Re: Hello! Im new to the group...

[Guest guest]

Is she of a hyper reacter meaning tends to over react to much sensory

and or changes or sudden nosies like the fight and flight responses?

Neurologically for me i to rarily ever do the toe walking but it is

of in much of my reports from my past before dx that i to be of able

to find that were of my age of young adult to my 30's it states of me

being of toe walker so wehn for me when under duress I to find self

toe walking because of the neurology of me seems to be of distorted

and I to have no control over the thinking or responses or actions of

me when overloaded to the point of complete shut down within me.

I to find self sometimes but rare now to find self tow walking some

after a new pair of shoes are of taken off for a few days but it is

of only noted for a few minutes not like the full time of me doing

this after I to take off the shoes.

But I to often wonder on the toe walkers if most of them are of hyper

reactors or hypo reactors meaning they seem to not react to much in a

way that others can see of the internal response if they like or not

like of somethings.

Sondra

[Guest guest]

I'm not positive but I believe that an awful lot of toe walkers have

short hamstrings and stretching exercises (like runners do) can help.

That's what we do at our house.

-- Cassie

wrote:

> My name is and I have two beautiful little girls. My oldest

> Mia, who will be 7 in August has Autism. She has really made so much

> progress this year.

> Do any of you have any suggestions for toe walkers? She tip toes ALL

> THE TIME. We tried the brushing technique with her O.T. I just don't

> think I could consistantly keep it up here at home. She's not a small

> girl, so all of her 70 lbs is resting on those toes. She has callous's

> (m/s) and has the smoothest heels Any suggestions?

>

>

--

-- Cassie Zupke

Director, Open Doors Now

Click the link below to join our new Open Doors Now group information site to

access all our group news, calendar, forums, and current autism information.

http://www.bigtent.com/hosted/opndrs/invitation?hosted_key=a46063592584264652878\

e483a3a1cf2

[Guest guest]

--

Also, we just got a Wii Fit game. It really helps to make kids & adults

aware of where their center of balance is and how to improve balance &

stretch. We love it.

-- Cassie

wrote:

> My name is and I have two beautiful little girls. My oldest

> Mia, who will be 7 in August has Autism. She has really made so much

> progress this year.

> Do any of you have any suggestions for toe walkers? She tip toes ALL

> THE TIME. We tried the brushing technique with her O.T. I just don't

> think I could consistantly keep it up here at home. She's not a small

> girl, so all of her 70 lbs is resting on those toes. She has callous's

> (m/s) and has the smoothest heels Any suggestions?

>

>

--

-- Cassie Zupke

Director, Open Doors Now

Click the link below to join our new Open Doors Now group information site to

access all our group news, calendar, forums, and current autism information.

http://www.bigtent.com/hosted/opndrs/invitation?hosted_key=a46063592584264652878\

e483a3a1cf2

[Guest guest]

The two of my kids who toe-walked stopping doing it of their own accord

when they were about 9 or 10...they'd done it

since they started walking, and nothing that we did before that made any

difference at all (sensory, OT, brushing, stretching, ballet, gym etc)

.. After talking to a lot of autistic adults it seems that some of them

(at least) do it because they need the pressure on their feet to be able

to concentrate on what was going on around them.

I'm not sure that you can eradicate it- it might just be one of those

things that makes it easier for her to function. My kids loved brushing

and it used to seem that that's ALL that I did, but I can't say that it

had any effect on toe-walking :-)

Jen

Cassie Zupke wrote:

>

> I'm not positive but I believe that an awful lot of toe walkers have

> short hamstrings and stretching exercises (like runners do) can help.

> That's what we do at our house.

>

> -- Cassie

>

> wrote:

>

> > My name is and I have two beautiful little girls. My oldest

> > Mia, who will be 7 in August has Autism. She has really made so much

> > progress this year.

> > Do any of you have any suggestions for toe walkers? She tip toes ALL

> > THE TIME. We tried the brushing technique with her O.T. I just don't

> > think I could consistantly keep it up here at home. She's not a small

> > girl, so all of her 70 lbs is resting on those toes. She has callous's

> > (m/s) and has the smoothest heels Any suggestions?

> >

> >

>

> --

>

> -- Cassie Zupke

> Director, Open Doors Now

>

> Click the link below to join our new Open Doors Now group information

> site to access all our group news, calendar, forums, and current

> autism information.

