Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Steve I am sorry your wife has been diagnosed. I have had this for a long time. Since 1972 in fact. Everyone is different, but I have had long remissions. Like 9 years!! Now I flare for about 4 months every year and it usually is fairly annoying but I still function. One year it was hard to drive the car cause all my joints above the waist were effected. Anyways, prednisone can give a dramatic relief! The doctor will know how much and for how long. You are both gonna have to be patient. This group is wonderful with many many nice people . Tons of info and some good laughs too. Hang in there and let us know How it goes! Liz NJ (near Philadelphia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Hi Steve, We are sorry your wife is diagnosed with Stills but happy you found our little home here on the net. I personally do not take Prednisone, but others here will be able to answer your questions. For now, I suggest you search the message archives to do some research and once your wife feels up to it, that she come to this group and post here for support and questions she has as someone with Stills. this really is a place where people understand how crappy you can feel mentally and physically and we are there for each other. I'm happy you are taking an active role in her disease and doing some research. It is really wonderful to know that she has a supportive spouse. Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Dear Steve, As everyone else has, I would also like to welcome you to the loop. When I first became sick, the doctor put me on 30mgs of prednisone. After a few days, my hubby called and said it wasn't making me any different. Still had the chills and fevers and zero energy. They doubled the pred to 60mgs and within a day I felt almost human! And that is saying a LOT! So, what I'm trying to say is that if your wife has NO effects after being on steroids a while, contact the doctor and let them know. It may not be enough. I was weened down from the 60mgs pretty quickly but unfortunately have never been able to get off completely in 8 years. Close, but not totally. Still trying to do that. Good luck to Steve and Steve's wife! Carole in South Florida In a message dated 10/13/2006 11:05:38 AM Eastern Daylight Time, ssjlbjt@... writes: Hi, my name is Steve and my wife was recently diagnosed with Still's. The doctor is going to decide this week what meds to start her on, but until he's reached a decision, she is being started on Prednisone. How long should that take to take effect, and what kind of side effects should she expect to see? Thanks for the help. Steve feel good everyone - Carole in Hollywood FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Welcome Steve and glad you found us and sorry for the reason why you did. I am Marty the redneck dragon fighter. I am 48 and have had stills for about 6 years now .Starting on Prednisone is normal and for my self with in a few days I could feel it working. Now each and every person is deferent with it. Side effects can be bad I will tell you that but at the same time there are days I would take them to have it and feel better. Go to a pharmacist and ask for a print out on prednisone and read on it. one other thing I would full recommend for any one newly diagnosed and there whole family that lives with them is get in to concealing . I say this as it effects not only there life but every ones in the house and then some. For them to help understand how it will and dose change there life. Same thing for the rest in the home also. I wish in ways my ex and I had done that as she ended up divorcing me over stills as it scared her and there was no magic pill to make me better. At the same time I came down with this my father in-law passed away and a month later my grandmother also passed on. She was faced with a possible law off and I could no long work because of my fight with stills. The next part is ask here and read all you can to become some what knowledgeable in life with stills. It is also some thing that changes over time to. I did go into remission like some others here but some never have. I am no longer in remission and now fighting the dragon called stills again big time. good luck to all of you and I know for my self the people here are a part of my family as they seam to always understand what I am going threw even when my own family dose not seam to Hugs all Marty the redneck dragon fighter Newly Diagnosed Hi, my name is Steve and my wife was recently diagnosed with Still's. The doctor is going to decide this week what meds to start her on, but until he's reached a decision, she is being started on Prednisone. How long should that take to take effect, and what kind of side effects should she expect to see? Thanks for the help. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Steve, I want to welcome you and your wife to the group. Prednisone has some of the following side effects, weight gain, water retentions, acne and increase appetite. People respond differently to all meds so it is hard to say when someone will start to see effects or even if they will have any side effects. I hope that your wife feels better soon. Danni ________________________________________________________________________ Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Steve, I want to welcome you and your wife to the group. Prednisone has some of the following side effects, weight gain, water retentions, acne and increase appetite. People respond differently to all meds so it is hard to say when someone will start to see effects or even if they will have any side effects. I hope that your wife feels better soon. Danni ________________________________________________________________________ Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 My 12 year old daughter is newly diagnosed with OCD. She is in the hands of a good therapist specializing in children and adolescents and I am truly grateful to finally find someone to help us. For years I thought she was just being " difficult " and I was just a bad parent for giving in to her often scary and out of proportion reactions to not getting her way or trying to get her to leave the house on time. She currently takes 2 hours and 45 minutes to leave the house. I feel guilty about the years I have yelled at her for being disrespectful or stubborn or both. I have been chastised by friends, family and loved ones for giving in to her tantrums or letting her " run my household. " How do I help her without enabling her and how do I get my support team, who has always been there for me, to support me now and understand that this is something she cannot help and she is not acting this way on purpose? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Hello, I, too, was told many times that I let my son and his OCD " run the household " and that I all needed to do was to enforce more discipline in his life, to punish him more, ect. I think one of the best things I ever did to help my son's OCD was to stop listening to every one else and to start researching on my own. These people know nothing about OCD and how tricky it can be - they are lucky that their kids are healthy. They are simply " good enough " parents so why should those of us whose kids have been struck with OCD listen to their advice? So, if you can't get them on board by having them read, research, attend OCD conferences, ect. you might just have to find others to help you along. You might have to keep enabling parts of your child's OCD while you sort out the best way to help her. I did. Your therapist might be helpful here - to help you decide how to walk the fine line between keeping your child functional and keeping the OCD in check. Please don't wast any more time on feeling the guilt. Many times I yelled at my son for OCD behaviors and got intense with him - even after I knew he had OCD and was using ERP to treat it. After these times, I would apologize, tell him that it was the OCD I was mad at and not him, and find a way to start over. Ny son is now 18 and is doing well - his OCD is negligible. Whenever I have asked him about these difficult times (when I yelled, ect), he doesn't focus on the on the mistakes I made. I think he is just grateful that we found our way out of OCD and doesn't see any point in remembering the hard times. In other words, he has forgiven me and my many faults. Hope this helps. Best, Joni > > My 12 year old daughter is newly diagnosed with OCD. She is in the hands of a good therapist specializing in children and adolescents and I am truly grateful to finally find someone to help us. For years I thought she was just being " difficult " and I was just a bad parent for giving in to her often scary and out of proportion reactions to not getting her way or trying to get her to leave the house on time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Hello, I, too, was told many times that I let my son and his OCD " run the household " and that I all needed to do was to enforce more discipline in his life, to punish him more, ect. I think one of the best things I ever did to help my son's OCD was to stop listening to every one else and to start researching on my own. These people know nothing about OCD and how tricky it can be - they are lucky that their kids are healthy. They are simply " good enough " parents so why should those of us whose kids have been struck with OCD listen to their advice? So, if you can't get them on board by having them read, research, attend OCD conferences, ect. you might just have to find others to help you along. You might have to keep enabling parts of your child's OCD while you sort out the best way to help her. I did. Your therapist might be helpful here - to help you decide how to walk the fine line between keeping your child functional and keeping the OCD in check. Please don't wast any more time on feeling the guilt. Many times I yelled at my son for OCD behaviors and got intense with him - even after I knew he had OCD and was using ERP to treat it. After these times, I would apologize, tell him that it was the OCD I was mad at and not him, and find a way to start over. Ny son is now 18 and is doing well - his OCD is negligible. Whenever I have asked him about these difficult times (when I yelled, ect), he doesn't focus on the on the mistakes I made. I think he is just grateful that we found our way out of OCD and doesn't see any point in remembering the hard times. In other words, he has forgiven me and my many faults. Hope this helps. Best, Joni > > My 12 year old daughter is newly diagnosed with OCD. She is in the hands of a good therapist specializing in children and adolescents and I am truly grateful to finally find someone to help us. For years I thought she was just being " difficult " and I was just a bad parent for giving in to her often scary and out of proportion reactions to not getting her way or trying to get her to leave the house on time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Hi Judi, I'm so glad you've found a therapist. The therapist should be able to also guide you with how to help her at home. As others said, you may have to ignore/accommodate much of her OCD right now, but she should have some behaviors that the therapist will have her work on, even just 1 or 2, and so those are the ones you will concentrate on helping her with for her " OCD homework. " Getting others to understand? Well, I hope they will now change their tune, depends on how much the know about OCD or are open to mental illnesses. So many hear about the more " well known " behaviors like germ contamination or repeating things. Speaking of this, the hours it takes her to leave the house - is she repeating things, or just a lot of rituals, or just really slow about doing things, or...? Glad you found our group, only had a moment now but wanted to say " hi! " single mom, 3 sons , now 23, with OCD, dysgraphia and Aspergers > > My 12 year old daughter is newly diagnosed with OCD. She is in the hands of a good therapist specializing in children and adolescents and I am truly grateful to finally find someone to help us. For years I thought she was just being " difficult " and I was just a bad parent for giving in to her often scary and out of proportion reactions to not getting her way or trying to get her to leave the house on time. She currently takes 2 hours and 45 minutes to leave Quote Link to comment Share on other sites More sharing options...
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