Re: Namenda

February 10, 2004

Elaine:

Thanks for sharing your good news story. My dad is on Aricept but it

hasn't been working for a while and I'm hoping his neurologist gives

us something else to try when we visit him on Monday.

Hope the Namenda keeps working its good stuff on your mom!

Abby

February 10, 2004

Elaine:

Thanks for sharing your good news story. My dad is on Aricept but it

hasn't been working for a while and I'm hoping his neurologist gives

us something else to try when we visit him on Monday.

Hope the Namenda keeps working its good stuff on your mom!

Abby

February 10, 2004

Elaine:

Thanks for sharing your good news story. My dad is on Aricept but it

hasn't been working for a while and I'm hoping his neurologist gives

us something else to try when we visit him on Monday.

Hope the Namenda keeps working its good stuff on your mom!

Abby

February 10, 2004

Lyn, you'll have to forgive me but I don't know where you live. You can

always try your local AD society and ask them directly for what they've

received in feedback or which online support group your most likely to get

responses from.

If you tell me where you live, I'll give it a shot for you.

Courage

Re: Namenda

>It's one of those " damned if you do/damned if you don't " situations.

>Any suggestions on how I would get in touch with AD LOs? I haven't

>been involved with any of those groups. The M release in this country

>is so new, I don't know if anyone here would have any more experience

>with it than we do. According to the dr. the drug was available only

>mid January here. Suggestions?

>

>Lynn

>

>> >> Good Morning Everyone,

>> >> I have not post lately but I'm looking to see if anyone has their

>> >LO

>> >> on Namenda. And if so, what results you may be seeing.

>> >>

>> >> My mom's MD put her on it 2 1/2 weeks ago. She was in the " sleep

>> >> state " since the holidays and had an infection from her catheter

>> >> which contributes to this. But on Sunday my sister went to visit

>> >> and she was wide awake, alert, knew her and her husband. She

>said

>> >> it was wonderful. Is it to early to tell if it's Namenda, yes,

>I'm

>> >> sure. The MD told us we should see some change in about 4 weeks.

>> >>

>> >> Of course we've encountered the set backs to often and don't want

>> >to

>> >> get our hopes up; so if anyone has had any experiences with

>Namenda

>> >> I'd apprecriate hearing about it.

>> >>

>> >> Elaine FL

>> >

>> >Welcome to LBDcaregivers.

>> >

February 10, 2004

Lyn, you'll have to forgive me but I don't know where you live. You can

always try your local AD society and ask them directly for what they've

received in feedback or which online support group your most likely to get

responses from.

If you tell me where you live, I'll give it a shot for you.

Courage

Re: Namenda

>It's one of those " damned if you do/damned if you don't " situations.

>Any suggestions on how I would get in touch with AD LOs? I haven't

>been involved with any of those groups. The M release in this country

>is so new, I don't know if anyone here would have any more experience

>with it than we do. According to the dr. the drug was available only

>mid January here. Suggestions?

>

>Lynn

>

>> >> Good Morning Everyone,

>> >> I have not post lately but I'm looking to see if anyone has their

>> >LO

>> >> on Namenda. And if so, what results you may be seeing.

>> >>

>> >> My mom's MD put her on it 2 1/2 weeks ago. She was in the " sleep

>> >> state " since the holidays and had an infection from her catheter

>> >> which contributes to this. But on Sunday my sister went to visit

>> >> and she was wide awake, alert, knew her and her husband. She

>said

>> >> it was wonderful. Is it to early to tell if it's Namenda, yes,

>I'm

>> >> sure. The MD told us we should see some change in about 4 weeks.

>> >>

>> >> Of course we've encountered the set backs to often and don't want

>> >to

>> >> get our hopes up; so if anyone has had any experiences with

>Namenda

>> >> I'd apprecriate hearing about it.

>> >>

>> >> Elaine FL

>> >

>> >Welcome to LBDcaregivers.

>> >

February 10, 2004

Lyn, you'll have to forgive me but I don't know where you live. You can

always try your local AD society and ask them directly for what they've

received in feedback or which online support group your most likely to get

responses from.

If you tell me where you live, I'll give it a shot for you.

Courage

Re: Namenda

>It's one of those " damned if you do/damned if you don't " situations.

