: your message about p. neuropathy

[Guest guest]

Hi ,

Thanks for sharing your experience. It is good to hear, yet again,

from another woman who says she has seen at least some relief from

her

sypmtoms after explantation.

, I have not had my implants removed at this point. I only

made the connection between my implants and my myriad of symptoms

about 3 weeks ago. I have already had a consult with a PS at the Mayo

Clinic here in ville, FL. He was not sympathetic about the

issue of implants and various symptoms being related. At the time of

the consult, I didn't even know about the 'en bloc' procedure so I

didn't get to ask specifically about that. I question whether or not

he would see the absolute need to be sure to remove all debris--or

the

need for antibiotics. He told me to stop taking everything for at

least 3 weeks prior to surgery (that would be my multiple vitamin,

calcium + 'D', vita. 'E'[anti-oxident], glucosamine and chondroitin

[for my stiff, achy joints] and Excedrin with caffeine and aspirin

[for my nasty headaches--this I clearly understand because of

aspirin's blood thinning quality which can lead to bleeding problems]

The others I would debate the necessity--in fact, I think that

without

them I will lose a lot of good stuff my body will need at the time it

needs it most.)

Right now, every day of waiting feels like a week. I am going to

call Dr. Nezami's office tomorrow and see if I can't have my consult

with him moved up from May 13th. (I feel fortunate that one of the

physicians on the " recommended " list is in my immediate area.) Each

day, today being no exception, I feel worse.

I will try to keep you all up to date on what is going on. I

know

we all benefit when we share.

K

[Guest guest]

OH PLEASE BE CAREFUL don't go to any PS WHO DOES NOT BELIEVE IN IMPLANTS AND

ILLNESS, just don't do it whatever you do, this is my firm opinion and

belief, I wouldn't trust this man unless you have some really good

references that he has performed en bloc explants, have you thought about Dr

Kolb, she is in Atlanta and posts on this group, she is experienced.

I used Dr Feng, she is awesome as well as Dr Huang so think about it, at

this point another couple of weeks to get this done right won't make as big

a difference as it will if you get it done wrong.

Trust me, I have been where you are, I went back and forth with what surgeon

to use, but in the long run, I didn't care about the $$$ I came up with what

I needed and I have had good results, cosmetically and health wise,

I firmly believe that I would still be majorly ill had I gone to an

inexperienced ps who did not believe my illness even existed, who else will

take the time to care to remove everything, trust me it can be so tedious to

remove some implants, you didn't mention if yours are textured or smooth or

gel, but trust me, please be careful with your choice in a PS.

I have heard rumors that the mayo clinic is heavily funded by DOW chemical,

though I do not know it to be fact.

Again girl, you can get better, just hang in there and be smart about things

you will get well, I live a full and active life, most of the time I am

good, I still have some pain and some issues but nothing like before, and I

can usually attribute them to something I am doing wrong like eating wrong,

taking medications, etc etc.

Ok then girl hang in there.

Love

----- Original Message -----

From: " krunky11 " <semedi@...>

< >

Sent: Sunday, April 28, 2002 3:41 PM

Subject: : your message about p. neuropathy

> Hi ,

> Thanks for sharing your experience. It is good to hear, yet again,

> from another woman who says she has seen at least some relief from

> her

> sypmtoms after explantation.

> , I have not had my implants removed at this point. I only

> made the connection between my implants and my myriad of symptoms

> about 3 weeks ago. I have already had a consult with a PS at the Mayo

> Clinic here in ville, FL. He was not sympathetic about the

> issue of implants and various symptoms being related. At the time of

> the consult, I didn't even know about the 'en bloc' procedure so I

> didn't get to ask specifically about that. I question whether or not

> he would see the absolute need to be sure to remove all debris--or

> the

> need for antibiotics. He told me to stop taking everything for at

> least 3 weeks prior to surgery (that would be my multiple vitamin,

> calcium + 'D', vita. 'E'[anti-oxident], glucosamine and chondroitin

> [for my stiff, achy joints] and Excedrin with caffeine and aspirin

> [for my nasty headaches--this I clearly understand because of

> aspirin's blood thinning quality which can lead to bleeding problems]

> The others I would debate the necessity--in fact, I think that

> without

> them I will lose a lot of good stuff my body will need at the time it

> needs it most.)

> Right now, every day of waiting feels like a week. I am going to

> call Dr. Nezami's office tomorrow and see if I can't have my consult

> with him moved up from May 13th. (I feel fortunate that one of the

> physicians on the " recommended " list is in my immediate area.) Each

> day, today being no exception, I feel worse.

> I will try to keep you all up to date on what is going on. I

> know

> we all benefit when we share.

> K

>

>

>

>