Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 , adding my thoughts to 's. If I can recall...I think your son is on an SSRI and you still had room to go up on dosage? Also that he may well be PANDAS? So...just some thoughts at this moment...I would give the current medication a good trial, dosage and all. Seek out PANDAS testing with bloodwork. I think in an earlier post you were going to ask about antibiotics to try? Some PANDAS parents have also mentioned some steroid med for a " test " , a positive reaction indicates PANDAS possible (?) They will correct me if they read this! (please) If you look at some PANDAS websites, they may have this info...could be in our FILES section too, in the PANDAS folder. Also inositol powder - which is much cheaper online - can be taken with an SSRI but you'd need a lower dose of it to sort of " boost " the SSRI effect (as opposed to only trying inositol powder alone, where dose might run higher). Anyway, you want to trial things one at a time to see what is actually helping. But I don't think that'd be a problem with antibiotics/other for PANDAS while trying the SSRI for a good trial period since he's already started it (if no adverse effects are occurring). I suggest this as you already started down this path, may as well give it a good trial to see before stopping too early and venturing towards other options. But also THERAPY (CBT with ERP) is still helpful if you can find a good therapist who does CBT with ERP, plus it's the proven treatment that works if your child is able to participate in it (i.e., severity of OCD). So meds, abx, therapy.... Maybe tell her you'd like to finish this route before dropping it to start something totally different. The amino acids and other supplements (which you never know til you try) have been beneficial for some people with OCD or other " problems " but I'd just pursue what I suggested above since they are still not fully " trialed, " especially since the expense is a problem to start her treatment plan. Though if you DO pursue it at some point, there may be some options for you that are less expensive in that area. A lot of parents here/other groups have talked about amino acids and the other and can probably help in that area. Just some quick thoughts, certainly I'm no expert either! > > , > > I'm not aware of evidence for the many drugs and supplements (except in case of PANDAS), but you might want to be sure he's had a thyroid blood test. And if he's truly eating way more than it would take to be more than skinny, you might want to consider blood tests for celiac disease. It's a long shot, but celiac can sometimes involve mental health symptoms. These would be tests that your son's pediatrician or family doctor (or possibly his psychiatrist) could discuss with you. Quote Link to comment Share on other sites More sharing options...
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