Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Hi all, So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 Oh, you have got the biggest support system in the world right here, and I know I speak for all members of this board by saying everyone is praying for you and your son. Please keep the updates coming, as we all feel very vested in his well being and recovery. Kind Regards, ________________________________ To: Sent: Friday, March 16, 2012 4:50 PM Subject: Update from  Hi all, So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 , I truely believe the worst is behind you....better days are ahead for everyone. Keeping you in our prayers along with the special people there seems to be at - It sounds like he is exactly where he needs to be to get well - which he will! Thanks for letting us know how it went... > > Hi all, > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 I am new to this board and haven't commented before but I just want to add to the comments how proud I am of all you did to hang in there through that whole long day! What resourcefulness and determination --- my heart was pounding and I wasn't even there! I can tell how much you love your son and what it means to know he is with people who are trained to treat his condition and bring HIM back. My son is 17 - just a little older than yours - and has some extreme issues also -- I'm so encouraged by your grit and determination not to give up! I hope to be asking some questions here but I have so many I haven't sorted out which ones to ask yet!! Rhonda Update from Hi all, So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Wow, Rhonda, I am so sorry you have had to deal with this and your son has, it sounds so incredibly difficult for both of you!!! But I am thrilled to hear about the therapist working with him, it sounds like things are definitely looking up, that is wonderful!! How old is your son? I will definitely check out that book you mention, it is astounding what OCD and other mental disorders can do to the mind and how quickly they can take over and make the children we once knew all but disappear. I hope your son continues on his road to recovery and it sounds like he is ready and willing to do that. Hugs, > My son is about where yours was a year ago - and I've gone through the same route of totally not being able to comprehend how fast OCD can take over. We also saw some " signs " but also hoped it was a " phase. " We had other family issues that took priority (WRONG!). > > My son is now housebound - will not go out because he doesn't want to do all the cleaning rituals when he comes home. Won't change clothes because doesn't want to clean new clothes. Still functional in terms of sitting using his laptop all his waking hours, but stays up for 30 hours at a time, then sleeps 16-17 hours. We thank God that we have a therapist who has come to our home to work with him and begin ERP. Son has done ERP 3 times now and is asking for it every day. THANK GOD!! So far he has rubbed his pant leg against his desk. It looks like a very long, long road ahead, but AT LEAST WE ARE GOING UP, NOT DOWN! > > If you read the book " Life in Rewind " you will see a picture as dark as it can get, yet that guy recovered. It all came down to when HE realized it was up to HIM. No one could rescue him. Our therapist has worked that way from the beginning. It's up to my son to make up HIS mind as to what he wants his life to be. Hope I'm not on a soapbox - it has taken me a long time to get here. > > warmly > Rhonda > > Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Wow, Rhonda, I am so sorry you have had to deal with this and your son has, it sounds so incredibly difficult for both of you!!! But I am thrilled to hear about the therapist working with him, it sounds like things are definitely looking up, that is wonderful!! How old is your son? I will definitely check out that book you mention, it is astounding what OCD and other mental disorders can do to the mind and how quickly they can take over and make the children we once knew all but disappear. I hope your son continues on his road to recovery and it sounds like he is ready and willing to do that. Hugs, > My son is about where yours was a year ago - and I've gone through the same route of totally not being able to comprehend how fast OCD can take over. We also saw some " signs " but also hoped it was a " phase. " We had other family issues that took priority (WRONG!). > > My son is now housebound - will not go out because he doesn't want to do all the cleaning rituals when he comes home. Won't change clothes because doesn't want to clean new clothes. Still functional in terms of sitting using his laptop all his waking hours, but stays up for 30 hours at a time, then sleeps 16-17 hours. We thank God that we have a therapist who has come to our home to work with him and begin ERP. Son has done ERP 3 times now and is asking for it every day. THANK GOD!! So far he has rubbed his pant leg against his desk. It looks like a very long, long road ahead, but AT LEAST WE ARE GOING UP, NOT DOWN! > > If you read the book " Life in Rewind " you will see a picture as dark as it can get, yet that guy recovered. It all came down to when HE realized it was up to HIM. No one could rescue him. Our therapist has worked that way from the beginning. It's up to my son to make up HIS mind as to what he wants his life to be. Hope I'm not on a soapbox - it has taken me a long time to get here. > > warmly > Rhonda > > Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Thanks for your encouragement, !! I love how supportive folks are on this list. My son is 17 and we did not get him on medication before he decided he would not leave the house -- and the clothing issue has made it even more difficult. We are using Vitamin B, SAM-E and St. 