Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 I'm so sorry things are not going well. Although I'm very glad to hear she is eating. It's hard when they are not motivated. Our son was, and worked on many things, showing improvement, but we had to lower his meds and many new things have popped up and he says he is working on them, but we never see the evidence of that. It's frustrating! Motivators can be that you don't enable them with their OCD. It's hard to carry out because they can melt down over it. For instance, with hand washing (something we are dealing with here now too), I've told him he gets a certain amount of liquid soap in his bathroom and has to make it last. With the bed wetting, you can have her clean it up by washing the sheets and remaking the bed. Although, I do recall others in here mentioning that certain SSRI antidepressants caused bed wetting for their child, so if that is a new thing, it might be the medication rather than the OCD. Has she explained why she is bed wetting? I recall one person in here saying her son told her he knew he was doing it, but he just " couldn't " get up, because of OCD. But, if it is happening in her sleep, without any OCD thought attached to it, I would question if it's the meds. With reassurance, don't participate. That can be a hard one, because I find myself doing it without thinking sometimes. Then catch myself and stop myself. And when she does work on things, reward her. Find something she wants and encourage her to work towards getting it, with her cooperation. Have her make a list and work on the things on it. You can decide at what point she can achieve a reward for her efforts. Your analogy about the birds is heart breaking. I think we can all relate to that. :~( It's so hard to watch, I know. It makes us feel so helpless. Hugs, BJ > > Hello all, it's been a year or more since I've posted. My daughter was diagnosed 2 years ago and has been receiving CBT since. She's also run the med gamut. Zoloft at alarming levels and now Prozac at gradually increasing levels. The Zoloft worked " too well " and left her few symptoms to work on in therapy, but didn't decrease her anxiety level. The switch to Prozac has left her exactly where she began years ago. Scratch that, she is able to eat now. And having her not starving herself for fear of being poisoned seems like a luxury. However, the ever revolving door of symptoms has certainly kept me on my toes! (sorry, always looking for the silver lining) We have devolved into handwashing, spitting, bedwetting, reassurance rituals, checking, counting... check with me tomorrow, the list may be longer. I've done my homework. She needs to do the work herself, I get it but... does anyone have any ideas for motivators to encourage her to fight? I'm very discouraged and feeling as if all the therapy hasn't made a wick of difference. I feel as if I've brought into life this beautiful person who is being pecked to death by invisible birds. And I am helpless to stop it. Last year, when she was 9 she told me she " wants to die " because it would be easier. Her therapist suggested that I have her committed. I, of course, refused. I'm fearful that she's entering those pre-pubescent years (almost 11) and it's difficult enough to be a girl, without being " the weird girl " who counts her steps to the cafeteria while she spits into her shirt. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2011 Report Share Posted October 7, 2011 Knight, I'm sorry to hear your daughter is having such a rough time. Our daughter was diagnosed at the beginning of 8th grade and is now a junior. She's been on Lexapro 10 mcg for a little over 2 years now. It seems to work well for her and allows her to maintain and keep up her grades at school (she works really hard at doing well). Once in awhile though, in fact just last weekend, she had an anxiety attack before bed. She had forgotten to take her medicine that morning, and we went to a pumpkin patch where some of our group would pull pieces of hay out and stick them in their mouths. She actually went ahead and did it too with no problem, but I think by bedtime and being tired, OCD showed up to mess with her. Good for you on sticking with the CBT so long. We have never been able to find a good therapist who knew anything about OCD that we could afford because none of the trained ones in our area are on our insurance, plus she just wouldn't participate. Your daughter is entering the volatile world of middle school; does she have any close friends? I wish I could offer some support there; my daughter's friends pretty much abandoned her when we confided in them, so now she just kind of goes it alone. Debbie > > > > Hello all, it's been a year or more since I've posted. My daughter was diagnosed 2 years ago and has been receiving CBT since. She's also run the med gamut. Zoloft at alarming levels and now Prozac at gradually increasing levels. The Zoloft worked " too well " and left her few symptoms to work on in therapy, but didn't decrease her anxiety level. The switch to Prozac has left her exactly where she began years ago. Scratch that, she is able to eat now. And having her not starving herself for fear of being poisoned seems like a luxury. However, the ever revolving door of symptoms has certainly kept me on my toes! (sorry, always looking