Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Hi Kathleen, Hi ', Wasn't that something? I'm still reeling! is a hospital employee. From what she told me her job is similar to a therapy/social worker. She helps sis get the right therapy and finds the programs available to set sis up once she leaves the hospital. Seems she found herself going far more than the extra mile, and never feeling quite right with the results.....BPD and all it's many tricks. Yeah I agree with you , she does have good instincts. Once the shrink told her it was BPD, she said everything fell into place. ( wow, that's how I felt when my doc sat me down and told me it WASN'T me.) lol Later on that same day, sis's friend, who deals with my nada on a daily basis, told me that nada had commented that she understood why I didn't want to talk to her and I had to sit down after hearing that! lol Will wonders never cease! So far, the foo is quite scattered. One bro, bpd/NPD has decided to disown the entire family, sis has to adjust to her life changes but now has a new ride to get on, one that involves everyone feeling sorry for her. ( she commented to her friend that she will go to friend's son's wedding cuz she will get attention there. Friend was really upset and I can't blame her.) Youngest bro is just starting to see through the fog a bit and beginning to realize that something MAY be wrong with the whole foo setup, and nada is finding herself being ridiculed to her face. The outside world just will not pretend with her....I feel sorry for all of them, but I can now say, and from the depths of my soul!!! I feel no intense desire to fix this for them.. I'm getting better!!!!yeah! Warm thoughts everyone! :0) The hardheaded one! Re: what a day! > > > that is great . All kinds of validation! > > > > kathleen > > Yeah, wow, that must have been nice to hear from a 3rd party like > that. Was a hospital employee or just a friend of your > sister's? I thought she was your sister's nurse for some reason when > I first read it. But that is cool that she went to the hospital > pschiatrist herself, sounds like she has good instincts. > Good idea to take your sister's friend with you to pick her up too! > Best of luck to you picking her up! > > > > To get off the list, send a blank message to ModOasis-unsubscribe . Send questions & amp; concerns to ModOasis-owner . & quot;Stop Walking on Eggshells, & quot; a primer for non-BPs can be ordered via 1-888-35-SHELL (). For the table of contents, see http://www.BPDCentral.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Hi Kathleen, Hi ', Wasn't that something? I'm still reeling! is a hospital employee. From what she told me her job is similar to a therapy/social worker. She helps sis get the right therapy and finds the programs available to set sis up once she leaves the hospital. Seems she found herself going far more than the extra mile, and never feeling quite right with the results.....BPD and all it's many tricks. Yeah I agree with you , she does have good instincts. Once the shrink told her it was BPD, she said everything fell into place. ( wow, that's how I felt when my doc sat me down and told me it WASN'T me.) lol Later on that same day, sis's friend, who deals with my nada on a daily basis, told me that nada had commented that she understood why I didn't want to talk to her and I had to sit down after hearing that! lol Will wonders never cease! So far, the foo is quite scattered. One bro, bpd/NPD has decided to disown the entire family, sis has to adjust to her life changes but now has a new ride to get on, one that involves everyone feeling sorry for her. ( she commented to her friend that she will go to friend's son's wedding cuz she will get attention there. Friend was really upset and I can't blame her.) Youngest bro is just starting to see through the fog a bit and beginning to realize that something MAY be wrong with the whole foo setup, and nada is finding herself being ridiculed to her face. The outside world just will not pretend with her....I feel sorry for all of them, but I can now say, and from the depths of my soul!!! I feel no intense desire to fix this for them.. I'm getting better!!!!yeah! Warm thoughts everyone! :0) The hardheaded one! Re: what a day! > > > that is great . All kinds of validation! > > > > kathleen > > Yeah, wow, that must have been nice to hear from a 3rd party like > that. Was a hospital employee or just a friend of your > sister's? I thought she was your sister's nurse for some reason when > I first read it. But that is cool that she went to the hospital > pschiatrist herself, sounds like she has good instincts. > Good idea to take your sister's friend with you to pick her up too! > Best of luck to you picking her up! > > > > To get off the list, send a blank message to ModOasis-unsubscribe . Send questions & amp; concerns to ModOasis-owner . & quot;Stop Walking on Eggshells, & quot; a primer for non-BPs can be ordered via 1-888-35-SHELL (). For the table of contents, see http://www.BPDCentral.