>

>

http://www.bigtent.com/hosted/opndrs/invitation?hosted_key=a46063592584264652878\

e483a3a1cf2

>

<http://www.bigtent.com/hosted/opndrs/invitation?hosted_key=a4606359258426465287\

8e483a3a1cf2>

>

>

[Guest guest]

I toe walked till teenagerhood, and still do when stressed.

My hamstrings are not tight, in fact I am hypermobile, so not being able to go

flatfoot isn't a given (says the girl who can stand on a brick and touch the

floor, BELOW the brick, with flat hands. Seriously. The hamstrings are good).

What got me to put my heels down was gymnastics. Really. I had to put them down

to stop divebombing onto my face, and the habit from tumbling carried over to

how I walked gradually. If people made a big deal about it, though, it became

more pronounced because of the stress and anxiety.

Welcome to the group.

Kassiane

25/ASD

>

> Subject: Hello! I " m new to the group...

> To: Autism_in_Girls

> Date: Monday, July 21, 2008, 7:58 AM

> My name is and I have two beautiful little girls. My

> oldest

> Mia, who will be 7 in August has Autism. She has really

> made so much

> progress this year.

> Do any of you have any suggestions for toe walkers? She tip

> toes ALL

> THE TIME. We tried the brushing technique with her O.T. I

> just don't

> think I could consistantly keep it up here at home.

> She's not a small

> girl, so all of her 70 lbs is resting on those toes. She

> has callous's

> (m/s) and has the smoothest heels Any suggestions?

[Guest guest]

Hey , I'm Debi, mom to 11, 8, and 5 yr old girls, my 8 yr old

has autism.

Have you ever had her checked by an orthopedic doctor? I have heard of

abnormally tight/short tendons/muscles leading to this sort of thing,

worst case surgery done to clip them. I've heard about it most in

cerebral palsy, does she also have that diagnosis?

I agree toe-walking in & of itself isn't a big deal, but the wear &

tear to her abnormal gait *could* become something if she can't

stretch out her limbs properly. I would be though your OT would have

suggested a consult already, so I'm probably making a mountain out of

nothing.

HTH,

Debi

[Guest guest]

Actually, for me I think it was that my butt got too big for me to

balance on my toes anymore. My toe walking was defeated by gravity. :->

-- Cassie

Kassi wrote:

> I toe walked till teenagerhood, and still do when stressed.

>

> My hamstrings are not tight, in fact I am hypermobile, so not being

> able to go flatfoot isn't a given (says the girl who can stand on a

> brick and touch the floor, BELOW the brick, with flat hands.

> Seriously. The hamstrings are good).

>

> What got me to put my heels down was gymnastics. Really. I had to put

> them down to stop divebombing onto my face, and the habit from

> tumbling carried over to how I walked gradually. If people made a big

> deal about it, though, it became more pronounced because of the stress

> and anxiety.

>

> Welcome to the group.

>

> Kassiane

> 25/ASD

>

>

>

> > From: <mamamia_miasmommy@...

> <mailto:mamamia_miasmommy%40yahoo.com>>

> > Subject: Hello! I " m new to the group...

> > To: Autism_in_Girls

> <mailto:Autism_in_Girls%40yahoogroups.com>

> > Date: Monday, July 21, 2008, 7:58 AM

> > My name is and I have two beautiful little girls. My

> > oldest

> > Mia, who will be 7 in August has Autism. She has really

> > made so much

> > progress this year.

> > Do any of you have any suggestions for toe walkers? She tip

> > toes ALL

> > THE TIME. We tried the brushing technique with her O.T. I

> > just don't

> > think I could consistantly keep it up here at home.

> > She's not a small

> > girl, so all of her 70 lbs is resting on those toes. She

> > has callous's

> > (m/s) and has the smoothest heels Any suggestions?

>

>

--

-- Cassie Zupke

Director, Open Doors Now

Click the link below to join our new Open Doors Now group information site to

access all our group news, calendar, forums, and current autism information.

http://www.bigtent.com/hosted/opndrs/invitation?hosted_key=a46063592584264652878\

e483a3a1cf2

[Guest guest]

,

My Kaylin toe walked a lot when she first walked, but she is now 4-1/2 she

still toe walks from time to time, but only when she has no real place to go,

like if she is playing or just walking from one room to the next when she is

looking for something to do. I gave her foot massages when she was younger

thinking her feet were sensitive, I don't know if it helped, but she did like

them!

