Any good news?

[Guest guest]

Hi ,

Have you heard any good news yet? It might be too early - I'm so glad you spoke

to the counselor - I figured they had seen it all. They also know these kiddos

can't help it.

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> > > Thanks so much, Lee. I know you know first-hand what it's like. I am SO

grateful he is at 's because I honestly don't know what I'd be doing right

now if he wasn't.

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> > > > Oh . I don't know what to say other than just hang in there and DO

NOT loose hope. I know it's almost impossible to remain optimistic when you

don't see visible progress. I remember those days. As you said in your post, you

know that 's is the only place for him right now. Keep the faith. Thinking

of you,

> > > > Lee in CA

> > > >

> > > > Very worried, cont'd...

> > > >

> > > > I'm afraid this unfortunately may be my subject line here for the next

little while. I know that 's is the only place for my son and I have faith

that things will eventually turn around, it's just so difficult right now to see

even a glimmer of light at the end of this very dark tunnel.

> > > >

> > > > The bathroom issues are seeming to increase there, and he's still

struggling a lot with taking showers. His tics are still through the roof and

very constant and it's almost impossible for my husband or I to have a

conversation with him because he will mumble and spell half of his words. Now he

doesn't do it that much with staff or kids, but they have said he is sometimes

difficult to understand.

> > > >

> > > > I realize it's only been 10 days since he got there, and it's going to

take a while, but I wish there was at least some little sign of hope and I have

yet to see one. I'm trying to be optimistic and think positive, and I wake up

each day thinking okay, today I'll hear something, even if it's the littlest

sign of improvement.

> > > >

> > > > Tomorrow they'll be weighing him again and now I find myself being

petrified of what the scale will read each time he's weighed. He was last

weighed on Thursday morning, so I pray it's either the same or an increase and

not a decrease. His blood work came back from the blood draw he had the day he

left for 's and it looks like there is a possible metabolic issue going on,

something to do with his organic acids. I'll be speaking with his MD tomorrow

evening to go over everything, but I'm very concerned. Since he's never had

these tests before there is nothing to compare it to, but I suspect this may be

due to the Lexapro wreaking havoc with his body chemistry. I'm hoping that is

the case and that once he's off the Lexapro his metabolism can normalize and he

can start gaining weight back.

> > > >

> > > > The psychiatrist wants to keep him on the Risperdal, and phase out

Lexapro, but he wants to introduce Clomipramine while he's going off the

Lexapro. After seeing this blood work and thinking more about it, depending on

what his MD says tomorrow, I'm going to ask him to speak with the psychiatrist

so hopefully they can work as a team on the meds moving forward. I'm not a

doctor or psychiatrist, but IMO I think he should go off all the meds to clean

out his system and see how he does. The fact is that he has shown no signs of

improvement and has only gotten a lot worse since taking the meds. I realize

that could also be the progression of his OCD, but my gut feeling is that the

meds have something to do with his drastic decline and weight loss.

> > > >

> > > > Okay, here's hoping for some better news tomorrow with the weigh in!

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