Re: New to the group/carnosine

[Guest guest]

Actually, L-Carnosine can be very beneficial for intractable seizure

disorders. It is thought to bind with GABA to form homocarnosine in

the brain and may also modulate copper and zinc influx into the

neurons decreasing the after-discharges and spike-wave discharges

associated with many seizure disorders. This may decrease the

frequency of clinical seizures and, in some cases, improve EEG patterns.

Kassiane, are you taking your large carnitine dosage in response to a

carnitine deficiency created by Depakote or Tegretol? Just curious :-)

> Was it carnosine or carnitine? I thought the former

> was contraindicated in seizures, but carnitine helps

> loads for some people.

>

> Kassiane,

> with her rather massive carnitine dosage

>

> --- " dlwyrick@... "

> wrote:

>

>> Is your daughter taking any medications? Our

>> daughter (PDD-NOS, 8 in April) had an abnormal EEG.

>> I suspected seizures (absence ones-zoning out), but

>> the pediatrician and psychiatrist didn't see it. Lo

>> and behold she was having them, we had just tried a

>> new medication, so we stopped it, and started her on

>> Carnosine - supplement that her pediatrician and DAN

>> doctor both thought was worth trying. It has helped

>> tremendously! No more seizure activity (normal EEG)

>> and increase in socialization AND language.

>>

>>

>>

[Guest guest]

Actually, L-Carnosine can be very beneficial for intractable seizure

disorders. It is thought to bind with GABA to form homocarnosine in

the brain and may also modulate copper and zinc influx into the

neurons decreasing the after-discharges and spike-wave discharges

associated with many seizure disorders. This may decrease the

frequency of clinical seizures and, in some cases, improve EEG patterns.

Kassiane, are you taking your large carnitine dosage in response to a

carnitine deficiency created by Depakote or Tegretol? Just curious :-)

> Was it carnosine or carnitine? I thought the former

> was contraindicated in seizures, but carnitine helps

> loads for some people.

>

> Kassiane,

> with her rather massive carnitine dosage

>

> --- " dlwyrick@... "

> wrote:

>

>> Is your daughter taking any medications? Our

>> daughter (PDD-NOS, 8 in April) had an abnormal EEG.

>> I suspected seizures (absence ones-zoning out), but

>> the pediatrician and psychiatrist didn't see it. Lo

>> and behold she was having them, we had just tried a

>> new medication, so we stopped it, and started her on

>> Carnosine - supplement that her pediatrician and DAN

>> doctor both thought was worth trying. It has helped

>> tremendously! No more seizure activity (normal EEG)

>> and increase in socialization AND language.

>>

>>

>>

[Guest guest]

Actually, L-Carnosine can be very beneficial for intractable seizure

disorders. It is thought to bind with GABA to form homocarnosine in

the brain and may also modulate copper and zinc influx into the

neurons decreasing the after-discharges and spike-wave discharges

associated with many seizure disorders. This may decrease the

frequency of clinical seizures and, in some cases, improve EEG patterns.

Kassiane, are you taking your large carnitine dosage in response to a

carnitine deficiency created by Depakote or Tegretol? Just curious :-)

> Was it carnosine or carnitine? I thought the former

> was contraindicated in seizures, but carnitine helps

> loads for some people.

>

> Kassiane,

> with her rather massive carnitine dosage

>

> --- " dlwyrick@... "

> wrote:

>

>> Is your daughter taking any medications? Our

>> daughter (PDD-NOS, 8 in April) had an abnormal EEG.

>> I suspected seizures (absence ones-zoning out), but

>> the pediatrician and psychiatrist didn't see it. Lo

>> and behold she was having them, we had just tried a

>> new medication, so we stopped it, and started her on

>> Carnosine - supplement that her pediatrician and DAN

>> doctor both thought was worth trying. It has helped

>> tremendously! No more seizure activity (normal EEG)

>> and increase in socialization AND language.

>>

>>

>>

[Guest guest]

Learn somethin' new every day. Cool. I'll need to look

into that, I think at one time it was thought it

aggrivated seizures or something but amino acids are

weird.

My carnitine dosage isn't because of my meds (that we

know of), I'm allergic to Tegretol and they don't want

to Go There with me and Depakote...I take Topamax,

Neurontin, Keppra, and clonazepam (trying to get off

the last one). AFAIK none of these has much of an

effect on serum carnitine but I tested quite low, so

my docs had me add 200mg/day/2weeks till the benefits

leveled off or I hit their ceiling (which I didn't but

I'm only like 200mg off or something).