Angie

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

She has not been officially checked my a doctor, but her OT says she's not tight

and actually feel normal - she can walk flat and does on cue but it's only for a

short period of time. It's total sensory though, she will sometimes toe walk on

the tile and flat walk on the carpet. I was just hoping it was something she was

going to outgrow. The toe walking makes her fall behind when walking, almost

like a dragging.  Our little ballerina, she loves to spin while on her toes

Subject: Re: Hello! I " m new to the group...

To: Autism_in_Girls

Date: Tuesday, July 22, 2008, 1:11 AM

Hey , I'm Debi, mom to 11, 8, and 5 yr old girls, my 8 yr old

has autism.

Have you ever had her checked by an orthopedic doctor? I have heard of

abnormally tight/short tendons/muscles leading to this sort of thing,

worst case surgery done to clip them. I've heard about it most in

cerebral palsy, does she also have that diagnosis?

I agree toe-walking in & of itself isn't a big deal, but the wear &

tear to her abnormal gait *could* become something if she can't

stretch out her limbs properly. I would be though your OT would have

suggested a consult already, so I'm probably making a mountain out of

nothing.

HTH,

Debi

[Guest guest]

Our daughter outgrew toe walking for the most part on her own by age 4

or 5 (not 8 or 9). I do remember that she was not toe walking when she

went to school. The worst advice we had was from an orthopedic

surgeon, to put little casts on her ankles at about 2 yrs, 9 mos. He

thought that if she got out of the habit for a few weeks, it would go

away. Poor little thing tried to walk on her toes anyway, even with

the casts, and continued to do so after the casts were off.

[Guest guest]

Feet things are so strange. I've argued for a while about Allie ALWAYS

putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

she cannot tell which shoe goes on which foot, I've argued she likes

the way it feels; if she had no clue which goes on which foot she

should be getting it right about 50% of the time. She gets it right

ZERO percent of the time. I don't care, if it's comfortable for her,

what ever. I hate these little old ladies at the store, " Honey, don't

you know your little girl's shoes are on the wrong feet. Darlin,

better put your shoes on right... " Sometimes I just smile & go on.

I've asked a couple of times when I'm grumpy, " What does it matter

which shoes are on which feet? How will that impact your life in any

way? Did you ever consider she may LIKE them that way??? "

Grrr.

Debi

[Guest guest]

Hi. I'm new to the group and in one day I have learned sooooo much. Thank you

all so much for the information on fish oil and flax seed was it? What I

gathered was that our children take this for their " " " behaviorlike " " " " issues.

I think I read that somewhere. My daughter is 6 and currently on lamictal for

her petit mal seizures and respideral for her " " " behaviorlike " " " " issues. It

killed me to even accept to give that medication to her but I couldn't take

listening to the teacher about her disruptions in the classroom. November it

will be a year she has been on this drug, and boy has she packed on the pounds.

I will call the neurologist today to discuss other alternatives. Also, out of

curiosity as previously mentioned she is 6, she is in the specrtrum but high

functioning as they call like. She can read, write, and very affectionate. Boy

if she wasn't affectionate, I think I would be lost there with her. However, she

lacks basic concepts as dressing herself, she just can't get her coordination.

She does put on her shoes if their slip on's which are 95 percent on the wrong

foot. I try not to buy shoes with laces because she wouldn't know what to do

with those loose strings hanging from her feet. She is extremely emotional, she

can't see anyone cry, sad or angry because she will instantly develop the same

emotion at a higher level. She still baby talks and repeats every single

commercial, episode of spongebob or conversations that she hears. Sometimes when

she repeats things there applicable, many times not. With all this said my goal

in sharing this is do you all feel she should be in a mainstream classroom or in

a special autistic school? I really need your input. I live in a raggedy town

that has no autism related services she is getting the max special ed, pt ot and

speech that the district gets but its a disgrace what it is. There are other

autism schools in ct, but they need to be paid for by the district we live in

however if the district feels that they are giving her the services they aren't

paying for squat. Please don't say get a lawyer because there abou 5k, and after

paying 2k to have her seen by pediatric psycologist to diagnosis her so I have

some proof to bring to the district, that hasn't gotten me any further. I guess

I'm hoping to hear that many of your girls are in a mainstream classroom and are

doing ok. Or I'm looking to hear they are in an autism school doing great too. I

need help with this ladies, the next school year is approaching she will be

going into first grade and you know the older " " normal " " " kids get the crueler

they get with seeing any indifference. Please help! Sincerely, jessica lost in

ct

Sent via BlackBerry by AT & T

Re: Hello! I " m new to the group...