for the silver lining) We have devolved into handwashing, spitting, bedwetting, reassurance rituals, checking, counting... check with me tomorrow, the list may be longer. I've done my homework. She needs to do the work herself, I get it but... does anyone have any ideas for motivators to encourage her to fight? I'm very discouraged and feeling as if all the therapy hasn't made a wick of difference. I feel as if I've brought into life this beautiful person who is being pecked to death by invisible birds. And I am helpless to stop it. Last year, when she was 9 she told me she " wants to die " because it would be easier. Her therapist suggested that I have her committed. I, of course, refused. I'm fearful that she's entering those pre-pubescent years (almost 11) and it's difficult enough to be a girl, without being " the weird girl " who counts her steps to the cafeteria while she spits into her shirt. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2011 Report Share Posted October 7, 2011 I would question the meds - are they really working? Have you tried Luvox? That was the only one that didn't have side effects for my son. It sounds like the meds aren't giving her enough relief to allow her to start effective CBT. Its just too hard. Our therapist said that he once had a family turn off all the water in the house and just let the girl feel that intense anxiety all day - it worked. You aren't alone, there is light at the end of the tunnel. I would reevaluate the meds. > > Hello all, it's been a year or more since I've posted. My daughter was diagnosed 2 years ago and has been receiving CBT since. She's also run the med gamut. Zoloft at alarming levels and now Prozac at gradually increasing levels. The Zoloft worked " too well " and left her few symptoms to work on in therapy, but didn't decrease her anxiety level. The switch to Prozac has left her exactly where she began years ago. Scratch that, she is able to eat now. And having her not starving herself for fear of being poisoned seems like a luxury. However, the ever revolving door of symptoms has certainly kept me on my toes! (sorry, always looking for the silver lining) We have devolved into handwashing, spitting, bedwetting, reassurance rituals, checking, counting... check with me tomorrow, the list may be longer. I've done my homework. She needs to do the work herself, I get it but... does anyone have any ideas for motivators to encourage her to fight? I'm very discouraged and feeling as if all the therapy hasn't made a wick of difference. I feel as if I've brought into life this beautiful person who is being pecked to death by invisible birds. And I am helpless to stop it. Last year, when she was 9 she told me she " wants to die " because it would be easier. Her therapist suggested that I have her committed. I, of course, refused. I'm fearful that she's entering those pre-pubescent years (almost 11) and it's difficult enough to be a girl, without being " the weird girl " who counts her steps to the cafeteria while she spits into her shirt. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 It may be just too much to fight back on. Do you know for sure it is OCD and not Asperger or a Non verbal Learning disorder? Was she a typical kid at one point and then 2 years ago a major change. Or is it possible she has OCD and a learning disorder. That combination can make a kid really a mess and difficult to treat and difficult to motivate. Is it possible she needs a smaller school setting, more academic support, social skill support? I also did a DNA drug sensitivity test for my daughter to see what medications would work better for her. That helped too. Pam > > Hello all, it's been a year or more since I've posted. My daughter was diagnosed 2 years ago and has been receiving CBT since. She's also run the med gamut. Zoloft at alarming levels and now Prozac at gradually increasing levels. The Zoloft worked " too well " and left her few symptoms to work on in therapy, but didn't decrease her anxiety level. The switch to Prozac has left her exactly where she began years ago. Scratch that, she is able to eat now. And having her not starving herself for fear of being poisoned seems like a luxury. However, the ever revolving door of symptoms has certainly kept me on my toes! (sorry, always looking for the silver lining) We have devolved into handwashing, spitting, bedwetting, reassurance rituals, checking, counting... check with me tomorrow, the list may be longer. I've done my homework. She needs to do the work herself, I get it but... does anyone have any ideas for motivators to encourage her to fight? I'm very discouraged and feeling as if all the therapy hasn't made a wick of difference. I feel as if I've brought into life this beautiful person who is being pecked to death by invisible birds. And I am helpless to stop it. Last year, when she was 9 she told me she " wants to die " because it would be easier. Her therapist suggested that I have her committed. I, of course, refused. I'm fearful that she's entering those pre-pubescent years (almost 11) and it's difficult enough to be a girl, without being " the weird girl " who counts her steps to the cafeteria while she spits into her shirt. > Quote Link to comment Share on other sites More sharing options...
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