Re: connection with OCD and stomach problems/food allergy/intoleranc

[Guest guest]

You dont actually have to test positive for celiac to have a gluten intolerance.

Many people have subtle syptmpoms or non GI symptoms and test negative but when

they eliminate gluten from the diet, the symptoms resolve. The only way to find

out is to try going gluten free for a month or so and see if symptoms go away. I

did it for mystery joint pain and will NEVER go back I felt so much better.

There also is the whole gut psychology syndrome thing also.

I am pretty sure my son is gluten intolterant , but there is NO WAY at 16 that

he will agree or go off gluten even to test it for a month to see if it helps.

Just my 2 cents- I think anyone who is willing to do a great, month long

experiment should give a total elimination diet a try (no gluten, dairy, eggs,

soy, peanuts, salicilates, nightshades) then add stuff back in and see what

bothrs you or recreates symptoms

[Guest guest]

, how long when you went gluten-free did it take to know a difference?

Just curious if it took a whole month, or you felt a difference in 2 weeks...?

I was also reading with food intolerances (not allergies) that fruit is

something to try eliminating too, due to fructose and also that many contain

salicylates?

>

> You dont actually have to test positive for celiac to have a gluten

intolerance. Many people have subtle syptmpoms or non GI symptoms and test

negative but when they eliminate gluten from the diet, the symptoms resolve.

The only way to find out is to try going gluten free for a month or so and see

if symptoms go away. I did it for mystery joint pain and will NEVER go back I

felt so much better. There also is the whole gut psychology syndrome thing also.

>

[Guest guest]

I did a total elimination diet for 1 month but felt GREAT after about 10 days. (

terrible for the first 4 or 5 days). I did the whole elimination diet thing for

a little over a month then started adding things back and it was very clear that

wheat made the difference- not sure if it is just wheat or gluten but I am not

playing with it any more. I also try to go light on dairy, but am not strict

about it.

Thinking of going back on the whole elimination diet again for the summer just

to " clean up " . I would love my OCD son to do it, but there is NO WAY I am

fighting that battle with a 16 year old

[Guest guest]

You might want to test spelt flour out to see if it's ok. I find wheat is more

the problem, but gluten is too. Spelt has less gluten and is an ancient grain,

there are others, just like spelt. Wheat has been modified so our bodies don't

know what to do with it, can read articles on this. Then they refine and bleach

it, so all bets are off really. I still eat it though, but stick to unbleached

white, when I can, bake with spelt. Go with the total load principle, at least

make it easier on the body. Our OCD son, 20, would benefit from elimination,

but no way he'll do it.

Our son had all kinds of allergies, grass, trees, cats, dust, foods.... Since

he started medication (ssri), and calmed the anxiety down, everything got

better. Again, think it's the total load idea, system is no longer over

reacting to everything,ie anxiety/OCD on hyper alert stressing the immune

system. Probably PANDAS/immune system issue of some kind going on long before we

knew anything about it, also impacting. Suspect more than one thing at play.

We've always done alternative medicine, and have some great docs here. One

treated our son for a brain virus (this was after onset of OCD). She insisted

he was healthy and should not have OCD. She had a different take on the immune

system re PANDAS, and believed in strengthening the body and immune system,

rather than treat with antibiotics, which she felt stressed the system (not

saying she is right). She claimed to be working at the DNA level to reset

system back to original state at birth. Whatever she did, I think it may have

turned back any PANDAS aspect, if it was there - nearest we were going to get to

any treatment for this. Yes, our son does still have OCD - she didn't cure it -

but we'd have to do more treatments to see...

All that to say, I think there are many aspects to all of this, and probably

many ways to address underlying issues/contributing factors. That's why this

group is so great - hear from others what they have tried and what helped! Keep

sharing these stories!!!

Barb

>

> I did a total elimination diet for 1 month but felt GREAT after about 10 days.

( terrible for the first 4 or 5 days). I did the whole elimination diet thing

for a little over a month then started adding things back and it was very clear

that wheat made the difference- not sure if it is just wheat or gluten but I am

not playing with it any more. I also try to go light on dairy, but am not

strict about it.

>

> Thinking of going back on the whole elimination diet again for the summer just

to " clean up " . I would love my OCD son to do it, but there is NO WAY I am

fighting that battle with a 16 year old

>

[Guest guest]

thank you mario,

i do think it would be good to try gluten free, or cut down,maybe just say we

are both trying out new diet as ive had IBS flare up really badly too for about

a week...........saying to my son he will be going gluten free is a no no! the

spelt bread is definatley nice but cant always find it here, but can make in

bread maker so must give that a tery too, thanks maree

>

> You dont actually have to test positive for celiac to have a gluten

intolerance. Many people have subtle syptmpoms or non GI symptoms and test

negative but when they eliminate gluten from the diet, the symptoms resolve.

The only way to find out is to try going gluten free for a month or so and see

if symptoms go away. I did it for mystery joint pain and will NEVER go back I

felt so much better. There also is the whole gut psychology syndrome thing also.

>

> I am pretty sure my son is gluten intolterant , but there is NO WAY at 16 that

he will agree or go off gluten even to test it for a month to see if it helps.

>

> Just my 2 cents- I think anyone who is willing to do a great, month long

experiment should give a total elimination diet a try (no gluten, dairy, eggs,

soy, peanuts, salicilates, nightshades) then add stuff back in and see what

bothrs you or recreates symptoms

>