Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 " It is heartbreaking to watch his decline. I am willing to take him anywhere to get help. Does anyone has suggestions?I have read many books and looked at many websites and they are starting to run together. We live in Kentucky and are willing to travel anywhere. " ((())) My heart goes out to you. But it can get better. About 5 years ago when my son was 14, he had a very similar onset. His OCD had him thinking anything he put in his mouth would kill him. This included water and meds. He also washed his hands raw, couldn't touch doorknobs and would get caught up in compulsions for long periods of time, etc. He lost a lot of weight over a short period of time and was slowly dying. He had to be hospitalized and after week he made great improvements. The right medication and therapy were very helpful for him. Things can get better. I would suggest you visit the IOCDF (International OCD Foundation) website. There is a place you can search therapists in your area. Some other posters may come along with recommendations. The IOCDF annual conf is in Chicago in late July. You might want to browse that and see if it might be helpful for you. Both my son and I are going. Best wishes, Judy (originally from So Ohio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 I live in WI and has a good reputation. I know people in this town have gone there with good results. Also, people on this site can attest to this. The weight loss is a concern for sure, as well as the other issues. Is he having any success with the therapy (CBT and/or ERP). Did he have any relief with the med. It takes a while sometime to get the right mix. My son is doing pretty well with Prozac and Busbar as add on. I have another son with BP and your son does not sound like typical BP kid. Just a thought. He does sound like my OCD son, with the high anxiety escalating/OCD thoughts. My son's goes up and down. Is he transitioning to Middle School? Certain triggers can get things going too. Hope you get the help you need. > > Good Morning, > My son, he is 11, was diagnosed in april with ocd and anxiety. He is convinced that everything he does is because he wants to commit suicide, from getting a drink to playing with his cousin. He initially started out with thoughts about loved ones getting hurt or killed and assumed he was a bad person and wanted it to happen because he was thinking it. Those have diminished some but now he is consumed with suicide. He also has a peanut allergy and now is convinced their are peanut germs everywhere and has started washing his hands. He has lost 12 pounds since April and has a difficult time eating because of the fear of peanut germs and afraid he is wanting to choke on his food, which leads to thinking he will commit suicide. We have been on prozac and just recently switched to Luvox. The therapist he has been seeing wants to do testing to rule out bipolar. His psychiatrist doesn't think that is an issue. We are starting with another therapist next week. > It is heartbreaking to watch his decline. I am willing to take him anywhere to get help. Does anyone has suggestions?I have read many books and looked at many websites and they are starting to run together. We live in Kentucky and are willing to travel anywhere. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 My daughter's OCD and mine were quite severe in the intensity of the belief in the fears, and the med that really did the trick was Anafranil. She is still on it, and she really is a different person on it. If you don't find success with the SSRI family of medications that you've been trying, this may be an alternative to try. new to ocd Good Morning, My son, he is 11, was diagnosed in april with ocd and anxiety. He is convinced that everything he does is because he wants to commit suicide, from getting a drink to playing with his cousin. He initially started out with thoughts about loved ones getting hurt or killed and assumed he was a bad person and wanted it to happen because he was thinking it. Those have diminished some but now he is consumed with suicide. He also has a peanut allergy and now is convinced their are peanut germs everywhere and has started washing his hands. He has lost 12 pounds since April and has a difficult time eating because of the fear of peanut germs and afraid he is wanting to choke on his food, which leads to thinking he will commit suicide. We have been on prozac and just recently switched to Luvox. The therapist he has been seeing wants to do testing to rule out bipolar. His psychiatrist doesn't think that is an issue. We are starting with another therapist next week. It is heartbreaking to watch his decline. I am willing to take him anywhere to get help. Does anyone has suggestions?I have read many books and looked at many websites and they are starting to run together. We live in Kentucky and are willing to travel anywhere. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 Hi, welcome! You're right, it is heartbreaking with our children suffering this hated illness. And there's generally no logic to it, or at least logic won't work with the unreasonableness of OCD. And " thoughts " can be scary and intense/real. I hate he's so worried about peanut germ/allergy. I have a son (1 of 3) who is allergic to tree nuts and carries an Epi-pen and keeps Benedryl on hand. He also watches what foods he buys (he's 23) and won't eat out too often (though I note that pizza and taco places seem fine!). But OCD seems to have grabbed hold of your son's allergy and made it unreasonable (germs everywhere, washing hands..) and that he " may " want to choke on his food! Ugh! Will he drink things okay, like any of the nutritional drinks or do they worry him too? I hope the new therapist works out great. Why was the other thinking bipolar could be involved, does it run in the family somewhere? My OCD son (now 23, but his OCD started in 6th grade) went thru a food problem also, only his was due to OCD having him " promise God " he wouldn't eat certain foods/ingredients; have a thought pop into his head and it was off the list.... Got scary! He wasn't in therapy at the time either and we talked to a minister or two about the Bible, etc., etc., and he finally managed to *push* himself to eat. But a scary few months, he was (is) already too skinny. 's OCD started out with physical type rituals (repeat, touch, get " stuck " ...) that were obvious to all. But later in high school it came back as " thoughts " and those are less " obvious " even to him and he has trouble seeing the thoughts are caused by OCD. Don't want to ramble on too long. But I'm glad you found our group! single mom, 3 sons , 23, with OCD, dysgraphia, Aspergers Graduated 2011 with BS Biology > > Good Morning, > My son, he is 11, was diagnosed in april with ocd and anxiety. He is convinced that everything he does is because he wants to commit suicide, from getting a drink to playing with his cousin. He initially started out with thoughts about loved ones getting hurt or killed and assumed he was a bad person and wanted it to happen because he was thinking it. Those have diminished some but now he is consumed with suicide. He also has a peanut allergy and now is convinced their are peanut germs everywhere and has started washing his hands. He has lost 12 pounds since April and has a difficult time eating Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 Hello, I am also new at OCD and my son was recently diagnosed (last week). He just turned 12. I am probably not the best person to recommend anybody but I will be taking my son this week to the Neuro Behavioral Institute in Weston Florida, (their website is nbiweston.com). I can let you know how it goes this week. He will be having an extensive evaluation with Dr. Hoffman and then we will decide if intensives are better for him or not. I do have to mention that my son does not take any medications so far. He is still able to work with it. But at least I can check the place and let you know how it goes. Just a bit of info I thought it might help. Sunny > > Good Morning, > My son, he is 11, was diagnosed in april with ocd and anxiety. He is convinced that everything he does is because he wants to commit suicide, from getting a drink to playing with his cousin. He initially started out with thoughts about loved ones getting hurt or killed and assumed he was a bad person and wanted it to happen because he was thinking it. Those have diminished some but now he is consumed with suicide. He also has a peanut allergy and now is convinced their are peanut germs everywhere and has started washing his hands. He has lost 12 pounds since April and has a difficult time eating because of the fear of peanut germs and afraid he is wanting to choke on his food, which leads to thinking he will commit suicide. We have been on prozac and just recently switched to Luvox. The therapist he has been seeing wants to do testing to rule out bipolar. His psychiatrist doesn't think that is an issue. We are starting with another therapist next week. > It is heartbreaking to watch his decline. I am willing to take him anywhere to get help. Does anyone has suggestions?I have read many books and looked at many websites and they are starting to run together. We live in Kentucky and are willing to travel anywhere. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 Hello, I am also new at OCD and my son was recently diagnosed (last week). He just turned 12. I am probably not the best person to recommend anybody but I will be taking my son this week to the Neuro Behavioral Institute in Weston Florida, (their website is nbiweston.com). I can let you know how it goes this week. He will be having an extensive evaluation with Dr. Hoffman and then we will decide if intensives are better for him or not. I do have to mention that my son does not take any medications so far. He is still able to work with it. But at least I can check the place and let you know how it goes. Just a bit of info I thought it might help. Sunny > > Good Morning, > My son, he is 11, was diagnosed in april with ocd and anxiety. He is convinced that everything he does is because he wants to commit suicide, from getting a drink to playing with his cousin. He initially started out with thoughts about loved ones getting