>Any suggestions on how I would get in touch with AD LOs? I haven't

>been involved with any of those groups. The M release in this country

>is so new, I don't know if anyone here would have any more experience

>with it than we do. According to the dr. the drug was available only

>mid January here. Suggestions?

>

>Lynn

>

>> >> Good Morning Everyone,

>> >> I have not post lately but I'm looking to see if anyone has their

>> >LO

>> >> on Namenda. And if so, what results you may be seeing.

>> >>

>> >> My mom's MD put her on it 2 1/2 weeks ago. She was in the " sleep

>> >> state " since the holidays and had an infection from her catheter

>> >> which contributes to this. But on Sunday my sister went to visit

>> >> and she was wide awake, alert, knew her and her husband. She

>said

>> >> it was wonderful. Is it to early to tell if it's Namenda, yes,

>I'm

>> >> sure. The MD told us we should see some change in about 4 weeks.

>> >>

>> >> Of course we've encountered the set backs to often and don't want

>> >to

>> >> get our hopes up; so if anyone has had any experiences with

>Namenda

>> >> I'd apprecriate hearing about it.

>> >>

>> >> Elaine FL

>> >

>> >Welcome to LBDcaregivers.

>> >

February 11, 2004

Courage, I live in the Phoenix Arizona metro area. I can check with

the AD society. Do you know if they have an on-line group or

something similar to this?

Lynn

> >> >> Good Morning Everyone,

> >> >> I have not post lately but I'm looking to see if anyone has

their

> >> >LO

> >> >> on Namenda. And if so, what results you may be seeing.

> >> >>

> >> >> My mom's MD put her on it 2 1/2 weeks ago. She was in

the " sleep

> >> >> state " since the holidays and had an infection from her

catheter

> >> >> which contributes to this. But on Sunday my sister went to

visit

> >> >> and she was wide awake, alert, knew her and her husband. She

> >said

> >> >> it was wonderful. Is it to early to tell if it's Namenda,

yes,

> >I'm

> >> >> sure. The MD told us we should see some change in about 4

weeks.

> >> >>

> >> >> Of course we've encountered the set backs to often and don't

want

> >> >to

> >> >> get our hopes up; so if anyone has had any experiences with

> >Namenda

> >> >> I'd apprecriate hearing about it.

> >> >>

> >> >> Elaine FL

> >> >

> >> >Welcome to LBDcaregivers.

> >> >

February 11, 2004

Courage, I live in the Phoenix Arizona metro area. I can check with

the AD society. Do you know if they have an on-line group or

something similar to this?

Lynn

> >> >> Good Morning Everyone,

> >> >> I have not post lately but I'm looking to see if anyone has

their

> >> >LO

> >> >> on Namenda. And if so, what results you may be seeing.

> >> >>

> >> >> My mom's MD put her on it 2 1/2 weeks ago. She was in

the " sleep

> >> >> state " since the holidays and had an infection from her

catheter

> >> >> which contributes to this. But on Sunday my sister went to

visit

> >> >> and she was wide awake, alert, knew her and her husband. She

> >said

> >> >> it was wonderful. Is it to early to tell if it's Namenda,

yes,

> >I'm

> >> >> sure. The MD told us we should see some change in about 4

weeks.

> >> >>

> >> >> Of course we've encountered the set backs to often and don't

want

> >> >to

> >> >> get our hopes up; so if anyone has had any experiences with

> >Namenda

> >> >> I'd apprecriate hearing about it.

> >> >>

> >> >> Elaine FL

> >> >

> >> >Welcome to LBDcaregivers.

> >> >

February 11, 2004

Courage, I live in the Phoenix Arizona metro area. I can check with

the AD society. Do you know if they have an on-line group or

something similar to this?

Lynn

> >> >> Good Morning Everyone,

> >> >> I have not post lately but I'm looking to see if anyone has

their

> >> >LO

> >> >> on Namenda. And if so, what results you may be seeing.

> >> >>

> >> >> My mom's MD put her on it 2 1/2 weeks ago. She was in

the " sleep

> >> >> state " since the holidays and had an infection from her

catheter

> >> >> which contributes to this. But on Sunday my sister went to

visit

> >> >> and she was wide awake, alert, knew her and her husband. She

> >said

> >> >> it was wonderful. Is it to early to tell if it's Namenda,

yes,

> >I'm

> >> >> sure. The MD told us we should see some change in about 4

weeks.