's Wort to try to affect his mood some, but I keep wondering if things would move faster if he could try some meds. However I haven't thought of a way for him to even see a doctor. Our county mental health center will not do home visits for minors. Plus once all those medical instruments - and doctor - have touched him, he will have to clean until he drops from exhaustion. I would appreciate any thoughts or ideas! Rhonda Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Thanks for your encouragement, !! I love how supportive folks are on this list. My son is 17 and we did not get him on medication before he decided he would not leave the house -- and the clothing issue has made it even more difficult. We are using Vitamin B, SAM-E and St. 's Wort to try to affect his mood some, but I keep wondering if things would move faster if he could try some meds. However I haven't thought of a way for him to even see a doctor. Our county mental health center will not do home visits for minors. Plus once all those medical instruments - and doctor - have touched him, he will have to clean until he drops from exhaustion. I would appreciate any thoughts or ideas! Rhonda Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 , I was delighted to see your post -- you and your son have been in my thoughts all week long. I think everyone here feels an almost personal connection to you and your situation. So happy to hear that you made it to -- you have absoutly done the right thing. I hope that you will be able to take some much-needed time for yourself, now that you have some breathing room. Sending positive thoughts your way, Lee in CA Update from Hi all, So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 , I was delighted to see your post -- you and your son have been in my thoughts all week long. I think everyone here feels an almost personal connection to you and your situation. So happy to hear that you made it to -- you have absoutly done the right thing. I hope that you will be able to take some much-needed time for yourself, now that you have some breathing room. Sending positive thoughts your way, Lee in CA Update from Hi all, So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Thanks so much, Lee! I am slowly getting used to a new " normal " here without my son. Went to the salon to get my hair done today, something I haven't done in well over 6 months! > > , > I was delighted to see your post -- you and your son have been in my thoughts all week long. I think everyone here feels an almost personal connection to you and your situation. So happy to hear that you made it to -- you have absoutly done the right thing. I hope that you will be able to take some much-needed time for yourself, now that you have some breathing room. > Sending positive thoughts your way, > Lee in CA > > Update from > > Hi all, > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 I had severe OCD at the age of your son that got worse and worse until I finally got on medication. The difference once I got on medication was near miraculous. Back then the only medication available (and I had to travel out of country to Canada to get it) was Anafranil. My 12 year old twins have OCD and both have done so much better on medication. Re: Update from Thanks for your encouragement, !! I love how supportive folks are on this list. My son is 17 and we did not get him on medication before he decided he would not leave the house -- and the clothing issue has made it even more difficult. We are using Vitamin B, SAM-E and St. 's Wort to try to affect his mood some, but I keep wondering if things would move faster if he could try some meds. However I haven't thought of a way for him to even see a doctor. Our county mental health center will not do home visits for minors. Plus once all those medical instruments - and doctor - have touched him, he will have to clean until he drops from exhaustion. I would appreciate any thoughts or ideas! Rhonda Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 I had severe OCD at the age of your son that got worse and worse until I finally got on medication. The difference once I got on medication was near miraculous. Back then the only medication available (and I had to travel out of country to Canada to get it) was Anafranil. My 12 year old twins have OCD and both have done so much better on medication. Re: Update from Thanks for your encouragement, !! I love how supportive folks are on this list. My son is 17 and we did not get him on medication before he decided he would not leave the house -- and the clothing issue has made it even more difficult. We are using Vitamin B, SAM-E and St. 