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Debi you always have so much going on! Hope Allie is feeling better. Pennie Abby's Mom Who would take Debi out for a margarita if she lived closer **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Oh Debi you are an awsome mom!...All that in one day! I know how you feel, my son is typical and I have such a hard time with getting them to do anything, all I hear about is how much trouble he gets into. And the blood work! AND a week ago the lab place at the hospital called to inform me that they lost Avas urine...from 2 months ago. They were putting together all her blood work and realized that the urine wasnt there and they place it was sent off to has no record of it..It took them 2 months to figure it out. Do they realize how hard it is to get a clean catch first morning urine on a 2 year old? Hopefully yooday is a new day and goes better than the last, > > I just have to vent. First I tried to schedule our follow-up with Dr. > Geier, evidently labcorp had Allie's FORTY-NINE VIALS WORTH of blood > work entered wrong, they could not find any trace of it. After feeling > like attacking Labcorp I finally tracked it down. > > Then tonight was 's fifth grade graduation thing. Well, Allie > is sick again with respiratory stuff and was sleeping, Craig called to > tell me to hurry it was starting, I tried waking up Allie, knowing > what was coming. She was screaming and stuff. I started crying from > the frustration of it all, every time we have an event for > Allie is sick or screaming, usually screaming from being sick. That > poor Jess hasn't had a special event yet without her sister having a > major problem, which totally is not Allie's fault, but it just seems > to unfair to Jess. > > So we get to the school after I had carried Allie to the van then to > the school. I pull her out of the van and sit her in the grass, asking > her if we can give it a try. She yells out, " I am ugly! I am ugly! " > Then I'm crying again rubbing her head telling her how beautiful she > is, then she says, " I'm so tired of this...I hate this. I'm sick of > this. " I know what she was talking about, she was talking about alway > feeling so bad. Well, of course, that made me cry more. > > She did let me carry her inside and did get to doing better. About > half way through Craig took her and our 5 yr old out to the playground > while I watched the rest, then Allie was much happier, though still sick. > > Some days are so tiresome. And of course this was after being told by > a mom that during a second grade party that I was not informed of that > Allie sat on the edge of the playground while all the other kids ate a > special meal served. No one ever bothered to ask her if she wanted > any, try to engage, etc, until a parent felt so bad about her being > ignored that she tried to engage her. Of course, crap like this has > been going on all year. I try to ignore it, thinking if they'll just > babysit her until I get through college I can pull her out, but I'm in > a mamma-rage mode right now over this crappy, crappy school my kids > are zoned for. > > <sigh> > > Thanks for listening if you made it this far! > > Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Debi my own helath and being was of much like you shared here and yes even though had no words to say of it, but felt much like you Allie and still do over health things. I to hate not feeling well and being of sick so much that it does impact my functioning and connecting and behavior too even now as adult I to get so upset with self because cant seem to have control over things in the life of me and think by now should have learned to not do the things I to do but it comes out so fast that cant have control over it and it makes me feel worse because then I to worry over and over what others will be thinking of me afterwards. I to not mean to act that way it just comes out and when too much other things are consuming me it does not leave room much for thinking and self restraint or control. being sick is one of the things that triggers me the most, as well as communication barriers for me in the real of life conversations. I to also find self if not getting my solid 4 hours of sleep ( If it is of all broken up sleep) then it causes me great agitations and will easily fall prey to SIB and tears much of the day/ I to not learn to work this by taking of what is of called a power nap each day that I to need of it. one little girl in my areas with autism and much agitations and frustrations it is of in her IEP that mid day she gets a snack and gets to take an hour nap and she has of a therapy dog assigned to the school but this dog is of her support much of the day in the school. these dogs are very helpful to the kids on the spectrum in this district. But anyways if she is of ill much and easy frustrated and agitated maybe this can be placed into her IEP for her to be to ahve a power nap in a bean bag or cot somewhere for a down time to build up her immune and strength. when we over stress the body which happens much so in autism it does play a huge part in the immune system and causes it to not be as strong because we have our systems in constant stresses and overloads. so a power nap might help some of he kids who struggle in that areas. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Thanks, I feel better after sleeping. What I didn't say was I was making the phone calls in between my nursing class and then I was tutoring a student after class. Thankfully my classmates know a little about the situation, they were very supportive as I stood outside on my phone going, " How can you not know where the labwork is? " Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Thanks Sondra. It helps to know I'm probably on the right track with Allie Kat. Since i pulled her out of general ed, largely because they were failing to do their jobs, she has the leisure to go get in a beanbag. Thankfully, the sped staff is very loving toward Allie and can tell when she's not feeling well. Sometimes she does sleep. She's still sick this morning but singing the High School Musical song about school is out...it's our vacation. She couldn't be more thrilled to have it out. If we find any issues from all the lab testing, I will definitely post. Who knows, maybe you might both have the same underlying problem. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Glad you're feeling a little better! Too bad this kind of stuff doesn't go away! The only practical response I have for finding out about parties, is that I try to anticipate when the class might be having one, ie end of the year party, nothing I can do about some kid's birthday... & email the teacher asking if there's going to be one. They seem to need reminders to contact us so we can prepare special foods for our kids. I feel the same way about my NT daughter's life being affected by autism. I feel bad for her too, but I think overall, that she's accepted it very well & doesn't outwardly seem upset/angry about it. Although I must say for myself, that sometimes living with autism sucks & wish it would all go away, but other days, there are good things that happen b/c we live with autism. Hang in there & take care! Marie > Thanks, I feel better after sleeping. What I didn't say was I was > making the phone calls in between my nursing class and then I was > tutoring a student after class. Thankfully my classmates know a little > about the situation, they were very supportive as I stood outside on > my phone going, " How can you not know where the labwork is? " > > Debi > > > > > ------------------------------------ > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe@...! Groups Links > > > > -- Marie A. (mom to Kim, 16yo, Leap Year baby & Becky, a senior & gets the best sibling award) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Debi and everyone, I know how everyone feels as I read through Debi's day and all of your reponses I have had parts of each of your days with my two girls with each one having their own problems one its too loud one its to much going on at once and she gets over stimulated and cant focus one wants to play with everyone one wants nothing to do with any one. one is very mellow when she is ill one is horrible when she is sick. The list goes on and on for us. The apointment the stares the questions the advice the stupid teachers that you think have the training but don't have a clue. Ugh. Just trying to have a life outside Autism is almost impossible my hats and hearts go out to all of the moms on here and the dads too. Sondra you are my Hero You give me so much strength and hope for my two young girls I have been following you for a bit and you make me smile and make me want to give u a hug (only if you want one of course ) The days have been easier here in some ways but they are growing in to young ladies I am entering puberty and It is scary for everyone here. Emotional mean scary so I am sure you will be hearing more from me. Hang in there Debi it does get better xxxxx but u already know that its a change from one day to the next My thoughts and strength are with all of you. Send some my way I am very unassure of puberty and what i have seen so far of it I am very very not looking forward to my new adventure with the girls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Debi and everyone, I know how everyone feels as I read through Debi's day and all of your reponses I have had parts of each of your days with my two girls with each one having their own problems one its too loud one its to much going on at once and she gets over stimulated and cant focus one wants to play with everyone one wants nothing to do with any one. one is very mellow when she is ill one is horrible when she is sick. The list goes on and on for us. The apointment the stares the questions the advice the stupid teachers that you think have the training but don't have a clue. Ugh. Just trying to have a life outside Autism is almost impossible my hats and hearts go out to all of the moms on here and the dads too. Sondra you are my Hero You give me so much strength and hope for my two young girls I have been following you for a bit and you make me smile and make me want to give u a hug (only if you want one of course ) The days have been easier here in some ways but they are growing in to young ladies I am entering puberty and It is scary for everyone here. Emotional mean scary so I am sure you will be hearing more from me. Hang in there Debi it does get better xxxxx but u already know that its a change from one day to the next My thoughts and strength are with all of you. Send some my way I am very unassure of puberty and what i have seen so far of it I am very very not looking forward to my new adventure with the girls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 In a message dated 5/22/08 8:00:08 A.M. Eastern Daylight Time, Ploveabby@... writes: Who would take Debi out for a margarita if she lived closer and i would play with the kids while pennie takes you out eric gutter boy **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 In a message dated 5/22/08 8:00:08 A.M. Eastern Daylight Time, Ploveabby@... writes: Who would take Debi out for a margarita if she lived closer and i would play with the kids while pennie takes you out eric gutter boy **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Debi I would buy you as many as you want. Pennie Abby's Mom **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Debi I would buy you as many as you want. Pennie Abby's Mom **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Yeah, well, Pennie would have to buy a lot more than 1!!! I thought we'd have a good day, Lab Corp was at it again, won't even go there. But we did have a nice afternoon. I met some friends & their kids at a local playground then went to a big fountain, then out for pizza. I guess I gave Allie one last hurrah, we're starting gfcf all the way on Monday. It was a nice afternoon, good friends, good fun. Both the other families have typical kids, but they all love Allie, , and Dinah. Was nice to be with typical families. Debi Quote Link to comment Share on other sites More sharing options...
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