> >> >>

> >> >> Of course we've encountered the set backs to often and don't

want

> >> >to

> >> >> get our hopes up; so if anyone has had any experiences with

> >Namenda

> >> >> I'd apprecriate hearing about it.

> >> >>

> >> >> Elaine FL

> >> >

> >> >Welcome to LBDcaregivers.

> >> >

February 11, 2004

Hi Lynn,

This I wouldn't know but if you check out Yahoo Groups and type in AD groups

you'll find lots of them. For faster results, I'd join the ones that don't

require you go through someone to get in and post about M asking if anyone

else is taking it. You should get a few responses that way.

These are early days for M and I think it's important that you are able to

discuss the effects with others - too bad the makers of M didn't think so

and make a message board available.

Courage

Re: Namenda

>Courage, I live in the Phoenix Arizona metro area. I can check with

>the AD society. Do you know if they have an on-line group or

>something similar to this?

>Lynn

>

>> >> >> Good Morning Everyone,

>> >> >> I have not post lately but I'm looking to see if anyone has

>their

>> >> >LO

>> >> >> on Namenda. And if so, what results you may be seeing.

>> >> >>

>> >> >> My mom's MD put her on it 2 1/2 weeks ago. She was in

>the " sleep

>> >> >> state " since the holidays and had an infection from her

>catheter

>> >> >> which contributes to this. But on Sunday my sister went to

>visit

>> >> >> and she was wide awake, alert, knew her and her husband. She

>> >said

>> >> >> it was wonderful. Is it to early to tell if it's Namenda,

>yes,

>> >I'm

>> >> >> sure. The MD told us we should see some change in about 4

>weeks.

>> >> >>

>> >> >> Of course we've encountered the set backs to often and don't

>want

>> >> >to

>> >> >> get our hopes up; so if anyone has had any experiences with

>> >Namenda

>> >> >> I'd apprecriate hearing about it.

>> >> >>

>> >> >> Elaine FL

>> >> >

>> >> >Welcome to LBDcaregivers.

>> >> >

June 12, 2008

For those of us having difficulty getting the medications you need or your

children need there are some things you can do:

1. When your doctor prescribes a new medication have him give you a statement

of need, what it is for ect. Submit this to your insurance provider.

2. Contact the company that makes the medication. Many times they will be

willing to get you a discount.

3. Ask if your doctor has any free samples.

4. Apply for medicaid, if you do not qualify, they have a buy in program for

those with disabilities. It is the same insurance, you just pay based on your

financial ability.

Medicaid will cover any over the counter medication so long as it is

prescribed by your doctor in addition to many other medications not covered by

traditional insurances.

It may take longer to get the medication if it is new as your doctor may need

to submit paper work to them. Experimental medications usually are not covered

by medicaid.

bridalsh wrote:

Is anyone giving his or her child Namenda?

Earlier today, I gave my daughter (Age 19) Namenda 0.5 mg

tablet and it is medication for prescription Alzheimer, but we are

going gray label. I will give her a second table later today. Blue

Cross / Blue Shield refused to cover it, so what new! Dr Arnold

Brenner (DAN doctor) prescribes the medication for my daughter.

Check out this hyperlink

http://www.talkautism.com/sponsors/autismspeaks/HelpWanted.aspx?Page=Response & id\

=2528

Take care,

Bev Weakley

June 12, 2008

I have never heard of it but am interested in how you feel it works for your

daughter. Would you mind keeping me updated??? My daughter is on

Strattera. It really did a wonder for her in the beginning but not so much

now.

Thanks

TJ

> Is anyone giving his or her child Namenda?

>

> Earlier today, I gave my daughter (Age 19) Namenda 0.5 mg

> tablet and it is medication for prescription Alzheimer, but we are

> going gray label. I will give her a second table later today. Blue

> Cross / Blue Shield refused to cover it, so what new! Dr Arnold

> Brenner (DAN doctor) prescribes the medication for my daughter.