hurt or killed and assumed he was a bad person and wanted it to happen because he was thinking it. Those have diminished some but now he is consumed with suicide. He also has a peanut allergy and now is convinced their are peanut germs everywhere and has started washing his hands. He has lost 12 pounds since April and has a difficult time eating because of the fear of peanut germs and afraid he is wanting to choke on his food, which leads to thinking he will commit suicide. We have been on prozac and just recently switched to Luvox. The therapist he has been seeing wants to do testing to rule out bipolar. His psychiatrist doesn't think that is an issue. We are starting with another therapist next week. > It is heartbreaking to watch his decline. I am willing to take him anywhere to get help. Does anyone has suggestions?I have read many books and looked at many websites and they are starting to run together. We live in Kentucky and are willing to travel anywhere. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 Hello, I am also new at OCD and my son was recently diagnosed (last week). He just turned 12. I am probably not the best person to recommend anybody but I will be taking my son this week to the Neuro Behavioral Institute in Weston Florida, (their website is nbiweston.com). I can let you know how it goes this week. He will be having an extensive evaluation with Dr. Hoffman and then we will decide if intensives are better for him or not. I do have to mention that my son does not take any medications so far. He is still able to work with it. But at least I can check the place and let you know how it goes. Just a bit of info I thought it might help. Sunny > > Good Morning, > My son, he is 11, was diagnosed in april with ocd and anxiety. He is convinced that everything he does is because he wants to commit suicide, from getting a drink to playing with his cousin. He initially started out with thoughts about loved ones getting hurt or killed and assumed he was a bad person and wanted it to happen because he was thinking it. Those have diminished some but now he is consumed with suicide. He also has a peanut allergy and now is convinced their are peanut germs everywhere and has started washing his hands. He has lost 12 pounds since April and has a difficult time eating because of the fear of peanut germs and afraid he is wanting to choke on his food, which leads to thinking he will commit suicide. We have been on prozac and just recently switched to Luvox. The therapist he has been seeing wants to do testing to rule out bipolar. His psychiatrist doesn't think that is an issue. We are starting with another therapist next week. > It is heartbreaking to watch his decline. I am willing to take him anywhere to get help. Does anyone has suggestions?I have read many books and looked at many websites and they are starting to run together. We live in Kentucky and are willing to travel anywhere. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 I'm sorry to hear about your son. It is terrifying enough to watch your child have OCD, but I think even more so when it involves a refusal to eat...I only had to watch eating refusal very briefly with my daughter, but I can remember the feeling so viscerally. I am wondering whether, in all of the reading you have done, you have come across information on PANDAS and PANS. I strongly encourage you to look into these. PANDAS is when a strep infection causes a a faulty autoimmune reaction where antibodies attack the brain and cause neuropsych issues like OCD (think of it as rheumatic fever of the brain instead of the heart). PANS is a new term that recognizes infections beyond strep can cause OCD and other neuropsychiatric issues. In addition to strep, symptoms can include rages/depression/emotional lability, vocal/motor tics, ADHD like behavior, urinary issues, age regression, etc. Sudden onset eating disorders are a newly recognized symptoms of PANS. The best thing you can do to rule PANDAS/PANS out is to see a doctor that truly understands it. There are not very many...fewer than 10. Most are on the east coast. Most pediatricians know very little about it. But hopefully, your would be at least willing to run some initial tests, such as strep culture and strep blood tests. The International OCD Foundation has some information on PANS, including two video public service announcements. http://ocfoundation.org/PANDAS/ Some other websites: www.pandasnetwork.org www.pandasresourcenetwork.org I have to go now, but please feel free to email me or post questions. I'm not on the board consistently anymore...pop in here and there. But am always willing to respond to anyone's specific questions if you shoot me an email. MY dd, now 10, was diagnosed with OCD when she was 7, PANDAS, when she was 8, then Lyme and Bartonella when she was 9. She has been treated with antibiotics for the last two for the past year and is almost 100%...sooooo close. We are hoping we can stop the medication soon. Kara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 I'm sorry to hear about your son. It is terrifying enough to watch your child have OCD, but I think even more so when