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All kid's situations are dif., as well as every state and every school

district. That said, my experience with WI is that the school district does

not want to have the child go to another special school or program because

if they recommend it, they have to pay for it. So, I don't know if your

district is planning to pay for her to go to a " special' program or school.

The students I know who have gone to an outside program or school have been

a harm to themselves or others (major acting out behavior towards

teachers). Another student with major medical issues comes when she can and

otherwise, she gets homebound services.When my son was having trouble with

severe depression/anxiety, he got homebound services and then we worked

back in as tolerated. We also have online programming as an option in our

district, which might work for your dd. If not available in your school

district, you may be able to hook up with another online program with

another district (called school choice in WI). I tried to work with the

school counselor because the special ed. person was overextended and

wasn't involved in his school. You can always go to your state's DPI

(Department of Public Instruction) and file a complaint if you feel your

child is not being served. I have found that when you read the state laws

(off of their website) that school districts interpret them in their own

way and that can be frustrating. I listened to a lawyer specializing in

special ed. law and she said that communication between parents and schools

is the most imp. thing to prevent a lawsuit and that IEPs need to be very

exact with no grey areas. Good luck with this. It is a full time job

advocating for your child.

On Mon, Dec 12, 2011 at 7:03 PM, N Brennan wrotpe:

> **

>

>

> Just wondering if anyone can provide some info on the role of public

> school and child with OCD. My dd has been out of school for almost 3 mos

> due to debilitating sudden onset OCD symptoms and major depression.

> Shes has been on official medical leave from but now school is taking

> about possible having her go to a " special " school. There will be a formal

> meeting this week and Im not sure what to expect. Can they kick her out if

> she doesnt get better fast enough? Both Phych Drs say she not ready to go

> back. Im Also, pursuing the Pandas aspect of OCD and she is now seeing

> specialist who wants us to try steroids burst and not change meds or have

> her begin CBT/ERP. (We were ready to go begin an extensive outpatient

> program before seeing new Dr. since she cannot even get dressed most

> days.)

>

> Can they kick her out or place her somewhere else legally? Is there some

> cut off in which if so many days are missed they have the right to do so?

> Who, what agency should I be talking to? Should I be concerned on a legal

> level? My experience with the special needs coordinator has not always

> been amicable as I have another dd who has an IEP and historically, I've

> had to fight to make them to provide the services she needed/deserved.

>

> Right now it looks as though it may be months till shes better. Could she

> just take the grade next year if needed? I have no idea how long this will

> take and additional pressure from the school is just not what we need

> when we're just trying to find out what the right/best treatment is.

>

> Any direction info would be most appreciated. Thank so much!

>

>

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Does your dd currently receive homebound instruction through the district? Is

the school they are looking at sending your dd to a therapeutic school? My dd

was severely ill and missed 3 years of high school. She was on homebound

instruction most of that time (but really couldn't accomplish much) and I wish

they would have suggested sending her to a therapeutic school. She was placed

into a program within her high school for kids with neurobiological illnesses

with a mental health component, but wasn't well enough to attend. In the end, we

were able to get the school district to reimburse a large amount of money for an

intensive inpatient hospitalization treatment program where she spent 60 days.

My dd truly wasn't well enough to do schooling during most of the 3 years. So,

my dd she was not kicked out of school during those years. She was able to stay

an extra year to repeat one of the years she missed but it was a fight in our

district to be able to do so, but we did accomplish it. What grade is your dd

currently in? I hope things improve for your dd soon. Stormy

Sent from my iPad

>

>

> Can they kick her out or place her somewhere else legally? Is there some cut

off in which if so many days are missed they have the right to do so? Who, what

agency should I be talking to? Should I be concerned on a legal level? My

experience with the special needs coordinator has not always been amicable as I

have another dd who has an IEP and historically, I've had to fight to make them

to provide the services she needed/deserved.