Feet things are so strange. I've argued for a while about Allie ALWAYS

putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

she cannot tell which shoe goes on which foot, I've argued she likes

the way it feels; if she had no clue which goes on which foot she

should be getting it right about 50% of the time. She gets it right

ZERO percent of the time. I don't care, if it's comfortable for her,

what ever. I hate these little old ladies at the store, " Honey, don't

you know your little girl's shoes are on the wrong feet. Darlin,

better put your shoes on right... " Sometimes I just smile & go on.

I've asked a couple of times when I'm grumpy, " What does it matter

which shoes are on which feet? How will that impact your life in any

way? Did you ever consider she may LIKE them that way??? "

Grrr.

Debi

[Guest guest]

,

Does your daughter have an IEP at school. I'm not sure if someone else will

have the information for your area, but most areas have child advocates that

can attend these meetings with you so that you can have help getting what is

best for your daughter and what she needs.

I have heard that many districts will go by what services they have

available, but the law reads that they have to provide the services that the

IEP team (and YOU are part of that team) determines that she needs. If it's

something they don't currently have then guess what? They MUST get it.

Of course often times teachers, and support staff are pressured into making

recommendations based on what the school/district can provide already. But

if you do your research and go in with a plan of action, and possibly even

with an advocate that can help you speak (those meetings can get so

emotional - I've left in tears more than once!) it may help.

I can't begin to say that I know which girls are, but I've read from at

least several of the parents that respond regularly that their daughter is

in a mainstream class now. My daughter is going into Kindergarten this year

and she will NOT be in a regular classroom, but it's not a special school

for Autism either. Actually she doesn't have an official diagnosis of Autism

yet, but even if she did, she is high functioning enough that she would not

benefit to be in the class that is all children with Autism as they usually

place the lower functioning kids in that class and focus is mostly on life

skills and not any acedemics. In speaking with her teachers last year, I

found out that our area does have a charter school that has a focus on

Autism as well, but again they are there for the lower to mid level

functioning and not high functioning or Aspergers. Our long term plan is to

have her in Special Ed class untill she can be intergrated in with the

regular classes. I have no clue when that will be, but I dont' have any

thoughts that it will happen within the next year. She need too much

direction and redirection to complete many simple tasks and I know that it

would be a real hinderance on a regular classroom. I believe that the next

step after Special Ed is having a one on one Para to help her. But again

it's all based on the individual child's needs.

If she doesn't have an IEP then that would be the first thing I would fight

for.

Good luck to you and Hang in there!

Theresa

>

> Hi. I'm new to the group and in one day I have learned sooooo much.

> Thank you all so much for the information on fish oil and flax seed was it?

> What I gathered was that our children take this for their

> " " " behaviorlike " " " " issues. I think I read that somewhere. My daughter is 6

> and currently on lamictal for her petit mal seizures and respideral for her

> " " " behaviorlike " " " " issues. It killed me to even accept to give that

> medication to her but I couldn't take listening to the teacher about her

> disruptions in the classroom. November it will be a year she has been on

> this drug, and boy has she packed on the pounds. I will call the neurologist

> today to discuss other alternatives. Also, out of curiosity as previously

> mentioned she is 6, she is in the specrtrum but high functioning as they

> call like. She can read, write, and very affectionate. Boy if she wasn't

> affectionate, I think I would be lost there with her. However, she lacks

> basic concepts as dressing herself, she just can't get her coordination. She

> does put on her shoes if their slip on's which are 95 percent on the wrong

> foot. I try not to buy shoes with laces because she wouldn't know what to do

> with those loose strings hanging from her feet. She is extremely emotional,

> she can't see anyone cry, sad or angry because she will instantly develop

> the same emotion at a higher level. She still baby talks and repeats every

> single commercial, episode of spongebob or conversations that she hears.

> Sometimes when she repeats things there applicable, many times not. With all

> this said my goal in sharing this is do you all feel she should be in a

> mainstream classroom or in a special autistic school? I really need your

> input. I live in a raggedy town that has no autism related services she is

> getting the max special ed, pt ot and speech that the district gets but its

> a disgrace what it is. There are other autism schools in ct, but they need

> to be paid for by the district we live in however if the district feels that

> they are giving her the services they aren't paying for squat. Please don't

> say get a lawyer because there abou 5k, and after paying 2k to have her seen

> by pediatric psycologist to diagnosis her so I have some proof to bring to

> the district, that hasn't gotten me any further. I guess I'm hoping to hear

> that many of your girls are in a mainstream classroom and are doing ok. Or

> I'm looking to hear they are in an autism school doing great too. I need

> help with this ladies, the next school year is approaching she will be going

> into first grade and you know the older " " normal " " " kids get the crueler they

> get with seeing any indifference. Please help! Sincerely, jessica lost in ct

>

> Sent via BlackBerry by AT & T

>

> Re: Hello! I " m new to the group...