Kassiane

--- cathylynn2 wrote:

> Actually, L-Carnosine can be very beneficial for

> intractable seizure

> disorders. It is thought to bind with GABA to form

> homocarnosine in

> the brain and may also modulate copper and zinc

> influx into the

> neurons decreasing the after-discharges and

> spike-wave discharges

> associated with many seizure disorders. This may

> decrease the

> frequency of clinical seizures and, in some cases,

> improve EEG patterns.

>

> Kassiane, are you taking your large carnitine dosage

> in response to a

> carnitine deficiency created by Depakote or

> Tegretol? Just curious :-)

>

>

>

>

>

> > Was it carnosine or carnitine? I thought the

> former

> > was contraindicated in seizures, but carnitine

> helps

> > loads for some people.

> >

> > Kassiane,

> > with her rather massive carnitine dosage

> >

> > --- " dlwyrick@... "

> > wrote:

> >

> >> Is your daughter taking any medications? Our

> >> daughter (PDD-NOS, 8 in April) had an abnormal

> EEG.

> >> I suspected seizures (absence ones-zoning out),

> but

> >> the pediatrician and psychiatrist didn't see it.

> Lo

> >> and behold she was having them, we had just tried

> a

> >> new medication, so we stopped it, and started her

> on

> >> Carnosine - supplement that her pediatrician and

> DAN

> >> doctor both thought was worth trying. It has

> helped

> >> tremendously! No more seizure activity (normal

> EEG)

> >> and increase in socialization AND language.

> >>

> >>

> >>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Learn somethin' new every day. Cool. I'll need to look

into that, I think at one time it was thought it

aggrivated seizures or something but amino acids are

weird.

My carnitine dosage isn't because of my meds (that we

know of), I'm allergic to Tegretol and they don't want

to Go There with me and Depakote...I take Topamax,

Neurontin, Keppra, and clonazepam (trying to get off

the last one). AFAIK none of these has much of an

effect on serum carnitine but I tested quite low, so

my docs had me add 200mg/day/2weeks till the benefits

leveled off or I hit their ceiling (which I didn't but

I'm only like 200mg off or something).

Kassiane

--- cathylynn2 wrote:

> Actually, L-Carnosine can be very beneficial for

> intractable seizure

> disorders. It is thought to bind with GABA to form

> homocarnosine in

> the brain and may also modulate copper and zinc

> influx into the

> neurons decreasing the after-discharges and

> spike-wave discharges

> associated with many seizure disorders. This may

> decrease the

> frequency of clinical seizures and, in some cases,

> improve EEG patterns.

>

> Kassiane, are you taking your large carnitine dosage

> in response to a

> carnitine deficiency created by Depakote or

> Tegretol? Just curious :-)

>

>

>

>

>

> > Was it carnosine or carnitine? I thought the

> former

> > was contraindicated in seizures, but carnitine

> helps

> > loads for some people.

> >

> > Kassiane,

> > with her rather massive carnitine dosage

> >

> > --- " dlwyrick@... "

> > wrote:

> >

> >> Is your daughter taking any medications? Our

> >> daughter (PDD-NOS, 8 in April) had an abnormal

> EEG.

> >> I suspected seizures (absence ones-zoning out),

> but

> >> the pediatrician and psychiatrist didn't see it.

> Lo

> >> and behold she was having them, we had just tried

> a

> >> new medication, so we stopped it, and started her

> on

> >> Carnosine - supplement that her pediatrician and

> DAN

> >> doctor both thought was worth trying. It has

> helped

> >> tremendously! No more seizure activity (normal

> EEG)

> >> and increase in socialization AND language.

> >>

> >>

> >>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Learn somethin' new every day. Cool. I'll need to look

into that, I think at one time it was thought it

aggrivated seizures or something but amino acids are

weird.

My carnitine dosage isn't because of my meds (that we

know of), I'm allergic to Tegretol and they don't want

to Go There with me and Depakote...I take Topamax,

Neurontin, Keppra, and clonazepam (trying to get off

the last one). AFAIK none of these has much of an

effect on serum carnitine but I tested quite low, so

my docs had me add 200mg/day/2weeks till the benefits

leveled off or I hit their ceiling (which I didn't but

I'm only like 200mg off or something).

Kassiane

--- cathylynn2 wrote:

> Actually, L-Carnosine can be very beneficial for

> intractable seizure

> disorders. It is thought to bind with GABA to form

> homocarnosine in

> the brain and may also modulate copper and zinc

> influx into the

> neurons decreasing the after-discharges and

> spike-wave discharges

> associated with many seizure disorders. This may

> decrease the

> frequency of clinical seizures and, in some cases,

> improve EEG patterns.