>

> Right now it looks as though it may be months till shes better. Could she just

take the grade next year if needed? I have no idea how long this will take and

additional pressure from the school is just not what we need when we're just

trying to find out what the right/best treatment is.

>

> Any direction info would be most appreciated. Thank so much!

>

>

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So sorry- I can understand why you are concerned. Well, she is entitled to a

public education...so if her needs cannot be met where she is, your district

will have to pay for her to go to somewhere that her needs can be. It really is

unfortunate that the person at the school is not being more helpful.

Unfortunately, most of the time parents do have to advocate and educate.

www.worrywisekids.org has a section on knowing your rights...I think I have

another link somewhere too but I have to dig it up. Not sure what state you are

in, but down here in Alabama there is something called ADAP (Alabama

Disabilities Advocacy Program). Special services are a right, not a favor...so

I would start with doing a search for a local Disabilities Advocacy

organization. You are familiar with the IEP process from your other child, so,

you will need to ask in writing for an IEP for this one as well...if she gets

rejected then you can go for the 504 plan which will provide her with

accommodations. I know that it is different, but when my nephew had to miss over

a year of school because he was undergoing treatment for cancer, there were

tutors that the district sent over. He missed over a year of school and

returned without having to repeat a grade and a 504 in place. If the special ed

coordinator is not helpful, is there anyone else at the school who could help

advocate for you? Hang in there.

>

> Just wondering if anyone can provide some info on the role of public school

and child with OCD.  My dd has been out of school for almost 3 mos due to

debilitating sudden onset OCD symptoms and major depression.  Shes has been

on official medical leave from  but now school is taking about possible having

her go to a " special " school.  There will be a formal meeting this week and Im

not sure what to expect.  Can they kick her out if she doesnt get better fast

enough?  Both Phych Drs say she not ready to go back.  Im Also, pursuing the

Pandas aspect of OCD and she is now seeing specialist who wants us to try

steroids burst and not change meds or have her begin CBT/ERP.  (We were ready to

go begin an  extensive outpatient program before seeing new Dr. since  she

cannot even get dressed most days.)

>  

> Can they kick her out or place her somewhere else legally? Is there some cut

off in which if so many days are missed they have the right to do so? Who, what

agency should I be talking to? Should I be concerned on a legal level?  My

experience with the special needs coordinator has not always been amicable as I

have another dd who has an IEP and historically, I've had to fight to make them

to provide the services she needed/deserved.

>  

> Right now it looks as though it may be months till shes better. Could she just

take the grade next year if needed?  I have no idea how long this will take and

additional pressure from the school is just not what we need when we're just

trying to find out what the right/best treatment is.

>  

> Any direction info would be most appreciated.  Thank so much!

>

>

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They can recommend placement (location) if they feel they can't meet her needs,

and I think place her there. First thought here - just calmly listen to what

they have to say, see what they offer, what this special school can offer, etc.

Volunteer to tour it. But you can say that you and her doctors feel she is not

ready to go back. But you're willing to see this special school now, as if she

can't return yet it may be the best place for her when she's ready..... So this

shows you are expecting her to return at some point and are being agreeable (vs

being seen as not working with the school). I'm sure you're used to this, with

another child with an IEP.

Hasn't she been getting homebound services any? If not, due to severity, then

it seems at this point in the year, she'd be held back anyway? I'm asking here,

if it's the case that she hasn't been able to do any schoolwork. I would think

they could just keep her on homebound if that is what she is currently getting.

Our handbook here in NC discusses homebound under " discipline " and says:

" Discipline and homebound instruction

(a) If a change of placement occurs under the discipline requirements of these

Policies, an LEA shall not assign a student to homebound

instruction without a determination by the student's IEP Team

that the homebound instruction is the least restrictive alternative

environment for that student. If it is determined that the homebound

instruction is the least restrictive alternative environment for the

student, the student's IEP team shall meet to determine the nature of

the homebound educational services to be provided to the student. In addition,

the continued appropriateness of the homebound

instruction shall be evaluated monthly by the designee or designees of the

student's IEP Team.

