Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 Hi , Thanks so much for checking in Not really any good news yet, but no more bad news either, so holding steady right now. They've taken him off Lexapro so we're praying that was the cause of his decreased appetite and weight loss and he'll start putting on weight again. They're weighing him 2x a week now, his weigh in is today so I''m crossing my fingers it hasn't gone down any. It's going to take awhile and it will get worse before it gets better. Especially with a kid like my son who is in such denial and is being pushed to face his issues, it's not surprising that his stress/anxiety and tics would increase. Trying to take things one day at a time now and be patient, but it is hard. > Hi , > Have you heard any good news yet? It might be too early - I'm so glad you spoke to the counselor - I figured they had seen it all. They also know these kiddos can't help it. > > > > > > > Thanks, . I am trying my best to take care of me, but it's hard. I did just by a Groupon for a facial and massage, yay me > > > > You are right about his surroundings making it worse. Here at home he was basically living in a little cocoon, shut off from everyone and everything. The slightest little thing, even here in the house, would send his stress/tics through the roof. Even listening to music became too difficult because any type of excitement (positive or negative) stressed him out and increased his tics. It was like he was wearing his entire nervous system on the outside of his skin! > > > > He was unexpectedly ripped from his cozy little cocoon, taken to a place halfway across the country where he didn't know anyone and where he can't just shut himself off from the world. He's doing well as far as socializing with the staff and his peers, so that is definitely a plus, but his tics are so constant and debilitating now and the bathroom issues are a huge problem. > > > > I felt a little better after speaking with one of the counselors last night. He assured me that they've " seen it all, " and they've dealt with way worse situations than my son's. > > > > > > > >= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012  You will NEVER regret all you are doing for your son! Hugs to you from Nebraska!  Christie  To: Sent: Thursday, March 29, 2012 9:12 AM Subject: Re: Any good news?  Hi , Thanks so much for checking in Not really any good news yet, but no more bad news either, so holding steady right now. They've taken him off Lexapro so we're praying that was the cause of his decreased appetite and weight loss and he'll start putting on weight again. They're weighing him 2x a week now, his weigh in is today so I''m crossing my fingers it hasn't gone down any. It's going to take awhile and it will get worse before it gets better. Especially with a kid like my son who is in such denial and is being pushed to face his issues, it's not surprising that his stress/anxiety and tics would increase. Trying to take things one day at a time now and be patient, but it is hard. > Hi , > Have you heard any good news yet? It might be too early - I'm so glad you spoke to the counselor - I figured they had seen it all. They also know these kiddos can't help it. > > > > > > > Thanks, . I am trying my best to take care of me, but it's hard. I did just by a Groupon for a facial and massage, yay me > > > > You are right about his surroundings making it worse. Here at home he was basically living in a little cocoon, shut off from everyone and everything. The slightest little thing, even here in the house, would send his stress/tics through the roof. Even listening to music became too difficult because any type of excitement (positive or negative) stressed him out and increased his tics. It was like he was wearing his entire nervous system on the outside of his skin! > > > > He was unexpectedly ripped from his cozy little cocoon, taken to a place halfway across the country where he didn't know anyone and where he can't just shut himself off from the world. He's doing well as far as socializing with the staff and his peers, so that is definitely a plus, but his tics are so constant and debilitating now and the bathroom issues are a huge problem. > > > > I felt a little better after speaking with one of the counselors last night. He assured me that they've " seen it all, " and they've dealt with way worse situations than my son's. > > > > > > > >= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 - I'm glad to hear this news too. You sound encouraged. Knowing he's in the hands of people who care about him and can help him get better is comforting. It must be different to be able to move around your house and do anything you want now without triggering your son. I'm wondering when that time will come at our house. hugs Rhonda Re: Any good news? Hi , Thanks so much for checking in Not really any good news yet, but no more bad news either, so holding steady right now. They've taken him off Lexapro so we're praying that was the cause of his decreased appetite and weight loss and he'll start putting on weight again. They're weighing him 2x a week now, his weigh in is today so I''m crossing my fingers it hasn't gone down any. It's going to take awhile and it will get worse before it gets better. Especially with a kid like my son who is in such denial and is being pushed to face his issues, it's not surprising that his stress/anxiety and tics would increase. Trying to take things one day at a time now and be patient, but it is hard. > Hi , > Have you heard any good news yet? It might be too early - I'm so glad you spoke to the counselor - I figured they had seen it all. They also know these kiddos can't help it. > > > > > > > Thanks, . I am trying my best to take care of me, but it's hard. I did just by a Groupon for a facial and massage, yay me > > > > You are right about his surroundings making it worse. Here at home he was basically living in a little cocoon, shut off from everyone and everything. The slightest little thing, even here in the house, would send his stress/tics through the roof. Even listening to music became too difficult because any type of excitement (positive or negative) stressed him out and increased his tics. It was like he was wearing his entire nervous system on the outside of his skin! > > > > He was unexpectedly ripped from his cozy little cocoon, taken to a place halfway across the country where he didn't know anyone and where he can't just shut himself off from the world. He's doing well as far as socializing with the staff and his peers, so that is definitely a plus, but his tics are so constant and debilitating now and the bathroom issues are a huge problem. > > > > I felt a little better after speaking with one of the counselors last night. He assured me that they've " seen it all, " and they've dealt with way worse situations than my son's. > > > > > > > >= > > Quote Link to comment Share on other sites More sharing options...
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