>

> Kassiane, are you taking your large carnitine dosage

> in response to a

> carnitine deficiency created by Depakote or

> Tegretol? Just curious :-)

>

>

>

>

>

> > Was it carnosine or carnitine? I thought the

> former

> > was contraindicated in seizures, but carnitine

> helps

> > loads for some people.

> >

> > Kassiane,

> > with her rather massive carnitine dosage

> >

> > --- " dlwyrick@... "

> > wrote:

> >

> >> Is your daughter taking any medications? Our

> >> daughter (PDD-NOS, 8 in April) had an abnormal

> EEG.

> >> I suspected seizures (absence ones-zoning out),

> but

> >> the pediatrician and psychiatrist didn't see it.

> Lo

> >> and behold she was having them, we had just tried

> a

> >> new medication, so we stopped it, and started her

> on

> >> Carnosine - supplement that her pediatrician and

> DAN

> >> doctor both thought was worth trying. It has

> helped

> >> tremendously! No more seizure activity (normal

> EEG)

> >> and increase in socialization AND language.

> >>

> >>

> >>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I think both carnosine and carnitine *can* cause or aggravate

seizures in some people under certain circumstances. It's just the

nature of things in the brain. So much we don't know...

> Learn somethin' new every day. Cool. I'll need to look

> into that, I think at one time it was thought it

> aggrivated seizures or something but amino acids are

> weird.

>

> My carnitine dosage isn't because of my meds (that we

> know of), I'm allergic to Tegretol and they don't want

> to Go There with me and Depakote...I take Topamax,

> Neurontin, Keppra, and clonazepam (trying to get off

> the last one). AFAIK none of these has much of an

> effect on serum carnitine but I tested quite low, so

> my docs had me add 200mg/day/2weeks till the benefits

> leveled off or I hit their ceiling (which I didn't but

> I'm only like 200mg off or something).

>

> Kassiane

>

> --- cathylynn2 wrote:

>

>> Actually, L-Carnosine can be very beneficial for

>> intractable seizure

>> disorders. It is thought to bind with GABA to form

>> homocarnosine in

>> the brain and may also modulate copper and zinc

>> influx into the

>> neurons decreasing the after-discharges and

>> spike-wave discharges

>> associated with many seizure disorders. This may

>> decrease the

>> frequency of clinical seizures and, in some cases,

>> improve EEG patterns.

>>

>> Kassiane, are you taking your large carnitine dosage

>> in response to a

>> carnitine deficiency created by Depakote or

>> Tegretol? Just curious :-)

>>

>>

>>

>>

>>

>>> Was it carnosine or carnitine? I thought the

>> former

>>> was contraindicated in seizures, but carnitine

>> helps

>>> loads for some people.

>>>

>>> Kassiane,

>>> with her rather massive carnitine dosage

>>>

>>> --- " dlwyrick@... "

>>> wrote:

>>>

>>>> Is your daughter taking any medications? Our

>>>> daughter (PDD-NOS, 8 in April) had an abnormal

>> EEG.

>>>> I suspected seizures (absence ones-zoning out),

>> but

>>>> the pediatrician and psychiatrist didn't see it.

>> Lo

>>>> and behold she was having them, we had just tried

>> a

>>>> new medication, so we stopped it, and started her

>> on

>>>> Carnosine - supplement that her pediatrician and

>> DAN

>>>> doctor both thought was worth trying. It has

>> helped

>>>> tremendously! No more seizure activity (normal

>> EEG)

>>>> and increase in socialization AND language.

>>>>

>>>>

>>>>

>>

>>

>> [Non-text portions of this message have been

>> removed]

>>

>>

>

>

>

>

> ______________________________________________________________________

> ______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now. http://

> mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

[Guest guest]

I think both carnosine and carnitine *can* cause or aggravate

seizures in some people under certain circumstances. It's just the

nature of things in the brain. So much we don't know...

> Learn somethin' new every day. Cool. I'll need to look

> into that, I think at one time it was thought it

> aggrivated seizures or something but amino acids are

> weird.

>

> My carnitine dosage isn't because of my meds (that we

> know of), I'm allergic to Tegretol and they don't want

> to Go There with me and Depakote...I take Topamax,

> Neurontin, Keppra, and clonazepam (trying to get off

> the last one). AFAIK none of these has much of an

> effect on serum carnitine but I tested quite low, so

> my docs had me add 200mg/day/2weeks till the benefits

> leveled off or I hit their ceiling (which I didn't but

> I'm only like 200mg off or something).