(B) " Educational services " means all of the following:

(1) The necessary instructional hours per week in the form and format as

determined by the child's IEP team and consistent with federal and State law.

The instruction shall be deliveredby appropriately qualified teachers to the

extent required by federal and State law, which requires a free appropriate

public education and the opportunity for a sound basic education.

(2) Related services including in the child's IEP.

(3) Behavior intervention services to the extent required above NC 1504-2.1 (d)

and (f).

© " Homebound instruction " means educational services provided to a student

outside the school setting. "

ALSO found the following:

" Children determined eligible for services under Part B must receive a program

of special education and related services in accordance with an individualized

education program (IEP) developed at a meeting of the child's IEP Team,

including school officials and the child's parents. 34 CFR §§300.320-300.324.

The IEP, which addresses the child's unique educational needs arising from the

child's disability also forms the basis for the child's placement decision. 34

CFR §300.116(B)(2). Part B expresses a preference for placing children with

disabilities in regular classes with nondisabled children if the child with a

disability can be educated satisfactorily in the regular educational environment

with the use of supplementary aids and services. 34 CFR §300.114. Although

experience has demonstrated that many children with disabilities can be educated

satisfactorily in the regular classroom along with children without

disabilities, unless their IEP calls for some other arrangement, IDEA also

recognizes that the regular classroom may not be the appropriate placement for

some disabled children. Therefore, each public agency must make available a

continuum of alternative placements, or a range of placement options, to meet

the needs of children with disabilities for special education and related

services. The options on this continuum include instruction in regular classes,

special classes, special schools, home instruction, and instruction in hospitals

and institutions. 34 CFR §300.115 (a) and (B)(1). Thus, the group responsible

for making the placement decision, which includes persons knowledgeable about

the child and the child's parent, selects the option on the continuum in which

the child's IEP can be appropriately implemented. 34 CFR §300.116(a)-(B). "

HOPE this helps gives you some ideas for discussing your point of view of her

needs in their terms. I agree, the best thing for her right now is to get her

well, on her way to getting well.

There's some OCD school related information in our FILES section that you could

print out, but that is primarily for help when child is attending school.

Haven't read it lately, can't recall if it mentions anywhere about not being

able to attend. It goes with the info you will see on this site:

http://www.ocdeducationstation.org/role-of-school-personnel

There is also a book by Dr. that is recent, you can read more about it

here: http://ocdhandbook.com/ocdbasics/ But again, I think it is also more

regarding those attending school. It DOES have a section for transitioning back

to school after a long absence though.

I think the school is probably taking the steps required by them at this point,

and the goal is to meet her educational needs. I learned to try to think of us

as a *team* and we were working for helping succeed in getting his

education. Also learned " thank you " goes a long way, lol, and asking them what

their thoughts/suggestions are first, did they have any similar experience with

another student/how did they meet the need...and then getting to what *I*

wanted. And sometimes I was just at a loss as to how to accommodate him and I

really wanted them to come up with answers!

Keep us updated, will be interested to hear how the meeting goes. Quick

thoughts tonight, I remember the advocating days! 's 22 now!

>

Can they kick her out or place her somewhere else legally? Is there some cut

off in which if so many days are missed they have the right to do so? Who, what

agency should I be talking to? Should I be concerned on a legal level?  My

experience with the special needs coordinator has not always been amicable as I

have another dd who has an IEP and historically, I've had to fight to make them

to provide the services she needed/deserved.

>  

> Right now it looks as though it may be months till shes better. Could she just

take the grade next year if needed?  I have no idea how long this will take and

additional pressure from the school is just not what we need when we're just

trying to find out what the right/best treatment is.

>  

> Any direction info would be most appreciated.  Thank so much!

