RE: What a nifty surprise to hear from Dr. Kolb herself!

[Guest guest]

You are welcome . We have much to learn about this illness. .

-----Original Message-----

From: krunky11 [mailto:semedi@...]

Sent: Saturday, April 27, 2002 11:03 PM

Subject: What a nifty surprise to hear from Dr. Kolb

herself!

Dr. Kolb, thank you so much for taking the time to share your wealth

of knowledge with me and others in this group.

The symptoms you enumerate are all ones that I am dealing with, even

the dizziness. That is the first time I have been told that the

dizziness is very likely connected to the peripheral neuropathy. So

much of what I am experiencing I am just starting to be able to

see as connected and see the relationship of one to another.

I did see a Mayo neurologist last November. She had me have blood

drawn for a B12 check: there is no deficiency, in fact it came back

high (830). She also had a monoclonal protein study done and said

that

no monoclonal protein was detected.

I have not had any nerve conduction tests done as of yet(because of

the expense--my insurance won't pay.) I very much hope that your

experience with your patients will be mine as well. I look forward to

having these implants out in the near future and the beginning of the

resolution of these problems.

Every day that passes, with the implants in place, I feel I am losing

some of my good health to the insidiousness of the neuropathy. The

fear is real. I have read a lot of the information posted on your

website (and learned from it) and hope to be able to follow at least

some of your outlined detoxification program.

It was so good of you to write...I have read many messages detailing

your willingness to go beyond the expected...now I see that for

myself. I know others will benefit from your response too.

Thank you so much,

K