORE ABOUT THIS PROGRAM, Â THANK YOU SO MUCH. Â JACOB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 HI Â TRABULSY Â MARIO Â , THANK YOU SO MUCH,I AM Â GOING WITH MY SON TO U.S.F Â . Â WE ARE DOING THE Â INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY Â ,I CAN NOT WAIT. Â LAST 5 DAYS ARE NOT GOOD FOR HIM Â ,DO YOU NOW MORE ABOUT THIS PROGRAM, Â THANK YOU SO MUCH. Â JACOB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 , I've read from other parents, in the past, that it's a wonderful program and they highly recommend it, great results! Hang in there for these 40 days! When he starts the program, will be very interested to hear what you think. > > HI Â TRABULSY Â MARIO Â , THANK YOU SO MUCH,I AM Â GOING WITH MY SON TO U.S.F Â . Â WE ARE DOING THE Â INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY Â ,I CAN NOT WAIT. Â LAST 5 DAYS ARE NOT GOOD FOR HIM Â ,DO YOU NOW MORE ABOUT THIS PROGRAM, Â THANK YOU SO MUCH. Â JACOB > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 , I've read from other parents, in the past, that it's a wonderful program and they highly recommend it, great results! Hang in there for these 40 days! When he starts the program, will be very interested to hear what you think. > > HI Â TRABULSY Â MARIO Â , THANK YOU SO MUCH,I AM Â GOING WITH MY SON TO U.S.F Â . Â WE ARE DOING THE Â INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY Â ,I CAN NOT WAIT. Â LAST 5 DAYS ARE NOT GOOD FOR HIM Â ,DO YOU NOW MORE ABOUT THIS PROGRAM, Â THANK YOU SO MUCH. Â JACOB > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 hi ,my son not good,stop taking , his ocd non stop, the program in u.s.f is start only in 40 days, he is depress,what you suggesting to do. thank you all > > > > HI Â TRABULSY Â MARIO Â , THANK YOU SO MUCH,I AM Â GOING WITH MY SON TO U.S.F Â . Â WE ARE DOING THE Â INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY Â ,I CAN NOT WAIT. Â LAST 5 DAYS ARE NOT GOOD FOR HIM Â ,DO YOU NOW MORE ABOUT THIS PROGRAM, Â THANK YOU SO MUCH. Â JACOB > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 I would call the Dr. that you are planning on seeing - tell them that this is getting to be an emergency situation - he needs to be seen immediately. I don't think you all can hold out for 40 days.. Keep us posted > > > > > > HI Â TRABULSY Â MARIO Â , THANK YOU SO MUCH,I AM Â GOING WITH MY SON TO U.S.F Â . Â WE ARE DOING THE Â INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY Â ,I CAN NOT WAIT. Â LAST 5 DAYS ARE NOT GOOD FOR HIM Â ,DO YOU NOW MORE ABOUT THIS PROGRAM, Â THANK YOU SO MUCH. Â JACOB > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 I would call the Dr. that you are planning on seeing - tell them that this is getting to be an emergency situation - he needs to be seen immediately. I don't think you all can hold out for 40 days.. Keep us posted > > > > > > HI Â TRABULSY Â MARIO Â , THANK YOU SO MUCH,I AM Â GOING WITH MY SON TO U.S.F Â . Â WE ARE DOING THE Â INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY Â ,I CAN NOT WAIT. Â LAST 5 DAYS ARE NOT GOOD FOR HIM Â ,DO YOU NOW MORE ABOUT THIS PROGRAM, Â THANK YOU SO MUCH. Â JACOB > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Is he seeing a psychiatrist for treatment with regard to medication? Forty days is a long time to wait when he is so anxious and depressed. I hope that a psychiatrist has started him on medication. The OCD meds are actually antidepressants, so they help both OCD and depression. If he is started now on the right medication, he will be better able to participate in the intensive therapy in 40 days. Also, by seeing a psychiatrist now, you will have a better handle on whether his depression is so bad that he should be hospitalized to be stabilized. Re: hi to all hi ,my son not good,stop taking , his ocd non stop, the program in u.s.f is start only in 40 days, he is depress,what you suggesting to do. thank you all > > > > HI TRABULSY MARIO , THANK YOU SO MUCH,I AM GOING WITH MY SON TO U.S.F . WE ARE DOING THE INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY ,I CAN NOT WAIT. LAST 5 DAYS ARE NOT GOOD FOR HIM ,DO YOU NOW MORE ABOUT THIS PROGRAM, THANK YOU SO MUCH. JACOB > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 thank you all,the u. s.f  in sint pitersburg  will see him on monday and tuesday.it is 3 hour ride,  i was hoping for intensive program but not yet  i guss they need to check  him first,but it is very good, he start with prozac 10 mg, and will go to 20mg in 2 days.  the place i was gooing before the dr. phd did not give him any work at home, he was ok  whene he was with the dr. but soon we left he was back to ocd,last 5 day is very hard for him,so we will be in good hand in u.s.f  .any one know why at evning  ocd much intense ?  .   i think it all start  to depress him and he not talking  much (if any.)me, i try to came to term that he will not be the same.  thank you all so much.  jacob  ________________________________  To: Sent: Thursday, August 2, 2012 10:40 AM Subject: Re: Re: hi to all  Is he seeing a psychiatrist for treatment with regard to medication? Forty days is a long time to wait when he is so anxious and depressed. I hope that a psychiatrist has started him on medication. The OCD meds are actually antidepressants, so they help both OCD and depression. If he is started now on the right medication, he will be better able to participate in the intensive therapy in 40 days. Also, by seeing a psychiatrist now, you will have a better handle on whether his depression is so bad that he should be hospitalized to be stabilized. Re: hi to all hi ,my son not good,stop taking , his ocd non stop, the program in u.s.f is start only in 40 days, he is depress,what you suggesting to do. thank you all > > > > HI TRABULSY MARIO , THANK YOU SO MUCH,I AM GOING WITH MY SON TO U.S.F . WE ARE DOING THE INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY ,I CAN NOT WAIT. LAST 5 DAYS ARE NOT GOOD FOR HIM ,DO YOU NOW MORE ABOUT THIS PROGRAM, THANK YOU SO MUCH. JACOB > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 I think it is human nature to worry more in the evening. For example, you have a baby who has a fever and a cold, but seems to be not too sick during the day while you are busy with lots of things to do. Then night-time comes and there are fewer distractions and you look at the feverish baby and think, " Maybe he is sick with something worse than a cold. I wish I had brought him to the doctor today. Should I take him to the ER? " I'm pretty sure most parents can relate to that example. During the day, there are distractions. By evening, we are tired. When we are tired, we tend to worry more and be more emotional. Anyway, that's my theory. So I think everything tends to feel worse in the evening. And OCD being a Worrying Disease--worrying intensifies when the sun goes down. My son, who has OCD and bipolar, was always worse in the evenings. He's so much better now (and your son will get better, too!), but from time to time, he gets overwhelmed and needs to call his psychologist. Sometimes it's late afternoon, but usually it's in the evening when he gets too overwhelmed and has to call. But it doesn't really matter if that is why evenings are worse: if you are very worried about your son's behavior in the evenings, you need to tell his doctor so the doctor knows what your son is like when he is out of the doctor's office. You have probably done that already. But if you are worried about his safety, keep telling them until they listen. Or take him to their emergency room (the U.S.F. emergency that's connected to the intensive program). We are here for you. Keep posting to us. Your son will get better. And we will all be rejoicing with you when that time comes. > thank you all,the u. s.f in sint pitersburg will see him on monday and tuesday.it is 3 hour ride, i was hoping for intensive program but not yet i guss they need to check him first,but it is very good, he start with prozac 10 mg, and will go to 20mg in 2 days. the place i was gooing before the dr. phd did not give him any work at home, he was ok whene he was with the dr. but soon we left he was back to ocd,last 5 day is very hard for him,so we will be in good hand in u.s.f .any one know why at evning ocd much intense ? . i think it all start to depress him and he not talking much (if any.)me, i try to came to term that he will not be the same. thank you all so much. jacob > > ________________________________ > To: > Sent: Thursday, August 2, 2012 10:40 