's Wort to try to affect his mood some, but I keep wondering if things would move faster if he could try some meds. However I haven't thought of a way for him to even see a doctor. Our county mental health center will not do home visits for minors. Plus once all those medical instruments - and doctor - have touched him, he will have to clean until he drops from exhaustion. I would appreciate any thoughts or ideas! Rhonda Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 , i have tears of relief and of sadness for you, how you have managed to do this and get him to a safe place and kept your strength, its amazing, you have inspired all of us here to keep going, hoping you get some news of small improvements in the coming weeks, maree > > Thanks so much, Lee! I am slowly getting used to a new " normal " here without my son. Went to the salon to get my hair done today, something I haven't done in well over 6 months! > > > > > > > > , > > I was delighted to see your post -- you and your son have been in my thoughts all week long. I think everyone here feels an almost personal connection to you and your situation. So happy to hear that you made it to -- you have absoutly done the right thing. I hope that you will be able to take some much-needed time for yourself, now that you have some breathing room. > > Sending positive thoughts your way, > > Lee in CA > > > > Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 , i have tears of relief and of sadness for you, how you have managed to do this and get him to a safe place and kept your strength, its amazing, you have inspired all of us here to keep going, hoping you get some news of small improvements in the coming weeks, maree > > Thanks so much, Lee! I am slowly getting used to a new " normal " here without my son. Went to the salon to get my hair done today, something I haven't done in well over 6 months! > > > > > > > > , > > I was delighted to see your post -- you and your son have been in my thoughts all week long. I think everyone here feels an almost personal connection to you and your situation. So happy to hear that you made it to -- you have absoutly done the right thing. I hope that you will be able to take some much-needed time for yourself, now that you have some breathing room. > > Sending positive thoughts your way, > > Lee in CA > > > > Update from > > > > Hi all, > > > > So sorry I couldn't post earlier. I tried a few times but for some reason it bounced back via webmail. > > > > Well.......I am back home now, just flew in this evening. My son is now at 's, and not a moment too soon! I'm glad I prepped myself mentally for a nightmare ordeal getting him there because it definitely was one. From beginning to end, every step of the way he was extremely difficult to deal with. > > > > The MD did an amazing job with the " intervention " on Tuesday morning, but I don't think anyone could have done a good enough job for my son not to completely flip out about going. Despite giving him Ativan and later on some Valium, neither one phased him in the least or helped with his major anxiety/stress. > > > > On top of everything else, on the way to the airport a crane toppled over on the main highway so we had to sit for an hour not moving and barely made our plan on time. Meanwhile, my son peed all over the back seat of my car so we had to pull off the highway and I had to run in the store and get a dishrag, soap and water to clean it because I was leaving the car in the parking garage for 3 days in very warm weather. > > > > Every step of the way, my son didn't want to get in our out of the car, then once he finally got out at the airport he sat down on the ground in the parking lot. If my STBX husband wasn't there, there's no way I could have handled it on my own. Even with the two of us it was almost impossible! > > > > When we got to the terminal, I grabbed a wheelchair and that was a lifesaver because an attendant pushed the wheelchair so my son wasn't going to try anything with someone else pushing. We get through security and I realize I left my cell phone in the car. I go running top speed to the parking lot and back, and after I come back I find out that while I was gone who do they pick out to pat down??? My son in the wheelchair!! Totally freaked him out and he was already so stressed to begin with! > > > > The next morning, we finally got him to 's then he wouldn't get out of the car. Eventually he did get out and the program Director came outside to talk with him and start the process. We were SO impressed with how he handled it! My son was sitting on the bench outside, so the directory immediately got down on one knee to be at eye level with him and started talking. I was blown away with how he was able to really connect with my son despite his terrible state. > > > > Eventually he signed the paperwork and was admitted.The process was pretty long, so he mostly sat in a chair outside in the hall or laid on one of the sofas while my husband and I met and talked with everyone. At one point I got up to go out in the hall and check on my son. He was sitting in a chair and I look down and his shorts are soaking wet, he had peed in the chair!! One one hand I was mortified, but on the other hand I was glad that it happened right as we were admitting him so they could see first-hand. As usual, he insisted it was water. > > > > He is miserable there now, but that's to be expected. He's having a terrible time with his tics, but that's to be expected as well from the stress of the whole thing. Even under the best of circumstances it's a huge adjustment for any teenager to be away from home, but especially under these circumstances. > > > > So far, we are VERY impressed with all the staff, the facility and the whole operation. They do not seem to leave any stone unturned there when it comes to getting every minute detail about the kids during admitting. I think in my son's case it will be a pretty long haul because despite the fact that he's wasted away to nothing, is peeing all over the place, and living the life of a complete recluse, he still insists that there is " nothing wrong with him, " and said the same to his psychiatrist and therapist. He is in such SEVERE denial in every respect that to get him to the point of recognizing and acknowledging he has issues will be no easy feat. Then, and only then, will he be able to begin the work with CBT, ERP, etc. to get to the point of eventually being able to return home. > > > > Coming home to a childless home this evening and walking by my son's empty room was so very difficult and heartbreaking. I have been living on high-alert 24/7 for such a long time now dealing with my son that my nervous system became accustomed to that and it's going to be really tough making such a big adjustment to almost an opposite extreme. I'm trying to take things one day at a time now, it's the only way to do this. I just hope and pray that my son's case is not too complex or too advanced at this point for 's to help him. > > > > I was thinking of you all while i was there and remembering all of your words of support and encouragement, and it truly helped me get through this awful ordeal. Thanks SO much again, from the bottom of my heart! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 How wonderful to read your update . Such positive things happening for you and your son!!! Just wanted to say the secretive part is pretty common, esp with teens. Most in our local support group have same issue. Hard to do therapy when they won't talk Happy Birthday to your son, hope it's another good visit! These big dates kind of become etched in the memory, with this disorder helping mark the dates, in terms of how they are doing, I find. Interesting about the tics. Heard others say they found they were actually rituals. Probably some overlap, I'm guessing. Must have been something to see Dave perform. What a great guy. Loved him on Idol. My fingers and toes will be crossed for you about the insurance!!! Hope you are making the most of you " freedom " from the OCD, good to rest up and regroup. Your son is very wise about attending a boarding school. So hard to maintain the gains once they leave. Warmly, Barb > > Hi all, > > So sorry I haven't posted in a while. Juggling WAY too many things at once and finding it difficult to come up for air! The good news is that my son is continuing to show improvement and make progress at 's. He's come such a long way since he was admitted almost 3 months ago. They truly are miracle workers there! > > He still has a ways to go and one of the things that has been a challenge is that a big part of his OCD is keeping his OCD a secret. In other words, he's told his doctor that if he divulges much of what is driving his OCD then he'll have bad luck, so he has to keep a lot of his OCD a secret! He is starting to give little bits and pieces here and there, but he's definitely a complex kid! > > His tics have gone way down, thank God, and it's seeming now that his tics are more of a " ritual " than they are just neurological. I think the combination of the meds and the therapy and becoming acclimated to his surroundings, peers and treatment team, have all contributed to lessening his tics. I visited him this past weekend and his tics were really minimal. He was able to stay out with me for 8 hours 2 days in a row, which was HUGE! Granted, it was a struggle and he kept fixating on having to go back to do his tics, but with my encouragement and not enabling him he was able to push through. > > Next visit will be the end of this month for my son's 16th birthday! Oh, and get this.....he actually told his doctor yesterday that he's very concerned about coming home because home is where this all began and he realizes that it would be extremely difficult for him to function without the support of his treatment team and his peers. He then told his doctor that he's very interested in going to therapeutic boarding school. I cannot tell you how blown away I am at how insightful and honest he is about his concerns! > > We're still not totally out of the woods with the Blue Cross situation and today was the review, so I'm praying that they did not request another peer to peer and that we won't have to deal with another denial at this juncture! > > Last, but not least, I was SO thrilled to be a part of coordinating a performance at 's by former American Idol contestant, Dave Pittman this past Friday. Dave has Tourette's and does a lot of work with TSA. I met him at the TSA conference a few months ago and then found out he was planning to visit Wisconsin so I was able to help arrange for him to make a stop at 's to perform. He and his manager are the nicest guys ever and nearly 100 residents and staff from different programs at 's attended Dave's performance. http://www.rogershospital.org/news/american-idol's-dave-pittman-thanks-rogers- " a\ mazing " -work > > After the performance, I tagged along on a tour of 's, which was awesome. It really is an amazing place and if it wasn't so darn freezing there in the winters, I'd seriously consider moving there to get a job at 's! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 How wonderful to read your update . Such positive things happening for you and your son!!! Just wanted to say the secretive part is pretty common, esp with teens. Most in our local support group have same issue. Hard to do therapy when they won't talk Happy Birthday to your son, hope it's another good visit! These big dates kind of become etched in the memory, with this disorder helping mark the dates, in terms of how they are doing, I find. Interesting about the tics. Heard others say they found they were actually rituals. Probably some overlap, I'm guessing. Must have been something to see Dave perform. What a great guy. Loved him on Idol. My fingers and toes will be crossed for you about the insurance!!! Hope you are making the most of you " freedom " from the OCD, good to rest up and regroup. Your son is very wise about attending a boarding