>

>

> Feet things are so strange. I've argued for a while about Allie ALWAYS

> putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

> she cannot tell which shoe goes on which foot, I've argued she likes

> the way it feels; if she had no clue which goes on which foot she

> should be getting it right about 50% of the time. She gets it right

> ZERO percent of the time. I don't care, if it's comfortable for her,

> what ever. I hate these little old ladies at the store, " Honey, don't

> you know your little girl's shoes are on the wrong feet. Darlin,

> better put your shoes on right... " Sometimes I just smile & go on.

> I've asked a couple of times when I'm grumpy, " What does it matter

> which shoes are on which feet? How will that impact your life in any

> way? Did you ever consider she may LIKE them that way??? "

>

> Grrr.

>

> Debi

>

>

>

>

>

>

[Guest guest]

Hi ,

You may want to push for a one on one aide with her in the regular classroom.

This is done in our district frequently and works really well. The aid can

quietly prompt her when needed and step back a few feet when she is doing well.

HTH,

--------- Re: Hello! I " m new to the group...

>

>

> Feet things are so strange. I've argued for a while about Allie ALWAYS

> putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

> she cannot tell which shoe goes on which foot, I've argued she likes

> the way it feels; if she had no clue which goes on which foot she

> should be getting it right about 50% of the time. She gets it right

> ZERO percent of the time. I don't care, if it's comfortable for her,

> what ever. I hate these little old ladies at the store, " Honey, don't

> you know your little girl's shoes are on the wrong feet. Darlin,

> better put your shoes on right... " Sometimes I just smile & go on.

> I've asked a couple of times when I'm grumpy, " What does it matter

> which shoes are on which feet? How will that impact your life in any

> way? Did you ever consider she may LIKE them that way??? "

>

> Grrr.

>

> Debi

>

>

>

>

>

>

[Guest guest]

Hi,

I'm a pretty new member to this group, too. I enjoy reading the

posts and am learning a lot, as well.

I am an educator and have always worked in an inclusive setting, so I

realize that I am biased toward that philosophy. My personal belief

is that kids should be with their typical peers as much as possible

and as much as is appropriate. Let me also qualify by saying that

yes, I have also worked with students who spent a majority of their

time in the resource room because they weren't yet successful in the

general education classroom, but we always try to move toward

inclusion.

A student transferred to my school a couple of years ago, and she had

been basically self-contained for the most part. At that point, she

was apparently having meltdowns and only able to make one word

responses. A long story short... She is now caught up academically,

able to have conversations with peers (directly taught these skills

and still fairly scripted), beginning to express her feelings

(directly taught her how to use " I " Messages and that all feelings

are okay...some are comfortable and some are uncomfortable), has a

pretty good emotional vocabulary (directly taught this using

Mindreading Software and 5 point scales to show a range of emotion

words for happy, sad, angry etc.), and she really works well in the

classroom with others. She tunes into her peers, watches them, and

imitates what they do. Her classmates are truly role models for her

to learn appropriate ways to interact and get along with others. Her

mom and I sometimes laugh when she tries on " inappropriate " behaviors

too such as doodling like the boy next to her when she's supposed to

be listening or having a conversation with another student while

walking down the hall in a " quiet " line (yippee!) etc.

Recently, I went to a conference and one of the speakers offered up

the idea that we should be not be teaching to the expressive language

abilities of children on the autism spectrum, but rather to their

possible receptive language abilities. As I recall, I think it was

the speaker a Kluth who said that. Her website is:

www.paulakluth.com, and I own several of her books which are very

good. When kids are able to successfully be in their classrooms, the

richness of their educational experience seems to be so much

different, in my experience. To me, it's hard to replicate the

richness of a typical classroom environment in a resource room.

Those are my " two cents " ... I am interested in knowing what other

people think, too. Rhonda

>

> Hi. I'm new to the group and in one day I have learned sooooo much.

Thank you all so much for the information on fish oil and flax seed

was it? What I gathered was that our children take this for

their " " " behaviorlike " " " " issues. I think I read that somewhere. My

daughter is 6 and currently on lamictal for her petit mal seizures

and respideral for her " " " behaviorlike " " " " issues. It killed me to

even accept to give that medication to her but I couldn't take

listening to the teacher about her disruptions in the classroom.