AM > Subject: Re: Re: hi to all > > > > Is he seeing a psychiatrist for treatment with regard to medication? Forty days is a long time to wait when he is so anxious and depressed. I hope that a psychiatrist has started him on medication. The OCD meds are actually antidepressants, so they help both OCD and depression. If he is started now on the right medication, he will be better able to participate in the intensive therapy in 40 days. Also, by seeing a psychiatrist now, you will have a better handle on whether his depression is so bad that he should be hospitalized to be stabilized. > > Re: hi to all > > hi ,my son not good,stop taking , his ocd non stop, the program in u.s.f is start only in 40 days, he is depress,what you suggesting to do. thank you all > > > > > > > > HI TRABULSY MARIO , THANK YOU SO MUCH,I AM GOING WITH MY SON TO U.S.F . WE ARE DOING THE INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY ,I CAN NOT WAIT. LAST 5 DAYS ARE NOT GOOD FOR HIM ,DO YOU NOW MORE ABOUT THIS PROGRAM, THANK YOU SO MUCH. JACOB > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 hi jenny.     thank you for all those good word, feel good to hear  that  you all together help.i think with your feeling at night,  make sense much more than  the dr.  answer .in saint pitersberg  they will give him 4  hours in2 days, and than they will determine what kind of terappy he will get (I HOPE THE INTENSIVE  FOR 3 WEEKS, AND I WILL STAY WITH HIM THERE) i let you all know,   i just want to say to all of you thank you    jacob ________________________________ To: Sent: Thursday, August 2, 2012 3:14 PM Subject: Re: Re: hi to all I think it is human nature to worry more in the evening. For example, you have a baby who has a fever and a cold, but seems to be not too sick during the day while you are busy with lots of things to do. Then night-time comes and there are fewer distractions and you look at the feverish baby and think, " Maybe he is sick with something worse than a cold. I wish I had brought him to the doctor today. Should I take him to the ER? " I'm pretty sure most parents can relate to that example. During the day, there are distractions. By evening, we are tired. When we are tired, we tend to worry more and be more emotional. Anyway, that's my theory. So I think everything tends to feel worse in the evening. And OCD being a Worrying Disease--worrying intensifies when the sun goes down. My son, who has OCD and bipolar, was always worse in the evenings. He's so much better now (and your son will get better, too!), but from time to time, he gets overwhelmed and needs to call his psychologist. Sometimes it's late afternoon, but usually it's in the evening when he gets too overwhelmed and has to call. But it doesn't really matter if that is why evenings are worse: if you are very worried about your son's behavior in the evenings, you need to tell his doctor so the doctor knows what your son is like when he is out of the doctor's office. You have probably done that already. But if you are worried about his safety, keep telling them until they listen. Or take him to their emergency room (the U.S.F. emergency that's connected to the intensive program). We are here for you. Keep posting to us. Your son will get better. And we will all be rejoicing with you when that time comes. > thank you all,the u. s.f in sint pitersburg will see him on monday and tuesday.it is 3 hour ride, i was hoping for intensive program but not yet i guss they need to check him first,but it is very good, he start with prozac 10 mg, and will go to 20mg in 2 days. the place i was gooing before the dr. phd did not give him any work at home, he was ok whene he was with the dr. but soon we left he was back to ocd,last 5 day is very hard for him,so we will be in good hand in u.s.f .any one know why at evning ocd much intense ? .  