school. So hard to maintain the gains once they leave. Warmly, Barb > > Hi all, > > So sorry I haven't posted in a while. Juggling WAY too many things at once and finding it difficult to come up for air! The good news is that my son is continuing to show improvement and make progress at 's. He's come such a long way since he was admitted almost 3 months ago. They truly are miracle workers there! > > He still has a ways to go and one of the things that has been a challenge is that a big part of his OCD is keeping his OCD a secret. In other words, he's told his doctor that if he divulges much of what is driving his OCD then he'll have bad luck, so he has to keep a lot of his OCD a secret! He is starting to give little bits and pieces here and there, but he's definitely a complex kid! > > His tics have gone way down, thank God, and it's seeming now that his tics are more of a " ritual " than they are just neurological. I think the combination of the meds and the therapy and becoming acclimated to his surroundings, peers and treatment team, have all contributed to lessening his tics. I visited him this past weekend and his tics were really minimal. He was able to stay out with me for 8 hours 2 days in a row, which was HUGE! Granted, it was a struggle and he kept fixating on having to go back to do his tics, but with my encouragement and not enabling him he was able to push through. > > Next visit will be the end of this month for my son's 16th birthday! Oh, and get this.....he actually told his doctor yesterday that he's very concerned about coming home because home is where this all began and he realizes that it would be extremely difficult for him to function without the support of his treatment team and his peers. He then told his doctor that he's very interested in going to therapeutic boarding school. I cannot tell you how blown away I am at how insightful and honest he is about his concerns! > > We're still not totally out of the woods with the Blue Cross situation and today was the review, so I'm praying that they did not request another peer to peer and that we won't have to deal with another denial at this juncture! > > Last, but not least, I was SO thrilled to be a part of coordinating a performance at 's by former American Idol contestant, Dave Pittman this past Friday. Dave has Tourette's and does a lot of work with TSA. I met him at the TSA conference a few months ago and then found out he was planning to visit Wisconsin so I was able to help arrange for him to make a stop at 's to perform. He and his manager are the nicest guys ever and nearly 100 residents and staff from different programs at 's attended Dave's performance. http://www.rogershospital.org/news/american-idol's-dave-pittman-thanks-rogers- " a\ mazing " -work > > After the performance, I tagged along on a tour of 's, which was awesome. It really is an amazing place and if it wasn't so darn freezing there in the winters, I'd seriously consider moving there to get a job at 's! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 Wow, this is the best chapter yet!! You are a hero and so is your son. It must have been wonderful to spend so much time with him!! Rhonda Update from Hi all, So sorry I haven't posted in a while. Juggling WAY too many things at once and finding it difficult to come up for air! The good news is that my son is continuing to show improvement and make progress at 's. He's come such a long way since he was admitted almost 3 months ago. They truly are miracle workers there! He still has a ways to go and one of the things that has been a challenge is that a big part of his OCD is keeping his OCD a secret. In other words, he's told his doctor that if he divulges much of what is driving his OCD then he'll have bad luck, so he has to keep a lot of his OCD a secret! He is starting to give little bits and pieces here and there, but he's definitely a complex kid! His tics have gone way down, thank God, and it's seeming now that his tics are more of a " ritual " than they are just neurological. I think the combination of the meds and the therapy and becoming acclimated to his surroundings, peers and treatment team, have all contributed to lessening his tics. I visited him this past weekend and his tics were really minimal. He was able to stay out with me for 8 hours 2 days in a row, which was HUGE! Granted, it was a struggle and he kept fixating on having to go back to do his tics, but with my encouragement and not enabling him he was able to push through. Next visit will be the end of this month for my son's 16th birthday! Oh, and get this.....he actually told his doctor yesterday that he's very concerned about coming home because home is where this all began and he realizes that it would be extremely difficult for him to function without the support of his treatment team and his peers. He then told his doctor that he's very interested in going to therapeutic boarding school. I cannot tell you how blown away I am at how insightful and honest he is about his concerns! We're still not totally out of the woods with the Blue Cross situation and today was the review, so I'm praying that they did not request another peer to peer and that we won't have to deal with another denial at this juncture! Last, but not least, I was SO thrilled to be a part of coordinating a performance at 's by former American Idol contestant, Dave Pittman this past Friday. Dave has Tourette's and does a lot of work with TSA. I met him at the TSA conference a few months ago and then found out he was planning to visit Wisconsin so I was able to help arrange for him to make a stop at 's to