Guest guest Posted March 30, 2012 Report Share Posted March 30, 2012 I wondered if you all had the same experience as me with learning about OCD? Before my son exhibited very obvious signs of Tourette's/tics, I was one of many who thought that Tourette's was all about uncontrollable swearing. I also thought OCD was all about hand-washing and germ-phobia until my son started exhibiting many of the behaviors that led me to this list. I read all of your posts and my heart breaks for what these kids have to deal with and how they suffer. I think about the hundreds and thousands of parents who are not on this list and have kids with severe OCD that may not be getting proper treatment because of uninformed doctors/psychiatrists, and parents, who are also under the widespread misconceptions about OCD. In the past 2 years I've had to give myself crash courses in Tourette's syndrome, Lyme disease, and most recently, OCD. But I know I am among the minority of parents, likeI think we all are here, that have the time to research these things and to subsequently find groups like this for knowledge and support. It was here in this group that I've gotten most of my OCD crash course, more so than info I found online. Even when you look up the " typical symptoms " of OCD, you don't see anywhere near what it can encompass. For example, Todd posted about his son's reading block, and a few others mentioned their kids having the same issue. Unlikely you'd find that online, and that's something that could easily be misconstrued or misdiagnosed as a variety of other issues aside from OCD. I know it's obviously not possible to educate everyone on the planet about things like Tourette's and OCD, I just wish there was a way to get the word out there on a more consistent basis to help a lot of kids and parents who are suffering and have no idea what to do and where to turn. Quote Link to comment Share on other sites More sharing options...
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