i think it all start to depress him and he not talking much (if any.)me, i try to came to term that he will not be the same. thank you all so much. jacob > > ________________________________ > To: > Sent: Thursday, August 2, 2012 10:40 AM > Subject: Re: Re: hi to all > > > > Is he seeing a psychiatrist for treatment with regard to medication? Forty days is a long time to wait when he is so anxious and depressed. I hope that a psychiatrist has started him on medication. The OCD meds are actually antidepressants, so they help both OCD and depression. If he is started now on the right medication, he will be better able to participate in the intensive therapy in 40 days. Also, by seeing a psychiatrist now, you will have a better handle on whether his depression is so bad that he should be hospitalized to be stabilized. > > Re: hi to all > > hi ,my son not good,stop taking , his ocd non stop, the program in u.s.f is start only in 40 days, he is depress,what you suggesting to do. thank you all > > > > > > > > HI TRABULSY MARIO , THANK YOU SO MUCH,I AM GOING WITH MY SON TO U.S.F . WE ARE DOING THE INTENSSIVE PROGRAM, I AM VERY HAPPY. IT WILL BE IN 40 DAY FROM TODAY ,I CAN NOT WAIT. LAST 5 DAYS ARE NOT GOOD FOR HIM ,DO YOU NOW MORE ABOUT THIS PROGRAM, THANK YOU SO MUCH. JACOB > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 The program in St Pete is wonderful. Dr Storch who runs it is a world expert on treating OCD. He has good therapists under him and oversees their work. Your son will be getting excellent therapy. We did a program with them over scype ( part of a study no longer running) for 14 weeks and my son went from moderate to not diagnosable while doing the work. He was still not diagnosable 3 months later. That was 3 years ago. I would say that now he is likely mild, but we are not seeing anyone. I feel like I have the skills I need to help him through CBT/ERP for most things. 40 days is a long time to wait but is sounds like they will be seeing him next week to start off, then starting the intensive? If we ever need help again, I will go to St Pete for an intensive ( we live in Vermont) I was that impressed. I strongly encourage people having trouble finding good help to START with an intensive at a pediatric OCD center so they can learn to be the expert in their area. Seriously, when I retire, I could open a CBT/ERP practice I think. And offer scype therapy which i think is the solution to the problem of finding a good therapist for CBT/ERP. I am so glad you will be going there. It is really wonderful. Also lots of fun things to do in the Tampa/ st pete area in the off hours- you can make it like a mini vacation. My son loves rollter coasters ( imagine being affraid of invisible spots, but loving roller coasters) so we went to Busch Gardens for a reward for starting. Also there is a great science museum in Tampa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 I agree with other posts- evening is the hardest. Also when they are sick or stressed. I think they are tired and have low reserve to fight or deal with it. I am pretty crabby by bedtime too which makes it worse I am sure. This is very common. How old is your son? Sometimes it gets better as they get older because they have a little more energy in the evening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 HI MARIO AND ALL OF YOU. WE WILL BE IN ST. PETE MON AND TUE, AND THEN I DO NOT KNOW HOPE THEY WILL TAKE HIM FOR INTENSIVE PROGRAM,THANK YOU SO MUCH FOR ALL THE GOOD FEELING THAT YOU GIVE ME IN GENERAL AND THE ST.PETE, WE WENT ONCE TO THERE BUT BECOUSE THE DESTINED WE WENT TO OTHER PLACE,(WITH OUT HOME WORK)I JUST PRAY THEY WILL EXEPET HIM.ARE YOUR SON MILED NOW? AND HOW IN SCHOOL ?THANK YOU FOR ALL GOOD THING AGAIN. JACOB > > The program in St Pete is wonderful. Dr Storch who runs it is a world expert on treating OCD. He has good therapists under him and oversees their work. Your son will be getting excellent therapy. We did a program with them over scype ( part of a study no longer running) for 14 weeks and my son went from moderate to not diagnosable while doing the work. He was still not diagnosable 3 months later. That was 3 years ago. I would say that now he is likely mild, but we are not seeing anyone. I feel like I have the skills I need to help him through CBT/ERP for most things. 