>

>

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Here is the other link I mentioned:

http://www.ocdeducationstation.org/role-of-school-personnel/understanding-the-la\

w-as-it-relates-to-students-with-ocd/

> >

> > Just wondering if anyone can provide some info on the role of public school

and child with OCD.  My dd has been out of school for almost 3 mos due to

debilitating sudden onset OCD symptoms and major depression.  Shes has been

on official medical leave from  but now school is taking about possible having

her go to a " special " school.  There will be a formal meeting this week and Im

not sure what to expect.  Can they kick her out if she doesnt get better fast

enough?  Both Phych Drs say she not ready to go back.  Im Also, pursuing the

Pandas aspect of OCD and she is now seeing specialist who wants us to try

steroids burst and not change meds or have her begin CBT/ERP.  (We were ready to

go begin an  extensive outpatient program before seeing new Dr. since  she

cannot even get dressed most days.)

> >  

> > Can they kick her out or place her somewhere else legally? Is there some cut

off in which if so many days are missed they have the right to do so? Who, what

agency should I be talking to? Should I be concerned on a legal level?  My

experience with the special needs coordinator has not always been amicable as I

have another dd who has an IEP and historically, I've had to fight to make them

to provide the services she needed/deserved.

> >  

> > Right now it looks as though it may be months till shes better. Could she

just take the grade next year if needed?  I have no idea how long this will take

and additional pressure from the school is just not what we need when we're just

trying to find out what the right/best treatment is.

> >  

> > Any direction info would be most appreciated.  Thank so much!

> >

> >

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, hi!

 

 Not sure what they're thinking.  Its good to know that they'd pay for special

school if one is needed.  I will certainly check on the online situation too. 

That seems like it would be most helpful since dd cant get dressed to go out at

this point.  I am very concerned that the other school may be for kids who are

violent.  Dont know how that would help her anxiety at all with possibility of

physical outbursts from her classmates. Until we know what the right treatment

is, I dont know if we could put together a IEP yet expecially because they need

to be so exact.  These are all good points to think about and consider in

realation to dd.

, you are right.  This is more than exausting--just the medical/phych

aspect is all consuming-Thanks so much for your input!  I will keep this all in

mind for our situation. 

________________________________

To:

Sent: Monday, December 12, 2011 7:47 PM

Subject: Re: What can schools do when child is out for

extended period?

All kid's situations are dif., as well as every state and every school

district. That said, my experience with WI is that the school district does

not want to have the child go to another special school or program  because

if they recommend it, they have to pay for it. So, I don't know if your

district is planning to pay for her to go to a " special' program or school.

The students I know who have gone to an outside program or school have been

a harm to themselves or others (major acting out behavior towards

teachers). Another student with major medical issues comes when she can and

otherwise, she gets homebound services.When my son was having trouble with

severe depression/anxiety, he got homebound services and then we worked

back in as tolerated.  We also have online programming as an option in our

district, which might work for your dd. If not available in your school

district, you may be able to hook up with another online program with

another district (called school choice in WI).  I tried to work with the

school counselor because the special ed. person  was overextended and

wasn't involved in his school. You can always go to your state's DPI

(Department of Public Instruction) and file a complaint if you feel your

child is not being served. I have found that when you read the state laws

(off of their website) that school districts interpret them in their own

way and that can be frustrating. I listened to a lawyer specializing in

special ed. law and she said that communication between parents and schools

is the most imp. thing to prevent a lawsuit and that IEPs need to be very

exact with no grey areas. Good luck with this. It is a full time job

advocating for your child. 

On Mon, Dec 12, 2011 at 7:03 PM, N Brennan wrotpe:

> **

>

>

> Just wondering if anyone can provide some info on the role of public

> school and child with OCD.  My dd has been out of school for almost 3 mos

> due to debilitating sudden onset OCD symptoms and major depression.

> Shes has been on official medical leave from  but now school is taking

> about possible having her go to a " special " school.  There will be a formal

> meeting this week and Im not sure what to expect.  Can they kick her out if

> she doesnt get better fast enough?  Both Phych Drs say she not ready to go

> back.  Im Also, pursuing the Pandas aspect of OCD and she is now seeing

> specialist who wants us to try steroids burst and not change meds or have

> her begin CBT/ERP.  (We were ready to go begin an  extensive outpatient

> program before seeing new Dr. since  she cannot even get dressed most

> days.)