it involves a refusal to eat...I only had to watch eating refusal very briefly with my daughter, but I can remember the feeling so viscerally. I am wondering whether, in all of the reading you have done, you have come across information on PANDAS and PANS. I strongly encourage you to look into these. PANDAS is when a strep infection causes a a faulty autoimmune reaction where antibodies attack the brain and cause neuropsych issues like OCD (think of it as rheumatic fever of the brain instead of the heart). PANS is a new term that recognizes infections beyond strep can cause OCD and other neuropsychiatric issues. In addition to strep, symptoms can include rages/depression/emotional lability, vocal/motor tics, ADHD like behavior, urinary issues, age regression, etc. Sudden onset eating disorders are a newly recognized symptoms of PANS. The best thing you can do to rule PANDAS/PANS out is to see a doctor that truly understands it. There are not very many...fewer than 10. Most are on the east coast. Most pediatricians know very little about it. But hopefully, your would be at least willing to run some initial tests, such as strep culture and strep blood tests. The International OCD Foundation has some information on PANS, including two video public service announcements. http://ocfoundation.org/PANDAS/ Some other websites: www.pandasnetwork.org www.pandasresourcenetwork.org I have to go now, but please feel free to email me or post questions. I'm not on the board consistently anymore...pop in here and there. But am always willing to respond to anyone's specific questions if you shoot me an email. MY dd, now 10, was diagnosed with OCD when she was 7, PANDAS, when she was 8, then Lyme and Bartonella when she was 9. She has been treated with antibiotics for the last two for the past year and is almost 100%...sooooo close. We are hoping we can stop the medication soon. Kara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 I'm sorry to hear about your son. It is terrifying enough to watch your child have OCD, but I think even more so when it involves a refusal to eat...I only had to watch eating refusal very briefly with my daughter, but I can remember the feeling so viscerally. I am wondering whether, in all of the reading you have done, you have come across information on PANDAS and PANS. I strongly encourage you to look into these. PANDAS is when a strep infection causes a a faulty autoimmune reaction where antibodies attack the brain and cause neuropsych issues like OCD (think of it as rheumatic fever of the brain instead of the heart). PANS is a new term that recognizes infections beyond strep can cause OCD and other neuropsychiatric issues. In addition to strep, symptoms can include rages/depression/emotional lability, vocal/motor tics, ADHD like behavior, urinary issues, age regression, etc. Sudden onset eating disorders are a newly recognized symptoms of PANS. The best thing you can do to rule PANDAS/PANS out is to see a doctor that truly understands it. There are not very many...fewer than 10. Most are on the east coast. Most pediatricians know very little about it. But hopefully, your would be at least willing to run some initial tests, such as strep culture and strep blood tests. The International OCD Foundation has some information on PANS, including two video public service announcements. http://ocfoundation.org/PANDAS/ Some other websites: www.pandasnetwork.org www.pandasresourcenetwork.org I have to go now, but please feel free to email me or post questions. I'm not on the board consistently anymore...pop in here and there. But am always willing to respond to anyone's specific questions if you shoot me an email. MY dd, now 10, was diagnosed with OCD when she was 7, PANDAS, when she was 8, then Lyme and Bartonella when she was 9. She has been treated with antibiotics for the last two for the past year and is almost 100%...sooooo close. We are hoping we can stop the medication soon. Kara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 Hi Sunny, I'll be interested to hear the results of the evaluation. Looks like they know OCD! > > Hello, I am also new at OCD and my son was recently diagnosed (last week). He just turned 12. I am probably not the best person to recommend anybody but I will be taking my son this week to the > Neuro Behavioral Institute in Weston Florida, > (their website is nbiweston.com). I can let you know how it goes this week. He will be having an extensive evaluation with Dr. Hoffman and then we will decide if intensives are better for him or not. I do Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 Hi Sunny, I'll be interested to hear the results of the evaluation. Looks like they know OCD! > > Hello, I am also new at OCD and my son was recently diagnosed (last week). He just turned 12. I am probably not the best person to recommend anybody but I will be taking my son this week to the > Neuro Behavioral Institute in Weston Florida, > (their website is nbiweston.com). I can let you know how it goes this week. He will be having an extensive evaluation with Dr. Hoffman and then we will decide if intensives are better for him or not. I do Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 Hi Sunny, I'll be interested to hear the results of the evaluation. Looks like they know OCD! > > Hello, I am also new at OCD and my son was recently diagnosed (last week). He just turned 12. I am probably not the best person to recommend anybody but I will be taking my son this week to the > Neuro Behavioral Institute in Weston Florida, > (their website is nbiweston.com). I can let you know how it goes this week. He will be having an extensive evaluation with Dr. Hoffman and then we will decide if intensives are better for him or not. I do Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 Hi Sunny, Not sure if you've already been formally welcomed, but notice you mentioned you are new, so wanted to say hello and welcome. As says, keep us posted what you learn, and about the centre you will take your son to. Hope it goes well! warmly, Barb Son, 21, OCD, LD Plus > > > > Good Morning, > > My son, he is 11, was diagnosed in april with ocd and anxiety. He is convinced that everything he does is because he wants to commit suicide, from getting a drink to playing with his cousin. He initially started out with thoughts about loved ones getting hurt or killed and assumed he was a bad person and wanted it to happen because he was thinking it. Those have diminished some but now he is consumed with suicide. He also has a peanut allergy and now is convinced their are peanut germs everywhere and has started washing his hands. He has lost 12 pounds since April and has a difficult time eating because of the fear of peanut germs and afraid he is wanting to choke on his food, which leads to thinking he will commit suicide. We have been on prozac and just recently switched to Luvox. The therapist he has been seeing wants to do testing to rule out bipolar. His psychiatrist doesn't think that is an issue. We are starting with another therapist next week. > > It is heartbreaking to watch his decline. I am willing to take him anywhere to get help. Does anyone has suggestions?I have read many books and looked at many websites and they are starting to run together. We live in Kentucky and are willing to travel anywhere. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2012 Report Share Posted July 1, 2012 My son's Prozac is kicking in more each day - he's on 40 mg and it's now about 9 weeks, plus he was on high levels of Risperdone as well. He started getting so tired he couldn't do anything, and this was leading back into more anxiety. We've got the R. cut way down and are going to start cutting on the P. His energy levels are much better now, so he can stay busier and out of harm's way. I think if the dose is too high, it can backfire. Rhonda Re: new to ocd Hi, I am no expert of course, but I'd try lowering the dose back down. Some people actually get more relief on a lower dose and less at higher. But...if it hasn't been long since you reached the 50mg (less than 2 wks) you should probably wait to see if things " settle " cuz OCD can " act up " a little with dosage increases and then improvement comes. So I just gave you no answer, lol. I think it wouldn't hurt to try the lower dosage again cuz you can always increase it back up. I'll be interested to read what others say! > > Hello, my son recently switched from prozac to luvox. We started out of 25mg and after 7 days increased to 50mg. When we first switched we saw an improvement of about 90%, but after increasing to the 50mg we have noticed the symptoms are returning. Has anyone had anything like this happen before? Is this how OCD works and has nothing to do with the increase? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2012 Report Share Posted July 1, 2012 My son's Prozac is kicking in more each day - he's on 40 mg and it's now about 9 weeks, plus he was on high levels of Risperdone as well. He started getting so tired he couldn't do anything, and this was leading back into more anxiety. We've got the R. cut way down and are going to start cutting on the P. His energy levels are much better now, so he can stay busier and out of harm's way. I think if the dose is too high, it can backfire. Rhonda Re: new to ocd Hi, I am no expert of course, but I'd try lowering the dose back down. Some people actually get more relief on a lower dose and less at higher. But...if it hasn't been long since you reached the 50mg (less than 2 wks) you should probably wait to see if things " settle " cuz OCD can " act up " a little with dosage increases and then improvement comes. So I just gave you no answer, lol. I think it wouldn't hurt to try the lower dosage again cuz you can always increase it back up. I'll be interested to read what others say! > > Hello, my son recently switched from prozac to luvox. We started out of 25mg and after 7 days increased to 50mg. When we first switched we saw an improvement of about 90%, but after increasing to the 50mg we have noticed the symptoms are returning. Has anyone had anything like this happen before? Is this how OCD works and has nothing to do with the increase? > Quote Link to comment Share on other sites More sharing options...
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