40 days is a long time to wait but is sounds like they will be seeing him next week to start off, then starting the intensive? If we ever need help again, I will go to St Pete for an intensive ( we live in Vermont) I was that impressed. I strongly encourage people having trouble finding good help to START with an intensive at a pediatric OCD center so they can learn to be the expert in their area. Seriously, when I retire, I could open a CBT/ERP practice I think. And offer scype therapy which i think is the solution to the problem of finding a good therapist for CBT/ERP. I am so glad you will be going there. It is really wonderful. Also lots of fun things to do in the Tampa/ st pete area in the off hours- you can make it like a mini vacation. My son loves rollter coasters ( imagine being affraid of invisible spots, but loving roller coasters) so we went to Busch Gardens for a reward for starting. Also there is a great science museum in Tampa. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2012 Report Share Posted August 4, 2012 Yes, , my son is mild now (my guess - he has not had yale brown score done recently). He still has stuff for sure, but it USUALLY does not interfere with his life in any major way- there are bumps here and there mostly with perfectionism, and he has waht he calls " quirks " which are really OCD but at the level of dislikes more than he cant do something. He is a straight A student, and star athelete. He is king of the school ( very popular). All the kids know he is anxious about tests and schoolwork, but they are ok with it. They joke with him that he " asks his way through tests " . ( reassurance seeking), and is stingy ( hoarding) and strongly encourages them to wipe their feet at the door and acts like a jerk to other players on his own team if they dont make the play, but again, somehow he gets away with it all and stays really popular. He has school acomidations which at this point are mostly about testing ( alternate site and able to ask for reassurance and be helpe through a problem if necessary so he can go on and not get " stuck " . Also extra time . Test is graded with the knowledge of the input of the special ed person and if the reassurance seeking was about anxiety or content. ( Ie on algebra final he got a 96 but sought reassurance on about 50% of questions) He was diagnosed at age 3 and was SEVERE ( totally consumed) for about 5 years in 2 separate bouts each lasting about 2.5 years. Otherwise mild to moderate. Doing super well for last 3 years since USF program Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2012 Report Share Posted August 4, 2012 THANK YOU SO MUCH FOR EVRY THING,(I AM START TO LEARN FROM YOU TO BE POSTIVE, LIKE TO ASK YOU : HOW CAN I TRY TO ASK THEM IN SINT. PITERSBERG TO TAKE HIM TO INTENSIVE PROGRAM,(WE GOING SO FAR FOR 2 DAYS ONLY). WHAT SHOULD I ASK , AND WHAT IN GENERAL I SOULD ASK OR BE READY FOR MONDAY. I DO NOT BELIVE HE CAN GO TO SCHOOL IN HIS OCD NOW,YES MY SON WAS A STUDENT, EVRY ONE LOVE HIM,NOW HE HAVE NO INTREST IN ANY THING,I SEE HOW MUCH YOU IS DEDICATE TO YOUR SON I WOLD DO THE SAME,SO BEAUTIFUL THAT YOUR SON CAN FUNCTION NOW AND DO WELL,THANK YOU . YOU ARE NICE PERSON. THANK YOU. (SORRY MY WRITING IS NOT THE BEST OF ME) > > Yes, , my son is mild now (my guess - he has not had yale brown score done recently). He still has stuff for sure, but it USUALLY does not interfere with his life in any major way- there are bumps here and there mostly with perfectionism, and he has waht he calls " quirks " which are really OCD but at the level of dislikes more than he cant do something. He is a straight A student, and star athelete. He is king of the school ( very popular). All the kids know he is anxious about tests and schoolwork, but they are ok with it. They joke with him that he " asks his way through tests " . ( reassurance seeking), and is stingy ( hoarding) and strongly encourages them to wipe their feet at the door and acts like a jerk to other players on his own team if they dont make the play, but again, somehow he gets away with it all and stays really popular. > > He has school acomidations which at this point are mostly about testing ( alternate site and able to ask for reassurance and be helpe through a problem if necessary so he can go on and not get " stuck " . Also extra time . Test is graded with the knowledge of the input of the special ed person and if the reassurance seeking was about anxiety or content. ( Ie on algebra final he got a 96 but sought reassurance on about 50% of questions) > > He was diagnosed at age 3 and was