>

> Kassiane

>

> --- cathylynn2 wrote:

>

>> Actually, L-Carnosine can be very beneficial for

>> intractable seizure

>> disorders. It is thought to bind with GABA to form

>> homocarnosine in

>> the brain and may also modulate copper and zinc

>> influx into the

>> neurons decreasing the after-discharges and

>> spike-wave discharges

>> associated with many seizure disorders. This may

>> decrease the

>> frequency of clinical seizures and, in some cases,

>> improve EEG patterns.

>>

>> Kassiane, are you taking your large carnitine dosage

>> in response to a

>> carnitine deficiency created by Depakote or

>> Tegretol? Just curious :-)

>>

>>

>>

>>

>>

>>> Was it carnosine or carnitine? I thought the

>> former

>>> was contraindicated in seizures, but carnitine

>> helps

>>> loads for some people.

>>>

>>> Kassiane,

>>> with her rather massive carnitine dosage

>>>

>>> --- " dlwyrick@... "

>>> wrote:

>>>

>>>> Is your daughter taking any medications? Our

>>>> daughter (PDD-NOS, 8 in April) had an abnormal

>> EEG.

>>>> I suspected seizures (absence ones-zoning out),

>> but

>>>> the pediatrician and psychiatrist didn't see it.

>> Lo

>>>> and behold she was having them, we had just tried

>> a

>>>> new medication, so we stopped it, and started her

>> on

>>>> Carnosine - supplement that her pediatrician and

>> DAN

>>>> doctor both thought was worth trying. It has

>> helped

>>>> tremendously! No more seizure activity (normal

>> EEG)

>>>> and increase in socialization AND language.

>>>>

>>>>

>>>>

>>

>>

>> [Non-text portions of this message have been

>> removed]

>>

>>

>

>

>

>

> ______________________________________________________________________

> ______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now. http://

> mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

[Guest guest]

I think both carnosine and carnitine *can* cause or aggravate

seizures in some people under certain circumstances. It's just the

nature of things in the brain. So much we don't know...

> Learn somethin' new every day. Cool. I'll need to look

> into that, I think at one time it was thought it

> aggrivated seizures or something but amino acids are

> weird.

>

> My carnitine dosage isn't because of my meds (that we

> know of), I'm allergic to Tegretol and they don't want

> to Go There with me and Depakote...I take Topamax,

> Neurontin, Keppra, and clonazepam (trying to get off

> the last one). AFAIK none of these has much of an

> effect on serum carnitine but I tested quite low, so

> my docs had me add 200mg/day/2weeks till the benefits

> leveled off or I hit their ceiling (which I didn't but

> I'm only like 200mg off or something).

>

> Kassiane

>

> --- cathylynn2 wrote:

>

>> Actually, L-Carnosine can be very beneficial for

>> intractable seizure

>> disorders. It is thought to bind with GABA to form

>> homocarnosine in

>> the brain and may also modulate copper and zinc

>> influx into the

>> neurons decreasing the after-discharges and

>> spike-wave discharges

>> associated with many seizure disorders. This may

>> decrease the

>> frequency of clinical seizures and, in some cases,

>> improve EEG patterns.

>>

>> Kassiane, are you taking your large carnitine dosage

>> in response to a

>> carnitine deficiency created by Depakote or

>> Tegretol? Just curious :-)

>>

>>

>>

>>

>>

>>> Was it carnosine or carnitine? I thought the

>> former

>>> was contraindicated in seizures, but carnitine

>> helps

>>> loads for some people.

>>>

>>> Kassiane,

>>> with her rather massive carnitine dosage

>>>

>>> --- " dlwyrick@... "

>>> wrote:

>>>

>>>> Is your daughter taking any medications? Our

>>>> daughter (PDD-NOS, 8 in April) had an abnormal

>> EEG.

>>>> I suspected seizures (absence ones-zoning out),

>> but

>>>> the pediatrician and psychiatrist didn't see it.

>> Lo

>>>> and behold she was having them, we had just tried

>> a

>>>> new medication, so we stopped it, and started her

>> on

>>>> Carnosine - supplement that her pediatrician and

>> DAN

>>>> doctor both thought was worth trying. It has

>> helped

>>>> tremendously! No more seizure activity (normal

>> EEG)

>>>> and increase in socialization AND language.

>>>>

>>>>

>>>>

>>

>>

>> [Non-text portions of this message have been

>> removed]

>>

>>

>

>

>

>

> ______________________________________________________________________

> ______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now. http://

> mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

[Guest guest]

Seizures are also produce in the body by lack of taurine !!!!