Guest guest Posted April 19, 2012 Report Share Posted April 19, 2012 Hi Rhonda, So it continues..... Well, good that you learned what you did about Cincy before sending him there. At some point as I was writing to you, and pushing you to make sure he got there:), I wondered if indeed it was specialized for OCD. Good that you clarified all this. Sounds like they are looking for business, based on the pushy attitude of the person you spoke with (humour) Better to laugh! Well, if I were you I would hold off telling your son anything until you have things in place, just in case it changes again! Then it's up to you how long you want to deal with the anxiety that is going to come up when you do tell him. I find the less time the better, in general, but mine needs at least a day to be able to " talk " it through - read - hound me and try to bargain his way out, non-stop.... Day/night before an " event " is the worst of it, and longer time frame just extends the whole process. So, day or two, is my approach if I can swing it that way. Have heard back from Columbus yet? Makes sense if you can stay closer. Do they have specialized program for OCD? Warmly, barb > > Thanks, I'm beginning to accept this! Spin cycle - great word picture there. > > Thanks to all good advice and support, my head cleared up and I realized that driving him down 1 1/2 hours to Cincy for treatment that I can get right here in Columbus doesn't make sense. I thought if I took him to Cincy they would make sure he got into the teen psych unit that is housed in the Lindner Center - which is an OCD treatment center for adults and outpatient children. Then MAYBE he would get some treatment time with therapists from the Center itself, rather than just the psych staff in the unit. > > Well, turns out there's no guarantee he will get into the psych unit connected to Lindner. If he doesn't, he will go to any of their teen psych units and they will just do their regular group therapy, talk therapy, blah blah. Friend said her son was in there a couple days and they had a couple suicide attempts, kids on feeding tubes, stuff that it's okay for a kid to be exposed to but maybe not what you're looking for in treatment. > > Maybe he could get stabilized, cleaned up and on meds in that situation. But there's no help for OCD there. What's more, when I spoke to ER social worker about his concern about clothes, she said he was just making up excuses and if that were satisfied, he'd make up another excuse. What really worries me is that this morning another of their social workers called and asked when I was getting him down there, asked for my address, said they were very concerned. I asked if they were going to have him removed from my home. She said she was considering calling children's services. Yeesh. I said, hey, he said he would come on Friday. If he doesn't , I'M calling children's services. Plus, I don't even really want to come down there if you can't guarantee Lindner - I might as well take him to Columbus Children's. She said okay, and I said I would call her on Friday. Haven't seen CPS so far today. :-p > > Then I put a call in to a therapist in the Cols Children's system asking her for help and guidance in getting into the Cols system. She offered help before but we were stuck on Lindner at that point. Haven't heard back from her but I think she will call; she offered to email ER for us before & help us walk through. > > Question -- when should I tell son plans have changed? I've actually shown him pix of Cincy ER and Lindner Center and told him how nice it was. . .. oops. > > thanks > Rhonda > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2012 Report Share Posted April 19, 2012 Barb - thanks again for taking time to process with me. I need help continuing to push him. I called Cols Childrens ER - they refer all psych to Ohio State University Hospital - OSU has a 20-bed teen psych unit. I could not get out of them what they do in particular for OCD. It's all pretty vague. It's part of their larger adult psych hospital - one common ER that all patients go thru. I'm not sure treatment would be as personal there, and I guess in the end no guarantee it's more effective. Just closer is main advantage. Yes, I went to talk to son, he did want to " talk it through " - then got very upset that I was changing things on him. Said he would need til next week to get used to going to a different place. I continued to say I'll have to contact children's services if we don't go tomorrow. how did you decide where to go and what was your experience there? Did you get out of it what you wanted? Rhonda Re: little more advice Hi Rhonda, So it continues..... Well, good that you learned what you did about Cincy before sending him there. At some point as I was writing to you, and pushing you to make sure he got there:), I wondered if indeed it was specialized for OCD. Good that you clarified all this. Sounds like they are looking for business, based on the pushy attitude of the person you spoke with (humour) Better to laugh! Well, if I were you I would hold off telling your son anything until you have things in place, just in case it changes again! Then it's up to you how long you want to deal with the anxiety that is going to come up when you do tell him. I find the less time the better, in general, but mine needs at least a day to be able to " talk " it