>

> Can they kick her out or place her somewhere else legally? Is there some

> cut off in which if so many days are missed they have the right to do so?

> Who, what agency should I be talking to? Should I be concerned on a legal

> level?  My experience with the special needs coordinator has not always

> been amicable as I have another dd who has an IEP and historically, I've

> had to fight to make them to provide the services she needed/deserved.

>

> Right now it looks as though it may be months till shes better. Could she

> just take the grade next year if needed?  I have no idea how long this will

> take and additional pressure from the school is just not what we need

> when we're just trying to find out what the right/best treatment is.

>

> Any direction info would be most appreciated.  Thank so much!

>

>

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had to dictate to me, I did the writing. Also read to him since OCD

affected him there too. Those were tiring times, I joked about having to go

thru middle school again. It was more interesting the 2nd time around, lol, so

far as my finding some subjects interesting. Also found it hard in some, e.g.,

some chapter questions I was glad it wasn't my homework!

It was slow work, but we did little things over time for him to take back the

writing, some reading, etc. That was after his OCD seemed to be getting better

or at least settling down to less intense. He may fill in a few blanks (wasn't

erasing any more), circle something on a sheet.... I'd let him read a short

paragraph to me, I'd read 2 or 3 then he'd have a turn....

I think what I gave you in earlier post would pretty much apply anywhere.

Guessing. Some things like timelines may be different (e.g., homebound need

evaluated monthly). I would assume they'd do that with your daughter every 5

weeks.

Hang in there, it will get better down the road!

>

> hi!

>  

> For everyone who asked, we're in Illinois. Does the info below hold true for

IL? 

> They have told me when shes ready they will provide a tutor (at home) for 5

weeks.  I have also asked numerous times if there was a cut off of sorts for

a child  who was out sick for an extended time.  Noone gave me a straight

answer. Of course I was and am still most concerned with the well being of

my dd.   Based on the severity of her symptoms and not fully understading what

was happening....I had no idea how to put a timeline on her recovery and still

dont.   

>  She cannot do any work. Has major consentration problems, has trouble

writing and told me she has no desire to even read a book which was her favorite

thing in to do in the world for the last 2 years.  

>

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does she have an IEP? If so, they cannot change the placement without your

approval, at least not initially. However, over time if they push the IEP

process to a certain point, they may be able to override you unless you

file due process, at which point you would need an atty to not get

railroaded. You would basically just be stalling until that point.

If no IEP, you could request eval, at which point they should not change

placement until the process is completed and you have first IEP meeting.

In any case, if she is homebound due to disability, you should pursue home

instruction. You may need an atty to get this, though, as school districts

typically will fight parents on

this. That is why the district is recommending special school, b/c the

obligation is on them to educate her and they do not want to pay for

home instruction.

Be aware, though, that once push comes to shove the district will

often try to excuse themselves by claiming that parent is neglectful

by not sending child to school. They won't get far with this since you

have medical documentation, but they

can really put families through

misery. it is best if you put in writing to school that you expect

home instruction since your dd is too ill to attend school

without suffering additional harm.

> **

>

>

> Just wondering if anyone can provide some info on the role of public

> school and child with OCD. My dd has been out of school for almost 3 mos

> due to debilitating sudden onset OCD symptoms and major depression.

> Shes has been on official medical leave from but now school is taking

> about possible having her go to a " special " school. There will be a formal

> meeting this week and Im not sure what to expect. Can they kick her out if

> she doesnt get better fast enough? Both Phych Drs say she not ready to go

> back. Im Also, pursuing the Pandas aspect of OCD and she is now seeing

> specialist who wants us to try steroids burst and not change meds or have

> her begin CBT/ERP. (We were ready to go begin an extensive outpatient

> program before seeing new Dr. since she cannot even get dressed most

> days.)