perform. He and his manager are the nicest guys ever and nearly 100 residents and staff from different programs at 's attended Dave's performance. http://www.rogershospital.org/news/american-idol’s-dave-pittman-thanks-rogers-“a\ mazing”-work After the performance, I tagged along on a tour of 's, which was awesome. It really is an amazing place and if it wasn't so darn freezing there in the winters, I'd seriously consider moving there to get a job at 's! ------------------------------------ Our list ARCHIVES feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our LINKS may be accessed at http://health.groups.yahoo.com/group//links . Our FILES may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Dr. , Psychiatrist, and Tamar Chansky, Ph.D. ( http://www.worrywisekids.org ) You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Barb Nesrallah and Becky Reynolds. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 Wow, this is the best chapter yet!! You are a hero and so is your son. It must have been wonderful to spend so much time with him!! Rhonda Update from Hi all, So sorry I haven't posted in a while. Juggling WAY too many things at once and finding it difficult to come up for air! The good news is that my son is continuing to show improvement and make progress at 's. He's come such a long way since he was admitted almost 3 months ago. They truly are miracle workers there! He still has a ways to go and one of the things that has been a challenge is that a big part of his OCD is keeping his OCD a secret. In other words, he's told his doctor that if he divulges much of what is driving his OCD then he'll have bad luck, so he has to keep a lot of his OCD a secret! He is starting to give little bits and pieces here and there, but he's definitely a complex kid! His tics have gone way down, thank God, and it's seeming now that his tics are more of a " ritual " than they are just neurological. I think the combination of the meds and the therapy and becoming acclimated to his surroundings, peers and treatment team, have all contributed to lessening his tics. I visited him this past weekend and his tics were really minimal. He was able to stay out with me for 8 hours 2 days in a row, which was HUGE! Granted, it was a struggle and he kept fixating on having to go back to do his tics, but with my encouragement and not enabling him he was able to push through. Next visit will be the end of this month for my son's 16th birthday! Oh, and get this.....he actually told his doctor yesterday that he's very concerned about coming home because home is where this all began and he realizes that it would be extremely difficult for him to function without the support of his treatment team and his peers. He then told his doctor that he's very interested in going to therapeutic boarding school. I cannot tell you how blown away I am at how insightful and honest he is about his concerns! We're still not totally out of the woods with the Blue Cross situation and today was the review, so I'm praying that they did not request another peer to peer and that we won't have to deal with another denial at this juncture! Last, but not least, I was SO thrilled to be a part of coordinating a performance at 's by former American Idol contestant, Dave Pittman this past Friday. Dave has Tourette's and does a lot of work with TSA. I met him at the TSA conference a few months ago and then found out he was planning to visit Wisconsin so I was able to help arrange for him to make a stop at 's to perform. He and his manager are the nicest guys ever and nearly 100 residents and staff from different programs at 's attended Dave's performance. http://www.rogershospital.org/news/american-idol’s-dave-pittman-thanks-rogers-“a\ mazing”-work After the performance, I tagged along on a tour of 's, which was awesome. It really is an amazing place and if it wasn't so darn freezing there in the winters, I'd seriously consider moving there to get a job at 's! ------------------------------------ Our list ARCHIVES feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our LINKS may be accessed at http://health.groups.yahoo.com/group//links . Our FILES may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Dr. , Psychiatrist, and Tamar Chansky, Ph.D. ( http://www.worrywisekids.org ) You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Barb Nesrallah and Becky Reynolds. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 Wow, he really has come a long way in 3 months! Happy he is opening up more & more and feeling comfortable at . And really happy he is pretty insightful and considering the therapeutic school and realizes that " home " may cause some initial struggles, though hopefully that would be minimal...Wonder do they ever get like a " weekend home " trip from , or would that break that " insurance " cycle/billing? > > Hi all, > > So sorry I haven't posted in a while. Juggling WAY too many things at once and finding it difficult to come up for air! The good news is that my son is continuing to show improvement and make progress at 's. He's come such a long way since he was admitted almost 3 months ago. They truly are miracle workers there! > > He still has a ways to go and one of the things that has been a challenge is that a big part of his OCD is keeping his OCD a secret. In other words, he's told his doctor that if he divulges much of what is driving his OCD then he'll have bad luck, so he has to keep a lot of his OCD a secret! He is starting to give little bits and pieces here and there, but he's definitely a complex kid! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 Thanks, Chris! Unfortunately, like you said, a home visit would not be possible due to insurance coverage. I had asked them about that last week and they explained that even an overnight wouldn't be possible as it would be considered a " discharge " as far as insurance is concerned. As much as I would love my son to come home after 's, I honestly do not see how that will be a possibility unless some miracles take place before he is discharged. One of the biggest issues, and the reason why everyone including him is very concerned about him coming home, is that he has very little inner motivation when it comes to growing up, for lack of a better way to put it. As a result, he is still so " impaired " in his ability to perform the most basic daily tasks without constant prompting, and this is even with a whole treatment team 24/7 at 's. So while he's made great strides as far as being able to participate in outings, his tics lessening, etc., this is and always has been a HUGE stumbling block with him progressing to a point of being a more independent functioning teenager and eventually adult. The other problem is that he has no circle of friends to speak of here, is an only child, and we live in a somewhat isolated area. I don't see him being able to drive anytime soon and it would be very easy for him to go right back into the self-imposed isolation he was in for many months pre 's. Of course I tried like heck to get him out and about, and would again if he came home, but I can't twist his arm or force him and without a strong inner motivation, it's unlikely he'll take it upon himself to get out and about. Even if I were to move, I still see it being a huge struggle for him being able to maintain the gains and progress he's made at 's, again due to his lack of inner motivation. Most importantly, he is only functioning at the level he is now WITH a full treatment team in place prompting him on a daily basis, and even then it's a struggle for them getting him up and out of bed, brushing his teeth, taking showers, cleaning up after himself, etc. If that type of structure is taken away he'll fall very quickly right through the net. Believe me, I wish it weren't the case, but I think this is why my son realizes that coming home would be a problem. If he were able to stay at 's for another 6 months to a year, then I think him coming home may be much more realistic, but of course it's not going to be possible for him to stay there that long. While I realize miracles can and do happen at 's, and some have already happened with my son, we have to be realistic with what can be accomplished there. I'm going to meet with another special ed attorney this week and then we need to quickly retain one to approach our school district, however we're dealing with a catch-22, because no one can say at this juncture exactly what type of school setting he will require, but if we wait until discharge it will be too late by then. All I can say is I'm very grateful I only have one child at the moment!! > Wow, he really has come a long way in 3 months! Happy he is opening up more & more and feeling comfortable at . And really happy he is pretty insightful and considering the therapeutic school and realizes that " home " may cause some initial struggles, though hopefully that would be minimal...Wonder do they ever get like a " weekend home " trip from , or would that break that " insurance " cycle/billing? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 That makes a ton of sense, , and good for you for the " insight! " It has been a pull for me to keep my son busy, and he is even pretty motivated. But being inactive for so long before treatment did instill some patterns that are hard to change. At one point I thought son might even move somewhere else permanently from treatment, because our home was not a safe place for him. So I understand the tension of knowing you have to do what's best for your son, yet it can feel sad at the same time. I'm sure with your determination the way will continue to become clear. ((hugs)) Rhonda Re: Re: Update from Thanks, Chris! Unfortunately, like you said, a home visit would not be possible due to insurance coverage. I had asked them about that last week and they explained that even an overnight wouldn't be possible as it would be considered a " discharge " as far as insurance is concerned. As much as I would love my son to come home after 's, I honestly do not see how that will be a possibility unless some miracles take place before he is discharged. One of the biggest issues, and the reason why everyone including him is very concerned about him coming home, is that he has very little inner motivation when it comes to growing up, for lack of a better way to put it. As a result, he is still so " impaired " in his ability to perform the most basic daily tasks without constant prompting, and this is even with a whole treatment team 24/7 at 's. So while he's made great strides as far as being able to participate in outings, his tics lessening, etc., this is and always has been a HUGE stumbling block with him progressing to a point of being a more independent functioning teenager and eventually adult. The other problem is that he has no circle of friends to speak of here, is an only child, and we live in a somewhat isolated area. I don't see him being able to drive anytime soon and it would be very easy for him to go right back into the self-imposed isolation he was in for many months pre 's. Of course I tried like heck to get him out and about, and would again if he came home, but I can't twist his arm or force him and without a strong inner motivation, it's