through - read - hound me and try to bargain his way out, non-stop.... Day/night before an " event " is the worst of it, and longer time frame just extends the whole process. So, day or two, is my approach if I can swing it that way. Have heard back from Columbus yet? Makes sense if you can stay closer. Do they have specialized program for OCD? Warmly, barb > > Thanks, I'm beginning to accept this! Spin cycle - great word picture there. > > Thanks to all good advice and support, my head cleared up and I realized that driving him down 1 1/2 hours to Cincy for treatment that I can get right here in Columbus doesn't make sense. I thought if I took him to Cincy they would make sure he got into the teen psych unit that is housed in the Lindner Center - which is an OCD treatment center for adults and outpatient children. Then MAYBE he would get some treatment time with therapists from the Center itself, rather than just the psych staff in the unit. > > Well, turns out there's no guarantee he will get into the psych unit connected to Lindner. If he doesn't, he will go to any of their teen psych units and they will just do their regular group therapy, talk therapy, blah blah. Friend said her son was in there a couple days and they had a couple suicide attempts, kids on feeding tubes, stuff that it's okay for a kid to be exposed to but maybe not what you're looking for in treatment. > > Maybe he could get stabilized, cleaned up and on meds in that situation. But there's no help for OCD there. What's more, when I spoke to ER social worker about his concern about clothes, she said he was just making up excuses and if that were satisfied, he'd make up another excuse. What really worries me is that this morning another of their social workers called and asked when I was getting him down there, asked for my address, said they were very concerned. I asked if they were going to have him removed from my home. She said she was considering calling children's services. Yeesh. I said, hey, he said he would come on Friday. If he doesn't , I'M calling children's services. Plus, I don't even really want to come down there if you can't guarantee Lindner - I might as well take him to Columbus Children's. She said okay, and I said I would call her on Friday. Haven't seen CPS so far today. :-p > > Then I put a call in to a therapist in the Cols Children's system asking her for help and guidance in getting into the Cols system. She offered help before but we were stuck on Lindner at that point. Haven't heard back from her but I think she will call; she offered to email ER for us before & help us walk through. > > Question -- when should I tell son plans have changed? I've actually shown him pix of Cincy ER and Lindner Center and told him how nice it was. . .. oops. > > thanks > Rhonda > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2012 Report Share Posted April 20, 2012 Thanks Barb for your experiences and ideas. What methods have you tried? It's always helpful to hear the things that REALLY work!! Also encouraging to see all the blank walls you have hit in the maze, and you're still trying. Gives me strength. Cincy hospital turned us in to CPS, so I figured if we go there, I may never get him back out! When he heard that, he agreed to try Columbus. It's a teaching hospital connected to Ohio State University. Maybe that's a plus? He's sleeping off his last two nights staying up - it's going to be a long day. They say ER empties out at 3 am, maybe that's when we'll go. :-p Rhonda Re: little more advice Welcome Rhonda. I need to process by talking myself, so I understand. So, are you planning to take your son to Cincy then? Sorry, I'm a bit confused now Do your best to be neutral and factual, no matter what your son says. You can try repeating back to him whatever he says, and acknowledging his anxiety etc, so he knows you are hearing him. Be ready to call for backup if he does not cooperate, sounds like you will may well need it. In terms of our situation re hospitalization, we had to admit our son against his will, through emerg. It was not just OCD at that point, medication tripped off BP/psychosis, and he needed to be hospitalized to stabilize and consider further diagnosis. In terms of getting what we were looking for, well, yes and no. We needed immediate intervention, so we got that. He was kept for 3 weeks and medications changed, but wouldn't say stabilized, that " journey " continued another year or so. What it did though, was get us a place in a day treatment program at a psychiatric hospital, where he was observed for further assessment for about six months. At the time we needed to do this, we felt, to try to establish if there was anything else going on. But, I thought there would be treatment for the OCD and there was not. Unless you consider an intern opening a book to try things treatment Thing is, we have no specialized treatment centres for OCD in Canada, no inpatient treatment at all. Virtually impossible to get a bed in a psych ward unless a person is a threat to themselves or others. Basically, there is nothing to access, if you have severe OCD. Didn't know this when we entered the system, at the time I thought we'd won the lottery I started a parent support group locally, partly to see what kind of care others were getting, to see if I was missing something. Wait time for psychiatrist is a year. So,the