>

> Can they kick her out or place her somewhere else legally? Is there some

> cut off in which if so many days are missed they have the right to do so?

> Who, what agency should I be talking to? Should I be concerned on a legal

> level? My experience with the special needs coordinator has not always

> been amicable as I have another dd who has an IEP and historically, I've

> had to fight to make them to provide the services she needed/deserved.

>

> Right now it looks as though it may be months till shes better. Could she

> just take the grade next year if needed? I have no idea how long this will

> take and additional pressure from the school is just not what we need

> when we're just trying to find out what the right/best treatment is.

>

> Any direction info would be most appreciated. Thank so much!

>

>

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Yes, OCD is a mental illness. So falls under disability.

I

never even considered that OCD is an official disability. I guess we were all

hoping this could be resolved quickly but its not looking that way.

>

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Here is another link that may be of use:

http://ocfoundation.org/ocdinkids/personnel/ocd_and_IEP.aspx

> > >

> > > Just wondering if anyone can provide some info on the role of public

school and child with OCD.  My dd has been out of school for almost 3 mos due

to debilitating sudden onset OCD symptoms and major depression.  Shes has

been on official medical leave from  but now school is taking about possible

having her go to a " special " school.  There will be a formal meeting this week

and Im not sure what to expect.  Can they kick her out if she doesnt get better

fast enough?  Both Phych Drs say she not ready to go back.  Im Also, pursuing

the Pandas aspect of OCD and she is now seeing specialist who wants us to try

steroids burst and not change meds or have her begin CBT/ERP.  (We were ready

to go begin an  extensive outpatient program before seeing new Dr. since  she

cannot even get dressed most days.)

> > >  

> > > Can they kick her out or place her somewhere else legally? Is there some

cut off in which if so many days are missed they have the right to do so? Who,

what agency should I be talking to? Should I be concerned on a legal level?  My

experience with the special needs coordinator has not always been amicable as I

have another dd who has an IEP and historically, I've had to fight to

make them to provide the services she needed/deserved.

> > >  

> > > Right now it looks as though it may be months till shes better. Could she

just take the grade next year if needed?  I have no idea how long this will

take and additional pressure from the school is just not what we need

when we're just trying to find out what the right/best treatment is.

> > >  

> > > Any direction info would be most appreciated.  Thank so much!

> > >

> > >

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IDEA is a federal law and so the laws are is the same in all states. I totally

agree with the idea that states and districts try to reinterpret them often in

their own interest.

First, the psychiatrist prescribes the amount of time on home instruction, not

the district as the district is not licensed to make a medical determination.

The school will naturally want to end the home instruction quickly, but it's not

completely their decision.

Secondly, I am wondering why your dd is still so sick after 3 mos. I think it's

one thing to be unable to function in a public school environment, it's another

to not be able to function when stress is relieved such as when on home

instruction. Believe me, my son has been very sick, but never for so many

months and he always got better a couple of weeks after being home. Have you

sought a second psychiatric opinion?

I want to tell you also that the right school is extremely important. My son

was placed in a therapeutic school and it was a nightmare. Anxious kids should

not be in environments where there is a lot of acting out. Kids with conduct

disorder, ODD, ect...have very different needs than anxious kids. The

psychiatric/psychological care he got there was substandard in my opinion, and

he got poor grades as well. This place was considered to be a good school?

Honestly, I think that a special education school with small class size and

caring teachers who can handle issues together with a class make up of mostly

kids like your dd can be a good place to get an education. You'll not find the

perfect place, but there are schools that you can work with and compromise won't

be so costly. I think we've found such a school and it has made a huge

difference.

Does your daughter want to go to school? That's something to consider as

well.