November it will be a year she has been on this drug, and boy has she

packed on the pounds. I will call the neurologist today to discuss

other alternatives. Also, out of curiosity as previously mentioned

she is 6, she is in the specrtrum but high functioning as they call

like. She can read, write, and very affectionate. Boy if she wasn't

affectionate, I think I would be lost there with her. However, she

lacks basic concepts as dressing herself, she just can't get her

coordination. She does put on her shoes if their slip on's which are

95 percent on the wrong foot. I try not to buy shoes with laces

because she wouldn't know what to do with those loose strings hanging

from her feet. She is extremely emotional, she can't see anyone cry,

sad or angry because she will instantly develop the same emotion at a

higher level. She still baby talks and repeats every single

commercial, episode of spongebob or conversations that she hears.

Sometimes when she repeats things there applicable, many times not.

With all this said my goal in sharing this is do you all feel she

should be in a mainstream classroom or in a special autistic school?

I really need your input. I live in a raggedy town that has no autism

related services she is getting the max special ed, pt ot and speech

that the district gets but its a disgrace what it is. There are other

autism schools in ct, but they need to be paid for by the district we

live in however if the district feels that they are giving her the

services they aren't paying for squat. Please don't say get a lawyer

because there abou 5k, and after paying 2k to have her seen by

pediatric psycologist to diagnosis her so I have some proof to bring

to the district, that hasn't gotten me any further. I guess I'm

hoping to hear that many of your girls are in a mainstream classroom

and are doing ok. Or I'm looking to hear they are in an autism school

doing great too. I need help with this ladies, the next school year

is approaching she will be going into first grade and you know the

older " " normal " " " kids get the crueler they get with seeing any

indifference. Please help! Sincerely, jessica lost in ct

> Sent via BlackBerry by AT & T

>

> Re: Hello! I " m new to the group...

>

>

> Feet things are so strange. I've argued for a while about Allie

ALWAYS

> putting her shoes on the wrong feet (she'll be 9 this sat). Some

feel

> she cannot tell which shoe goes on which foot, I've argued she likes

> the way it feels; if she had no clue which goes on which foot she

> should be getting it right about 50% of the time. She gets it right

> ZERO percent of the time. I don't care, if it's comfortable for her,

> what ever. I hate these little old ladies at the store, " Honey,

don't

> you know your little girl's shoes are on the wrong feet. Darlin,

> better put your shoes on right... " Sometimes I just smile & go on.

> I've asked a couple of times when I'm grumpy, " What does it matter

> which shoes are on which feet? How will that impact your life in any

> way? Did you ever consider she may LIKE them that way??? "

>

> Grrr.

>

> Debi

>

>

>

>

>

>

>

[Guest guest]

I like to look at it like this. Assume she will be in general ed 100%

of the time. Now consider what her issues are. Outbursts? Why? Is it

that she doesn't understand group directions? Then she needs

individual directions. Is it that it's too loud? Consider preferential

seating, adding some rugs (yes if noise is the cause the school has an

obligation to address it before removing her), or giving her some

earphones. Is it color? Again, preferential seating, taking down some

colorful distractions, etc. Is it paperwork? Consider giving her a

wordbank & glue the words under appropriate headings, for

fill-in-space, etc. Consider giving her a keyboard instead of making

her physically write.

It is my understanding that the above is what IDEIA is all about, the

school understanding that is her place and adding in services as she

requires, and only after those services have been exhausted should she

then be in another room. However, what I see is that they want to keep

kids out of the room & put them in only when they are

indistinguishable from peers. That is wrong, wrong, wrong.

My daughter has been in over 50% inclusion, I finally said to pull her

when it became clear they would not make necessary modifications,

seemingly to provoke negative behavior. I'm torn between letting them

babysit her for a couple more years until I get through school and

being very, very angry about it all. I know my daughter can be

successful but know I cannot physically handle the stress of

constantly pushing for every little modification.

Debi

>

> Hi. I'm new to the group and in one day I have learned sooooo much.

