Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Thanks so much, Lee! It is so nice there in Oconomowoc, and it's a great atmosphere in the facility itself. I jokingly told my son's treatment team that I'm ready to move in there!! > > , > This is GREAT news! I'm so happy for you, and especially for your son. I thought about you over the weekend, knowing you were there in Oconomowoc. I'm glad it was a good first visit. The fact that he was able to go on off-site excursions with you is a HUGE step! Thanks for keeping us all posted -- LOL, I'm sure he'd be horified to know how many of us moms are out here following along and rooting for him with you! > Lee in CA > > Update from > > Hi all, > > Sorry it's been a while since I posted. I'm very pleased to report that my son is continuing to make good progress at 's. Thank God he is continuing to gain back some weight and is now up to 116. He still needs to gain another 10-15 lbs., but he's eating really well now and not having to drink Ensure anymore. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2012 Report Share Posted June 6, 2012 Hi all, So sorry I haven't posted in a while. Juggling WAY too many things at once and finding it difficult to come up for air! The good news is that my son is continuing to show improvement and make progress at 's. He's come such a long way since he was admitted almost 3 months ago. They truly are miracle workers there! He still has a ways to go and one of the things that has been a challenge is that a big part of his OCD is keeping his OCD a secret. In other words, he's told his doctor that if he divulges much of what is driving his OCD then he'll have bad luck, so he has to keep a lot of his OCD a secret! He is starting to give little bits and pieces here and there, but he's definitely a complex kid! His tics have gone way down, thank God, and it's seeming now that his tics are more of a " ritual " than they are just neurological. I think the combination of the meds and the therapy and becoming acclimated to his surroundings, peers and treatment team, have all contributed to lessening his tics. I visited him this past weekend and his tics were really minimal. He was able to stay out with me for 8 hours 2 days in a row, which was HUGE! Granted, it was a struggle and he kept fixating on having to go back to do his tics, but with my encouragement and not enabling him he was able to push through. Next visit will be the end of this month for my son's 16th birthday! Oh, and get this.....he actually told his doctor yesterday that he's very concerned about coming home because home is where this all began and he realizes that it would be extremely difficult for him to function without the support of his treatment team and his peers. He then told his doctor that he's very interested in going to therapeutic boarding school. I cannot tell you how blown away I am at how insightful and honest he is about his concerns! We're still not totally out of the woods with the Blue Cross situation and today was the review, so I'm praying that they did not request another peer to peer and that we won't have to deal with another denial at this juncture! Last, but not least, I was SO thrilled to be a part of coordinating a performance at 's by former American Idol contestant, Dave Pittman this past Friday. Dave has Tourette's and does a lot of work with TSA. I met him at the TSA conference a few months ago and then found out he was planning to visit Wisconsin so I was able to help arrange for him to make a stop at 's to perform. He and his manager are the nicest guys ever and nearly 100 residents and staff from different programs at 's attended Dave's performance. http://www.rogershospital.org/news/american-idol’s-dave-pittman-thanks-rogers-“a\ mazing”-work After the performance, I tagged along on a tour of 's, which was awesome. It really is an amazing place and if it wasn't so darn freezing there in the winters, I'd seriously consider moving there to get a job at 's! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Thanks so much, Barb! I'll keep everyone posted. > How wonderful to read your update . Such positive things happening for you and your son!!! > > Just wanted to say the secretive part is pretty common, esp with teens. Most in our local support group have same issue. Hard to do therapy when they won't talk > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Thanks so much, Barb! I'll keep everyone posted. > How wonderful to read your update . Such positive things happening for you and your son!!! > > Just wanted to say the secretive part is pretty common, esp with teens. Most in our local support group have same issue. Hard to do therapy when they won't talk > > Quote Link to comment Share on other sites More sharing options...
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