>

> Check out this hyperlink

>

http://www.talkautism.com/sponsors/autismspeaks/HelpWanted.aspx?Page=Response & id\

=2528

>

> Take care,

> Bev Weakley

>

June 13, 2008

Here is some info from the Child-Autism-Parent-Cafe.Com:

Namenda is a new drug recently approved by the FDA to treat moderate to

severe cases of Alzheimer's Disease (AD). Autistic patients are typically

prescribed off-label drugs (drugs approved by the FDA specifically for

other

diseases). Several years ago there was a study on the drug Aricept to

treat

autistic children to help improve cognitive abilities. Aricept is the

most

common prescribed drug used to treat AD.

Bev Weakley

>

> > Is anyone giving his or her child Namenda?

> >

> > Earlier today, I gave my daughter (Age 19) Namenda 0.5 mg

> > tablet and it is medication for prescription Alzheimer, but we are

> > going gray label. I will give her a second table later today. Blue

> > Cross / Blue Shield refused to cover it, so what new! Dr Arnold

> > Brenner (DAN doctor) prescribes the medication for my daughter.

> >

> > Check out this hyperlink

> >

http://www.talkautism.com/sponsors/autismspeaks/HelpWanted.aspx?Page=Response & id\

=2528

> >

> > Take care,

> > Bev Weakley

> >

>

June 13, 2008

Thank you

> Here is some info from the Child-Autism-Parent-Cafe.Com:

> Namenda is a new drug recently approved by the FDA to treat moderate to

> severe cases of Alzheimer's Disease (AD). Autistic patients are typically

> prescribed off-label drugs (drugs approved by the FDA specifically for

> other

> diseases). Several years ago there was a study on the drug Aricept to

> treat

> autistic children to help improve cognitive abilities. Aricept is the

> most

> common prescribed drug used to treat AD.

>

> Bev Weakley

>

> >

> > > Is anyone giving his or her child Namenda?

> > >

> > > Earlier today, I gave my daughter (Age 19) Namenda 0.5 mg

> > > tablet and it is medication for prescription Alzheimer, but we are

> > > going gray label. I will give her a second table later today. Blue

> > > Cross / Blue Shield refused to cover it, so what new! Dr Arnold

> > > Brenner (DAN doctor) prescribes the medication for my daughter.

> > >

> > > Check out this hyperlink

> > >

>

http://www.talkautism.com/sponsors/autismspeaks/HelpWanted.aspx?Page=Response & id\

=2528

> > >

> > > Take care,

> > > Bev Weakley

> > >

> >

June 13, 2008

Thank you

> Here is some info from the Child-Autism-Parent-Cafe.Com:

> Namenda is a new drug recently approved by the FDA to treat moderate to

> severe cases of Alzheimer's Disease (AD). Autistic patients are typically

> prescribed off-label drugs (drugs approved by the FDA specifically for

> other

> diseases). Several years ago there was a study on the drug Aricept to

> treat

> autistic children to help improve cognitive abilities. Aricept is the

> most

> common prescribed drug used to treat AD.

>

> Bev Weakley

>

> >

> > > Is anyone giving his or her child Namenda?

> > >

> > > Earlier today, I gave my daughter (Age 19) Namenda 0.5 mg

> > > tablet and it is medication for prescription Alzheimer, but we are

> > > going gray label. I will give her a second table later today. Blue

> > > Cross / Blue Shield refused to cover it, so what new! Dr Arnold

> > > Brenner (DAN doctor) prescribes the medication for my daughter.

> > >

> > > Check out this hyperlink

> > >

>

http://www.talkautism.com/sponsors/autismspeaks/HelpWanted.aspx?Page=Response & id\

=2528

> > >

> > > Take care,

> > > Bev Weakley

> > >

> >

June 20, 2008

is over the one-week mark and she is taking naps during the

day. She has never taken naps during the day usually we have trouble

getting her to go to bed, and we still have some of that problem. I

only time she would take a nap is if she is really sick and she does

not have a cold or any other illness now.

She understands instruction better, but does not mean she will comply.

Yesterday I asked her to come into the house and help me with

something; she looked at me as if I was from outer space, made a face

at me and ran around to the front of the house to avoid me. She has

never done that before, usual she has a little idea what I am but only

reasons it out to a point. This morning I through sheet down to the

bottom of the stair and I asked to drag them out to the wash machine.