Thank you all so much for the information on fish oil and flax seed

was it? What I gathered was that our children take this for their

" " " behaviorlike " " " " issues. I think I read that somewhere. My

daughter is 6 and currently on lamictal for her petit mal seizures and

respideral for her " " " behaviorlike " " " " issues. It killed me to even

accept to give that medication to her but I couldn't take listening to

the teacher about her disruptions in the classroom. November it will

be a year she has been on this drug, and boy has she packed on the

pounds. I will call the neurologist today to discuss other

alternatives. Also, out of curiosity as previously mentioned she is 6,

she is in the specrtrum but high functioning as they call like. She

can read, write, and very affectionate. Boy if she wasn't

affectionate, I think I would be lost there with her. However, she

lacks basic concepts as dressing herself, she just can't get her

coordination. She does put on her shoes if their slip on's which are

95 percent on the wrong foot. I try not to buy shoes with laces

because she wouldn't know what to do with those loose strings hanging

from her feet. She is extremely emotional, she can't see anyone cry,

sad or angry because she will instantly develop the same emotion at a

higher level. She still baby talks and repeats every single

commercial, episode of spongebob or conversations that she hears.

Sometimes when she repeats things there applicable, many times not.

With all this said my goal in sharing this is do you all feel she

should be in a mainstream classroom or in a special autistic school? I

really need your input. I live in a raggedy town that has no autism

related services she is getting the max special ed, pt ot and speech

that the district gets but its a disgrace what it is. There are other

autism schools in ct, but they need to be paid for by the district we

live in however if the district feels that they are giving her the

services they aren't paying for squat. Please don't say get a lawyer

because there abou 5k, and after paying 2k to have her seen by

pediatric psycologist to diagnosis her so I have some proof to bring

to the district, that hasn't gotten me any further. I guess I'm hoping

to hear that many of your girls are in a mainstream classroom and are

doing ok. Or I'm looking to hear they are in an autism school doing

great too. I need help with this ladies, the next school year is

approaching she will be going into first grade and you know the

older " " normal " " " kids get the crueler they get with seeing any

indifference. Please help! Sincerely, jessica lost in ct

> Sent via BlackBerry by AT & T

>

> Re: Hello! I " m new to the group...

>

>

> Feet things are so strange. I've argued for a while about Allie ALWAYS

> putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

> she cannot tell which shoe goes on which foot, I've argued she likes

> the way it feels; if she had no clue which goes on which foot she

> should be getting it right about 50% of the time. She gets it right

> ZERO percent of the time. I don't care, if it's comfortable for her,

> what ever. I hate these little old ladies at the store, " Honey, don't

> you know your little girl's shoes are on the wrong feet. Darlin,

> better put your shoes on right... " Sometimes I just smile & go on.

> I've asked a couple of times when I'm grumpy, " What does it matter

> which shoes are on which feet? How will that impact your life in any

> way? Did you ever consider she may LIKE them that way??? "

>

> Grrr.

>

> Debi

>

>

>

>

>

>

>

[Guest guest]

Thanks for responding. Jaliyah has outbursts, has truble with redirection which

is mostly when she has her tantrums. I did battle enough at her ppt so I guess I

should be fortunate enough where she does have her own para in class. They do

visual cues and timers so she has a heads up when her time is soon to be up. We

as mothers always want to do the best for our children which is probably just

driving me crazy. Thank u all for your input and clarity on a lot of things and

god bless

Sent via BlackBerry by AT & T

Re: Hello! I " m new to the group...

>

>

> Feet things are so strange. I've argued for a while about Allie ALWAYS

> putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

> she cannot tell which shoe goes on which foot, I've argued she likes

> the way it feels; if she had no clue which goes on which foot she

> should be getting it right about 50% of the time. She gets it right

> ZERO percent of the time. I don't care, if it's comfortable for her,

> what ever. I hate these little old ladies at the store, " Honey, don't

> you know your little girl's shoes are on the wrong feet. Darlin,

> better put your shoes on right... " Sometimes I just smile & go on.

> I've asked a couple of times when I'm grumpy, " What does it matter

> which shoes are on which feet? How will that impact your life in any

> way? Did you ever consider she may LIKE them that way??? "

>

> Grrr.

>

> Debi

>

>

>

>

>

>

>

[Guest guest]

Thanks for responding. Jaliyah has outbursts, has truble with redirection which

is mostly when she has her tantrums. I did battle enough at her ppt so I guess I

should be fortunate enough where she does have her own para in class. They do

visual cues and timers so she has a heads up when her time is soon to be up. We

as mothers always want to do the best for our children which is probably just

driving me crazy. Thank u all for your input and clarity on a lot of things and

god bless

Sent via BlackBerry by AT & T

Re: Hello! I " m new to the group...

