Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 Hi all, I'm knocking wood before type this, but I'm pleased to report that my son has gained back 5 lbs. in the past 10 days. Yipee!!!!! He also took some pretty big leaps forward by participating in experiential therapy this past week and going on his first short outing with some of the kids to a local pet store ( he loves animals). Those things were HUGE for him, and I am so thrilled. Granted, none of it was easy for him and he said it was extremely stressful, but he still pushed through and did it! Showers are still a struggle for him, but those too are getting a little bit easier as time goes on. HIs tics have lessened, however i don't get too excited about that since they can wax and wane a lot normally. It's hard to know whether it's because of meds, him getting more adjusted to 's, or just the natural progression of Tourette's, but whatever it is, I'm grateful for now that they have calmed down. I think that's a big part of the reason why he's been able to gain back some weight because he was burning a ton of calories with the tics being so intense and frequent. My husband and I are going out to 's this coming Thursday for our first visit since my son was admitted. I'm SO nervous about the visit! It will be 6 weeks since we've seen him, and the longest he's ever been away from home was 10 days at a summer camp. I'm nervous about how it will all go, what condition he'll be in (physically and emotionally), and especially nervous about us leaving to go home and how that will impact him. On another note, I attended the national Tourette's Association conference in DC the last 2 days. Because so many TS kids (and adults) also have OCD, the topic was brought up and discussed quite a bit in the various clinics that were held. It was a wonderful conference! I learned a lot, and was SO taken by what an amazing group of people I was surrounded by. Most impressive were the young adults, now in their twenties, who spoke so candidly and from the heart about what it was like growing up as a kid with Tourette's and OCD. I went around and collected video greetings to my son from some of the " celebs " with TS and OCD at the event to make a video that I will bring to my son. Among them were a former American Idol contestant; former Miss Louisiana; a comedienne; a female ventriloquist; a Hollywood producer; a professional skateboarder; young lady who was the winner of Hell's Kitchen season 2, and author ( " The Christmas Box " ) who recently came out with the first in a series titled " Vey, " a fiction novel about a boy who has Tourette's and possesses electrical powers. gave the keynote speech at the lunch yesterday and he was AMAZING!! He wasn't diagnosed with TS until his 40s when he took his son (the book's namesake) to be diagnosed for TS. So all in all, it's been a good few weeks I'm glad to report.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 5 pounds in 10 days, hooray! And an outing! I am happy for him, those are HUGE steps! I can't believe it's been 6 weeks, time really does go by fast. I'm even looking forward to your seeing him, I know that'll be sooo nice for him to see you two! Glad the TS conference went so well, sounds like it's the same as the OCD conference agenda, ran the same way. I know when you said the former American Idol contestant, I thought of Durbin, since he has TS and also Aspergers. How wonderful you did a video, you are such a GREAT mom! So how did not know he had TS until his 40's, was his just so mild and intermittent? Thanks for updating us, happy it was all GREAT news!!!!! > > Hi all, > > I'm knocking wood before type this, but I'm pleased to report that my son has gained back 5 lbs. in the past 10 days. Yipee!!!!! He also took some pretty big leaps forward by participating in experiential therapy this past week and going on his first short outing with some of the kids to a local pet store ( he loves animals). Those things were HUGE for him, and I am so thrilled. Granted, none of it was easy for him and he said it was extremely stressful, but he still pushed through and did it! Showers are still a struggle for him, but those too are getting a little bit easier as time goes on. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 5 pounds in 10 days, hooray! And an outing! I am happy for him, those are HUGE steps! I can't believe it's been 6 weeks, time really does go by fast. I'm even looking forward to your seeing him, I know that'll be sooo nice for him to see you two! Glad the TS conference went so well, sounds like it's the same as the OCD conference agenda, ran the same way. I know when you said the former American Idol contestant, I thought of Durbin, since he has TS and also Aspergers. How wonderful you did a video, you are such a GREAT mom! So how did not know he had TS until his 40's, was his just so mild and intermittent? Thanks for updating us, happy it was all GREAT news!!!!! > > Hi all, > > I'm knocking wood before type this, but I'm pleased to report that my son has gained back 5 lbs. in the past 10 days. Yipee!!!!! He also took some pretty big leaps forward by participating in experiential therapy this past week and going on his first short outing with some of the kids to a local pet store ( he loves animals). Those things were HUGE for him, and I am so thrilled. Granted, none of it was easy for him and he said it was extremely stressful, but he still pushed through and did it! Showers are still a struggle for him, but those too are getting a little bit easier as time goes on. > Quote Link to comment Share on other sites More sharing options...
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