Get this she put them on top of the wash machine. That was even more

than I asked for; she knew what I said and reasons it out, opens the

washroom folding door, put the sheets on the wash machine and closed

the doors. Her reason powers are much better and she is making some

really strange sounds.

This morning I her making a " W " sound repeatedly and I not too sure

what that was about, but least it is different. She is willing to pet

the guinea pig with the flat or her hand and not just one finger. She

is feed herself her oatmeal in the morning, I know she can feed

herself, but usually she just refuse to feed herself, not any more.

I read something somewhere about Dr. Rimland saying about connection

between Alzheimer's disease (AD) and autism. Something about when they

cure, Alzheimer's disease that they will be able to use the same drugs

on children like my ., because the drugs work in the same part

of the brain.

Look at this, I found this at

http://www.consumerhealth.org/articles/display.cfm?ID=20060228192435

ALZHEIMER'S DISEASE Alzheimer's is the most common cause of dementia

among people age 65 and older. By age 85, up to 50% of people now have

Alzheimer's disease and that's a very high number. Three percent of

people between 65 to 74 have it. Alzheimer's disease is not a normal

part of aging. It's been confused with senility and aging, but

post-mortem autopsies on the brain can distinguish Alzheimer's. Are

people with Alzheimer's Disease poor excretors of mercury? Is it a

final toxic overload that causes the disease, do they have more

amalgams, are they eating more fish? All these things have to be

studied. Government standards of toxic levels of mercury are set much

too high. Alzheimer's patients' brains, on autopsy, had twice the

level of mercury compared to normal. An Alzheimer's patient slowly

becomes mercury-toxic from chronic exposure through amalgams,

vaccinations and other environmental sources and we know that, until

recently, it was mainly people over 65 who were advised to have annual

flu shots and the flu vaccine has an amount of thymerosal that is

highly toxic. The standard level is said to be safe over a six-month

period but when you get it all in one day, it is very unsafe and your

body retains most of it.

I talked to Dr. Brenner (DAN doctor) this morning and he was pleased

with , he want to know if knew if there were any studies

I found this and it is worth reading, but intense.

http://www.wipo.int/pctdb/en/wo.jsp?IA=WO2006034187 & DISPLAY=DESC

There just does not seem to be too much out there on Namenda.

Take Care,

Bev Weakley

Mom of and

> > >

> > > > Is anyone giving his or her child Namenda?

> > > >

> > > > Earlier today, I gave my daughter (Age 19) Namenda 0.5 mg

> > > > tablet and it is medication for prescription Alzheimer, but we are

> > > > going gray label. I will give her a second table later today. Blue

> > > > Cross / Blue Shield refused to cover it, so what new! Dr Arnold

> > > > Brenner (DAN doctor) prescribes the medication for my daughter.

> > > >

> > > > Check out this hyperlink

> > > >

> >

http://www.talkautism.com/sponsors/autismspeaks/HelpWanted.aspx?Page=Response & id\

=2528

> > > >

> > > > Take care,

> > > > Bev Weakley

> > > >

> > >

June 20, 2008

Wow!!! Sounds like some great strides. Thank you for sharing.

TJ

>

> is over the one-week mark and she is taking naps during the

> day. She has never taken naps during the day usually we have trouble

> getting her to go to bed, and we still have some of that problem. I

> only time she would take a nap is if she is really sick and she does

> not have a cold or any other illness now.

>

> She understands instruction better, but does not mean she will comply.

> Yesterday I asked her to come into the house and help me with

> something; she looked at me as if I was from outer space, made a face

> at me and ran around to the front of the house to avoid me. She has

> never done that before, usual she has a little idea what I am but only

> reasons it out to a point. This morning I through sheet down to the

> bottom of the stair and I asked to drag them out to the wash machine.

> Get this she put them on top of the wash machine. That was even more

> than I asked for; she knew what I said and reasons it out, opens the

> washroom folding door, put the sheets on the wash machine and closed

> the doors. Her reason powers are much better and she is making some

> really strange sounds.