SEVERE ( totally consumed) for about 5 years in 2 separate bouts each lasting about 2.5 years. Otherwise mild to moderate. Doing super well for last 3 years since USF program > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2012 Report Share Posted August 6, 2012 Have u looked in to p.a.n.d.a.s? Did the onset of The OCD or worsening of OCD happen during Or after an illness. If so ( and even if not) u might Want to try a trial of antibiotics. Pandas stands for Pediatric autoimmune disorder associated with strep. My 6 yr old has OCD but it got much worse Last year when he had recurring strep infections. I also took my son to st Pete at rothman center. But.. We saw dr. who specializes in Pandas. Sent from my iPhone > IT IS GETTING VERY HARD FOR MY SON ,HE START TO GET DELUTION,OCD MOST OF THE TIME,GOING TO SINT PETERSBERG,WHAT NEXT ... ONLY GOD KNOW, I AM SO SAD, IS ANY ONE CAN ANSERE WHY IN TRETMENT NOT TO TRY TO FIND WHY OCD CAME AND TRY TO HELP WITH THE WHY. I KNOW ALL DR. SAID " IT IS NOT IMPORTENT WHY WE NEED TO TREATE THE OCD " BUT STIL DONT UNDERSTEND WHY NOT TO FIND WHY IT START(STILL NOT COMFIDENT WITH DR. THAT SAY IT IS IN YOUR FAMILY BACK ROUND THE OCD. THANK YOU ALL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2012 Report Share Posted August 6, 2012 Have u looked in to p.a.n.d.a.s? Did the onset of The OCD or worsening of OCD happen during Or after an illness. If so ( and even if not) u might Want to try a trial of antibiotics. Pandas stands for Pediatric autoimmune disorder associated with strep. My 6 yr old has OCD but it got much worse Last year when he had recurring strep infections. I also took my son to st Pete at rothman center. But.. We saw dr. who specializes in Pandas. Sent from my iPhone > IT IS GETTING VERY HARD FOR MY SON ,HE START TO GET DELUTION,OCD MOST OF THE TIME,GOING TO SINT PETERSBERG,WHAT NEXT ... ONLY GOD KNOW, I AM SO SAD, IS ANY ONE CAN ANSERE WHY IN TRETMENT NOT TO TRY TO FIND WHY OCD CAME AND TRY TO HELP WITH THE WHY. I KNOW ALL DR. SAID " IT IS NOT IMPORTENT WHY WE NEED TO TREATE THE OCD " BUT STIL DONT UNDERSTEND WHY NOT TO FIND WHY IT START(STILL NOT COMFIDENT WITH DR. THAT SAY IT IS IN YOUR FAMILY BACK ROUND THE OCD. THANK YOU ALL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2012 Report Share Posted August 6, 2012 Have u looked in to p.a.n.d.a.s? Did the onset of The OCD or worsening of OCD happen during Or after an illness. If so ( and even if not) u might Want to try a trial of antibiotics. Pandas stands for Pediatric autoimmune disorder associated with strep. My 6 yr old has OCD but it got much worse Last year when he had recurring strep infections. I also took my son to st Pete at rothman center. But.. We saw dr. who specializes in Pandas. Sent from my iPhone > IT IS GETTING VERY HARD FOR MY SON ,HE START TO GET DELUTION,OCD MOST OF THE TIME,GOING TO SINT PETERSBERG,WHAT NEXT ... ONLY GOD KNOW, I AM SO SAD, IS ANY ONE CAN ANSERE WHY IN TRETMENT NOT TO TRY TO FIND WHY OCD CAME AND TRY TO HELP WITH THE WHY. I KNOW ALL DR. SAID " IT IS NOT IMPORTENT WHY WE NEED TO TREATE THE OCD " BUT STIL DONT UNDERSTEND WHY NOT TO FIND WHY IT START(STILL NOT COMFIDENT WITH DR. THAT SAY IT IS IN YOUR FAMILY BACK ROUND THE OCD. THANK YOU ALL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2012 Report Share Posted August 6, 2012 OCD is a neuropsychiatric disorder. There are actually chemical and structural differences in the brain that cause it. There are " triggers' that can make it come out in someone who has the underlying brain abnormality but the " trigger " is not the answer to " why " . The only " why " that matters is if they have PANS or PANDAS which is then treated differently. It is like asking why your kid got diabetes or cancer- they just did. Now you need to treat. They will help you in St Pete. He may need medication too if he is not already on it, but they should be able to help you with all of it- but it takes time. I would not expect to see anything get better ( maybe even worse at the beginning) for several weeks in intensive therapy. But I agree. Unless you are dealing with PANDAS/ PANS, the why is irrelevant. Quote Link to comment Share on other sites More sharing options...
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