Thanks!

[Guest guest]

Hi ,

Thanks for the recommendation in L.A. I will certainly give him a

call because I have nowhere else to go. The doctor at U.C.L.A.(Dr.

Furst) is supposed to be this unbelieveable doctor with all of this

great knowledge of rare diseases and treatments for them. He

basically said he could't treat me regularly because he was to busy

with researching, but he could work with my doctor and make a

recommendation for a treatment plan. Well more than a year later and

I am no better off than with any old rhemuy. I hope that his

experience with more than one Still's patient will give him some

different insight into helping me.

thanks again, I will let you know what happens after I see him,

dahtdah_denise

[Guest guest]

Hi ,

Thanks for the recommendation in L.A. I will certainly give him a

call because I have nowhere else to go. The doctor at U.C.L.A.(Dr.

Furst) is supposed to be this unbelieveable doctor with all of this

great knowledge of rare diseases and treatments for them. He

basically said he could't treat me regularly because he was to busy

with researching, but he could work with my doctor and make a

recommendation for a treatment plan. Well more than a year later and

I am no better off than with any old rhemuy. I hope that his

experience with more than one Still's patient will give him some

different insight into helping me.

thanks again, I will let you know what happens after I see him,

dahtdah_denise

[Guest guest]

Thanks, Barb and for your kind responses. I was having a bad day with the

OCD monster and felt very alone and then I remembered that I'm not alone--that I

have this group who knows exactly what all this feels like. Thanks for being

there. I felt better just having posted--then Tara responds not only that she

understands, but I made her feel less alone in Chicago. Thanks so much for that

Tara!

When I look at the whole picture, my daughter really is stronger and doing

better, but when an episode occurs, sometimes it's easy to forget.

Thanks again, everyone! Keep fighting, these kids are truly special.

<3

Terry