I think the first step is to get a prescription from your psychiatrist for home

instruction for 1-2 months. Possibly get a second opinion for psychiatric

care...follow your instincts on this. Begin looking at private schools and make

sure that they let your dd spend a half day or two in class there....that

helped us pick out our present school. Tell her it won't be perfect, but to

give it a try. You'll be able to get a sense of whether or not she'll do OK

there.

You must sign the IEP in order for your dd to be placed, and she cannot be

denied a public education. If you are being pushed, you might want to hire an

advocate or lawyer. After our fiasco at a therapeutic school, I hired a lawyer

who was not only a lawyer but also a spec Ed teacher. She grew up in our very

district as well. She pointed us toward the school we eventually picked.

Having a knowledgeable person on your side is worth every penny .

Feel free to e mail me if I can help you in any way.

Bonnie

> >

> Can they kick her out or place her somewhere else legally? Is there some cut

off in which if so many days are missed they have the right to do so? Who, what

agency should I be talking to? Should I be concerned on a legal level?  My

experience with the special needs coordinator has not always been amicable as I

have another dd who has an IEP and historically, I've had to fight to

make them to provide the services she needed/deserved.

> >  

> > Right now it looks as though it may be months till shes better. Could she

just take the grade next year if needed?  I have no idea how long this will

take and additional pressure from the school is just not what we need

when we're just trying to find out what the right/best treatment is.

> >  

> > Any direction info would be most appreciated.  Thank so much!

> >

> >

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I think that the right doctor would recognize what's going on and would be able

to treat it appropriately. There are not a lotbof child psychiatrists who deal

with very I'll children and that is the problem. I am not only a mom of a

special kid, I am a nurse too and It isn't necessary for a child to be so ill

for that length of time....the practitioner should be adept at treating our

kids. If it does take that long, it can be attributed to poor diagnoses and

management in my opinion even though there are cases that are refractory.

Adults are not ill months and years on end when they're treated properly. It's

not a sign of poor parenting, just the system being inadequate. We have gone

through very difficult periods of waxing and waning symptoms and med side

effects as well, but not months or years without symptom relief. I don't think

that you find the answers with the opinion of one practitioner and that's why I

suggested another opinion and to follow your instincts.

Bonnie

>

> >

> >

> >

> > Secondly, I am wondering why your dd is still so sick after 3 mos. I think

it's one thing to be unable to function in a public school environment, it's

another to not be able to function when stress is relieved such as when on home

instruction. Believe me, my son has been very sick, but never for so many months

and he always got better a couple of weeks after being home. Have you sought a

second psychiatric opinion?

> >

> >

> >

> >

>

>

>

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Yeah, comorbid diagnoses can make it more difficult. Can take a while to get

all the right diagnoses too if more is involved than OCD.

But even with OCD alone, it differs with people. Even with 2 people both rated

severe, their progress with the same therapist will vary, etc.

>

> I think there are cases, like my dd's, that are just very complicated, due to

comorbid diagnoses. We did what you suggested. My dd actually saw 3 home pdoc's

who were all in agreement on her diagnoses and treatment. Many, many med combos

were tried and she stayed very ill for a long time. She also did treatments at

multiple clinics. She also saw 2 pdoc's during her 60 day intensive inpatient

hospitalization, again in agreement. She is still on 5 meds for

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Will be interested to hear what happens with the steroids. I can't recall how

soon parents may see a difference, probably varies. Glad you found a doctor

willing to work with you!

>

> Yes, I agree and so did new Dr.   He put her on a steroid burst which in my

understanding is what they do for PANDAS kids who have had issues with long term

anitbiotics use. (If someone knows the protocol by all means comment here so I

do not misinform anyone.) So we will see if she improves over the next few

weeks.  If she does I guess we will know for sure its PANDAS.  If not, we go

with some intense outpatient CBT/ERP and continue with meds.   Either way, we'll

know which road to take so that will help clarify her treatment and hopefully

get some forward movement going. 

>  

> What I found very frustrating is that in our case 2 pedicatricians did not

want to help us pursue the PANDAS aspect of this.

>

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