Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 hey Sondra you are right to fear lupus however it appears as if though you are having some metabolic issues have u heard of ideal health, they have a urine test they sell for 99 usd that is great to test your metabolic deficiencies google it health I to went to my specialist this day. He finally confirmed of the fibromyalgia and shared that he could not give a dx of lusus even though I to have much of the things common with lupus because the blood work done 2x over the year comes back negative each time so it is of not lupus at this time. He did share though he is of unsure what other things might be in play of the autoimmune issues for me. But he did share that with the current treatment of the plaquenil and neurontin I to be fo improving some and so for this he wants of to continue of the current medical approach except that over time he wants of the neurontin to gradual increase as he shared that I to be of still on a low dose of only 400 mg 3x a day. Today though hte pain is of not easy on me. He shared my vitamin d is of still much low it was of I to think he shared a 19 and then has over 6 months only went up slightly to a 23 or 27cant remember of that exact number. I to have much medical this week so posting will be of to be minimal or much depends on my anxiety of things. I to be of having much anxiety because of my routine of therapy is of much out of sync and routine because my therapist is of on vacation to florida I to think and so not having that routine but having much medical this week instead is of causing me not a to have of good days. this day though did stop after medical because of the hate of the blood things so did stop on my way of to drive home to a half price book store this day and founds some good books on Cuba and so was of happy for that. I to promised to take of my aimee to the library this night so will do of that too but then will be to shut of self and read or watch of tv with no distractions or interuptions so can find my own sense of calm. But anyways wanted to share that so far he is of not dx of lupus and this makes of me happy because I to fear of that disease much so, more than cancer i to fear it. I to not fear cancer much but do fear other diseases not sure why. Sondra Sondra Quote Link to comment Share on other sites More sharing options...
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