>

> This morning I her making a " W " sound repeatedly and I not too sure

> what that was about, but least it is different. She is willing to pet

> the guinea pig with the flat or her hand and not just one finger. She

> is feed herself her oatmeal in the morning, I know she can feed

> herself, but usually she just refuse to feed herself, not any more.

>

> I read something somewhere about Dr. Rimland saying about connection

> between Alzheimer's disease (AD) and autism. Something about when they

> cure, Alzheimer's disease that they will be able to use the same drugs

> on children like my ., because the drugs work in the same part

> of the brain.

>

> Look at this, I found this at

> http://www.consumerhealth.org/articles/display.cfm?ID=20060228192435

>

> ALZHEIMER'S DISEASE Alzheimer's is the most common cause of dementia

> among people age 65 and older. By age 85, up to 50% of people now have

> Alzheimer's disease and that's a very high number. Three percent of

> people between 65 to 74 have it. Alzheimer's disease is not a normal

> part of aging. It's been confused with senility and aging, but

> post-mortem autopsies on the brain can distinguish Alzheimer's. Are

> people with Alzheimer's Disease poor excretors of mercury? Is it a

> final toxic overload that causes the disease, do they have more

> amalgams, are they eating more fish? All these things have to be

> studied. Government standards of toxic levels of mercury are set much

> too high. Alzheimer's patients' brains, on autopsy, had twice the

> level of mercury compared to normal. An Alzheimer's patient slowly

> becomes mercury-toxic from chronic exposure through amalgams,

> vaccinations and other environmental sources and we know that, until

> recently, it was mainly people over 65 who were advised to have annual

> flu shots and the flu vaccine has an amount of thymerosal that is

> highly toxic. The standard level is said to be safe over a six-month

> period but when you get it all in one day, it is very unsafe and your

> body retains most of it.

>

> I talked to Dr. Brenner (DAN doctor) this morning and he was pleased

> with , he want to know if knew if there were any studies

> I found this and it is worth reading, but intense.

> http://www.wipo.int/pctdb/en/wo.jsp?IA=WO2006034187 & DISPLAY=DESC

>

> There just does not seem to be too much out there on Namenda.

>

> Take Care,

> Bev Weakley

> Mom of and

>

> > > >

> > > > > Is anyone giving his or her child Namenda?

> > > > >

> > > > > Earlier today, I gave my daughter (Age 19) Namenda 0.5 mg

> > > > > tablet and it is medication for prescription Alzheimer, but we are

> > > > > going gray label. I will give her a second table later today. Blue

> > > > > Cross / Blue Shield refused to cover it, so what new! Dr Arnold

> > > > > Brenner (DAN doctor) prescribes the medication for my daughter.

> > > > >

> > > > > Check out this hyperlink

> > > > >

> > >

>

http://www.talkautism.com/sponsors/autismspeaks/HelpWanted.aspx?Page=Response & id\

=2528

> > > > >

> > > > > Take care,

> > > > > Bev Weakley

> > > > >

> > > >

June 20, 2008

Bev I to be of interested in this medications and will ask of my

medical doctor to investigate of it for me.

Sondra

June 20, 2008

Bev I to be of interested in this medications and will ask of my

medical doctor to investigate of it for me.

Sondra

June 26, 2008

I really hope it is the Namenda and the window stays open!!! Please keep us

posted, I completely understand how hopeful you can get from a test result

or the start of some treatment...I really hope things continue to improve!

Angie

(Kaylin's Mom - 4yrs)

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

June 26, 2008

I really hope it is the Namenda and the window stays open!!! Please keep us

posted, I completely understand how hopeful you can get from a test result

or the start of some treatment...I really hope things continue to improve!

Angie

(Kaylin's Mom - 4yrs)

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

June 26, 2008

started yesterday finding toddler toys that have buttons and

one has a joy stick, and began playing with them not just once, but

many times during each day. I still will say this not enough proof

that is working, because I have seen many things with over 19

years that window opened and she talked to me, played with toys

interacted with me and others, and then the window closed. I know she

is inside and she wants to come out and she at times has become very

frustrated because was unable to communicate like her peers.

I had 2 days of a window opening and my daughter played toys and

followed my instruction far better than ever before. I am skeptical,

but I going keep giving the Namenda.

Sincerely,

Bev Weakley

June 26, 2008