best route here, for OCD is private psychologist, with best you can find - limited expertise still. So,options here are pretty limited. Our son gave up on professionals long ago. Can't really blame him, been through the ringer, some really awful experiences. Basically realized if he was going to get better he was going to have to figure it out himself - which is the bottom line with this disorder anyway! We did some unorthodox things, and have netted best results doing things on our own. Aside from medication, which was and is definitely needed. Ok, enough of my quest for help.... Back to you. It sounds like you might have to enter the hospital system and then advocate for your son to get into the specialized program. I'm guessing that they will not tell you in advance that they will put him into that, as they need to see him and assess this. As long as you know they DO have a program, and it's good, then it sounds like it's worth going for. Sometimes it's a process working the system to get access to what is needed. You might ask about the possibility of accessing one of the bigger inpatient treatment centres, if you think that would be better. I don't know how that works in the US. Just wondering if you can't get what you need locally if insurance will then pay for or McLean? And it this is a way to access that? Sometimes once a person starts on the route to getting help, ie hospital, professionals can intervene better than a parent can, and can start the ball rolling. Ok, got to get to bed. Best to you tomorrow. Keep us posted!!! Warmly, Barb > > > > Thanks, I'm beginning to accept this! Spin cycle - great word picture there. > > > > Thanks to all good advice and support, my head cleared up and I realized that driving him down 1 1/2 hours to Cincy for treatment that I can get right here in Columbus doesn't make sense. I thought if I took him to Cincy they would make sure he got into the teen psych unit that is housed in the Lindner Center - which is an OCD treatment center for adults and outpatient children. Then MAYBE he would get some treatment time with therapists from the Center itself, rather than just the psych staff in the unit. > > > > Well, turns out there's no guarantee he will get into the psych unit connected to Lindner. If he doesn't, he will go to any of their teen psych units and they will just do their regular group therapy, talk therapy, blah blah. Friend said her son was in there a couple days and they had a couple suicide attempts, kids on feeding tubes, stuff that it's okay for a kid to be exposed to but maybe not what you're looking for in treatment. > > > > Maybe he could get stabilized, cleaned up and on meds in that situation. But there's no help for OCD there. What's more, when I spoke to ER social worker about his concern about clothes, she said he was just making up excuses and if that were satisfied, he'd make up another excuse. What really worries me is that this morning another of their social workers called and asked when I was getting him down there, asked for my address, said they were very concerned. I asked if they were going to have him removed from my home. She said she was considering calling children's services. Yeesh. I said, hey, he said he would come on Friday. If he doesn't , I'M calling children's services. Plus, I don't even really want to come down there if you can't guarantee Lindner - I might as well take him to Columbus Children's. She said okay, and I said I would call her on Friday. Haven't seen CPS so far today. :-p > > > > Then I put a call in to a therapist in the Cols Children's system asking her for help and guidance in getting into the Cols system. She offered help before but we were stuck on Lindner at that point. Haven't heard back from her but I think she will call; she offered to email ER for us before & help us walk through. > > > > Question -- when should I tell son plans have changed? I've actually shown him pix of Cincy ER and Lindner Center and told him how nice it was. . .. oops. > > > > thanks > > Rhonda > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2012 Report Share Posted April 20, 2012 Thanks Barb for your experiences and ideas. What methods have you tried? It's always helpful to hear the things that REALLY work!! Also encouraging to see all the blank walls you have hit in the maze, and you're still trying. Gives me strength. Cincy hospital turned us in to CPS, so I figured if we go there, I may never get him back out! When he heard that, he agreed to try Columbus. It's a teaching hospital connected to Ohio State University. Maybe that's a plus? He's sleeping off his last two nights staying up - it's going to be a long day. They say ER empties out at 3 am, maybe that's when we'll go. :-p Rhonda Re: little more advice Welcome Rhonda. I need to process by talking myself, so I understand. So, are you planning to take your son to Cincy then? Sorry, I'm a bit confused now Do your best to be neutral and factual, no matter what your son says. You can try repeating back to him whatever he says, and acknowledging his anxiety etc, so he knows you are hearing him. Be ready to call for backup if he does not cooperate, sounds like you will may well need it. In terms of our situation re hospitalization, we had to admit our son against his will, through emerg. It was not just OCD at that point, medication tripped off BP/psychosis, and