unlikely he'll take it upon himself to get out and about. Even if I were to move, I still see it being a huge struggle for him being able to maintain the gains and progress he's made at 's, again due to his lack of inner motivation. Most importantly, he is only functioning at the level he is now WITH a full treatment team in place prompting him on a daily basis, and even then it's a struggle for them getting him up and out of bed, brushing his teeth, taking showers, cleaning up after himself, etc. If that type of structure is taken away he'll fall very quickly right through the net. Believe me, I wish it weren't the case, but I think this is why my son realizes that coming home would be a problem. If he were able to stay at 's for another 6 months to a year, then I think him coming home may be much more realistic, but of course it's not going to be possible for him to stay there that long. While I realize miracles can and do happen at 's, and some have already happened with my son, we have to be realistic with what can be accomplished there. I'm going to meet with another special ed attorney this week and then we need to quickly retain one to approach our school district, however we're dealing with a catch-22, because no one can say at this juncture exactly what type of school setting he will require, but if we wait until discharge it will be too late by then. All I can say is I'm very grateful I only have one child at the moment!! > Wow, he really has come a long way in 3 months! Happy he is opening up more & more and feeling comfortable at . And really happy he is pretty insightful and considering the therapeutic school and realizes that " home " may cause some initial struggles, though hopefully that would be minimal...Wonder do they ever get like a " weekend home " trip from , or would that break that " insurance " cycle/billing? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 What a wonderful post to read! It is so wonderful to see how far your son has come since the days when you were waiting and waiting for his admission to ! Update from Hi all, So sorry I haven't posted in a while. Juggling WAY too many things at once and finding it difficult to come up for air! The good news is that my son is continuing to show improvement and make progress at 's. He's come such a long way since he was admitted almost 3 months ago. They truly are miracle workers there! He still has a ways to go and one of the things that has been a challenge is that a big part of his OCD is keeping his OCD a secret. In other words, he's told his doctor that if he divulges much of what is driving his OCD then he'll have bad luck, so he has to keep a lot of his OCD a secret! He is starting to give little bits and pieces here and there, but he's definitely a complex kid! His tics have gone way down, thank God, and it's seeming now that his tics are more of a " ritual " than they are just neurological. I think the combination of the meds and the therapy and becoming acclimated to his surroundings, peers and treatment team, have all contributed to lessening his tics. I visited him this past weekend and his tics were really minimal. He was able to stay out with me for 8 hours 2 days in a row, which was HUGE! Granted, it was a struggle and he kept fixating on having to go back to do his tics, but with my encouragement and not enabling him he was able to push through. Next visit will be the end of this month for my son's 16th birthday! Oh, and get this.....he actually told his doctor yesterday that he's very concerned about coming home because home is where this all began and he realizes that it would be extremely difficult for him to function without the support of his treatment team and his peers. He then told his doctor that he's very interested in going to therapeutic boarding school. I cannot tell you how blown away I am at how insightful and honest he is about his concerns! We're still not totally out of the woods with the Blue Cross situation and today was the review, so I'm praying that they did not request another peer to peer and that we won't have to deal with another denial at this juncture! Last, but not least, I was SO thrilled to be a part of coordinating a performance at 's by former American Idol contestant, Dave Pittman this past Friday. Dave has Tourette's and does a lot of work with TSA. I met him at the TSA conference a few months ago and then found out he was planning to visit Wisconsin so I was able to help arrange for him to make a stop at 's to perform. He and his manager are the nicest guys ever and nearly 100 residents and staff from different programs at 's attended Dave's performance. http://www.rogershospital.org/news/american-idol’s-dave-pittman-thanks-rogers-\ “amazingâ€-work After the performance, I tagged along on a tour of 's, which was awesome. It really is an amazing place and if it wasn't so darn freezing there in the winters, I'd seriously consider moving there to get a job at 's! ------------------------------------ Our list ARCHIVES feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our LINKS may be accessed at http://health.groups.yahoo.com/group//links .. Our FILES may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Dr. , Psychiatrist, and Tamar Chansky, Ph.D. ( http://www.worrywisekids.org ) You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Barb Nesrallah and Becky Reynolds. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ .. Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links .. Quote Link to comment Share on other sites More sharing options...
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