>

>

> Feet things are so strange. I've argued for a while about Allie ALWAYS

> putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

> she cannot tell which shoe goes on which foot, I've argued she likes

> the way it feels; if she had no clue which goes on which foot she

> should be getting it right about 50% of the time. She gets it right

> ZERO percent of the time. I don't care, if it's comfortable for her,

> what ever. I hate these little old ladies at the store, " Honey, don't

> you know your little girl's shoes are on the wrong feet. Darlin,

> better put your shoes on right... " Sometimes I just smile & go on.

> I've asked a couple of times when I'm grumpy, " What does it matter

> which shoes are on which feet? How will that impact your life in any

> way? Did you ever consider she may LIKE them that way??? "

>

> Grrr.

>

> Debi

>

>

>

>

>

>

>

[Guest guest]

Thanks for responding. Jaliyah has outbursts, has truble with redirection which

is mostly when she has her tantrums. I did battle enough at her ppt so I guess I

should be fortunate enough where she does have her own para in class. They do

visual cues and timers so she has a heads up when her time is soon to be up. We

as mothers always want to do the best for our children which is probably just

driving me crazy. Thank u all for your input and clarity on a lot of things and

god bless

Sent via BlackBerry by AT & T

Re: Hello! I " m new to the group...

>

>

> Feet things are so strange. I've argued for a while about Allie ALWAYS

> putting her shoes on the wrong feet (she'll be 9 this sat). Some feel

> she cannot tell which shoe goes on which foot, I've argued she likes

> the way it feels; if she had no clue which goes on which foot she

> should be getting it right about 50% of the time. She gets it right

> ZERO percent of the time. I don't care, if it's comfortable for her,

> what ever. I hate these little old ladies at the store, " Honey, don't

> you know your little girl's shoes are on the wrong feet. Darlin,

> better put your shoes on right... " Sometimes I just smile & go on.

> I've asked a couple of times when I'm grumpy, " What does it matter

> which shoes are on which feet? How will that impact your life in any

> way? Did you ever consider she may LIKE them that way??? "

>

> Grrr.

>

> Debi

>

>

>

>

>

>

>

[Guest guest]

My mom put me into ballet when I was 7. The five dance steps I had to learn

taught me to put my heels down. I still toe walked though and have a curves

spine as a result. I hated shoes and when given ones to wear with stiff soles

would refuse to walk. I did have a lot of problems with digestion and my bowel

movements until I was 27 were on a week to bi-week basis and I was very very

tiny, weighin in at under a 100 pounds for most of my life.

 

http://speakup.today.com

 

Please support my efforts to raise the awareness of autism by visiting my blog.

Thank you in advance.

 

Autistic Jessie

> From: <mamamia_miasmommy@ yahoo.com>

> Subject: Hello! I " m new to the group...

> To: Autism_in_Girls@ yahoogroups. com

> Date: Monday, July 21, 2008, 7:58 AM

> My name is and I have two beautiful little girls. My

> oldest

> Mia, who will be 7 in August has Autism. She has really

> made so much

> progress this year.

> Do any of you have any suggestions for toe walkers? She tip

> toes ALL

> THE TIME. We tried the brushing technique with her O.T. I

> just don't

> think I could consistantly keep it up here at home.

> She's not a small

> girl, so all of her 70 lbs is resting on those toes. She

> has callous's

> (m/s) and has the smoothest heels Any suggestions?

[Guest guest]

My mom put me into ballet when I was 7. The five dance steps I had to learn

taught me to put my heels down. I still toe walked though and have a curves

spine as a result. I hated shoes and when given ones to wear with stiff soles

would refuse to walk. I did have a lot of problems with digestion and my bowel

movements until I was 27 were on a week to bi-week basis and I was very very

tiny, weighin in at under a 100 pounds for most of my life.

 

http://speakup.today.com

 

Please support my efforts to raise the awareness of autism by visiting my blog.

Thank you in advance.

 

Autistic Jessie

> From: <mamamia_miasmommy@ yahoo.com>

> Subject: Hello! I " m new to the group...

> To: Autism_in_Girls@ yahoogroups. com

> Date: Monday, July 21, 2008, 7:58 AM

> My name is and I have two beautiful little girls. My

> oldest

> Mia, who will be 7 in August has Autism. She has really

> made so much

> progress this year.

> Do any of you have any suggestions for toe walkers? She tip

> toes ALL

> THE TIME. We tried the brushing technique with her O.T. I

> just don't

> think I could consistantly keep it up here at home.

> She's not a small

> girl, so all of her 70 lbs is resting on those toes. She

> has callous's

> (m/s) and has the smoothest heels Any suggestions?