he needed to be hospitalized to stabilize and consider further diagnosis. In terms of getting what we were looking for, well, yes and no. We needed immediate intervention, so we got that. He was kept for 3 weeks and medications changed, but wouldn't say stabilized, that " journey " continued another year or so. What it did though, was get us a place in a day treatment program at a psychiatric hospital, where he was observed for further assessment for about six months. At the time we needed to do this, we felt, to try to establish if there was anything else going on. But, I thought there would be treatment for the OCD and there was not. Unless you consider an intern opening a book to try things treatment Thing is, we have no specialized treatment centres for OCD in Canada, no inpatient treatment at all. Virtually impossible to get a bed in a psych ward unless a person is a threat to themselves or others. Basically, there is nothing to access, if you have severe OCD. Didn't know this when we entered the system, at the time I thought we'd won the lottery I started a parent support group locally, partly to see what kind of care others were getting, to see if I was missing something. Wait time for psychiatrist is a year. So,the best route here, for OCD is private psychologist, with best you can find - limited expertise still. So,options here are pretty limited. Our son gave up on professionals long ago. Can't really blame him, been through the ringer, some really awful experiences. Basically realized if he was going to get better he was going to have to figure it out himself - which is the bottom line with this disorder anyway! We did some unorthodox things, and have netted best results doing things on our own. Aside from medication, which was and is definitely needed. Ok, enough of my quest for help.... Back to you. It sounds like you might have to enter the hospital system and then advocate for your son to get into the specialized program. I'm guessing that they will not tell you in advance that they will put him into that, as they need to see him and assess this. As long as you know they DO have a program, and it's good, then it sounds like it's worth going for. Sometimes it's a process working the system to get access to what is needed. You might ask about the possibility of accessing one of the bigger inpatient treatment centres, if you think that would be better. I don't know how that works in the US. Just wondering if you can't get what you need locally if insurance will then pay for or McLean? And it this is a way to access that? Sometimes once a person starts on the route to getting help, ie hospital, professionals can intervene better than a parent can, and can start the ball rolling. Ok, got to get to bed. Best to you tomorrow. Keep us posted!!! Warmly, Barb > > > > Thanks, I'm beginning to accept this! Spin cycle - great word picture there. > > > > Thanks to all good advice and support, my head cleared up and I realized that driving him down 1 1/2 hours to Cincy for treatment that I can get right here in Columbus doesn't make sense. I thought if I took him to Cincy they would make sure he got into the teen psych unit that is housed in the Lindner Center - which is an OCD treatment center for adults and outpatient children. Then MAYBE he would get some treatment time with therapists from the Center itself, rather than just the psych staff in the unit. > > > > Well, turns out there's no guarantee he will get into the psych unit connected to Lindner. If he doesn't, he will go to any of their teen psych units and they will just do their regular group therapy, talk therapy, blah blah. Friend said her son was in there a couple days and they had a couple suicide attempts, kids on feeding tubes, stuff that it's okay for a kid to be exposed to but maybe not what you're looking for in treatment. > > > > Maybe he could get stabilized, cleaned up and on meds in that situation. But there's no help for OCD there. What's more, when I spoke to ER social worker about his concern about clothes, she said he was just making up excuses and if that were satisfied, he'd make up another excuse. What really worries me is that this morning another of their social workers called and asked when I was getting him down there, asked for my address, said they were very concerned. I asked if they were going to have him removed from my home. She said she was considering calling children's services. Yeesh. I said, hey, he said he would come on Friday. If he doesn't , I'M calling children's services. Plus, I don't even really want to come down there if you can't guarantee Lindner - I might as well take him to Columbus Children's. She said okay, and I said I would call her on Friday. Haven't seen CPS so far today. :-p > > > > Then I put a call in to a therapist in the Cols Children's system asking her for help and guidance in getting into the Cols system. She offered help before but we were stuck on Lindner at that point. Haven't heard back from her but I think she will call; she offered to email ER for us before & help us walk through. > > > > Question -- when should I tell son plans have changed? I've actually shown him pix of Cincy ER and Lindner Center and told him how nice it was. . .. oops. > > > > thanks > > Rhonda > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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